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June
1st
I don’t seem to have a
thing to wear. Since returning from our holiday my cloths are in a real
state of un-ironed confusion and disarray spilling out in an eruption of
untidiness from the truck in the sitting room. Moreover my anxieties now
concerning what I can or cannot wear whenever I have to go out have
taken a turn for the worse. It seems as though this morning I cannot put
my hand on a single thing I can safely wear! Some garments have paint of
them, in fact most do. This is now something of which I am going to have
to be more mindful. Such laid back behavior whether born of an over
enthusiasm to paint; impatience to take precautions to protect my
cloths or from feelings of apathy is irrelevant at this point as such
behavior is now making my life more difficult concerning my OCD. Also
other unidentifiable stains which everyone’s cloths tend to pick up from
time to time present ominous scenarios that such stains arise from
toxic sources. Although such of course is doubtful and most non
sufferers would dismiss such logic if it even occurred to them at all.
But to the OCD mind any unidentifiable stain screams out it’s possible
potential to cause harm. Therefore such cloths are un-wearable
particularly if I am going out and have contact with others or even if I
am going out into the country should a molecule of such perceived
dangerous substances contaminate other creatures. I have
explained these concepts before in earlier entries.
This morning I was
particularly distraught, we have to go out and I am pressured and
stressed by my predicament. I frantically search through the muddle in
the trunk stirring up its contends with increasing anger as life seems
incredibly problematic and perverse. Such would appear to the non
sufferer to be a minor irritation, even if he or she had an inkling
concerning the reasons behind such frantic rummaging, and one which does
not warrant the tantrums that I would appear to be displaying. Yes I
feel so frustrated, so angry. It is not simply that I cannot find an OCD
friendly garment it is that my life is overwhelmed by these concerns,
anxieties, fears and delusions. These warped and illogical obsessions
and the resulting time adsorbing exhausting compulsions have destroyed
most of my life and and continue to do so.. I seem helpless to overcome
them despite my understanding of this every complex and miserable
malady, a bizarre illness which to the casual observer defies logic or
understanding. Why is it that once having required the insight and
knowledge that one's actions stem from an illness, (a distortion of the
brain's perceptions, a delusion of reality if you like), the sufferer still continues to act upon these bizarre thoughts and
compulsions that he or she hates beyond words. Yes the power of these
thoughts despite ones knowledge of the reasons remains and is not
mitigated by any rational argument or informed logic. Despite the inner
knowledge that such behaviors are irrational and most people do not
carry such actions out seemingly for me makes no difference and during the throes of
an OCD episode such logic fails to mitigate these powerful thought
driven compulsions.
June
2nd
I feel really so depressed today. I feel as though I cannot be bothered
with much of anything and all I want to do is curl up into a corner somewhere
and let the world go by. It's raining again, dull and cold. You would
not think that it is June. The weather does not help my mood. However I
would imagine that if I had a full, happy and contented life I
would perhaps not notice it, treating it as a minor annoyance. I feel as
though sometimes I cannot cope at all, it is as though everything is an
enormous struggle. Sitting here now typing this seems problematic and
the words seems not to flow. The irritation of pressing caps lock and
looking up to find all my writing in uppercase causes me such annoyance
that I thump the desk, an habitual display of frustration and anger
which is now common place as more and more things drive me crazy and
little things seen by others as minor frustrations become major sources
of irritation.
Sometimes I wander what if anything I can do to dispel the ever present
heavy weight of depression that exists permanently around my heart. One
can understand how people in times past thought that emotions stemmed
from the heart as this is were I feel all my negative emotions and all
my pain.
My son pops his head round the door and seeing my despondency offers
sagely advice: "You should see something positive in everything; in every
negative situation and circumstance there
is always something positive if only we look for it". Yes fine in
theory. I only
wish that he could heed his own advice. Unfortunately that is not often
the case although he is trying and in the last week or so seems less
deeply depressed. I think that one of the positives about many people
with OCD is that most sufferers are always trying to seek a way out of their
predicament, it is a constant striving to not only cope in a more normal
way but also to find some happiness. I and an OCD friend recently
had a conversation in which we discussed the fact that the older we get
the more urgent this appears to be and the search for some fulfilment
and relief from this dreadful malady becomes more urgent. All we want is
a little peace, some chance before it is too late to feel that our
existence affords us some satisfaction. I feel the need now desperately
with each passing day and I try to cram some positive activities into my
very crowded life that have for me some meaning.. This includes of
course this website which although relates to OCD and can sometimes
highlight for me quite dramatically just how ill I am nonetheless gives
me some satisfaction, albeit along with considerable anxiety for reasons
mentioned else where in this Blog. Art work also gives some satisfaction although of course my perfectionist tendencies
get in the way and when things go wrong with my art work, sadly this can
lead to further depression. I know how pathetic that sounds but it is
the way I am and the way my mind works and at least I am aware of this
and can try to dispel such feelings. I try to find some
activity however small during the day which I can say is positive and
has been in some way satisfying.
My profound depression in fact become more severe as I could not cope
this morning with trying to prepare some of my art work - caricatures
and flower paintings for clip art. For many reasons I am still unable to
do this. However more of the anxiety and depression arises from the
knowledge that I am not coping rather than my failure to accomplish this
task.. My ADD is so severe now that the task of doing this work with my
graphics is impossible due to the disorganised confusion that exists
within the filing system of my computer. My graphics files in various
stages of preparation are spread over two desk tops, in various folders
and sub folders. There are even folders called organised graphics and
then when they have got muddled yet other folders were created and
called more organised graphics, more organised clip art, clip art for
cards and so and son on. What a muddle and the thought of the incessant
changing of desk tops adds to the frustration. At least my son finds it
comical and I guess from the perspective of others it is and often in
retrospect even I cannot fail to see the funny side of my predicaments
and idiosyncratic eccentric behaviours. Often in retrospect many OCDers
can see the funny side of their behaviours and most of us have a sense of
humour. However when we are in the throes of our emotional pain when our thoughts torment us
and our compulsions exhaust us our situations seem anything other than
amusing.
Half completed work that I seem to have forgotten impossible now to
prepare further worries me and angers me that I am now soooo
disorganised and forgetful. It is indeed frightening and anger provoking
to be reminded just how absent minded, forgetful and disorganised I am,
the frustration of my life is quite significant and depressing. There
are those who believe that depression is suppressed anger. I don't know
how true that is but my frustrated tantrums of banging on my work
station do little to relieve either the pent up frustration or the
anger.
I spend two hours going round and round in circles trying to
create some order out of the chaos and ruminating upon the passing of
time and how much of it I have wasted as eventually I abandon this
endeavour. The good news is that a walk round the university gardens in
our locality helps me to gain a more positive perspective and detracts
my mind from my preoccupations and my mood lifts somewhat.
June 7th.
When the disease is know it is half cured.
Erasmus Colloquies
Well it’s been
about four days since my last entry and at the time of writing I have
not published it or any entry which I have written for this month or
since the 27th May. As I have explained before I cannot publish daily as
it takes me several days to check and recheck because of my OCD however
during the last five days I have written nothing in my journal. I
admit freely to feeling very depressed lately and a spate of three
migraine in three consecutive days and also an increase in the frequency
and intensity of tension headaches has been part of the problem. This
has driven me just crazy along with the more day to day irritation and
indeed outright anger concerning computer problems: the need to
reformat, the fact that my smart restore does not function properly and
various other problems of which I will not bore you as most people are
not much interested in the perverse working of the computer. A session
with technical support last week had quite a bad effect upon my
headaches as most intense phone calls tend to when my attention has to
be focused. Anyone who has read my ramblings knows I do not like talking
on the telephone.
I have also felt
lately that perhaps no one reads all these rambling hypergraphical style
entries and I wonder if indeed it is worth pursuing. Although I get some
satisfaction from this and hopefully something I have said somewhere
along the way will be of use to others..
I have had
a couple of rather negative comments about my writing recently
concerning the rambling nature of everything I write. Not from anyone on
the net. These comments were made with the best of intentions
nonetheless such comments bring with them doubts, doubting of course
being a significant problem for the OCD sufferer. Someone said it might
be an idea to take a writing course to improve my ability to be concise
and get to the point. Any writing I do is long winded, from letters to
the factory complaining about the noise, letters to friends, business
letters and so on are all long and rambling and very detailed. And yes
obsessive compulsive inasmuch as my writing reflects my anxieties that I
will not be understood, that I have not got my point across and so on
and on and on, like my writing itself the reasons are endless. For these
reasons a writing course would not help me to be more concise as I am
sure that my tendency to write so much arises mostly from my OCD.
Hypergraphical
writing can also be a symptom of front lobe epilepsy. Although I do not
have this illness my grandfather did. Sometimes I wonder if it is
possible to inherit just parts of a genetic illness. Crazy idea I
know but I sometimes have all sorts of symptoms which are part of other
illnesses yet because all of the symptoms are not present I can never be
certain that I have the condition in its entirety. And here in the UK it
is so difficult to get a diagnosis for certain types of illness were
there is no definite pathology so I doubt I will ever know for certain.
I know of course that I definitely do not sufferer with epilepsy but
there are a number of other conditions from which I believe I may I
suffer co morbidly with my OCD - at least it appears that way to
me. One of them is ADD. Yes I most certainly have ADD, a condition that
often exists co-morbidly with OCD.
Also recently I have been
giving great consideration to a condition which can also exist co-morbidly with OCD, some of the symptoms of which answer a lot of
questions for me concerning my difficulties with social interaction.
This condition is Asperger syndrome. However I do not have all the
symptoms but nonetheless a significant number of them. It is also my
understanding
that sufferers of OCD may present with some traits of not only Asperger
syndrome but other autistic spectrum disorders. As I find out more I will share with
you my experiences. I think it is important to be aware if one is
suffering from other conditions in addition to OCD as of course such effects our OCD, it's
prognosis and our ability to cope or otherwise. It is my opinion that
any condition existing co morbidly with OCD should be diagnosed and
taken into consideration whenever any treatment is proposed.
Such
concerns on my part of course may simply be some form of OCD obsessing
as one can obsess and ruminate about almost anything. If anyone with OCD
reading this is in a similar situation and considering a similar
possibility please write to me. There is very
little upon the internet concerning the double diagnosis of OCD and
Asperser syndrome. I definitely of course have OCD and this is my
primary condition, anyone reading my
memoir will be in no doubt of this and I had
no difficulty getting a diagnosis of OCD. But I imagine I will meet with
considerable opposition if I approach any mental health professional for
an assessment for Aspersers. Mostly I think they imagine that it is not
at my age important one way or another. Well they are wrong. Most people want to
know why they suffer the way they do and sometimes just knowing can be
so liberating as somehow the reason why helps us to move forward. I am
particularly effected by my inability to interact normally in social
situations. My inability in this regard has made my life as a sufferer
of OCD an even more difficult problem and may have been one of the
reasons I have been unable to get satisfactory treatment.
Social
inhibitions are not in themselves a symptom of OCD and until recently I
have put my problems in this regard down to social phobia despite the
fact that my social hang-ups do not really fit the symptomatic criteria
for social phobia, Nonetheless having said that the phobic part
comes into play as one indeed becomes most anxious and fearful when
having to meet others when time after time one encounters difficulty and
rejection when my awkwardness is noticed. However the criterion
for the most part concerning my problems with social interaction fits
more closely to the diagnostic criteria for Asperser syndrome than for
social phobia although a couple of other symptoms really do not fit, for
instance the symptom concerning a lack of empathy. Too much empathy
although mostly empathy concerning the emotional pain of another is
for me a significant problem. I will never really know if I have either Asperger Syndrome in addition to OCD or merely just traits. In fact I
may be barking up the wrong tree altogether. Ummm yes if I had Aspergers
I would of course take that last statement literally. Or would I ? Of
course as an adult I would by now have learnt what all such metaphors
mean and I can of course recognise a metaphor even if I do not know what
it means such as the common phrase nowadays: grass roots. I have no real
idea what this relatively new expression really means precisely although
I think it means going back to basics such as in the the phrase "at
grass roots level". It is however quite certain I know that the phrase
has nothing whatsoever to with grass or its roots in a literal sense.
Well time will tell if I have Asperger syndrome in addition to OCD or not and if I can get
a diagnosis rather depends on finding someone who will consider the
possibility.
The National Autistic Society -
Home.
Asperger's Syndrome
June 8th
You never really lose
until you stop trying.
Mike
Ditka
Sometimes I feel as though I cannot do anything, say anything or
indeed as is the case right now write anything with out the OCD getting
in the way. I have just spent the last half an hour or so preparing an
entry for today only to have to delete it due to my OCD anxieties that
what I have written may cause harm to some one even just by hurting his
or her feelings. One of the mistakes that I have made was to tell a few
people that I know personally about this website. Yes there are only a
few people most of whom have known me and have known about my OCD for a
long time. Nonetheless this was a mistake as there are occasions when I
feel as though I cannot write something as such may cause them some hurt
or offence and also I feel too exposed as often someone will comment
upon something I have written here and of which I have not told them.
This is inhibiting the natural flow of some of my entries and I regret
having shared this part of my life with people I know personally. This
and other torments of a similar nature have been particularly
problematic lately and I wonder if I am ever going to be able to publish
my recent entries. This rumination drives me crazy and is a very
incapacitating part of my OCD: this awful fear of causing harm in some
way or another is one of the most profound torments of my OCD.
People with OCD are people pleasers, we like to please everyone. Such
of course is impossible, how does that saying go now: You can please
some people some of the time but you cannot please all of the people all
of the time. I wonder who said that. I could look it up in a
search engine but such is so time consuming and rather obsessive
compulsive I guess, so as this saying is so familiar for once I will
skip this detail. It is of course impossible to please everyone and
often most people may inadvertently say something that will hurt another
despite our best intentions to do otherwise. I really feel so anxious
and frustrated that I will never post all of these entries made since
May 27th. Oh the pain that OCD causes is not to be underestimated. It is
there in every action we take, every thought we think and today I feel
truly so weary of it's continual torment. I had something positive I
wanted to share with you today but I cannot due to the concerns
mentioned above the frustration is driving me crazy. I know such anxieties
are over the top but they are so powerful and the feeling that I have yet
again given into them is depressing. For you see with OCD you can never
win. Whatever you do and whatever decision or action you take you can
never find peace as your mind turns your actions against you. If I post
entries which I feel will hurt someone, even though on a deeper level I
logically know they will not, I will feel guilty and worry myself sick.
Conversely however if I do not publish and give into the OCD tormenter
and allow it to have it's own way I also feel guilty and depressed
because I given in to this torment. Moreover the anxieties that haunt me
because I cannot give an accurate account tend to make me feel guilty
and inadequate because sometimes whatever it is I have given into
may actually bring about some good to others so its a no win situation.
Now I am going to check this entry, publish it along with all the entries of
which I am ruminating upon and try and forget them. As the day wears on
other OCD issues along with the daily concerns and frustration of life
including my illness will eventually focus my attention else where. And
of course if I really freak out I can remove any worrying entry. This I
call the back door approach. I can sometimes do things I am afraid to do if I have a back door option, in other words if whatever I do is not
irreversible and the action I take will allow me to change my mind at
any point. Difficult to explain easily perhaps another time I will try
to be more explicit although I am sure you know what I mean and my
doubts concerning the adequacy of this explanation arise from OCD
doubting that I have clearly explained myself, but if I do not publish
soon I won't publish again today again for practical reasons never
minding my OCD as I simply will not have the time.
June 9th
Courage doesn't always roar. Sometimes courage
is the quiet voice at the end of the day saying, "I will try again
tomorrow."
Mary Anne Radmacher
Well I still have not published the above entries I really really am
having great difficulty this time round. It is as though my OCD has life
of it's own. It's goal is to destroy each and every endeavour that I
undertake, each pleasure I enjoy, indeed any and every aspect of your
life it will take way from you if you do not try and resist. When I
first started my website things went quite well - at least compared to
now - with regards to my writing and publishing despite a considerable
amount of torment of the kind I have described in the above and previous
entries. Now however the torment grows and for each and everything I
write my mind is invaded and tormented by intrusive doubt ridden
thoughts, thoughts so powerful that my ability to keep this part of my
web site going has become increasingly more and more difficult. It seems
that even the most innocent of entries takes on ominous possibilities of
dire consequences - at least according to my mind, my beleaguered OCD
mind. If reader you suffer with OCD you will know where I am
coming from. You will empathise as you know the torment. OCD has taken
most of my life. It has taken my pleasure in walking in the country, by
the sea, in the street even, it has taken away my ability to work, to
learn, to concentrate to think and behave rationally. It has spoiled my
relationships with people, my relationships with other creatures - well
I could go on the list is endless, this is no exaggeration; there is no
aspect of my life that OCD has not tried to take away.
Most people do not understand the torment. No indeed, even those
close to us have no real idea concerning the insidious and pervasive
nature of our torment. My family can see when I wash my hands; they can
hear the incessant rumble of the washing machine when for the umpteenth
time I decontaminate that ragged old skirt made thin by continuous
washing; they know when I have another shower after going out when a
contamination incident has occurred; they observe the checking rituals
that make going and about a real irritation for them but they cannot see
the torment from within. They are not able to observe the more
covert insidious side
of OCD, that part of the illness of which you feel that no one will ever
really understand as the fears are so difficult to explain and there is
no evidence of the torture that you endure. My family do not know my
torment concerning my writing. They know I write copious amounts but
they are not aware of the difficulties I have and the torture of
ruminative and intrusive thoughts which cause me to check again and
again. Nor do they know the trauma of clicking the publish button as my
mind struggles against a maelstrom of fearful doubts .
Most people, but by no means all, will perhaps understand to some
small degree the torment and exhaustion of continually coping with the
compulsions to decontaminate, the endless washing and so on. They may
observe your sore sometimes cut hands, your rather worn over washed
clothing . Many people also have some empathy with the checking of locks
and the removal of plugs from sockets for example, but the inner torment
few seem to notice or understand. They may sense that something is
wrong, but maybe not, even if there are overt signs they are perhaps
too subtle to be noticed.. My husband had no idea concerning what was
happening to me when my OCD first became full blown. He appeared not to
notice or ask why I was only eating certain foods at certain times of
the day, why I did not buy new clothes, books, makeup and so on such
behaviours could easily be seen as normal. We were very poor when we
first got married, he would probably have assumed that such was the reason
for my abstentions. He would not in his wildest imaginings realise that
such behaviours were born from a severe form of religious OCD. Neither
he nor I had heard of OCD or obsessional neurosis as this condition was
called in those days in the early 1970s. He did
not know I did not eat certain foods or buy cloths or makeup because I
thought that by denying myself these pleasures I was preventing the
possibility of death by placating God. He could not see into my mind;
such ridiculous notions simply would not occur to him. This behaviour
went on for months. he had no idea of the torment of my religious OCD
concerning either the intrusive blasphemous thoughts, nor the incessant
praying. He had no idea why I put the cutlery on the plates rather than
the table. It did not occur to him that I thought someone would die if I
put the cutlery on the table. The only thing he knew was the reasons why
I clasped on the floor screaming and that was simply because I had told
him that I had the notion that I was going to die. Few even those close
to us know the torment and the pervasive nature of OCD.
Notwithstanding my checking and
ruminating/ doubting difficulties with writing I will try to continue. However I would just like
to say that I hope that whoever
reads this will understand why this blog does not follow the normal
guide lines for daily entries or short entries or any other normal
behaviours for that matter. For you see for every action and undertaking
I am never able to do anything in quite the way a normal person can.
Besides such gives anyone who reads this an idea of what it is like to
suffer from OCD: the fact that my entries do not adhere to normal guild
lines and are delayed is simply because I suffer with OCD and right now
I am having a very difficult time with this particular aspect of it,
June 10th.
I simply cannot
face going into a pub which I have never entered before. Increasingly now
I am becoming more sensitive to external stimuli such as noise and
crowds. Today it was very awkward. My husband, brother-in-law and I went
for a trip to the Yorkshire Dales. It was nearly three in the afternoon
we had passed many pubs, all appearing gloomy and dark, most having
changed little in decades. I am beginning to feel anxious about entering
pubs or cafes of which I am unfamiliar fearing my inability to cope with
crowded and confined places. The scruffy dated atmosphere arises within
me contamination concerns although I am sure that such is unfounded. Yes we
could have sat outside but the weather was chilly but at one particular
pub there was quite a crowd outside also despite the inclement weather.
I felt awkward making an excuse - well it really was not an excuse, I
simply said that it looked poky confined and overcrowded. We finally
ended up at our usual teashop quite late in the afternoon for a hurried
cup of coffee the time having slipped away so quickly.
Such things as
noise and crowds and strong smells are becoming quite a problem yes I am
effected by such sensory stimuli more so than the average person and
such is becoming more and more of a problem. It is as though I am
regressing back to my childhood days when according to my parents I
would scream in the street because of the volume of passing traffic and
other street noises which in those days were not at the levels they are
now. This I believe was indeed a significant problem for which I
received sedatives. I cannot recall screaming in the street but remember
the vile tasting sedative.. It feels as though such sensitivities are
returning and in full force. Loud and sudden noises present quite a
problem and the response to cover my ears as once again I feel as though
I am at the point of screaming. Yes I will go to the cinema but coping
with the noise is extremely difficult as is the continuous noise which I
am subjected to every where you go nowadays, the latest is a large chain
of chemists.
June 12th
As I sit here this
morning I can clearly hear the low frequency hum emanating from the
factory in the village. It has become louder now and more persistent. In
recent months it has been less intrusive and there have been some hours
during the day and occasionally at night when I could barely hear it at
all. And on the occasions when I did the noise was easily masked by
playing a CD, one of many sounds of nature recordings purchased for this
purpose. Yes not an ideal situation and such causes me some considerable anxiety as I
do not like to leave electrical appliances on over night, nor do I like
to leave the plugs in their sockets over night particularly the
stereo plug in case of fire. Each night I remove all plugs except of
course the refrigerator. So I am not happy at all to have to do this but I have no choice I either have to be
tormented by the low frequency hum or worry about the possibility of a
fire. I am angry and frustrated. I know that this firm has done it’s
best to locate the cause of the noise and have spent some considerable
money trying to do so unfortunately without successes. They wrote to me
and said they could do nothing further. Although I appreciate their
efforts and they have always been most amenable even when I have left
agitated messages on the answering machine and wrote several of my hypergraphical letters.
Notwithstanding
such efforts I feel so angry, this noise and the stress and sleepless
nights it has caused has been detrimental to my health. I am tried,
exhausted by nearly three years of sleep deprivation. I am not of course
saying that all my sleep problems are caused by this noise problem
however it started at this time and of course my sleep problems are
made more difficult by the presence of this noise. Furthermore I am
angry, as it seems that I have no rights in the matter, the local
council department who handle noise complaints tell me that the noise
levels are acceptable according the World Health Organisation's
criteria. However such assessments are measured in decibels and as such
a low frequency noise cannot be measured. It is simply not that loud but
is nonetheless a noise nuisance and different criteria should therefore
be formulated to measure such a noise. Low frequency noise is a
detriment to health. I have read government issued information stating this fact
yet the council will only assess noise of a high frequency. I have no
legal recourse whatsoever.
It is like the
continuous sound of one note of music, persistent, pervasive and
intrusive, it penetrates it torturous sound through my stone walls of
one and a half feet thick! When it is at the level it is at the moment
it cannot be masked by the use of the aforementioned CDs. A considerable
volume is necessary and would disturb the neighbours who appear not to
hear or are not affected by the low frequency hum. I know that I am
very hypertensive to noise nonetheless the noise is clearly audible in
the street and I rather think quite honestly that either my neighbours
are deaf or plain apathetic. I am
exasperated by such complacency they seem to accept that it is perfectly
okay for this factory to make this noise twenty four seven every single
day of the year.
Even if by some
quirk they could not hear the noise inside their homes surely they can
hear it in their gardens. Yesterday morning it was a glorious warm
morning I would really have loved to have sat outside and had my morning
coffee but no all you can hear is this low frequency hum. This afternoon
as on most Sundays it is pleasant to sit in my garden it is the only
time now we all get in the week to take it easy and relax but no I am
driven inside by this insidious hum.
The whole situation
is becoming increasingly intolerable and exacerbates my depression.
Sometimes I wonder if I can ever have anything really good happen or if
anything I do will ever work out well. I regret ever moving here, why oh
why did we buying this place We were very pressured to buy something due
to the necessity to vacate our previous home after completing the sale
legalities a long story and one I will
not bore you with. The views here are really pleasant and to look from
my window and see the fields and hills in the distance was one of the
attractions of this property. And with the light that streams in through
the large windows after years of living in a small dark house it seems
as though we had found our ideal home. I knew of the factory of course
but as it seemed quiet on the day we visited to view the property and on
several other occasions we gave it little consideration. So here we are
now and I feel so trapped too ill to move again.
Sensitivity to
such things as noise is I admit becoming more of problem however in this
case I am justified to complain.
June
14th
I would just like to say how pleased I am that
justice has prevailed and Michael Jackson has been found not guilty, of
course for a significant number of people there was never any doubt. No
I am not a fan of Michael Jackson, pop music is not really being my cup
of tea, although I recognise his significant talent.. However it appears
to me that he is a sensitive rather anxious person and I felt deeply for him during this all ordeal. It should not be
necessary for me to say this but obviously the above is my opinion and I
of course recognise that others may see things differently as they do in
any situation. Technically speaking of course when writing one's
opinion one should not use the phrase "in my opinion" as such is obvious
- at least that is what I was taught for O level English. However
the addition of the phrase "in my option" makes whatever statements we
make appear perhaps less arrogant. Perhaps I should not give an opinion here
on this particular situation in any case as it is
rather like talking about religion in a way. I have noticed amongst my
few acquaintances a certain hesitation in giving an opinion about this should it
precipitate the type of debate in which one ends up in a serious argument
similar to the way one can when involved in political or religious discussion.
Also in connection with the above I strongly feel
the need to mention that it appears to me that Michael
Jackson is often singled out simply because of his different eccentric
life style, at least eccentric compared to more usual life styles, no I am
not going to say normal lifestyles - who lives a normal life style. What
is normal. When talking of such issues I like the term neurotypicals, an
expression used in autistic circles when describing others whose brains
function in the more usual way. I like this term when describing
the more common, bland and mundane individuals of our society often
referred to as normal. Sorry if that sounds a little resentful however
as a sufferer of OCD and other maladies both diagnosed and otherwise I may
appear eccentric and I have grown rather weary of the prejudices of
others. In an earlier entry in January you may read an
experience I had once when I was
described as a peculiar lady. I get rather annoyed when I hear people in our society, who are
different by comparison to
perhaps most of it's members, referred to as: weirdo, wacko, fruit cake, fruit
loop psycho, loony tune and so on. Such derogatory expressions as,
off his trolley, two sandwiches short of a picnic, not working on all
four cylinders and many others such expression are all too common place
and are apparently socially acceptable. Why is it okay to use such
derogatory terms when speaking of anyone with a mental illness or anyone
who is different - you do not of course have to have a mental health
problem to be eccentric. Why doesn't political correctness apply
to such terminology aimed at the mentally ill and anyone who is
different -yes that is all an eccentric is, someone who is different
from the run of the mill. You know the above was
quite a list wasn't it, a long list of derogatory and insulting terms
aimed at people who suffer profoundly within our society. These are vulnerable
people whose lives have been destroyed, their hopes
and dreams dashed, people whose minds are seemingly not their own; people who are tormented each and everyday in ways that those who do
not suffer such maladies cannot begin to know, it is time society
accorded them some respect..
It is surely time that political correctness was
also applied to the mentally ill. There should be equality and respect
accorded to all members of society, all of us have something to
contribute. The following is
a short list of all those who have suffered from some mental health
problem or neurological condition and who have contributed to
science, the arts and other areas of social enhancement : Howard Hughes,
OCD - advances in aviation, film producer ,entrepreneur. Tchaikovski, bi
polar disorder (manic depression) - composer/musican. Charles Dickens, OCD
- writer. Samuel Johnson, OCD - writer. Charles Darwin panic disorder -
Scientist, theory of
evolution. Vincent VanGogh bi polar disorder (Manic depression) - Artist.
John Forbes Nash Jr ,schizophrenia - mathamatician. Friedrich Nietzsche,
philosopher - OCD and Asperger syndrome.
Virginia Woolf, , bi
polar disorder (manic
depression) - writer. Albert Einstien, scientist - Asperger syndrome,
ADD . Woody Allen, actor - OCD. Leo Tolstoy, bi polar disorder
(manic depression) -writer.
That is an
extensive list and I could go on. Society has been enhanced and enriched
by all these people and many many others who never become famous but who
have nevertheless contributed in some way. So isn't it time society had
more respect and indeed appreciation for the mentally or neurologically
ill and indeed for anyone who dares to be different.
A selection of links to websites
concerning famous people with mental health problems:
Famous People And Disorders: Healthy Place.
Famous People with Mood Disorders
This morning I have another violent headache and I
need to break off from writing right now. Another migraine most
likely I had one yesterday in the early hours. It is frightening and
exhausting. If I did not have my medication I do not know what
would become of me. I may come back to this subject another time as it
is one that I feel quite strongly about.
June 15th
What a glorious sunrise this morning, its just
after 4.am.Yes I know the old saying : red in the morning shepherd's
warning and no doubt this early morning's weather will deteriorate later
on into another dull cold and dreary day which makes coping with my
difficult life harder. Yesterday's headache developed into a migraine and
today I have another severe headache and feel at my wits end. No I do
not mention these headaches to solicit sympathy merely to tell you what
my life is like for me and for others like me, although of course
everyone with OCD does not have chronic daily headache CDH and migraine but many
do and it is an added burden to our misery as it brings with it its own
set of obsessive compulsive behaviours not to mention appalling pain.
This week my family and I have been in the throes
of decorating. Now without my migraine meds such would of course be
impossible so you can understand that my fear of not having this medication
is considerable for without it my life would not be worth living. This
concern for some reason or another presents it's own set of anxieties and
intrusive thinking, such as checking constantly that I have my
medication when I am out and so on. Just too many worrying
thoughts to explain in full here, perhaps another time, suffice it to
say the fear of not having this medication is considerable to the
extreme.
Decorating was exhausting and stressful. It always
has been with endless washing compulsions and fears concerning the use
of toxic chemicals: I cannot clean my brushes and throw them away I am
fearful of using toxic substances such as Turpentine and other products for
this purpose. Flushing such products down the sink is damaging to
the environment. It is hazardous to aquatic creatures and to the our
water ways in one way or another. This is what it tells you on the
bottle. I want to know how you can clean your brushes without it getting
going down the drain and into the environment. I have no idea so I do
not use such products instead throwing the brushes away which of course
is a costly business I know. I try to use water based paint when at all
possible which only requires water to clean the brushes but such paint
only peels off the woodwork.
My husband keeps saying he wants to get some
turpentine but I fob him off. One of the brushes will have to be thrown
away in any case as it will have painted a contaminated area near the
radiator which was exposed to a leak. I have to paint this area last
when all the other painting is done. If I do not and put the paintbrush
back in the pot after painting this area I will of course become anxious
that by doing so I will spread the contamination further. Moreover I
cannot throw this brush out in the bin as I am afraid it will
contaminate other people and other creatures in the way I have mentioned
in previous entries. The brush will be wrapped up and stored
somewhere out of the way along with a rusty craft knife which I think
may cause someone to be harmed if they accidentally cut them selves on
the rusty blade.
It was a difficult day and anxieties about throwing
away toxic substances and causing harm was worrying to say the least.
Yes life is complicated for those of us who suffer with OCD everything
we do we analyse and worry over. Sometime I just feel like giving up and
not doing anything at all.
Wallpaper paste causes so many anxieties. It is an
antifungal paste and this of course worries me. I hate using
anything toxic. All in all decorating was a nightmare and I do not think in retrospect that
either I nor my family are really up to such tasks any more. For
various reasons all of us have problems which concern our mental health or lack thereof.
Some difficulties concerning my son seem in the nature of OCD. Today was
day two and by its end I was frantic with fatigue and hung the wall
paper up any ole how, lumps tears and all. All I wanted was for it to be
over, it will be a long time before I can decorate again. By the end of
the afternoon I was virtually in tears I am now left with piles of
washing, heaps of tea towels used to dry my hands after frequent hand
washing. Often if I am anxious that my hand towels are not clean I will
grab a fresh clean tea towel from the cupboard or a paper towel which by
now on the second day we had ran out of.
In retrospect our decorating could easily have been
included on one of those TV programmes Britain's worst DIY er. I recall
my mother also could not cope with decorating, her philosophy was "what
does it matter as long as it is clean". She did not have the patience to
bother about lumps in the wall paper and so on. All she wanted was
for the job to be over and done with and as long as her kitchen or
whatever looked cleaner than that was all that mattered, and in the end
that is all that matters. And yes it does look much cleaner and these
jobs have to be done despite the fact that I have neither the mental
health nor the energy but it will be a long long time before we decorate
as we are all just too ill.
The dilemma and the torment here however is that
leaving things to deteriorate is of course anxiety provoking and despite
ones exhaustion - an exhaustion borne from stress and other illness -
one somehow has to rise above it as I cannot withstand the torment of
feeling my home is dirty. However one is never satisfied, OCD is a
relentless tormenter and when one has given in to the compulsion to
decontaminate this or that or check this or that, whatever the
particular compulsion it is, it is never satisfied, it is never enough.
It wants more and more, it is constantly demanding. The intrusive
thoughts return again and again with new and more exhausting torments,
obsessions that precipitate an endless round of compulsive behaviours.
These thoughts will not be silenced until one has compiled with their
demands. It takes great determination and indeed courage to ignore them and when you
are really so ill with OCD such seems impossible.
Rather like a compulsive gambler, the more he gambles the more he is
compelled to continue gambling. Once is never enough, twice, three times,
nothing is ever enough. And so it is for the obsessive compulsive. You
begin by washing your hands once because they feel contaminated, hey you
do not even question why you feel they are contaminated. You have
perhaps touched something your friend has touched. She owns an animal.
For some time now you have the notion that you might get rabies
from merely touching an animal, so now you wash your hands after touching whatever
it is that your pet owning friend has touched. You do this because
you now have the
idea that you can contract rabies by touching something a pet owner has
touched. So now you wash every time she touches you or touches something
of yours. And now most bizarre you are washing your hands after merely
reading the word rabies! Except of
course at first you do not think it's bizarre. In the beginning for me
there was no insight until my contamination , religious and
checking OCD become overwhelming.
As time goes by the washing obsessions in themselves
become increasingly more complicated. Eventually you are not even
thinking about rabies or legionnaire's disease or whatever disease you
are were worried about, you are now so preoccupied that you are
complying with all of your compulsions to wash and that you are
doing so correctly that you have little time left for the whys and
wherefores.
Gradually the compulsions grow from washing your
hands to for instance washing the tap: now when you wash your hands you have to wash the
tap afterwards to avoid re-contaminating your hands. You do this
automatically like some kind of natural progression. Than for some notion or another you feel that
the towel is not clean so you wash your hands again and get a fresh
towel. But the handle of the of the cupboard where you keep the clean
towels is contaminated, you may not even recall why, so you wash your hands again, and the taps of
course, before removing the towel otherwise the towel will become
contaminated because you have touched the door handle and than touched
the towel. And so it goes on and on like a chain reaction one
contamination event leading to another and another and so on
This is how OCD grows. It is
subtle, rarely starting abruptly - at least not in my case. Often you do
not know you have a problem, although you know that your are miserable
and anxious, until you life is quite overwhelmed by the
need to be involved in obsessive compulsive behaviours.
June 16th
It's
another... of a migraine. Words which are
not printable should be entered here. Words which at one time would have
filled me with absolute overwhelming anxiety. Yes intrusive four letter
words would freak me out big time and they still do if they turn up
mixed up with intrusive blasphemous thoughts, and as I sit here having
been reminded of them by writing the above I am trying to fight the
intrusion of such thoughts. However simple every day four letters words
as long as they do not occur with irreligious thoughts are no longer a
problem. My OCD has moved on to pastures new for a change of strategy
and new horizons of torment. At one time I could not read a book that had
a four letter word included in any of the text. I am still not keen mind you and would prefer that
they were not included in literature, in films and on TV. But now when I
get mad I can actually curse and swear as good as the next man or women
without even thinking. Odd about swearing though when I swear now it's
okay but when others do it I cringe thinking how awful it sounds and I
guess it does. Its a pity that more life destroying obsessions and
compulsions such as contamination checking and ruminations would not
ease up and become less anxiety provoking and give me more freedom to
live a normal life. Sadly this is not the case. My contamination OCD is
getting in fact worse and it is the most difficult and restricting
aspect of my OCD, it is exhausting frightening and incapacitating.
This morning I have to go for a blood test for a
routine check. It will cause enormous decontamination OCD rituals:
showering, changing and so on. Huge contamination anxieties of which I
gone into detail in a previous entry.
Last night was difficult enough. And after another
exhausting day of finalising the decorating I am shattered. After
showering I am left with getting in the washing which is hanging in the
yard in a vain attempt to get it to dry in this bizarrely cold June.
Usually my husband does this task but he is preoccupied elsewhere. I
simply cannot cope with this chore involving as it does so many checking
obsessions and compulsions. Only the lighter weight clothing is
dry despite the fact that some of it has been hanging out since 8am ! It
will need to go into that useless tumble dryer. An exhausting job of
checking and rechecking. For what you might ask? Partly to check that it
is still clean, perhaps a bird has left it's mark or some air born
particle of unknown origin has contaminated my wash. Yes of course all
of the above, all the typical OCD anxieties come into play here and of
course cause concern. But there is something else, something that may be
unique to me. Every OCDer has his or her own unique obsessions that
fires their compulsions. I have to check the washing to make certain
that no insect such as a fly has settled on my washing. No the main
concern is not contamination here, although of course this is a
consideration. I am in this instance anxious that when I put the cloths
into the tumble drier I will kill small insects that have settled on my
washing. As those of you who have been reading my Blog, my memoir
or my
Shorter autobiography
My story
will know I am very anxious about harming
any living being and that includes insects.
So there I was last night struggling to sort
copious amounts of washing, two loads, checking it minutely for tiny
insects. After putting it into the dryer the thoughts come tormenting me
that I did not check it thoroughly, so there I was checking all over
again. Also my inability to decide which cloths are dry and which are
not add a dimension of misery, anxious thoughts present telling me that
damp cloths breed germs and will have to be washed if put away damp. If
they are put away damp this will cause problems later on, for instance
when I go to use a towel after showering. If it smells damp or odd in
any way I am compelled to shower all over again so I have to be
sure the cloths are dry. This takes ages of feeling each garment plagued
by indecision, is it, isn't it dry.
Finally every item gets sorted. I am tense
irritable and tired, oh so tired. I complain to my husband. We squabble.
I need help with such sorting procedures. Okay it's technically speaking
enabling but its an awesome task alone. It takes so much longer alone as
I could keep on and on checking. Yes I have to check for creatures the
thought of harming another living being is abhorrent to me, there is no
way I cannot do this checking, no way. Such considerations for
the right to life of all creatures is part of my philosophy and such a
procedure would therefore in my case perhaps be considered normal.
However only once would a normal person check, not again and again and
with fear riddled obsessive compulsive over-the-top thoroughness. It is
not what you do but its the reason that you do it and the anxiety it
causes. If whatever you 're doing is causing you anxiety and you feel
compelled to do something you would rather not do and deep down you know
it is not normal than it is a problem.
In a more usual context to which every one can
relate lets consider a common checking compulsion: checking that your
door is locked. This is a very common compulsion and I have this
compulsion along with most OCD sufferers. When most people who do not
suffer with OCD go out they of course lock the door. After turning the
key most people will turn the handle just once to check it has actually
locked. However once this is done and you are satisfied you will walk
away without another thought. But if you have OCD this simple security
procedure which every one carries out with out much thought will be
carried out again and again. If you have OCD you may return time and
time again to turn the handle to be certain it is locked. You may rattle
the door handle, even push the door but still you doubt you that have
locked it. Although you may have walked several yards down the road,
tormented with doubt you return to check again for the umpteenth time.
Finally over time your door handle may become loose, you door may
begin to fall a part damaged from the persistent opening, closing
and banging it shut.. Yes indeed you may actually return open you door
and bang it closed with great force, so severe are your doubts and so powerful
are your compulsions. This happened to a friend of mine many years
ago. You may even return after travelling all the way to Dorset from
Sussex as did another OCDer I knew of just to check that the door was
locked even though he had previously checked countless times before, his doubts being just too powerful to resist.
This is why I need support when such tasks are
undertaken. If I were alone such a compulsion could in theory be
repeated virtually indefinitely. No I do not want my husband to sort the
cloths in the normal way I want him to check also for the presence of
insects and say no there are no insects on the washing. With out
such reassurance from another person the thoughts return as soon as I am
ready to dry them and I will check again..
Finally it's over the tumble direr is on. I still
have doubts of course even after checking each garment and each towel
minutely and shaking them to dislodge insects which are obviously just
not there - at least not from a non OCD perspective. Also to make
matters worse I cannot simply put my washing down anywhere to sort.
Certain areas of my kitchen feel contaminated I have to be careful when
I sort my washing. It would be so easy to accidentally contaminate
it and it would have to be rewashed all over again. I hang really wet
cloths on my cloths horse which in the panic nearly topples over. I
break out into a sweat, if they fall on the floor they will need to be
washed all over again!!!!! Aggghhhhhhhh
June 17th
Well come what may I have to upload my web site
today it has been over two weeks. I do apologize but sadly OCD has been
a formidable and persistent tormenter in the last two weeks or so
concerning checking and anxieties regarding everything that I write,
particularly this Blog.
Now it may be a while before I publish anything
further as I have to transfer all my data on to a different computer.
This as I am sure you will realise is quite an undertaking and is time
consuming for everyone let alone someone who suffers with OCD and gets
in an absolute muddle and whose organisational skills can only be
described as chaotic. Notification of further updates will be as always
published on the home page.
June 23rd
Well I am still in a hopeless muddle concerning the transference of data
from my old computer to my new one. This website presenting the biggest
problem. So for a few more days to come I may not be able to write much
of anything. While transferring my website site files created in Front
page the file’s name automatically changed. The numbers at the end of
the file names were for some unfathomable reason automatically changed.
Bizarre or what! Crazy! More crazy than I am! I was really baffled by
this but after help from my computer course tutor I have learnt that it
is possible that the file numbers which changed automatically are the
computer’s name and when you transfer the files to another computer this
name changes. But the new files with the new name refused to publish to
the web presenting a number of strange scenarios - do not worry I will
not bore you with the details.
And in addition to this there were
problems with the host’s server, which is of course is inevitable from
time to time, but just now this could not have come at a worse time
adding to the confusion. It amazes me how everything can go wrong all at
once, normally I have had few real problems with publishing or the sever
being down. In fact I have had an excellent service from my web site
host. But things go wrong with computers from time to time, it is to be
expected. The fact that such happens to coincide with the files name
change problem is incredibly bad timing. In fact this was only the
second time my website has been down in the last eight months! Although
this last problem was quickly sorted, the problem with the file name
change remains. So for now I have to continue to use my old computer to
administer and create my web site. I am simply too anxious to try and
fiddle about with the new set up until I know what I am doing. Suffice
it to say I have been driven crazy!. Well more crazy :-)
Now all this seems so superficial and perhaps it is who knows, it
depends of course upon your perspective. I have invested enormous
amounts of time working on this web site including its construction
along with all
the writing and graphics preparation. I have endured immense and
persistent torment from my OCD, which seems hell bent upon my
destruction as my doubt-ridden mind finds it increasingly difficult to
publish overwhelmed by fears of causing harm in ways I have explained in
some detail in previous entries. Also I must not neglect to mention the
increase in neck and upper back pain as a result of the huge amounts of
time spent not only fighting and struggling with technical difficulties
but fighting with that inner part of myself. Struggling with that OCD
monster which seemingly dwells within like some self destructive apart
of you over which you have no control. I say a part of myself but there
have been times when I have wondered about this as the rational part of
me recognises the OCD and sees it as something totally alien, an
unwanted tormenter who knows exactly what will cause the most damage.
You wonder how could this soul-destroying thing be a part of you, a part
of your mind, a malfunction in brain chemistry. Yet it knows which
thoughts to present and which are the best times to present them to
inflict the most damage. It knows everything about you and homes in on
the most vulnerable aspects of your personality. Any new idea, project
or endeavour it will attempt to destroy, it is indeed a mysterious
illness and it is difficult to accept sometimes that all this self
destructive misery is generated within my own brain, my mind destroying
itself.
June 25th.
I am still struggling to update both this website and the one that I
administer for my son’s
art business. Since buying a new computer and
with it a flat screen monitor I was horrified to find that neither
website appeared to look at all how they did on my 17 inch old monitor.
All the tables, headings graphics and just about everything else where
distorted whenever the screen size was maximised. Somehow I had failed
to comprehended the fact that tables need fixing otherwise the whole
layout becomes distorted whenever the screen size is altered. You would
think that authors of software instruction manuals would mention this
fact. Yes it may be obvious to them but not to the novice such as
myself. Many people tell me that my writing is very detailed. No not in
a critical way - least I hope not :-) . I do tend to obsesses that I
over explain things because I am anxious to get it right and make sure
there are no misconceptions or that I have assumed that others know
something they do not. This is a good thing in some ways and it is something that
authors of computer manuals should perhaps pay more attention to particularly if the
book is aimed at beginners. However it could simply be that I do not
comprehend such information. However sometimes such instruction is
so brief that it is easily passed over and not noticed - at least by
myself.
Yes I am a perfectionist. Not that I necessarily have an obsession with
symmetry as such however this higgledy-piggledy muddle really was just
to much for me to ignore and I have exhausted myself and aggravated my
neck problems trying to rectify it. So there is yet another hold up
before I can consider doing much in the way of updating this blog or my
website with any new material. Although I seem to be finding time here
right now to vent my frustrations :-)
July 26th
Concerning the on-going computer problems: to compound my difficulties
we are now having problems staying on-line. According to my ISP such
problems may be a result of spy ware. Now I have been surfing the net
for about nine years. When I first went on-line all that was required
was antivirus software. Of course that was bad enough and I experienced
considerable anxieties at first. I am ill and unable to work and the
need to replace equipment due to malicious programs or viruses was
worrying notwithstanding the efficiency of the software or the
unlikelihood of such a serious event occurring. Now however one also
really needs a firewall, and it seems a number of different anti spy
software in addition to increasingly more sophisticated antivirus
programmes.
Such is making my experiences on-line more complicated, more expensive,
frustrating and often downright impossible. I imagine the same applies to
everyone else. However people such as myself may depend more upon the
internet for not only entertainment and information but also for social
interaction with others. For anyone who suffers from a number of
maladies including social phobia, avoidant personality disorder,
Asperger syndrome or other autistic spectrums disorders and any other
problem with involves difficulties with social interaction the unique
social environment which the internet provides may be a boon to
relieving or at least mitigating feelings of complete isolation. I
have heard people with Asperger syndrome say that social interaction is
easier via the internet than in real time everyday situations. And the
same is true of all the disorders mentioned above. And also anyone with
agoraphobia, who may be able to interact socially except for the fact
that he or she is unable to go out, may find that at least the internet
can provide him or her with an acceptable alternative. Also a good deal
of physically disabled people find the internet a boon and a social
outlet. My brother-in-law and a friend, both of whom are unable to walk
any distance, find friendship and social environments on line and this
goes someway to alleviating the social isolation which sadly is often
the lot of so many housebound disabled people.
The present situation on the internet concerning viruses, spy ware,
hacking and various other malicious intrusions are spoiling this new and
revolutionary communication medium for so many people for whom it is a
life enhancement. I have had a good deal of difficulty connecting to the
net over the weekend. I have been told by my ISP that spy ware may be
interfering with my connection. Such unsolicited programs also slow down
the computer not to mention of course the invasion of your privacy.
After running a spy ware detection programme I found 48 potentially
seriously disruptive programmes on my computer. It is only one week old.
Such programmes are interrupting my internet connection and are adding
to the problems of uploading of my website. It is frustrating if you are
in a chat room or are communicating by instant message to be cut off
time and time again. I am angry yes indeed and have thrown my hands up
in sheer frustration. The interference not only from the actual presence
of these programmes is bad enough but the time and money spent on
detecting them and eliminating them is also a consideration. All such
program are malicious and intrusive. Even spy program intended for
market research? Yes! Most certainly such programmes are malicious by
the very nature of their intrusion without your knowledge or consent, an unjustifiable invasion of privacy.!
So if you are responsible for invading the privacy of others, impeding
the correct functioning of both the computer and internet access by
adding spy ware, viruses and other malicious programmes please consider
that your actions are spoiling the internet experiences for many
vulnerable or disabled people.
I don’t image that what I have said here will make a bit of difference
as in any case most people who visit this site are sufferers themselves.
I cannot image for one moment that anyone who suffers the way we do
would consider doing such a thing.. One point in our favour I guess : for
the most part most of us are ethical. So why write all the above........
Well quite simply to vent and rid myself of the anger and frustration of
a very trying week concerning my activities on my computer.
June 27th.
I opened the bathroom door this morning to be greeted by an enormous
pile of washing spilling out in an untidy profusion from the laundry
basket. It is real heart sink experience and one that I often have to
face increasingly more regularly now. Yesterday I washed my hair four
times and showered and changed my cloths three times . Some days are
like this now. Yet again to day I washed and showered twice and changed
my cloths, worn only for a couple of hours, before discarding them into
the laundry basket. Yet again tomorrow I will be faced with the same
oozing laundry basket overflowing with cloths that are for all intents
and purposes quite clean, but not of course OCD clean. Some days I make
it through the day with out the need to shower more than once and keep
my cloths on until the evening. Other days it is indeed quite a
different matter entirely.
A splash of water from the water feature in the garden on my cloths and
I will hurry in to change the contaminated garment anxious of
contracting legionaries disease, afraid for myself but more importantly
afraid for others. If I sit down even in my own home with this
contamination upon my cloths from this one drop of water I fear that a
visitor or my son or husband will become contaminated. Moreover not only
will I worry for them but I will worry that they in turn will spread the
contamination through their associations with others. Also I am anxious that
by doing so I will not only spread the feared disease but in addition my
family and I will be punished in some way by divine retribution /karmic
comeuppance because I have been responsible for causing harm and all
from just one drop of water. So I change and change again and again and
wash my hands and shower until the fear goes away until the next time.
And so it goes on for each and every new scenario. And there are many
many such scenarios. And again I will face that overflowing laundry
basket each morning
Sometimes however washing is not enough. A fly sits on my trousers we
were out in the street I have just a passed pile of dog dirt. I can
never wear these trousers again. They have been worn just a few times
but not even washing will mitigate this fear. Fortunately such extremes
are rare, mostly I am able to wash my cloths. But the fear of possible
contamination is real. A fly buzzing round my sitting room and I panic,
it’s a huge fly, the type that sits on faeces. The anxiety is
considerable until it finally flies away. I cannot of course kill it; I
can kill nothing, neither do I want too. Killing for the most part is a
reaction born of fear and in the past I am guilty of having killed a
nest of ants simply due to this emotion and nothing else.
Killing anything for me now is quite abhorrent. However before the time
during which I have become extremely sensitive about killing any
creature - except bacteria of course and yes even there are some niggles
of sensitivity here - I had to kill a nest of ants which were on the
move along my kitchen wall. Yes the entire nest. It is now 25 years
later and I still feel so guilty whenever this thought returns to haunt
me as it does form time to time. And when I say guilty I am not
exaggerating, just writing this down now brings such feeling to the fore
and I hate myself or at least the person I once was. However even at
that time I did not carry out this act without certain feelings of guilt
but fear overtook me, the horror of this crawling mass consumed me and
quite simply I did not know what else to do. Soon they would fly most of
the colony were pregnant female flying ants ready to fly and lay their
eggs when they landed. I have a phobia about flying ants. Notwithstanding such fears I can neither justify my action nor mitigate
my guilt with such considerations and today twenty years on I feel
ashamed, so ashamed. I feel as though this is a blot, a stain on my character, a
karmic blemish and something I can never make up for. Yes if you do not
have OCD or you do not have this type of OCD you may see the whole
situation entirely differently and as of no consequence. You might think
I am over sensitive or simply crazy, whatever. But for me and according
to my perspective, my philosophy of life, this sin, for want of a better
word, returns to haunt me and I am indeed now most mindful not to kill
another living being.
Such thinking often causes dilemmas and OCD type thinking and compulsive
behaviours have become intertwined with this part of my life as much as
they do with any other. Such is the complexity of my OCD. This is just a
snippet - well a couple of snippets of incidents from my life, there are
many more much more as you will see from my website. Some less unique to
myself perhaps, some more bizarre and many many quite common place and
which present for most OCD sufferers.
My website as stated has two purposes: one to display our talents -
there is more to us than our various aliments, the second purpose is to
inform the public, carers, mental health professionals and students of
psychology and other interested persons and finally each other what it
is like to suffer as we do. Notice I say each other. Often other
sufferers fail to understand one another if symptoms are different. Have
you ever come across a fellow sufferer who may present with a primary
obsession such as checking whilst yours is contamination and you in all
honesty fail to fully understand what the other is going through and
vice versa. I suffer with multiple obsessions and compulsions, various
phobias and so on and can often empathise with others. Nonetheless there
can be times when I do not as even within the same manifestations of OCD
there can be really significant differences. Often we fail to understand
another person’s obsessive-compulsive behaviours because they are
different from ours. Contamination OCD is the most common form of OCD
but that does not mean that two sufferers of this type of OCD will fully
understand one another as their obsessive-compulsives behaviours can be
quite different. Many suffers of contamination OCD are quite comfortable
with animals while I am sadly not and such difference can lead to a lack
of understanding much as they can between sufferers and non sufferers.
Of course differences between sufferers of other anxiety disorders may
be quite marked for example between an agoraphobic and an obsessive-compulsive,
a self harmer and a social phobic. I recall when I first
sought help for my OCD, when it’s main manifestation was religious
obsessions and compulsions, that I was told I had an anxiety
disorder and that one course of treatment would involve group therapy. I
would be included with in a small group, all the members of which had similar
anxiety disorders. Now religious OCD is among the more unusual forms of
OCD and as such is less understood in quite the same way as
contamination OCD, not that either was particularly well understood in
those days some thirty years ago now. When I arrived at the group I was
asked to speak first and tell the group why I was there and the problems
from which I suffered. I explained in some detail the nature of my
placatory obsessions concerning the need to placate God and the fearful
consequence of dire events occurring if I did not deny myself all manner of things
including: new cloths, certain foods, make up books and son on (see my
memoir, particularly
chapter seven and
My story
for a detailed explanation). Now I knew this
all sounded bizarre and it had taken me enormous courage to not only
tell my psychiatrist but to tell this group of strangers whom I thought
suffered in the same way. Because I was asked to speak first I had no
idea that most of the others suffered from agoraphobia, one had dentist
phobia, another had a mild form of OCD which involved returning to check
for bodies in the road thinking he had caused an accident - at least
this is what I assumed. I was not aware that he had the same illnesses
as myself but in a different from and I can only understand the nature
of his illness now in retrospect. At the time his problems appeared
incomprehensible. Moreover if my sister had not suffered from
agoraphobia and I had not witnessed at first hand her terror at leaving
her home I would probably have not really understood the nature of
the suffering of many of my fellow groups members. .
As none of the others where required to tell me their stories in any
detail both they and I simply reported our progress and set targets for the
following week. So here we all sat together each week not really
understanding much about one another although we were all suffering .Yes
that is the one thing we all had in common: anxiety, life destroying,
inhibiting and incapacitating anxiety. Nonetheless my anxiety was compounded
because of the bizarreness of my disorder and because of this I was
never able to fully share my experiences or explain my targets.
So understanding between one another as fellow sufferers and between non
sufferers and sufferers is very important and the
purpose of this website is to promote such an understanding Therefore with
this purpose in mind I am going to include another section on my website
called a day in the life of... ... An agoraphobic, an OCDer, a social
phobic, an anorexic and so on.
If you suffer from any of the disorders included
upon this website or any mental health problem I invite you to share
your experiences with others. If you feel you would like to write an
account of a day in your life please
contact me.
June 30th.
I am really having a frightening time with my
headaches and migraine. The last three weeks or so I have had three to
four migraines each week. I have had spates of such frequency before but
only for a couple of weeks before reverting back to my normal migraine
frequency of one every five or six days. So I am scared. Also I have the
signs of repetitive strain injury in my right hand as a result of typing
and using the mouse. I have tingling and numbness,. it seems to be one
thing after another. Yes I do spend quite some time on the computer,
about four hours or so each day. I am loathed to give this up as I feel
that my activates on the computer have enhanced my life. But there seems
to be always something to prevent me from doing so and at such times I
feel as though I am victimised by the entire universe as though I am
doomed to failure and a life of feeling useless and unfulfilled. It
seems as though one way or another whatever I do is thwarted by
illnesses or other dire circumstance. Of course compared to the
suffering of many people and indeed other creatures throughout the world
my suffering is inconsequential. However such knowledge fails to
mitigate my own misery and moreover the knowledge of such dreadful
suffering for all beings in fact compounds my own suffering. The more I
suffer the more I become aware of the suffering of others and such
suffering is never far from my thoughts and I feel so guilty for
continually bemoaning my lot in life.
Well it's time I stopped typing, this morning I
have been awake since 3am and on the computer typing and clicking since
4am. And this is notwithstanding a quite severe headache which may
transform into a migraine, I find it so hard to stop. I have become
quite addicted to not only my activities on the computer but also there
is now such an influx of ideas into my mind, and the need to write them
all down is overwhelming. I cannot type fast enough to record all my
thoughts and ideas and I could in theory be sitting here all day.
My arm is really numb now and my hands are tingling like crazy so until
next time I wish you all a peaceful day.

*
Disclaimer :
No responsibility is accepted for the content of external links
including blogs:
Concerning blogs : Although I have initially looked through the
recommended blogs in my blog roll I have not read every single entry and
have selected each on its overall merit: interesting regular entries .
However the comments and opinions of the respective blog owners do not
necessarily reflect my own opinions.
*
Contact
I will endeavour to reply to all e-mail, however please bear in mind
that I have a number of quite debilitating illnesses and there may be
times when there will be considerable delay. Also I will not
publish anyone's comments, as appears to be the procedure
with blogs, without permission of the author : If you would like me to
publish your comments please indicate clearly at the end of your e-mail.
All comments are welcome including polite constructive
criticism and difference of opinion. However I reserve the right not to
publish anything that I consider would be offensive or in any way of
detriment to anyone particularly those who sufferer with the illnesses
included on this web site.
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