A day in the life of
Lynda a sufferer of agoraphobia and anorexia nervosa
This account it is based upon the weekly conversations my
sister Lynda and I had over the telephone where we discussed our
respective difficulties concerning the trying lives that we both lead.
The article below focuses upon a typical day in the life of my
sister. It includes flashbacks to other occurrences in her life
which reflect the problems my sister faced throughout her
difficult life. The account is by no means comprehensive but
does give a glimpse, an inking of what it is like to suffer with
multiple disorders.
Security
is mostly a superstition. It does not exist in nature, nor do the
children of human kind as a whole experience it. Avoiding danger is no
safer in the long run than outright exposure. Life is either a daring
adventure, or it is nothing at all.
Helen
Keller
Lynda awoke early
most mornings, early than most people. She had done so now for many
years partly due to the habit of rising early for a job she once had
cleaning a school building, a job she had had to quit because of her
battle with agoraphobia which although she had now under better control
nonetheless was a struggle from time to time, a struggle that on
occasion she did not always win. Most days Lynda woke with feelings of
anxiety, they presented before she was barely awake hardly aware of the
familiar surroundings that did little to improve the situation and were
in fact remembers as soon as she opened her eyes of so many similar
mornings when she woke feeling so anxious for reasons she could not
quite understand.
As soon as she opened her eyes she was alert, anxious listening to
every sound. Since moving to the new apartment she had been less
apprehensive concerning noise. In their previous residence she and her
husband of thirty four years Mike now retired had been compelled to
leave because of the noise of a neighbour in a downstairs apartment who
played loud music throughout the night. Also but to a lesser degree
another neighbour had had the radio on the entire day, Lynda could not
bear the continual drone. It had not only been the noise but it was the
intrusion, an infringement, as though her home was trespassed by noise,
invaded. She had no option except to have her own music to mask the
noise which she turned on the minute she had woken in order not to hear
the inevitable drone of this neighbour's radio which continued unabated
throughout the entire day. Whenever Lynda left the house she kept her
raid on, she could not bear to hear the disturbance of her neighbour's
radio the minute she returned. It had not been the neighbours fault, she
understood this, these apartments where not soundproofed, any noise of
any volume would be heard in neighbouring flats. So in this instance
there was no grounds for complaint unlike the problem during the night
which seemed never to be resolved after calling out the council health
and environment department. Often it took months before such situations
where resolved if in fact they were ever satisfactory put right. Lynda
was extremely sensitive to sounds often hearing sounds which others
appeared not to hear or if the did they seemed not to be bothered by
them. In the finish the only solution had been to apply to the council
for a transfer.
Lynda’s husband Mike sixteen years her senior was eligible for an
elderly person’s sheltered accommodation. Although Lynda considerable
younger felt rather awkward living in such a situation she had in many
ways felt more relaxed safer and more comfortable than anywhere else.
There had only been the one apartment available for immediate occupancy.
It was not ideal being considerably smaller than their present
accommodation and the bedroom was an awkward shape , it had been
rejected because of this by many other potential tenants. However Lynda
had been keen to accept virtually anything to get away from the
nightmare of noise, she did not feel as though she could cope any
longer. A life of continuous anxiety had made her increasingly more
sensitive to any difficulties in her life and the council allocating a
young man to the bottom apartment had been the last straw. In addition
to music from a stereo he had played his drums in the early hours of the
morning.
Anxiety is a thin stream of fear trickling through the mind. If
encouraged, it cuts a channel into which all other thoughts are drained.
Robert Albert Bloch
In spite of her improved environmental circumstances Lynda continued
to wake with these dreadful feelings of anxiety has she had done
throughout her entire life. They were perhaps habitual as though a
circuit had set itself up her brain to react this way. The medical term
for this non-specific morning anxiety was free floating anxiety. It was
a nameless indefinable anxiety and it came without a recognisable cause.
Lynda of course was familiar with anxiety though, no matter its
associations or otherwise, with or without a perceivable reason it was
pretty much the same awful sensation. It was there whenever she left her
home, it was present whenever she had to associate with someone;
whenever the phone rang her heart would leap to her mouth and pound in
her chest, she never answered the phone leaving this task to Mike.
Anxiety presented each dinnertime whenever she put any food to her
mouth, fearful of putting on weight it was as though her flesh grew with
each bite that she took. Moreover it was not only fear of being fat but
fear of loosing the only thing that she felt that she could control, the
only thing in her life she felt she had succeeded at. She felt perhaps
others envied her, she had after all done something few others could
ever do, yet at times she envied others always anxious someone was
slimmer. She immediately felt competitive with anyone loosing weight,
she became anxious when her sister began to loose weight when she too
was on the verge of anorexia. One Christmas whilst visiting her sister
and her family Lynda had sat done to cottage cheese and salad for
Christmas dinner her sister had gone to bed with migraine and was being
dreadfully sick. To Lynda’s mindset it was as though there was a
competition, her sister was not eating today and consequently getting
thinner and Lynda had felt even more anxious not to overeat even on this
festive occasion.
An all pervasive consuming fear yes indeed there was no hesitation
here to use the word fear concerning the effect these conditions had
upon her life. The sensation when she left the house was nothing less
than fear, an utter dread. Her heart would pound in her chest, her legs
turn to jelly, pervasive fear coursed through her body rising to a lump
in her throat. At times the fear was incapacitating as though she could
not move. She did not know why, for she had never had a frightening
experience that she could relate to which precipitated these feelings,
they simply came much like the feelings one gets when one is ill. When
she was younger these feelings had been so powerful that even standing
on her own front door step she had been paralysed by such dread, it was
as though there had been an invisible barrier preventing her from
leaving her home and she simply could not get past this obstacle for the
feelings where just too overwhelming. Often she would cry and shake with
anxiety. As the years passed agoraphobia was joined by panic disorder an
extreme sudden inexplicable anxiety attack which like free floating
anxiety appeared not to be precipitated by any perceivable cause. These
attacks occurred right out of the blue suddenly without warning. When it
had first happened she was afraid she would die and was having a heart
attack, the fear was so overwhelming.
Every act of
life, from the morning toothbrush to the friend at dinner, became an
effort. I hated the night when I couldn't sleep and I hated the day
because it went toward night.
F. Scott Fitzgerald
Most mornings Lynda felt the familiar feelings of anxiety enhanced by
the burden of depression. Life was a struggle she and her husband where
not very well off. Before retirement Mike worked for a low wage with a
charity for the elderly; Lynda unable to work due to her disorders. Yes
indeed life was difficult and everyday presented a challenge. What would
appear to be routine and mundane and of little consequence to most
people was a mammoth problem for Lynda. Struggling to get out of bed the
agony of getting ready presented itself. Because of low self esteem
Lynda was anxious about her appearance. She often found herself peering
into the mirror studying her face ruminating on this or that feature
which gave her concern. Aging had increased this preoccupation but
throughout her life she had hated the way she looked and despite being
attractive she had never been satisfied with her appearance and this had
added to her feelings of inadequacy and social interaction problems.
Teasing at school becasue of her almond shaped eyes had done much to
undermine Lynda’s self confidence despite reassurances from her mother
that this as she grew older would be an asset, an enhancement to her
appearance.
Today would be a busy day for Lynda there was an appointment at the
optician and a class for her City and Guilds course and there was the
ladies sewing circle in the late afternoon. Yes amazing even herself she
had got together a small number of the other residents to teach them the
skills of patchwork. It was indeed an achievement but was anxiety
provoking nonetheless. With one or two exceptions Lynda seemed to
associate with her fellow residents better than she had done in other
situations with groups of people. Perhaps it was because most of the
residents where much older and she felt safer, she was not sure why but
here in her new apartment she was more secure than she had ever been in
her life. Even Madge the rather spiteful resident who complained that
the communal room was not meant for a sewing room had not deterred Lynda
although this of course this incident had produced anxieties.
Lynda was always particular about her breakfast, one Weetabix and a
tiny drop of milk. Yes Lynda had gone back to her rather obsessive
eating habits despite recently undergoing therapy for anorexia nervosa
at a day hospital. The whole thing had been an absolute nightmare, not
only the therapeutic method for her anorexia but also her social anxiety
made this an increased ordeal. Most of the other patients where many
years younger this made social interaction even more difficult. It was
at the time of treatment considered very unusual for a person of Lynda's
age to be anorexic although Lynda had had eating problems most of her
life, the nature of which was not easily defined. However she had not
become anorexic until her late thirties. This had followed in the wake
of a very difficult time during which Lynda’s agoraphobia had caused her
to be housebound. Boredom and depression had bought about the trendy
towards compulsive eating and she had put on weight rapidly. Lynda who
was rather short for an adult at only about 4th 10 had put on weight
quickly reaching over twelve stone to become a size twenty. One day
whilst trying on a new skirt a button had poped loose and shot across
the room, the initial hilarity that first ensued quickly gave way to
feelings of depression and anxiety. From that day forward Lynda went on
a diet and never stopped.
After a while at the day hospital she did find it easier although
there had been some uncomfortableness between herself and one of the
other patient’s parents who Lynda thought resented her she assumed
becasue of her age, that they considered that somehow being anorexic was
not appropriate. But Lynda did some times imagine such negativity from
others, a tendency toward paranoia a result of finding it difficult to
sense other peoples emotions, difficult to fathom what people felt.
Besides the social interaction the business of staying there from
early morning until late afternoon was problematic and rather boring.
The idea was too eat especially prepared meals at the day hospital;
lunch time consisted of huge sandwiches. Lynda became anxious always
mindful of the amount of calories she would be consuming constantly
compulsively trying to work out how to mitigate the effects by avoiding
food at home. She did gain weight but only a relatively small amount.
Her heart was simply not in it, it was as though she was always fighting
herself. The urge to be slim was so powerful it overshadowed common
sense, sapped motivation . After completing treatment she was still only
about 7 stones previously she had been about 6 stones 4 pounds. Within
months her weight once again gradually decreased.
Today was a particularly anxious one, Lynda dreaded medical
appointments. There were various reasons for this but if treatment was
invasive the greater her fear. Lynda had hospital phobia of a sort. But
even if the treatment was fairly benign Lynda often became fearful for
reasons she could not clearly define. Dentist phobia had been a huge
problem during her entire life to the extent that she eventfully had to
have her teeth removed under a general anaesthetic . Her anxiety over
her appearance had overcome her fear of anaesthetics but for weeks
leading up to the procedure she had been dreadfully depressed. She was
afraid of dying as a result of the aesthetic, this fear haunted her
regardless of the simplicity or complexity of the procedure. The
anticipated fear when such was of necessity hung over her life like a
shadow, following her everywhere the thought was there. Often she would
put off such procedures dreading the post arriving should it be the
notification of impending surgery. The fear of the dentist remained and
at one time in later life she could not even bear to have a plate
fitted, the mould in her mouth producing extreme anxiety with feelings
as though she were choking. The dentist although with the knowledge that
she had agoraphobia and anxiety had not been very understanding. Lynda
found that few understood her anxieties . However concerning
appointments like the optician she simply became so anxious that she
often cancelled not really knowing the cause of this anxiety, perhaps it
was simply an accumulation of just too many anxieties presenting at one
time. Today again this anxiety was there. Although Lynda had made
progress with her agoraphobia she still felt more comfortable less
anxious if she was accompanied. In the past there had been difficulties,
she could not ask her husband to take too much time from work, his
employer had been very understanding but there was a limit. And
sometimes even when accompanied Lynda simply could not face this and
often cancelled only hours before she was due for her appointment. Today
was going to be one of those days.
Lynda often rang her sister when she was particularly anxious and in
the same way for the same reasons her sister often rang her. Her sister
had OCD, depression and in the last few years a number of other
conditions such as migraine and chronic daily headache. As sisters they
where perhaps more close than is usual nowadays. They saw little of one
another though, mostly as a result of their respective conditions but
kept in touch regularly by phone and rang each other during times of
crisis and every Sunday. It helped to share fears with someone who
understood. Although both suffered with an anxiety disorder and both had
obsessive compulsive behaviours , her sister full blown severe OCD and
Lynda anorexia nervosa which she recognised in some ways was similar to
OCD, also Lynda's sister had even gone through a time of being
borderline anorexic. Even if they did not understand one another’s
conditions as such they understood the common feeling of anxiety, fear
and depression that arose from their respective disorders, After all
anxiety disorders get their name from the fact that anxiety is a symptom
common to these conditions. Both sisters also shared hypochondriacal
fears, both dreaded and feared anaesthesia, hospitals, invasive medical
procedures, both had dentist phobia and both knew the difficulties and
loneliness of social anxiety. In fact it was this problem that was the
most defining factor that drew them together and brought about a
closeness . Both sisters where of similar age, Lynda's sister only
eighteen months her senior. During childhood and still in adulthood both
had difficulty with social interaction. Both where socially inept,
awkward in company, tongue tied. Lynda in particular it seemed spoke her
opinion regardless of its appropriateness this would often cause
difficulties in her associations with others. Neither sister had had
many real friendships, neither had integrated with her peers and would
have spent childhood alone had it not been for each others company. Yes
they had squabbled sometime quite seriously but in the end resentments
and conflict would be cast aside, although Lynda had to always be the
one to give in, her sister never capitulating .
In recent years Lynda had made some progress with her social anxiety
after attending a day centre for the mentally ill. She had made a friend
with whom she felt close but she had also upset one or two people one in
particular had been a rather difficult association. But defiantly Lynda
had managed to improve and make one good friend who she would often meet
for coffee or lunch. But notwithstanding such progress often her
conversation was strained as though she had prepared a script for
certain social occasions such as meeting a neighbour and asking about
his or her health. Her sister had noticed how unnatural her interaction
had been although she did not say as much. However compared to childhood
there had been noticeable improvement.
Lynda recalled how difficult it was as a child, how fearful she had
been of other children. At one time in the infant school Lynda’s sister
had to join her at playtimes becasue she could not interact with the
other children . The arrangement had occurred when she and her sister
had been enrolled in a rather depressing drab infant and junior school .
Lynda’s sister had been only too willing to comply with this arrangement
having problems herself interacting with her peers in the junior
department. Yes indeed social anxiety had drawn both sisters together
and life indeed would have been lonely without each others
companionship.
Having cancelled the Optician and talking with her sister she had
felt some relief for a short while. She knew she should have gone as it
had been the second cancellation, if it happened again she would most
likely be charged for a broken appointment. But today despite talking
things over with her sister she simply could not face this appointment,
perhaps another day she would be less stressed although from past
experience she knew this was unlikely and all the cancellation caused
was procrastination and a repeat of the anxiety she had experienced
during the last few days, an anxiety she often felt as an appointment
came closer.
There are
more things to alarm us than to harm us, and we suffer more often in
apprehension than reality.
Seneca
But today she had to go to college, surely a difficult endeavour
without the added stress of this appointment. Although in recent years
it had become easier to leave the house alone, she most often did so
with a pounding heart, a lump in her throat and surges of anxiety. Maybe
even a panic attack. There was no medication she could take to relieve
such symptoms. In times past she had benefited from Nardil to some
degree but not enough to really be free from the clutches of fear that
was agoraphobia, but she had put on so much weight as a consequence of
using this drug. Excess weight that had motivated her to diet to
extremes due to the increase of weight as a result of this medication
and also from the boredom and depression of confinement due to the
severity of her agoraphobia. Also this medication had most likely been
responsible for the tragic birth of a seriously deformed child who had
lived for only twenty minutes. The entire pregnancy had been an ordeal
from beginning to end looking back she did not know how she had coped.
She had been extremely anxious and irritable snapping at everyone. Her
fear made her this way, the dreadful fear of what to most was a happy
experience albeit an uncomfortable one.
Nowadays Lynda was taking Lorazepam. This medication had long since
stopped being effective however Lynda like many others had become
addicted to this drug and although now on a low dose Lynda was unable to
break this addiction. If she forgot her medication within hours she
would be subject to quite severe withdrawal symptoms very much like the
symptoms the drug had been developed to combat. On several occasions
Lynda had forgotten to take this medication, overwhelmed with dreadful
feelings very much akin to anxiety and she had had no choice but to
return home. On a few occasions a new GP would suggest a programme of
withdrawal but so dreadful where the symptoms Lynda did not feel that
she could cope.
So there she was with no real help for her anxiety. The doctor had
prescribed antidepressants such as Amytryptaline but Lynda was anxious
to take this medication. It slowed down her system made her constipated.
In recent years she had been in a car crash in which her mother was
killed and she and Mike where injured, Lynda more seriously so. Her
intestines had needed immediate surgery and although she had made a
compete recovery this accident had been blamed for two bowel blockages
which a few years later had also required surgery. Thereafter Lynda
became anxious to take anything which slowed the movement of her bowels
fearing a recurrence of this ordeal. An ordeal that she could not now
imagine that some how she had been able to endure. The terrifying
pre-operative procedure of having her stomach pumped to rid her stomach
of digested food that could not be eliminated in the usual way due to
this blockage was something that in her wildest imagings she would not
for one minute have considered that she could have endured. Yet she did,
but she dreaded the thought of a repeat of this nightmare, Lynda now
lived in some apprehension about this happening again, any difficulty or
signs of constipation sent her into a panic.
One year when visiting her sister which was a rare occurrence, due to
her agoraphobia it was an ordeal of traumatic proportions, she had not
had a bowel movement and a panic induced visit to the local doctor in he
village where her sister husband and son lived was arranged. He had been
less than understanding but there again Lynda had not explained the
reason for her fears. Lynda had problems explaining herself, she like
her sister was tongue-tied, often she would neglect to explain the
situation not knowing quite how to do so. Often in such situations the
result was that her circumstances were never adequately explained nor
consequently addressed.
Often when such trips where planned the fear would be so overwhelming
that often right at the last minute she had got Mike to ring and cancel.
She knew her sister would be disappointed but Lynda was secure in the
knowledge that she would understand her fears, the dread of leaving her
softly zone. Most agoraphobics have a softly zone the periphery of
existence out of which they fear to venture. In extreme cases it can be
the sufferer’s own room or even the bed. Lynda had a pen friend, a
fellow agoraphobic who could not leave the confines of her bed. Lynda
could now albeit with Herculean determination leave her home but leave
the familiar areas within the boundaries of the city was still for the
most part out of the question. There where occasions that she would
visit a nearby village or other local place of interest but these trips
where fairly irregular and never ever alone. Travelling further than
these places was a terrifying experience Lynda would be so overwhelmed
with fear that on many occasion she would either cancel the arrangement
at the last minute or turn back half way. She recalled once having
booked holiday in a welsh seaside resort how the fear had built up the
further the car in which she was travelling took her away from her
safety zone until finally she could bear the anxiety no longer and asked
Mike to turn round and go home. She than had than to sufferer the
torment of guilt, Mike had looked forward to this holiday, he was of
course disappointed although he did his best to hide this feelings.
Lynda was nonetheless consumed with guilt about this problem despite the
fact that she could not help the way she was and did not react the way
she did with any intention, in fact she hated this impediment to a full
life.
Lynda like any other sufferer imprisoned with in the constricts of
her mind wanted freedom to be like others to travel at will without
trepidation. The Wales holiday in particular had been a huge
disappointment, Lynda had fond memories of childhood holidays there and
she like her sister had an affinity for North Wales.
Lynda prepared herself to attend her college course. Often getting
ready to go out presented its own problems with anxiety concerning her
appearance, taking half an hour to apply makeup and indecisiveness about
clothing also added it own brand of stress and depression. Lynda lacked
self esteem fussing over her appearance, still after all these years
anxious that others saw her as unattractive despite the contrary as even
with the approach of late middle age she was still attractive in spite
of her gaunt appearance. Lynda often thought that people stared at her
and worried about this often getting verbally aggressive and out spoken.
Yes she seemed oblivious to the fact that people did not stare becasue
she was unattractive but rather becasue she was so thin. Yet she failed
to see this thinness nor the fair downy hair which grew on her face
despite her sister having remarked on this due to concern about this
common manifestation of malnutrition.
Today as most days she would go alone leaving Mike to fiddle with his
computer. At such times he appeared to be in a world of his own
thoroughly absorbed by his new hobby. However he had helped Lynda with
her City and Guilds course finding information and ideas on the internet
for the various exercises Lynda had to complete to qualify for her
certificate. Mike was fairly good at organisation at least this aspect
of organisation, in other respects such as tidiness however the opposite
was true and with Lynda's tendency towards almost obsessive neatness and
order there where conflicts. Nonetheless nothing serious as on the whole
their marriage was sound. Mike had supported Lynda throughout and in
some way she had supported Mike but it had not been easy and after many
years of adversity there was of course some friction but on the whole
they where both supportive of one another.
However it pained Mike when Lynda became thinner, particularly after
treatment, but he just did not know what to do and at times he appeared
not to notice but he was simply lost as no manner of reasoning or
persuasion ever changed anything. If under pressure Lynda did eat food
that she forbade herself to eat she would be depressed or anxious. She
once told her sister that just eating a sweet, one boiled sweet would
make her so anxious as she felt as though the weight was piling on
before the last trace of sweet was even ingested. No one could alter
Lynda’s mind set concerning food not even the threat of damage to her
heart. Her sister had read about anorexia nervosa and had learnt that
when the condition became entrenched that damage to the heart could
result, the heart would shrink and change its position. Lynda even if
she had been monetarily anxious about such well meaning concerns
continued to diet impervious to threats to her health. She often said
that she craved food as though she did not make the connection that it
was in fact okay to give in to such cravings for these were not the
cravings of a compulsive eater but the cravings of her undernourished
body. Mike indeed had been patient some would say that he had enabled.
Rushing out on a cold winter’s night to get some of Lynda’s special low
calorie drinks on Christmas day on one of these rare occasions that they
had stayed with Lynda's sister becasue of Lynda anxiety that she had
just the right type of food or drink. On such visits Lynda had been
anxious about food preferring to take her own or shop for her
requirements. Her sister she felt did not really understand this and at
times visiting had been rather a strain because of this. Some times her
sister’s and her own obsessions would be incongruous, at such times and
there could be a little awkwardness. Lynda became annoyed when others
tried to get her to eat as it seemed as though they did not understand.
Mike had been understanding to a good degree he had even been patient
with Lynda's insistence that he stick to a healthy eating regime. As a
sufferer of high blood pressure and angina Mike needed to be careful of
what he eat but Lynda could be rather dogmatic and dictatorial in her
insistence concerning Mikes diet.
As the course was now in it’s second year Lynda’s schedule was quite
hectic. There was an open evening exhibition to prepare for, also her
final piece of patchwork was required in only a couple of months. This
would be the main piece by which most of the course grade would be
based. After much deliberation which sadly had brought about its own
measure of anxiety Lynda decided upon an
African theme, a mixture of patchwork and appliqué.
Link:
Africa theme quilt. This was a huge task and
an expensive one. To create such a quilt would be very costly indeed
and on their low income this was a concern. But Lynda had come so far,
had overcome so many difficulties there was no turning back. The course
had not been straightforward some of the more abstract ideas had not
come easily at all, but somehow after much support from Mike and the
course tutor she was now at this final stage.
Although the course had done much to strengthen Lynda's self esteem
it had been difficult in a number of other ways. Her perfectionist
tendencies had been a terrible torment. On at least one occasion the
course tutor had been dumbfounded when Lynda insisted on commencing a
new project as she was not satisfied with the standard of work she had
produced despite reassurances from her tutor that she was doing just
fine and the work was to a good standard. Moreover it had taken weeks to
become used to her fellow students. Her social anxiety and indeed her
agoraphobia had been no easy matter both to contend with and both had
played their own respective roles in making a difficult task seem at
times impossible. Lynda had commenced the course alone. Her new found
friend from the mental health centre seemingly uninterested in taking a
more serious course for a qualification. But since doing the patchwork
course with the mental health group Lynda had become enthused with
patchwork, it had become an obsession, a passion. Although a positive
one rather than a negative one she had to admit to herself that perhaps
at times she was over zealous and there was anxiety if she found that
for some reason or another she would not be able to work on her patch
work. She on occasion would also become irritable even angry. One such
occasion was when her sister and husband visited briefly. Lynda had
loathed to leave her hobby over the weekend and had arranged to work on
a piece by hand during her sister’s visit so that in some way she could
involve herself with her hobby but in a less noticeable way that would
not appear rude.
Courage is resistance to fear, mastery of fear - not absence of
fear.
Mark Twain
Finally on this bright autumn morning Lynda was ready to go. Although
she was enthusiastic concerning her course and she could now cope with
her agoraphobia and social phobia sufficient enough to make the journey
alone and when finally arriving to interact well enough to have made a
firm friend and one or two acquaintances, none of this had come easily.
There was always that dreadful feeling of trepidation. The fact that she
had to get to the course in the mornings when she was still effected by
that dreadful free floating anxiety that often took some hours to
subside made matters worse. Yes she could now make this journey alone
but it had taken several weeks to do so, but with time it had become
easer but not easy. Leaving her apartment was in the beginning an
anxious task in itself. When she and Mike had first moved here Lynda had
indeed been shy and dreaded opening her front door should she be
confronted by a friendly or sometimes sadly not so friendly neighbour.
But now she knew most of the residents, those she did not know or
avoided for some reason where now of no concern. Nonetheless there was as
always that feeling of apprehension which increased as the door slammed
closed behind her and she made her way from her apartment block down the
street to the bus stop.
It was not a particularly quiet area, a duel carriageway ran past the
window, but the street was lined with trees and there was pleasant
looking houses with attractive gardens opposite. Further down the road
though this gave way to rather a mix of warehouses some abandoned
boarded up offices and intersections of busty traffic filled roads,
although there was a park a short distance away but which they rarely
visited.
Today was a most pleasant autumn day the leaves where a glorious
display of vivid oranges and browns, the sun was warm it was one of
those Indian summer’s the final spate of warmth before the onset of
dreary cold winter days. Lynda shivered though despite the clement
weather. Even on the hottest of days Lynda was cold. Her apartment was
heated to an extreme degree, at five in the morning the heating came on, stifling unbearable heat. Mike found if suffocating as did her sister
during the occasional winter visit. Her sister’s house was always frigid
her sister was not used to such overpowering heat. But Lynda felt the
cold even in the spring and summer the temperature had to be hot
exceptionally hot for Lynda to even feel comfortable.
I can do
anything you want me to do so long as I don't have to speak.
Linda Evangelista
Waiting at the bus stop was always rather an ordeal. Would someone
strike up a conversation. Lynda had overcome her shyness to a degree but
scoial interaction did not come naturally. Often if the bus was late
Lynda became more tense. To get to the college she needed to catch two
buses, one into the city centre and from there another to the other side
of the city. A feat that just a few years ago she would have thought
impossible . Yet here she was now waiting at the bus top just like any
other person going about his or her business. Except unlike most people
she was anxious, her stomach churned a lump rising to her throat, her
heart pounding with strong palpitations. Going out for Lynda would never
be easy, common place and done without a thought, not accompanied with
anxiety. Even though she could manage to cope with her agoraphobia there
was nothing she could do to prevent a sudden panic attack which came
quite out of the blue and if severe may necessitate her return home.
Struggling through the throngs of crowds was stressful, people
rushing with frantic haste could at times be disconcerting along with
the cacophony of noise that nowadays seemed to forever increase in
volume. The blare of noise of music turned up at high volume bursting
out of shop doors as she hurried passed , the din of traffic all merged
into a convulsion of sensory overload and Lynda rushed to catch her
connection and get to the more peaceful environment of the college. Not
that there was much peace to be found anywhere nowadays particularly for
those so sensitive to every nuance of sound. The babble of chatter, the
slamming of doors, the tap tap tap of feet down the echoing corridors
all jarred Lynda's nerves adding their own measure of anxiety. The first few times Lynda
had made this trip it had been enormously difficult, the strangeness of
her surroundings, and it had taken weeks for Lynda to extend her safety
zone to become acclimatised to taking this journey and being in a place of which she was
not familiar. Yes again as time went on the
situation improved somewhat and now in her second year things had become
much easier but never easy.
He
dare not come in company, for here he should be misused, disgraced,
overshoot himself in gesture or speeches or be sick; he thinks everyman
observes him
Richard Burton
Arriving and entering the class room was invariably anxiety provoking
even after so much time had passed. Greeting her fellow students was
always difficult, some responded to the usual pleasantry of Good morning
but many did not engaged in conversation or other distraction not
realising to a person with scoial anxiety that this appeared as a brush
off, an indication that she was disliked or not noticed. People where
just oblivious that such a day to day occurrence as social interaction
was an ordeal for some. But now Lynda had at least one close friend
Marian. Marian was a little older than Lynda but of a very youthful appearance,
an elegant self-assured lady. They had a good friendship and Lynda was
able to confide in Marian but sadly Marian did not understand about
Lynda’s anxiety at all. Marian was very self confident for the most part
had few worries and little anxiety or stress in her life and therefore
little empathy. Lynda once remarked to her sister that during a visit
from Marion the council turned up to cut the grass and she became so
very anxious becasue of the noise that Marian remarked with some
surprise: “Really Lynda! Surely you understand that the grass has to be
cut.” Such comments irritated Lynda, the frustration of trying to get
others to understand her plight at times seemed impossible and often she
wondered if people thought her weak, surely she thought they should
realise that she did not want the problems she had and she would be rid
of them in an instance if only she could. She did not behave this way
deliberately. Notwithstanding such incidences theirs was a workable
relationship albeit somewhat strained at times. Although Lynda found it
difficult to really develop a close friendship with anyone and
oftentimes found people annoying.
The lesson as such lasted for about two hours although there was more
work and home assignments to be carried out including the completion of
the quilt. Lynda really was anxious about this, time seemed to be racing
by. She needed lots of encouragement which was forthcoming from the
tutor who continually praised Linda's efforts and abilities. But
nonetheless Lynda could not be convinced of her talent in this craft.
Not even when less able students sought her advice including her friend
Marian who was less enthralled with the course, less involved, less
serious, it was more for Marian a way to pass the time rather than a
genuine attempt to improve her skills.
The way
you overcome shyness is to become so wrapped up in something that you
forget to be afraid
Claudia Lady Bird Johnson
Lynda seemed more able to cope here than in other similar situations
many of which throughout her life she had abandoned if she had even
commenced them at all. The only real difficult time was tea breaks.
Lynda would complain to Mike when she arrived home how ridiculous it was
for a tea break that lasted for nearly forty minutes during a tuition
period of only two hours. Lynda felt it a time waster but more
importantly if was an anxious respite when the need for conversation
arose, at such times Lynda was tongue-tied for the most part. During the
actual lesson it was much easier as the sole topic of conversation was
of course patchwork. This was a serious course with a qualification at
the end of it for those who worked hard to improve their skills, it was
no mother’s meeting or social chit chat over tea. Yet there was this
long extended tea break which interrupted the flow rather and left Lynda
feeling awkward and such increased her anxiety. Moreover cakes and
biscuits where often passed round. Lynda invariably declined and felt
there was pressure to have a cake or biscuit, sometimes she imagined that
this was deliberate as if the group knew of her anorexia and that they
wanted her to be as undisciplined in their eating habits as they
themselves where. Lynda found it difficult to cope with other people’s
insistence sometimes it was as though people invariably thought that
whatever they where doing you should do likewise. Lynda would often
remark to her sister that If only everyone was
more tolerant, than everyone's disabilities, likes or dislikes, personal
preference or opinions would be treated with respect. But generally
these where a pleasant group of ladies and notwithstanding these
difficult scoial moments this was the first time in her life that Lynda
had felt part of a group. The first time that had become involved with
others so closely and doing something that she enjoyed which meant
something to her, something that she could achieve. Her patchwork had
made quite a difference to her life even though most facets of this
endeavour had their own set of stresses anxieties and tensions.
Today indeed the lesson had been rather anxiety inducing, the tutor
focused upon the final requirements for qualification and arrangements
for the exhibition of work. The completion day for her quit was still a
couple of months away but the exhibition was fairly imminent in a week's
time. Lynda still had a long way to go towards the final completion of
her quilt but even she had to admit this was in part due to her
perfectionism having to have it just so. Yes of course the work needed
to be of an high standard but in her tutor's opinion Lynda had already
exceed that standard. Lynda had a difficult piece to complete and today
needed the tutor's advise. Although Lynda was more confident now than
she had previously been she nonetheless experience some
apprehension, a mixture perhaps of social anxiety and fears that
she would never manage to sort out to her satisfaction this troublesome
piece of work. The tutor it seemed did not see that there was a real
problem remarking that Lynda worried far too much and needlessly so as
her work was excellent.
After the conclusion of the lesson and the taking note of new
assignments Lynda said her goodbyes . She arranged to meet Marian for a
coffee on another day later in the week and after a brief chat she left
to make her way home with the increase in anxiety that always happened
right about now. She would stop off in the city centre between catching
buses to check out the cloths. This often increased her depression.
Financial considerations where always a problem. Life it seemed was
invariably a struggle to make ends meet for anyone with any disability
and Lynda was no exception. Although she had made some progress she
would never be able cope with a full time job and it and been expensive
to enrol in the course. Although the tuition fee was free to people who
where on disability benefits the coast of buying materials had been
significant.
Lynda had such low self esteem that no matter what she bought, new
cloths, make up whatever she was always anxious concerning her
appearance. There was one shop she would not go into to try on cloths.
The mirrors in the changing rooms where positioned in such a way one
could see every angle of ones figure. Lynda hated herself hated what she
looked like. Despite being about 6 stone four pounds she felt fat. She
would remark that the mirrors in these shops made you look thinner than
you where so that you would feel you looked good in the cloths and buy
them. This may of course be true to some extent but nonetheless there
was no denying that she was painfully thin. Yet she could not accept
this. Conversely there where times however when she would examine her
frame, when she took a strange delight in seeing her collar bones stick
out and her ribs protrude. Was this becasue she thought this attractive
or was it that it was a visible indication that she had control over her
body. Control that other people it seemed did not have. Only Lynda knew
this of course, occasionally she confided both of these rather
incongruous mindsets concerning her anorexia to her sister. She knew she
was anorexic of course. She knew it was not normal and there where
occasions when she wished she could eat this or that with happy abandon
but at other times it appeared as though she relished this condition and
wore it as though it was like a medal, a badge of honour an indication of
achievement.
Most days she stopped in the shopping precinct to sit on the bench
there and eat her sandwiches, slowly relishing every bite. Contrary to
popular belief anorexics crave food. Anorexia is an obsession with food
in a way, controlling food in one way or another. Lynda often felt so
deprived fighting the dreadful cravings. But when she did eat what
little she ate she did so with careful deliberation. Today though her
peaceful contemplation and enjoyment of her meagre midday meal
consisting of two thin slices of diet bread, a scratching of low calorie
margarine and lattice she was interrupted by the chatter of a woman whom
she did not know. The lady an overly friendly person sat down beside
Lynda and began to chat away as though they had known one another all
their lives. Lynda could not bear such interruptions and abruptly said
to the women : “Do you mind I am trying to eat my sandwiches.” the
woman rather taken back left mumbling how it was true that people in
Leicester where unfriendly. Lynda did feel guilty about this and later
when she told her sister her guilt increased. Lynda could be abrupt at
times, maybe it was due to shyness, being tongue tied. On this occasion
she simply wanted her focus of attention to be on her sandwiches and
she had considered this an unwanted intrusion. She knew her sister also
had a tendency to be outspoken having at times a shocking temper but
nonetheless would probably have not been as rude for no provocation
other than irritation. Lynda could not understand her sister who often
made Lynda feel rather guilty from time to time and there were occasions
when she did not always tell her sister everything during their weekly
Sunday morning chats , at least not for some time for fear of
condemnation which even if it was not said in so many word was implied.
But after a time Lynda could not keep such things to herself, she had
never been good at keeping confidences or secrets about anything.
Sharing quite openly confidences which were probably best kept to
herself.
Finally returning home there was a little apprehension as later in
the afternoon she would be required to present at the ladies sewing
circle which she had of course organised. This was most definitely a
first for Lynda, never before had she ever undertaken anything of this
nature. Patchwork was her passion, some would say an obsession, and this
obsession
had brought this about although she could not quite recall how the idea
first started. It would seem that her hobby had been of considerable
therapeutic value, indeed it had motivated a person of a very nervous
disposition who suffered with agoraphobia, panic disorder, and social
phobia to achieve things that once she could only dream about. The group was only small, a half dozen or so ladies none of whom
had any previous skill in this craft therefore Lynda took on the role of
tutor rather than this being a mutual appreciation of the craft of
patchwork.
Nonetheless Lynda was always a little apprehensive however she and
her husband Mike had struck up a friendship with two of these ladies and
they had all four of them even been on holiday together. Another
remarkable achievement for Lynda. Naturally this had not been easy and
the warden of the complex had taken them all in a mini van, on arrival
Lynda had panicked wanting too return home. The warden refused and
incredibly Lynda stayed. At first she had been apprehensive not pleased
at all, although of course had she insisted he would have no doubt
complied. It had taken a couple of days or so for Lynda to acclimatise but
gradually her anxiety waned. The other ladies where only vaguely aware
of Lynda’s anxieties and perhaps because she had to keep up a certain
facade this in some way helped her to cope with the fear. For no
mistaking, fear of this nature is severe pervasive and a struggle of
Herculean proportion.
Approaching the apartment block was always somewhat nerve racking.
The communal lounge faced the entrance and at certain times of the day a
group of residents would sit there often commenting amongst themselves
concerning the comings and going of their fellow residents. Lynda knew
this as she had been there on one or two occasions. But this was the way
of the world as sadly when groups of people are in close proximity and
there is little other forms of occupation available. But notwithstanding such
exceptions most of the residents where affable.
Lynda went to the group which met in the lounge at about three in the
afternoon. It was only for an hour or so. None of the ladies had done
any kind of patchwork but most with one exception where able to learn
the very basics. The exception was May a lady who was somewhat slow and
also dysfunctional in many ways not easily defined. Not able to organise
herself to pay her bills, spending money on cigarettes and finally being
cut off and having no gas or electricity. She had no relatives and Lynda
helped her out from time to time but with sad consequences. This lady
was really not up to the task and she found it rather stressful as she
was neither a professional tutor nor a social worker. But this woman
seem so alone left to contend with problems of which she was unable to
cope. The ladies where always grateful, yet none realised the
difficulties Lynda faced or the anxiety that needed to be overcome in
order for her to run this group.
Today the class was rather stressful, May immediately grasped for
Lynda's attention with a piece of patchwork that despite its basic
simplicity she simply could not master. May who it seemed had a learning
difficulty demanded a lot of attention and was not popular with the
other ladies or indeed the residents in general. Lynda tied to help the
best she could but at times found this lady rather trying. Finally Lynda
promised to take May's work back to her apartment to sort to out. May
most likely came for the company . Notwithstanding this sort of
difficulty Lynda coped very well and today chatted quite spontaneously
with the other ladies . But after such a long and tiring day Lynda was
pleased when the class came to it's conclusion.
Lynda often became easily tired, after all it was exhausting fighting
so many battles on several fronts. In addition to agoraphobia, social
anxiety, anorexia nervosa and the occasional panic attack - and don’t
forget that panic attacks came at anytime without warning this in in
itself bought with it a certain amount of anticipatory apprehension - Lynda was subject to depression. Soul sinking pervasive depression.
Nothing came easy. The addition of depression sapped a lot of Lynda’s
motivation and it was only her enthusiasm and her perfectionist drive
that at times spurred her on. Ironically it can at times be the
obsessive illnesses such as Lynda's anorexia nervosa that prevents some
people from sinking into a prolonged mire of despondency. Had Lynda
succumbed to severe depression she would not be in position to be so
well organised in order to juggle her food to meet her daily quanta of
500 calories. However this did not mean Lynda was not depressed. Indeed
quite often her depression was significant . Some days her heart was so
heavy with the burden of unhappiness it took all her time to drag
herself out of bed to face the day and there where times when despair
threatened to interfere with her passion for her new found hobby. At
times she was so depressed that she felt as though she could not cope
with going to classes or attending the sewing group or doing much of
anything.
The evening meal was the highlight of her meagre eating day and was
prepared with an exacting attention to detail. Lynda put enormous energy
and effort into preparing a meal with in the strict limitation of her
self imposed calorie regime. Most meals consisted of piles of lettuce
and a mixture of other salad vegetables, grated carrots and such like. A
small amount of cottage cheese probably a little low calorie coleslaw
but little of anything else, not even a slice of bread. Dressings where
limited to low calorie salad cream. She would finish with a low calorie
yoghurt. This eating regime sometimes caused other problems as it was
expensive. Mike had noticed that Lynda obsessed so much about the
calorie content of food that if there was a choice of two items, one
with only a few calories less but considerably more expensive she would
choose this regardless of the price and their low income. Sachets of low
calorie chocolate drinks gave Lynda the sensation of fullness between
meals and she craved these becoming anxious should they not be
available. Lynda never compromised not even in a restaurant. Here she
would order cottage cheese and salad. Even when her sister and her
family came to visit and the went out to eat, while they ate such meals
as mushroom flan Lynda would still only order cottage cheese and salad.
Never ever seemingly tempted, occasionally taking a tiny spoonful from
Mikes plate but never ever seriously diverting from her diet. She never
begrudged anyone else eating, although she did make sure that Mike did
not eat food unsuitable for his condition, even making a huge effort to
sing the praise of this or that dish while she would sit and eat only
salad.
After such a strenuous day Lynda still took the time to laboriously
prepare and wash all the vegetables for the salad. The bigger the salad
the better she felt even though in reality she was undernourished
eating little of anything of any real substantial nutritional value. She
had long abandoned the progress she had made at the day hospital,
without the encouragement or the enforced eating regime she just could
not fight her obsession. It was after all an inner battle, a civil war.
She was torn between her desire to be thin and her need to be normal.
The compulsion to be thin was just too powerful, it easily overwhelmed
her half hearted attempts at normality. The feelings of anxiety
concerning eating had never gone, her mindset concerning her eating habits
had not really been addressed. The
therapy had simply been about an enforced eating regime which she had in
any case never whole committed herself too. Without the support of the
day centre her weight soon fell to a dangerously low level once again.
Other people including her sister in an attempt to help Lynda gain a
more realistic perspective concerning her eating regime had remarked
about how terribly thin she had become, how that it was possible to see
shape of her skull, particualry the indentations near the temples which
where extremely enhanced her skin appearing stretched and drawn. None of
this made the least bit of difference in fact at time she took such
comments as an encouragement against her fears that she was fat despite
her appearance.
This evening it was bingo in the lounge. Sometimes Lynda accompanied
Mike but for the most part Lynda preferred to work on her patchwork.
The days were passing all to quickly and still she fretted over the
quilt and its completion. The phone rang it was nine o'clock. Lynda
hated talking on the phone except with her sister. It was the friend whom she
had met at the day centre for the mentally ill and just needed to chat,
Helen was a very sensitive and caring person and they were now close
friends, in fact probably the best friend Lynda had ever had, but Lynda was tried and exhausted.
But guilt as ever and a concern borne perhaps of a sense of over
responsibility and she would spend over an hour talking with this person
at times feeling as though she needed someone with whom to share her
burdens.
Courage is
the price that life exacts for granting peace. The soul that knows it
not, knows no release from little things.
Amelia Earhart
Lynda's Story
Lynda's Patchwork/quilting
A
day in the life of......
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