Ocd Plus formlly oc -illnesses-and_creativity.net

 

Ocd and More

The on-line journal/blog of a sufferer of obsessive-compulsive disorder OCD.

If writing did not exist, what terrible depressions we should suffer from.
Sei Shnagon c. 966 – 1013

December 2008

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Blog Roll

Blog Roll disclaimer*

Links to recommended blogs:

OCD

Wiping The Crazy Off My Face

Incertus - The Weblog of Doubt and Other Disorders

There is a diary included as part of the following website:

My Obsessively Clean Den

Where Justin can be Justin

Agoraphobia:

Agoraphobic
English Guy
Downunder

Bipolar and OCD:

Gail's journal

New!

Disjointed Thoughts

Autism:

Donna Williams’ Blog

Ballastexistenz

A Blog from Another World

Attention Deficit disorder ADD:

Living with ADD

A personal selection of Interesting Blogs not related to mental health or conditions of any kind:

The Action Blog:
Save an endangered species, protect human rights, save a forest.

Gristmill: The environmental news blog |

This blog is part of Grist Magazine's website, a magazine dedicated to environmental issues.

Positive Attitude Quotes, Free Happy Positive Loving Messages, Popular Motivativational sayings.

A good selection of interesting quotations

 

 

 

 

 

December 2nd

"Why did you leave the dales", I ask. There is what seems like a long pause before he finally responds and I sit there tense thinking that yet again I have asked an inappropriate question, which tends to happen from time to time. Social interaction is of course a huge problem for me and nowadays I simply avoid it whenever possible as it is becoming increasingly difficult for me to articulate, to think of the right thing to say and to process incoming information from others and think of a responses fast enough. Therefore my heart sank when this man and his wife came over and sat down at the opposite table by the fire in a pub in the Dales. My husband and I had come in for a plate of chips and a coffee, it was a bitterly cold day and we where glad to be sitting by the fire eating these exceptionally good chips and trying to relax, a feat now virtually impossible for me, hackles constantly raised should someone walk in with a dog or loud music is played but mostly here that does not happen. These days the thought of loud music makes me anxious, in fact so many things make me anxious that I am forever alert, not able to let go of tension, trying to enjoy myself doing what I think I should do and would like to do if I did not feel so miserable and anxious all the time. But nothing much is either pleasurable or relaxing even though I make a huge effort, which than becomes part of the problem. Have you ever noticed that the more you try and relax and not react to every situation with stress the more difficult it can get.

I could tell that the man in at rate was going to make conversation, his wife I felt was more like me , she seemed shy not joining in the conversation. He sat down opposite chatted about the weather, the fact he had moved twenty years ago to the south east and was back in the dales for a visit. He was a really pleasant man and I only wished that conversation was not such an agony of anxiety. Any modicum of enjoyment I might have received from the taste of  good coffee and chips was now long gone my attention turned to the struggle of trying to think of something to say. "Where did we live and what where we doing in the Dales on such  bleak cold day" ? I myself had wondered this on such a miserable day, unbearably cold, but you cannot stay in all winter and it is a change to go out into the country despite the awful weather.  However in addition sadly we are here mostly because having made plans to do so we are not very good at changing them, this problem I have explained before here on my blog. I than asked the question, why did you leave the dales and immediately wished I had not. It turned out he was a farmer...  well... farmers  and vegans are not going to be the best of pals. Rather dumbfounded I struggled for something to say but he continued telling us how he had had offers from someone or other who wished to buy his land in order to have the rights to shoot pheasants. Absolutely flabbergasted , I mean to say what kind of moron delights in killing pheasants for sport? And the injustice of it, not only as an animal rights issue but also as a human rights issue,  that someone could have the right and the money to buy land, the cost of which is enormous, simply to indulge in this pass-time whilst so many struggle to maintain even a basic standard of living.

Fortunately though another person came in and joined them, someone they knew, and we were left to our coffee and chips. I was relieved to have been spared an awkward moment of stunned silence or an outburst of my outrage, it could have gone either way, although I endeavour not to do so as of course whatever you say makes little difference to the way people think particualry in heated altercations. And yes when I get on my soap box so to speak against animal rights or social injustice I can wax more articulate with fervid passion, although of late not with the ease that I once did, which may appear to others as aggression rather than discussion or debate. Yes he was a very pleasant person and most likely one of the better farmers with regard to caring for his animals even though however cared for the poor creatures inevitably meet the same fate, but who knows you can never really know what another person is like,  most certainly not after one casual meeting, and I do find it difficult to fathom people to know what is really going on. I do of course realise that the way animals are treated is often due to ignorance and people not really thinking about what they do, not seeing the big picture and how wrong it is to exploit animals and treat them inhumanly as meat producing machines. In fact I myself have recently been shocked by the dreadful cruelty to domesticated animals reared for meat  and other by products which I had read about recently as I go about creating my new website which is concerned with such issues.

I was shocked when this very pleasant and amicable person stated how he had sold his farm to such people but sadly few see the wrong in such behaviours although I rather think that buying a farm simply to shoot pheasants during the autumn is grossly unethical to the extreme for the reasons I have stated.

I have thought a lot about this person and often think that a lot of people do not know the harm that they do and if they did their whole perspective would change. At least I like to hope so. Sometimes I feel so depressed, overwhelmed by the atrocities and injustices that humans commit against one another and their fellow creatures and for a good part of the time most people simply do not realise the harm or the wrong they are doing. While I am so keenly aware.

Someone's comments reach my attention and increase my anxiety, there is snow due this afternoon. I immediately feel anxious and spend the rest of the afternoon panicky about getting snowed in, which of course is possible here where few road are gritted, particularly the roads which cross the hills like the  road we travel along after leaving the pub hoping to stop by a stream sit and admire the view read for a while, it being too cold to walk, the bitter wind would give me a headache, yet another ever present fear. As soon as we stop it begins to snow, only flickers of tiny while flakes but immediately anxious we make out way down the hill where it appears to stop but huge thick clouds over the hills look ominous as they sweep over the summits which we need to cross over to reach the valley and our road home. So we have to leave in some haste. As we approach the summit the snow is really a blizzard,  I see sheep in the distance poor creatures they have no shelter on these bleak hills, not even a tree or a wall. I feel keen sorrow at the way these and other creatures are treated. In nature all animals seek shelter if they are able to do so, so make no mistake that sheep are content to stand there in rain, snow and driving wind, if shelter is available they will seek it out as we have observed on our trips. But here and in many similar places there is no shelter.  Further on is the Stang forest but it is fenced off and there is no access to sheep.

I do love the snow although not as I once used to my feelings now so mixed, excitement as it falls, the trill of the raging wind or the relaxation of gentle drifting flakes but now such feeligns are mixed with sadness for the misery that it causes sheep and cattle and indeed horses who have to withstand the onslaught with no protection whatsoever.

December 4th

We had a heavy fall of snow this morning, it began well before I was awake at 5am and gradually increased in intensity falling thick and fast. Despite my anxieties about sheep and other animals exposed to the bitter cold i thought it was a pretty sight indeed, the way snow transforms the dreariest of places. It is rather early for snow though and the worry about other animals is considerable and indeed many sheep may well have died from pneumonia and exposure. Yes such thoughts are misery and they help no one but this is the way I am and if no one had such thoughts or was so aware nothing could ever change for the better. Not that I can do much of course to alter the way we treat animals although I do my best in whatever way I am able in my own way. If you feel like doing one simple thing to help an animal click here: http://www.viva.org.uk/campaigns/ducks/ms.html

This link will take you to VIVA'S website where you can sign a post card to send to Marks and Spencer to air your views about the cruel way they treat factory farmed ducks. You simply fill in the form and click send. You can add your own words if you like but if you do not feel up to this just send the form letter.

You can also click the link below to sign a petition

Viva! - Vegetarians International Voice for Animals ducks petition

From the petition page you can access more supermarkets to write to and other actions you can take

Viva! - Vegetarians International Voice for Animals more action you can take

Don't feel overwhelmed,  do as many as you are able even if its only one action.

I think if more people knew what happens to farm animals few people would eat meat, or eggs or drink milk. At least I would like to think so.

Each little action can help. Often with OCD we can become too immersed in out own suffering and at times it can be good for you to do something to help alleviate the suffering of others including other creatures.

We went out for a brief walk in the snow but by now I had a headache which later turned out to be migraine and I really did not enjoy our walk anxious it may make my headache worse. It is not usual at least not in recent years to have snow, particularly in such large accumulations, this side of Christmas.

It has also been dreadfully cold and has made the conditions in our house much worse and more water drips down the walls . This after we have been advised is condensation damp rather than a leak in the roof, it is though severe for condensation but this assessment could be right althoguh I think that in some places damp is penetrating through the stone. So today there is a real mixed bag of emotions about the weather and just about everything else.

I have had rather a lot of migraines in the last week or so and there have been a lot of added difficulties in my life that could so easily be avoided as most are the result of other people. I can't tell you the details as I have anxieties about making the situation worse by doing so. Anxieties not easy to define or categorise as are anxieties about for instance germs and other more easily explained OCD manifestations. I have many compulsions which can only be described as superstitious in nature and also somewhat paranoid but who knows paranoia rather depends on your perspective. I use the  word in its proper context to mean baseless or excessive suspicion of the motives of others. Have you noticed how people use paranoia to mean neurotic but not in the context above. However as already said more often than not ones suspicions are not always unfounded. And besides when you have no idea what is going on with other people and you have been as a consequence taken advantage of so many times you err on the caution of what other people may perceive as paranoid thinking.

Its not going to be an easy winter if the weather remains this way, isn't  it typical how now that the gas and electricity prices have increase dramatically to extortionate levels of 35 percent and 17 percent respectively that the weather had taken a turn for the worse. I know I catastrophizing again but i just knew this would happen this year that we were in for a long cold and harsh winter.

December 8th

Remember I said in early November that it appears that my old links continue to work despite having changed the name of my website, so I need not have worried. Well they have now ceased to work and any website or anyone else with the old oc-illnesses-and creativity.net link will now not be able to access my website.

Concerning the websites of all those which have links to me only two have changed their links. I have written to many of them twice and two of them three times but despite my repeated requests the links remain with the old domain name and now bring up only an error page. My hits have plunged considerably by about two thirds as a consequence. Some of these websites may have been abandoned or no longer maintained regularly but two are prominent OCD websites. I know we all have problems and one website has no one available to maintain their website but will put my request into the things to do category, and fair enough. Most websites and OCD charities are maintained by people who have this condition and I do understand the difficulties involved. The whole situation is causing me great distress, you can only write so often to make any request without the risk of causing distress to others. Without the links from other websites though I will get very few visitors and its all very discouraging and makes me feel as though it is all rather pointless.

The problem maybe, as already said, is that many charities for mental health conditions are run by sufferers who at times just like the rest of us may find it difficult to function. It has to be said that not everyone copes well with computers and perhaps my being mostly likely an aspie in addtion to an OCD sufferer, although AS is  not officially diagnosed, gives me an edge computer wise as it seems that those on the autism spectrum have a natural affinity for computers. However in recent months everything including the maintenance of this website has become increasingly more difficult.

Quite honestly I do not knew what to think. When I first created my website there where one or two difficulties with some organisations, some saying they did not want too many sufferers website links. What difference does it make it's only one hyperlink surely the more resources available the better. The world wide web will not be much of a web without link exchange would it. Since one organisation have reformatted their website there are no links to any sufferers websites at all. I cannot understand this, after all it is only we who suffer from the disorder that really know what it is like.  Of course it is their prerogative to do as they wish and the above is merely an observation and my opinion rather than criticism. Like anyone else we all have a different perspective. It is my opinion only   that the more personal perspective of OCD from a sufferer is important.

Perhaps it may be considered from an individual perspective that not all websites are suitable . Many people consider my website rather negative despite my attemps to add some positivity by the emphasis on creativity. Although most visitors seem to pass this by and focus on the more negative aspects. My blog is negative as is my memoir; I have had severe intractable 0CD I can't hide the fact nor would I wish to. To do so would validate the reason I created my website and wrote may memoir, which I did in order to make people more aware of what it is like to suffer with intractable OCD. Many people suffer with severe OCD no matter what therapy is used and often such people may derive some comfort from an account of those in a similar position, after all those of us with severe OCD, although pleased to hear that others are coping and leading fuller lives, will probably feel depressed if the emphasis is on those who have improved all the time. What I am trying to say is my website helps to provides a balance, at least I hope it does, and has its place alongside all the more positive accounts of overcoming or coping with OCD.

The only choice is to buy the old domain name again , but next year of course the same problem will emerge and I cannot afford to buy two domains each year. There are one or two complicated procedures to redirect links which I will look into but when you feel as ill most days as I do its a bit of an ordeal and one that I had not expected.

I am not blaming anyone of course, and what I have said is not meant as criticism, as we are all struggling but it does not stop me feeling rather depressed by it all.

December 10th

Still very cold here today with no respite. I guess we are not now used to this type of weather. It does add to everyone's misery but perhaps even more so for those of us with mental health problems, particularly the depressed and anxious but I rather think that depression and anxiety are present in all mental health conditions whether as a chemical neurological dysfunction or as a result of the misery of the mental health issues themselves. It seems that my entries are becoming less and less frequent due to work on my other website and increasing ill health including depression,  and this of course is not helping matters with regard to visitors as the less your hyperlinks are accessed the lower your ranking until it virtually disappears altogether.  And of course if no new entries appear fewer people bother to visit, and now not even my blog appears very high in the search engine rankings. Not that this is the reason of course that I am discouraged, high ranking for the sake of high ranking in search engines is not an issue its the fact that all my hard work seems for nothing if no one sees it. But things may simply improve with time. In the next year I may transfer my blog to Word press, it 's all a matter of overcoming certain anxieties about not having as much control over my blog as I do here on my website.

On to more positive issues, you see I can be more positive or at any rate try to be.

Below is an extract from an interesting article from Psychology Today which concerns not only the obvious intentional types of creativity but the daily moment to moment opportunities for creativity which are available to most of us.

Our lives can be filled with creative moments, whatever we do, as long as we're flexible and open to new possibilities—willing to push beyond routine. The everyday expression of creativity often takes the form of trying out a new approach to a familiar dilemma. Yet half the world still thinks of creativity as a mysterious quality that the other half has. A good deal of research suggests, however, that everyone is capable of tapping into his or her creative spirit. We don't just mean getting better ideas; we're talking about a kind of general awareness that leads to greater enjoyment of your work and the people in your life: a spirit that can improve collaboration and communication with others.

Many of us do not see ourselves as being creative, because we don't have much of an audience for what we do. In fact, we focus too much on "Big C" creativity—the glamorous achievements of geniuses—and overlook the ways each of us displays flair and imagination in our own lives.


"We've become narrow in the way we think about creativity," observes Teresa Amabile, a psychologist at Brandeis University. "We tend to think of it as rarefied: artists, musicians, poets. But the cook in her kitchen is showing creativity when she invents a variation on a recipe." "

The link below will take you to the complete article although indirectly through Charity Focus org's Daily Good as I had received this from one of their daily Good newsletters which is incidentally recommended for some daily positive news

DailyGood: Positive News and Inspiration From Around The World the art of creat
ivity

December 14th

Well its the nightmare before Christmas again, at least that is many people's experience with Christmas including my own as we can all get so stressed and anxious at this time of year. How quickly it seems to come round. I think as you get older time appears to pass more quickly. For many years after losing my daughter who was still born we did not bother much with Christmas even though it was one hell of struggle trying to get people to understand that we wanted to op out, as due to the loss of our baby at this time there were only unpleasant memories. Moreover Christmas has always been a misery for me when my OCD one year made it an absolute hell of fear so much so that when the day finally arrived I was just too stressed to enjoy it and found myself with my head over the toilet retching because of the anxiety. It a sad fact that people are very intolerant of those who do not go along with what ever society demands and Christmas is one powerful tradition that is hard to ignore. So many people make themselves miserable over Christmas and never stand back and analyse the  situation asking themselves why they do so. Many people carry on without thinking it through, its now so ingrained into the subconscious, so habitual and  most are not believers in the Christian tradition and it they are it is in name only, another ingrained habit.

I guess in the past I was like that and it was the power of Christmas tradition that actually delayed my becoming a vegetarian simply becasue it would interfere with what constitutes a good Christmas dinner. I am so ashamed now that I ever thought this way.

I have been a vegetarian now for over eighteen years and now a vegan for the last two. And yes you can enjoy your Christmas dinner without a turkey as a vegetarian or vegan. Sad isn't it, to celebrate the birth of a person whom the Christian tradition accepts as a man of peace we slaughter millions of these beautiful intelligent sentient creatures.

Please visit  VIVA'S website and read the shocking reality behind your Christmas dinner.

Viva! - Vegetarians International Voice for Animals turkeys

In the last few years or so we have got back into Christmas rather more, but certainly not in the way that most people continue to do.

We send very few cards as we have no friends,  it was only last year though that we sent Christmas cards to my husband's family. After loosing our daughter other than for our son we sent no cards or bought presents for anyone for many years.

I try to make an extra effort and prepare a special meal Christmas Eve, Christmas day and Boxing day. And yes you can have a really tasty meal without causing the death of another creature.

There are many tasty vegetarian and vegan recipes out there, see links further down.

You can buy ready prepared "Roasts" made from Quorn or Soya, these are easily cooked and with all the trimmings you really don't know you have not had  turkey. Quorn is vegetarian they do two types of roast, a chicken style (note this is flavouring only no chicken or other meat) and a vegetable roast. Quorn is vegetarian so not suitable for vegans as it has  a small amount of egg. You can also make or buy vegetarian or vegan sausage rolls and other products. You can get vegetarian/ vegan mince meat and Christmas cakes and puddings in health food stores and some supermarkets. A product called "Cheatin meat" have a large selection of imitation meat now available, from rashers to imitation ‘turkey’ roast.  All their products are vegan Redwoodfoods In the USA you have Tofurkey a good selection of vegan alternatives to turkey or other meat for Christmas and any time.
Turtle Island Foods, Tofurky Meals.

It can be a little more difficult for vegans when eating out although there are usually at least a couple of vegetarian meals in pubs and restaurants. We have our favourite pub in the Cumbrian hills which actually have at least one vegan meal and several vegetarian meals.  At home I cook most of my own cakes and there is no difference, you can cook without milk using Soya milk and without eggs or using egg replacer.

Here is what we are hoping to have all being well of course over the Christmas break. Christmas Eve: Cashew Nut Roast with a Choice of Two Stuffings; Christmas day, luxury festive roast,  a vegetable roast and all the trimmings, cranberry sauce, roast potatoes, parsnips and so on and for desert mince crumble. We do not like Christmas pudding.   Boxing day Onion Tart Tatin, all recipes are vegan and some of them and others are available here: Viva! Very Veggie Christmas  Vegan Campaigns.

New years day: Easy Nut Roast Christmas - Vegan Society.

There are many other tasty meals on both these websites and many others on the net.

Yes we do like our food and any excuse for a feast and its all animal friendly

I have to say all being well as one dare not tempt fate as you all know that even at the best of times headaches, migraine and other illnesses and unfavourable circumstances may thwart the best laid plans of mice and men and myself. 

There is a huge variety of foods available for vegetarian and even vegans nowadays in your local supermarket and health food stores and we can all look reward to a good tasty meal which is healthier for you and certainly for the turkeys and other critters.

If you are interested in the difference between a vegetarian and a vegan please visit the following websites:

 The Vegetarian Society

 Vegan Society

Basically both vegetarians and vegans do not eat meat which includes fish of course . The only difference is vegetarians consume milk and eggs and honey while vegans do not and avoid any animal product.  

Am I trying to convert you all, well I guess so. Animal welfare is a big issue for me and I am working frantically on my new website which focuses on this. I am passionate about animals, I consider them to be thinking sentient beings who feel fear and pain and suffer in the same way as you and I. While creating my new website, which was in the beginning only meant to be a website of interesting facts about sheep with photos and my art work, after reading about the horrors of factory faming the focus  has changed into a one women campaign to help inform people concerning the dreadful suffering of animals in factory farms and to hopefully promote vegetarianism. The whole subject as made me feel very depressed and deeply sad yet I feel it is something  I have to turn my attention to and do whatever I can to bring about change however small, which everyone can do in their own  way.

We have to focus on something other than our own suffering, we are not alone in suffering but much suffering in the world can be avoided and the suffering of animals in factory farms is one of greatest causes of suffering to animals and one which can easily be avoided. Here in the UK we pride ourselves as a nation of animal lovers yet by public consensus millions of creatures live miserable, painful short lives in factory farms in conditions of appalling cruelty that you cannot image. I think if people become more aware of what happens to farm animals many would become vegetarian and eventually vegan. For more information on factory farming please click the links below. Conditions in factory farms are the same and worse throughout the entire world.

http://www.factoryfarming.org.uk/

Farm Sanctuary | Watkins Glen, NY.

Factory Farming: Mechanized Madness // Take Charge! // peta

But for the sake of some little mouthful of flesh we deprive a soul of the sun and light, and of that proportion of life and time it had been born into the world to enjoy.

Plutarch

Please Note: After publication becasue of a mistake I have had to alter information about our meals as I had not noticed that one of them was vegetarian rather than vegan. Sorry for any confusion.

December 15th

I am today attempting to upload entries on the day they are completed rather than in batches as I usually do. Okay this and the above link constitutes a batch I suppose but its a start. I am trying to see if it is in fact easier to upload entries as they are completed rather than let them accumulate which of course encourages checking and obsessing which has really become such a huge problem of late.

Although I make no apology for the occasional animal welfare entries I do hope no one is upset by them. Please remember this is a blog, a dairy, a journal and includes both information of interest regarding the conditions featured on this website and my personal thoughts and events in my life, and animal welfare is for me an important issue, an important part of my life. We cannot view our lives through the narrow focus of our OCD or other mental health problem there is more to us than our conditions.

I can do very little because of my poor health but try to do whatever I can within the narrow limitations of my conditions. I hope this website helps to highlight the plight of those with mental health issues and I hope my new website will help to inform people of the plight of farm and other abused animals.

December  18th

We where in Woolworth's today drawn in by the closing down sale. And you know i really felt so sad, and so did both my son and husband. Woolworth's for anyone who does not know, and I can’t imagine that there is anyone in the UK who does not, are going into liquidation after nearly one hundred years of trading in the high street.

As a socialist I should of course not really feel this way but often our hearts do not always follow our thoughts and I felt so sad. It was very depressing wandering round the store, the half empty shelves some now entirely dismantled was unsettling and brought a heaviness of heart not easy to describe, I had not expected to feel this way and I wonder if others do also. Maybe it’s all the vultures who have descended here to pick the bones so to speak; in the beginning on the first day of the sales queues stretched right across the town square. Yet here we are also looking for a bargain.

Am I simply just over sensitive and subconsciously seek situations about which to be depressed. After all I imagine like most employers these days Woolworth’s may not pay their staff decent wages, and in fact during my lifetime no one working in retail ever got a good wage and I recall when I was younger being advised by my parents not to go into retail, as sales assistants where so poorly paid. Also perhaps Woolworth's just like any other business exploit not only their employees but also the environment, but I do not know of course about any of these things one way or another. I just today have these feelings regardless of the appropriateness to my ideology about private enterprise, workers rights or the environment.

Maybe it is just my fear of change as Woolworth's has always had a store in every town for all my life. I recall as a child the old fashioned highly polished wooden counters which seem so high to a small child and all the cheap plastic toys which were an utter delight to my sister and I, a menagerie of clockwork animals, soft toys which my sister and I particularly liked and for which we saved our money, and counters crammed with sweets and so on . Woolworth's affectionately called woollies has become over the years a little more sophisticated and not so cheap but in some ways has retained it original identify. It is the end of an era and I shall miss it.

Perhaps it is part of the general depression and anxiety that is now so pervasive during this time of worrying change when no one feels secure. Change frightens me and there are some rapid and unexpected changes happening all the time. This Christmas it will be a miserable worrying time for many people who will loose their jobs, not only employees of Woolworth's but all the other workers who have lost their jobs in recent months or are set to loose them in the coming year. Must be awful for people who work there, my husband knows only too well what it is like to be discarded after years of working in the same job and no recompense, and right at Christmas.

Perhaps my sadness is simply a result of always feeling sorry for the underdog and I often feel sorry for people whose ideologies are in opposition to my own and even individuals whom I do not like if they are in dire circumstances.

Depression and sadness are simply felt are they not even though the the whys and wherefores may seem incongruous to my opinions, ideals, philosophies and so on. I think if we are prone to depression we become more keenly aware and sensitive to any unfavourable circumstances either our own or that of other's.

Odd though how I can pick up on or empathise if you like with negative but never positive emotions. In positive situations, sorry can't think of any right now as an example, I can never share in the happiness, certainly never empathise, but unhappiness, depression , anxiety, stress that type of emotion I pick up the mood like a magnet attracting iron fillings.


December 20th
I found it very difficult to get to sleep last night. Before going to bed I had written out my son's birthday card from my husband and myself, it is his birthday today, it will be the only birthday greetings card he gets. He will get several presents but they will all be from my husband and I. I am not trying to solicit sympathy nor am I wallowing in self-pity I am simply trying to tell you what it is like for someone with Aspergers syndrome AS. If your are new to my blog and this website and do not know what AS is the NAS society provide a good explanation:
The National Autistic Society - What is Asperger syndrome?

People with As and others who have disorders that make social interaction difficult often find that on their birthday and at Christmas he or she will have few cards or presents, sometimes none at all. There are a good number of people in our society who lead lonely lives separated from others by an inability to fit in with society, to make and keep friends, such conditions include as already said AS and also of course other autism spectrum disorders ASDs, social anxiety /social phobia and avoidant personality disorder. Indeed anyone with a mental health problem may find some difficulty with social interaction. For the individual concerned what should be a happy day can instead serve to highlight a part of their lives to which for the rest of the time he or she may have become habituated or just endured, sometimes without much thought concerning the detriment to their lives that results from their inability to make friends and be a part of society .

For a parent or other relative it can be very sad indeed and last night I could not sleep for a long time thinking about my son and how lonely he is, how difficult it is for him to make friends and how since moving here he appears to have given up even trying to do so. With very few exceptions he avoids people whenever possible and if of necessity he has to associate with someone he has never met or does not know well he can become very stressed for days prior to, for instance, an appointment. In many ways I am in a similar position and avoid social interaction whenever possible due to the levels of anxiety such encounters generate. It is not that he or I wish to be unsociable, it is just so stressful, thinking of what to say, responding to another person, processing incoming information fast enough to respond with an answer and often feeling awkward knowing you have said the wrong thing but for reasons you really do not understand.

I am rather angry with my husband's relatives who have never sent him a birthday card but that is partly the fault of my husband and I who have never sent most of them a card either. Perhaps if they knew the situation they may send him a card and I feel guilty that I have not made the effort to arrange this but it is difficult get people to understand AS, describing it as a variant of autism really confuses them as he like many with AS simply do not fit the stereo typical image of a person with autism. Besides he would know that such cards would be insincere.

Well its new year soon and perhaps one of our resolutions this year should be to try and get our son out and about in society although this is easier said than done. We have encouraged him from time to time to join societies and groups such as an artists or photography group, where he can join in but not have to make conversation, at least not small talk, so much yet still be part of a group. He does go to art history classes for one morning each week but those take place only during term time and are due soon to have reached their end and in any case may become too expensive as the government add to the misery of people lives already burdened by debt , high utility prices and so on by significantly raising the cost of adult education. In the situation of the art class he is better able to cope as the subject focuses on an interest of his about which he knows a considerable amount of information, although at times there have been awkward moments of tongue tiredness. These days in such classes one cannot just sit at the back and simply listen and complete assignments, rather group participation is included and students gather to discuss issues relating to the course in small groups and this can be difficult. And in some ways after a time he seems to find this type of situation more difficult than he did at first.

It can be a real struggle for people like my son , my sister had also similar problems and it was not until a few years before she died that she finally made a huge effort to cope with her social anxieties and learnt to participate, albeit with extreme difficulty with social activities.

Incidentally I asked my son if he was upset about the lack of Birthday cards, to which he relied that he most definitely was not. But hey for me it was still sad and I had a difficult time shaking off the depression resulting from my thoughts in this regard.

December 21st

Well it looks like I have failed in my attempt to update my blog with individual entries as they are completed . It will take some time and involves a change in routine. Changes as already discussed are difficult for me particualry changes in routine and it may take a while for me to do this. The entries above where completed on the day they where written and checked a couple of times and they should have been published straight afterwards.

And yes it does sound easy but there where OCD anxieties about these entries, which if they where uploaded on the day they were completed of course would make life easier, althoughI do admit to changing and altering entries when they are on-line and even removing entries which are causing anxiety. It can also be very time consuming to write and publish on the same day as of course I will need to check more thoroughly plus it can sometimes be quite a performance getting the computer to
cooperate

It is easier said than done to simply click the publish button, although I will endeavour next time to do so.

This will be one of my new year's resolutions as the new year seems a good time to embark on what for me is a difficult task but which will make life easier in the long term, at least in theory.

As is usual at this time of the year over the Christmas period I will not be on-line to respond to e-mail from the 24th December until 2nd January.

I really need to take a break after the stress and anxiety that is my day to day life of course but which can become more so at this time. Recently also I have been more anxious and depressed than usual, confused and forgetful. Sometimes I think I try to do to much. Writing of late has become very difficult. Yesterday whilst writing an article for a  webpage for my new website which I have already spent weeks writing, researching, editing, checking, obsessing I just could not recall what I had written in one paragraph but felt that in a paragraph further down I had repeated myself. But I just could not sort it out, I moved paragraphs, checked for more information, read and reread over and over until I was exhausted stressed and depressed. And still I am not satisfied with this website and can't get my head together to sort out the repetitive part. it really is difficult for me to try and explain.

The problem is, is it good idea to have a break from writing or to struggle on through. I feel I  need to give my brain a rest as the more I use it the more brain fogged and confused I get. You have to keep in mind when you suffer with OCD that your brain's hyperactive active all time,  occupied with endless streams of thoughts all vying for dominance but all with the purpose it seems to make you life misery. Oftentimes you can find yourself so exhausted that it is not possible to think of anything else or to see a more rational perspective. And this is particularly so if you are trying to write something complex, where you need to research, find and relate information. OCD checking really has a  field day here and you find yourself left checking facts over and over. You than have more information which you than feel you really must add. Information which people will not read as the web page gets longer and longer

Anyway before this web page gets longer and longer I will leave it there.

I do worry when I do not access my e-mail and last year one or two people did not read my message here telling them I would not be on-line and they had wondered why I had not responded.

But at the best of times writing is difficult and I really do need a break

So just to reiterate I will not be available to respond to e-mail from 24th December until January 2nd.

I wish you all a happy Christmas and hope the New years brings you peace and good health.

Above is a selection of Photographs taken on a trip we made to
Middleton-in- Teedale during a recent heavy fall of snow.  I hope to include more of these photos on John's photographs section in the New year. 

All are sized for desk top wall paper and will open into a new window.

 

 


Disclaimer
 

No responsibility is accepted for the content of external links including blogs:

Concerning blogs : Although I have initially looked through the recommended blogs in my blog roll I have not read every single entry and have selected each on its overall merit: interesting regular entries . However the comments and opinions of the respective blog owners do not necessarily reflect my own opinions.

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Contact

I will endeavour to reply to all e-mail, however please bear in mind that I have a number of quite debilitating illnesses and there may be times when there will be considerable delay. Also I will not publish anyone's comments, as appears to be the procedure with blogs, without permission of the author : If you would like me to publish your comments please indicate clearly at the end of your e-mail.

All comments are welcome including polite constructive criticism and difference of opinion. However I reserve the right not to publish anything that I consider would be offensive or in any way of detriment to anyone particularly those who sufferer with the illnesses included on this web site.



 

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