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Ocd Plus formlly oc -illnesses-and_creativity.net

 

Ocd and More

The on-line journal/blog of a sufferer of obsessive-compulsive disorder OCD.

If writing did not exist, what terrible depressions we should suffer from.
Sei Shnagon c. 966 – 1013

May 2007

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Blog Roll

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Links to recommended blogs:

OCD

Wiping The Crazy Off My Face

Incertus - The Weblog of Doubt and Other Disorders

There is a diary included as part of the following website:

My Obsessively Clean Den

Where Justin can be Justin

Agoraphobia:

Agoraphobic
English Guy
Downunder

Bipolar and OCD:

Gail's journal

New!

Disjointed Thoughts

Autism:

Donna Williams’ Blog

Ballastexistenz

A Blog from Another World

Attention Deficit disorder ADD:

Living with ADD

A personal selection of Interesting Blogs not related to mental health or conditions of any kind:

The Action Blog:
Save an endangered species, protect human rights, save a forest.

Gristmill: The environmental news blog |

This blog is part of Grist Magazine's website, a magazine dedicated to environmental issues.

Positive Attitude Quotes, Free Happy Positive Loving Messages, Popular Motivativational sayings.

A good selection of interesting quotations

 

 

 

 

 

May 1st

I have not written anything in my blog for well over over a week. There are many reasons for this. I have slept in later than I used to due to the effects of my new Prophylactic migraine medication which makes me sleep better at night: if I do not rise early in the morning and work on my computer the only other time I have is on Saturday and Sunday mornings but lately life has been so complicated by other matters that require from me a lot of writing, I will not explain these problems right now, but my time on these mornings has been further absorbed by this necessity. I have also become increasingly depressed and the motivation to write has diminished no doubt due to this. My communication skills seem like everything else in my life to be getting worse and for important medical appointments including one with a psychologist I now have to write everything down at least to get it clear in my mind, fortunately my new psychologist has at least read what I have written, it may surprise you that many will not take the time to do this despite the fact that I try to explain that this is my best method of clearly and precisely communicating my problems.

Moreover writing for me is increasing complicated by problems I have mentioned before which involve OCD, checking rituals and obsessing about casing harm or upsetting someone. This has become so awfully tormenting that I have begun to dread coming on here and writing my blog entries due to the anxiety and exhaustion which arises from this aspect of my OCD. It is not easy to get out of bed when I am so depressed but the added anxiety over writing and worrying about everything I write decreases such motivation still further and the indecisiveness concerning what to write is a real torment. Most people would say, well why do this if this is causing you so much unhappiness. Well the problem is if I was to abandon this endeavour OCD has won again. I would eventually have to  pursue some other interest and when I did so OCD would turn its attention on the new pass-time and gradually destroy that for me. So here I am today struggling against depression, anxiety, aches and pains and the threat of yet another migraine. My migraine medication seems not to be working although I have had eleven days migraine free but not of course tension headache free, I was rather hoping that the situation was improving. Although of course such optimism is not well founded as of course these odd migraine free gaps of a few days in succession have occurred before but hope always leads one to believe that one is on the mend despite ones logic concerning a less favourable outcome. Even someone as negative as me seems unable to quell that feeling of hope that often presents, almost like a compulsive thought, against all odds. They say that hope is a destructive emotion, at least in certain situations, it at any rate in most instances leads to disappointment. But it appears innate for most people to continue to hope and I am no exception therefore today's headache if it turns to migraine will be a bitter disappointment. It has to be said that during these eleven migraine free days I have been anxious that today will be the day they return for the usual two or three weeks of frequent attacks, and this anticipation of course kills any pleasure I might receive during this respite. Moreover if I am out and about I am on tenterhooks if I have gone for more than two days without a migraine should one turn up and spoil my day, any twinge or an outright attack of tension headache is profoundly fear educing should the headache turn out to be migraine.


May 2nd

I would like to comment upon the tragic events that took place during the Virginia tech shootings in the USA. Although it is not definitely clear it is suspected or rather rumoured that Cho Seung-hui was autistic that he had either Asperger syndrome or high functioning autism.  Cho´s great aunt, who lives in South Korea, said during an interview that he did not speak much as a child and because of this after the family emigrated to the United States, doctors thought he may be autistic.

Rumour mongering can really get out of hand on the internet, so much supposition has grown from a comment made by someone, a distant relative on the other side of the world, which has led to erroneous and harmful speculation, which after a time translates to many as fact when in reality this is not the case. 

Neither school officials, who have his educational records, nor police who have his medical records, have mentioned such a diagnosis. Autistic individuals often have difficulty communicating, however lack of communication difficulties presents with  other disorders moreover the diagnosis of autism in any case would not explain his violence.

To reiterate, there has been as yet no confirmation of a diagnosis of autism. And most importantly this does not in any case explain his violent behaviour; such is completely uncharacteristic of people with autism:
"...to make any link between autism and the extreme, violent behaviour displayed in this case is irresponsible. Individuals are already often the targets of bullying and hostility and such speculation only risks inciting prejudice.

Autism does not make a person more likely to intentionally commit a crime. Indeed, in many cases, individuals with autism are unusually concerned to keep the letter of the law, due to the nature of the disability. Some people with autism may also be more vulnerable to criminal acts against them because of their social difficulties."

The National Autistic Society - Virginia Tech


I recall when the first news reports came in describing the personal characteristics of Cho that he seemed like an Aspie, at least these where my first impressions, but I  thought no more about this as such behaviours are at variance with the characteristics of a person with Asperger syndrome. Such symptoms could just as easily fit the diagnosis of a sociopath. People with Asperger syndrome are usually law abiding, they stick rigidly to the rules even inconsequential rules. It would be completely out of character for a person with Aspergers syndrome to violate such a major infringement of the laws of society, or the rules of moral and ethical conduct unless of course he or she was suffering with an additional serious mental illness and remember autism is a neurological developmental disorder, not a mental health problem. Many Aspies (an affectionate term for people with Asperger Syndrome) and others on the autism spectrum may have problems with anxiety and depression, some of which may be the result of society's rejection of anyone who is different. However just like anyone else an autistic person can have the sad misfortune to suffer with a more severe type of mental illness, even a psychosis which appears to be the case here. Now bear in mind that none of this is as yet official: At this time Cho Seung-hui’s health status is merely conjecture, the inference to him as having had autism stems from an interview with a great aunt mentioned above.

As those of you who regularly visit my blog will know my son has a diagnosis of Asperger syndrome. I also believe that there is a strong possibility that I may also qualify for a diagnosis of Asperger syndrome or at least have significant autistic traits. Neither he nor I would be capable of such an act of violence as is also the case for the majority of people who are either high functioning autistics or have a diagnosis for Asperger syndrome or indeed anyone anywhere on the autism spectrum. see link: 
Autistic spectrum - Wikipedia, the free encyclopedia. My son, husband and I are all vegetarian, none of us kill any living creature not even an insect. It must not be construed that even if Chow did have a diagnosis for an autism spectrum disorder ASD that that was the reason behind his motivation to carry out his atrocity. Again I must strongly emphasize that such acts of violence are not characteristic of autism, people with autism are not prone to commit violent acts. Moreover It is also important to bear in mind that most atrocities of this nature including wars which result in the death of countless millions of people have been carried out by neurotypical NTs ( people who are not on the autism spectrum). In fact it is suggested that fewer wars would be undertaken if everyone was autistic as people on the autism spectrum would be unable to collaborate with one another in order to carry out these insane genocidal acts of appalling violence which many condone as a necessary evil , evil being the operative word, accepting such as normal.

I have the deepest sympathy for the people who lost their lives and for grieving friends and relatives in this dreadful tragedy. One never quite gets over the death of a loved one even when that person is old let alone when they die in a violent manner at the threshold of life with much to look forward to. There are no words that can sooth the bitter pain such tragic loss brings. Life is precious to all and to hear of anyone’s demise brings a measure of sadness to me, a pang of loss. it is a tragedy when anyone in any circumstance whether young or old dies prematurely, unnaturally as a result of violence.

It is also tragedy when the perpetrator did so from the motivation of bitter resentment and a seething anger that seemingly he could neither express nor suppress. I do not know the facts and no one can claim to know what takes place in anyone’s mind. Such acts seem surely that of someone insane. I do know the frustration of loneliness borne from the inability to be part of the whole, to fit in, to be accepted for who we are no matter our differences. Many people are incapable of what is considered as normal interaction with their fellow human beings, for instance people with social phobia, avoidant personality disorder and all forms of autism including Asperger Syndrome. People with Aspergers syndrome would like to be part of society to have friends but do not know how to form friendships, they simply cannot fit in, yet they so much want to be part of society and often the result of ostracism or bullying leaves the person ever more lonely, the increasing isolation resulting in increasing depression and anxiety. Of course such circumstances do not condone such atrocities and clearly there other serious issues, delusional thinking which have brought about such an extreme and violent reaction.

I have sympathy for Cho even if it turns out that he does not have autism. I also have sympathy for his family who must be devastated by this tragedy with is a tragedy for all concerned. I feel a certain sadness when I hear about the death of anyone, death is so final it is particualry sad when the perosn concerned has had a wasted life of unhappiness.

Who is to blame? Obviously Americas gun laws have much to do with this, it is unlikely that here in the UK such a tragedy would have unfolded, at least not with such an high death toll as even with our present rise in gun crime it is not possible to walk into a shop and purchase a gun as it is in the USA. I for one would be very anxious to live in such a society when it is possible that your next door neighbour has a gun, particularly in today’s increasingly angst ridden volatile society when everyone's temperament seems more unpredictable. It is said that Cho parents recognised that he needed treatment for mental health problems but could not afford such treatment and moreover they did not have the time to attend to his special needs even though they recognised that he was autistic. It is sad that such a wealthy country as the USA cannot provide a good free health service, surely a basic requirement for any civilised society. The cost care and special needs requirements and medication is phenomenal to fund privately, well beyond the means of the parents finances to provide. Here in the UK simply getting an assessment for an adult with Asperger syndrome will cost in the region of £1000 to £1500. Here in the UK although health care is free when it comes to mental health, services are stretched to breaking point in some regions with waiting lists for CBT are as much as two years! Furthermore many psychologists do not have the qualifications to carry out an assessment for AS. I made this enquiry concerning a private diagnosis recently as a matter of curiosity should I fail in my endeavour to get an assessment on the National Health Service NHS and was shocked to learn the extent of the cost which is far far beyond my financial means. If I cannot get a diagnosis assessment on the NHS I will he no choice other than to let it go and make my own conclusions. I was told by the diagnostic service of which I made the enquiry that they would take NHS funded patients and I should consult my doctor however I was told that at my age this is not likely to be granted without good reason, just wanting to know would not be considered a good reason. My reasons I will share with you in due course in an article I am trying to write concerning the importance of an accurate diagnosis of all co existing and co morbid conditions. Most certainly if like me you are an adult and suspect you may have an ASD you have to have a very good reason why you need an assessment furthermore there has to be a person qualified to do this. I also got the impression that this person also considered that my age would also be of detriment to acquiring a diagnosis funded by the NHS. My resent psychologist has no such qualification. I think unless your symptoms are severe as an adult you have little chance of getting a diagnosis here in the UK unless you pay privately.

It is of no use to blame the parents who where I understand struggling to maintain a very basic life in terms of material needs. Yes it is easy for me to say these things. Many would say that you would feel differently if you had had a loved one taken from you so suddenly, so violently and yes I would feel differently, of course I would as such would be natural, human. It is human to feel anger, hatred. I myself am not a forgiving person and harbour bitter resentment from wrong doings towards myself and my family which are years old and are minor in comparison and when these resentments arise from time to time, as they do with all of us I would imagine, still the anger and resentment is there.

There was more going on with Chow than his alleged autism, he was certainly a complex and little understood individual whose life could have been so different with the right care and understanding. And this is the case for many of us who suffer with an ASD or mental health problem or indeed anything that makes us different from the normal. I would like to see a society where everyone is accepted for who they are regardless of differences. We need diversity in society, it is this diversity that motivates change that gives momentum to creativity and invention, often it is those afflicted with conditions such as autism and mental health problems that have provided us with the arts that have lifted our spirits , enriched our lives and the inventions that have astounded recent generations. We have made progress concerning racial discrimination, last Sunday listening to Martin Luther King's moving speech I Have a Dream included in a film I was watching I hoped for a time when all people are respected and treated equally regardless of race, creed, gender or condtion of health and this will include those of us with a mental, developmental and neurological problem or indeed anyone however different as a necessary and valued part of society. I would want to see a world where every person is appreciated and valued for whoever she or he is and remember everyone has something to offer and that most certainly is the case for people with autism and mental health problems. I have done this on many occasions here on my blog but now is a good time to remind ourselves just what those who have an ASDs and mental health problems have contributed to society.


Bill Gates : Computer technology founder of Microsoft - Suspected Asperger syndrome

Howard Hughes:  Aviator, film producer, entrepreneur. Hughes' vast wealth was left to the medical research institute which he founded 
Howard Hughes Medical Institute | Biomedical Research & Science Education (HHM.  - OCD and I suspect also that he may have had Aspergers syndrome

Van Gogh: A Dutch painter - believed to have had bi polar disorder and I suspect Aspergers syndrome

John Forbes Nash Jr : mathamatician. -  schizophrenia 

Friedrich Nietzsche: philosopher - OCD and Asperger syndrome.

Tchaikovski: composer/musican - bi polar disorder (manic depression).

Albert Einstien: scientist - Asperger syndrome, ADD

Bearing in mind that where the diagnosis is posthumous such is of course likely to misinterpretation and several condtions lay claim to the same individuals. Nonetheless clearly these people had either mental health problems or autism

This is an extensive list and I could go on. Society has been enhanced and enriched by all these people and many many others who never become famous but who have nevertheless contributed in some way. So isn't it time society had more respect and indeed appreciation for the mentally or neurologically ill and indeed for anyone who is different

Here is a link to ten positive things about autism :
Terrific Traits of Autistic People

And remember your average aspie is a law abiding person with a social conscience often an opponent of social injustice but in a constructive rational way I hasten to add. It is a fact that a person with Aspergers is more likely to be the victim of crime than a perpetrator. In modern history as far as there is information there are few incidences of the crime of murder where a person with AS had been the perpetrator and one of those is at the time of writing is only alleged: the case of Chow. Compare that to the untold countless murders perpetrated by NTs. People with Aspergers are less likely than anyone else to commit violent crimes.


May 3rd
I hope that I have not upset anyone with the above comments, perhaps it is best not to have mentioned this at all, although I cannot imagine that there is anyone who has not heard of this tragic event and the speculation about the medical status of  Cho Seung-hui.

I have to admit that at times I do say or even write things that some people may misconstrue particularly when it comes to such sensitive issues. I was anxious to post the above entry.

Concerning less sensitive issues writing is easier than oral communication as of course there is more time to think about what I have written or rather to obsess about what I have written. The tendency to say the wrong things is one of the reasons that I obsesses to extreme lengths before publishing my entries and this leads to long delays and of course my entries perhaps being a little out of date. This is becoming a serious problem and the increasing stress and frustration is just awful and it is a real battle not to allow OCD to deter me from writing or maintaining this website. And even though writing is easier for me than oral communication, due to OCD it is by no means easy. Moreover just lately I simply cannot think how to express myself easily it takes hours and much editing, as though even this medium of communication is becoming difficult, less natural. There is so much in my head, my mind is full of thoughts, both positive and negative but I simply cannot explain them either orally in a conversation or in writing.  The other day a simple request I had to put into writing. It was one paragraph in length, about six sentences, yet it took a while to compose and than with all the checking even more time and patience was consumed. Indecisiveness played a role also and I printed out two versions and asked both my son and husband which was the better of the two.

I feel so frustrated by these difficulties which I imagine are becoming worse as my anxiety becomes more accentuated. It is as though anxiety and stress increase by their own momentum: increasing anxiety further generates more anxiety which in turn produces still more anxiety and so on and on it goes overwhelming you until your whole life is lived in a state of hyper-anxiety and tension and the least little thing brings about an explosive tantrum of anger.  Earlier I could not get the tin in which I keep my medication into the cupboard, the door would not close  something had fallen behind and prevented me from pushing the tin in far enough to close the door. My rage was volatile, swearing and ranting. I recognise that such is an in appropriate response to a very minor difficulty, such difficulties beset everyone all the time, yet still I could not quell the rage over what to most is nothing other than a minor irritation. Any disturbance whilst I am doing something such as now for instance sitting here typing and finding everything written with caps lock on or having to use the toilet or someone on the telephone, raises my stress levels, the frustration is profound. However this kind of stress I believe is due to the stress that arises from OCD which has morphed and become generalised until any tiny thing in my environment which does not function or works out the way I expect brings about disproportionate levels of anger and stress.  Such feelings have become common place that my stress threshold is virtually nil and any thing and everything makes me angry, frustrated, irritable.  


May 4th

My hands are so dry these days that it is very uncomfortable in fact I would say extremely uncomfortable and if I do not have access to a continual supply of hand cream I cannot sleep at night due to the discomfort. My hands look crinkly and old, this makes me depressed, in fact my increasing age is becoming more of a source of depression and I cannot bear to look in the mirror or catch a glimpse of myself as I passes by a shop window. I have removed all mirrors from my bedroom. yes I am getting older of course and such is expected but sadly my hands have aged rapidly because of the years of repeated hand washing and looking at them now increases my depression regarding my increasingly older looking appearance. I am at the moment having consultations with a psychologist. I am at the present time under an assessment to ascertain my suitability for CBT, so far it is not looking good for one reason or another which I will explain in another entry otherwise this one will be rambling and muddled. As part of the assessment I am too write down all my emotions the thoughts and actions behind them and the degree of anxiety, anger or whatever which motivates them. Because of the severity of my OCD this is virtually impossible for me to do this; if I did so I would be sitting around doing nothing other than write this all down . Yes my OCD is that pervasive that it presents in every facet of my life. And looking at the state of my hands I am not surprised when I wash my hands wash my hands dozens and dozens of times each day. My skin in general is dry due to too frequent showering perhaps, and after years of such abuse of ones skin there is rarely a time that my hands feel comfortable unless lathered with copious amounts of thick hand cream which I have to apply each time I wash my hands. They are so uncomfortable now as I write that I will have to apply some right now, they feel like parchment, taunt; I keep making fists with them to relieve the tension as the skin feels stretched. If I apply hand cream at any other time accept directly after washing my hands I will have to wash my hands first before applying the cream which as you might realise of course increases the number of times I wash my hands Often  my hand cream gets contaminated and unusable. I think that I am going to be in for rather a shock just how much OCD encroaches on my life, most of my thoughts my actions are effected by OCD. More and more of which is beginning to resemble pure O without compulsions although if I look carefully there is probably some compulsion even if it is mental covert one rather than an overt very noticeable compulsions such as all this hand washing.

May6th

Accomplished OCD Artist Kirk Stacey has a new website:  http://www.freewebs.com/kirkstacey/gallery.htm
 
Please visit the above website for more of Kirk's  excellent artwork. it is always a refreshing change to hear of something positive concerning a sufferer of OCD. 


May 9th

In the next few weeks I will not be able to update my website or this blog. As I have previously mentioned I am right now having an assessment with a psychologist to ascertain my suitability for CBT. In the process I need to write down information on a chart which will monitor my thoughts.  I have to keep a record of every stressful or OCD situation; any situation that precipitates a change in mood, increased depression or brings about emotions such as anxiety and fear and what I was doing or thinking at the time. I have to record my emotions at the time, such as fear, anger, anxiety and the precise extent and nature of my thoughts. Because my OCD is so pervasive and presents in just about every action I take, even now as I sit here I am obsessing that perhaps I should not be writing this, I will be writing all day in fact it could get so overwhelming that in theory I could be doing nothing other than write which of course would rather defeat the object and a clear picture of my condition would not result. So I guess that perhaps I should not take this literally and perhaps I should not record the same thoughts as they occur over and over, but there again as my son pointed out, perhaps the psychologist needs to see how many times these thoughts occur. But it is just impossible for me to record on this chart every single thought and action, and to write concisely which as those of you who read my ramblings know only to well is impossible. So far I have recorded and explained only three thoughts.

Today I have a significant headache and feel under pressure to decide if it is migraine or just a tension headache as we need to go out. Now when I say just a tension headache this remark does not imply that these tension headaches are merely an annoyance, no indeed they can themselves be severe but unlike migraine they are just bearable. Nonetheless filling out his chart will increase the severity of my headache as was the case yesterday. In fact I found the whole assessment  session very stressful and my existing headache got much worse during the course of the assessment. I consider this is rather a difficult task to expect of people who have an anxiety disorder and or depression. It is not so difficult to write down examples of my thoughts, behaviours and the emotions which accompany them but to have to write every thought action and emotion and to rate the intensity in percentages of 01 - 100 is in itself a daunting and stressful task. I wonder what would happen if I was not able to write. I cannot for instance write concisely. my writing is very detailed, rambling . I cannot generalise. I was told during the session that the way I was describing in detail two instances of my social interaction difficulties that this would inhibit the success of therapy and that I needed to generalise which is something I am not capable of doing. I am in fact quite depressed about the whole idea as I do not feel I can do this, at least not to the extent required. I will of course try but I feel so overwhelmed right now and do not see how this task can be carried out. I think it is a lot to ask of people who are severely stressed. The only way I can do this is by trying to remember my emotions, situations and thoughts and from time to time record them as best I can.

Therefore because of this I will not be on-line and able to respond to e-mail for two or three weeks or update my blog or website as I really must concentrate on this as this will be my last chance of making any improvement. Furthermore I do need some time out to relax, sit in my garden, or go to some of the lovely places in my location in-between this frantic recording of my thoughts, and enjoy this marvellous sunshine we are having right now - although I have been told I will need to take my note book everywhere. I wonder if I am taking this too literally, recording every thought and emotion seems impossible! Also being rather a computer addict if I go on line to check e-mail I will get distracted and do other things on the computer and it can take a long time to write e-mails, sometimes over an hour or more and also thereafter endless checking which because of this assessment I will not have the time to do as I can only do so much writing in any case, as after a while my brain becomes confused, brain fogged if you like.

I like to leave you all with something positive:

Here are a few photos my husband took recently on one of our trips out.

These photographs will open into a new window
 

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May 24th

It is very difficult to get back into writing for my website after the last couple of weeks being away from my computer, or at least away from the internet. I had enormous difficulty with my CBT assessment forms recording Automatic Thoughts. It was rather overwhelming and I simply had no time for anything else. I decided that perhaps this form of therapy was not right for me. The psychologist was very understanding and said that if I changed my mind that I should ask for another referral. One of the problems was that I had been assigned to a primary psychologist, a primary psychologist only provides therapy on a short term basis usually to patients who are not chronically ill and for whom psychological problems are likely to be only temporary rather than chronic, which is not the case for me. These are the reasons that I wrote for my psychologist which try to explain my difficulties in recording these thoughts:

I have found it very difficult to record in this manner all of my thoughts in their entirety. In fact these thoughts are only a fraction of the OCD and other negative thoughts which pass through my mind. It has been very stressful and has bought about in itself its own measure of depression and anxiety. There are simply too many thoughts . Some of these thoughts are very complex. For instance the thoughts concerning the compulsion to wash the tap after washing my hands and than washing my hands again is a complex thought not easily explained: The nature of this fear is of re-contaminating my hands when I turn off the tap as of course I have touched the tap with contaminated hands when I turned it on. If I do not wash the tap my hands are again contaminated and I will than go on to contaminate other things in my environment such as my clothes, furniture, books, food and so on and on like a chain reaction which is difficult to explain concisely or precisely. The fear is that contamination will eventually be passed to myself, family and others. Some thoughts and obsessions are even more complex involving a variety of interwoven obsessional thoughts too complex to even describe. I feel that my writing is nothing more than a crude approximation of what I what to say as I can express neither the thoughts nor the feelings behind any of my thinking processes adequately enough by either writing or speaking. Also many compulsions are carried out without the thoughts presenting, this is because these compulsions are so habitual and automatic that the thought no longer presents itself and it is difficult to verbalise what for all intents and purposes is merely an essence of a thought, if indeed there is any thought there at all. Many of my regular routine hand washing compulsions are of this nature. In such instances the anxiety rating is low because the compulsion is invariably carried out, if this where not the case the anxiety rating would be very high. Indecision makes it difficult to rate my emotions and much time was spent trying to do so and really in truth the ratings I finally decided upon are rather haphazard. I have a constant stream of thoughts of an OCD nature and other negative content, anxieties about my social interactions problems, and general anxieties; it is impossible to accurately record and rate all of them.

I have included in every instance both anxiety and depression but it should be noted that depression and anxiety are on going, continuous chronic: I have a constant back ground of moderate depression with no precipitating thoughts with intermittent bouts of a more severe depression which sometimes is precipitated by either thought or circumstances. My anxiety is also constant in the background, it too is increased according to thoughts and circumstances, for instance the very sight of a dog will increase my anxiety to the level where it becomes fear. It is also important to remember that throughout the day right from waking I am beset with thoughts of a morbid nature, death is never far from my thoughts in one way or another. These thoughts are so numerous that to record them all is impossible. I see most of my life through my fear of death, death negates life, makes it feel pointless. Fear of the annihilation of my consciousness, my sense of self is always in my thoughts as is the fear of something happening to my husband and son, this I fear more than my own demise, thoughts involving these concepts are never far from my mind. I cannot list in detail all of these thoughts which flow like a constant stream and in some way are involved in the other thoughts that intrude, such as anxiety about contamination

Also I cannot write concisely, I cannot clearly verbalise the thoughts which result in the compulsions and other negative emotions. I cannot think how to express my thoughts and it can take a while to compose a sentence which clearly explains my thoughts. I cannot spell so I need to record in a note book first than transfer to my computer. I am no typist; I cannot touch type, I make numerous errors as I cannot coordinate trying to spell whilst trying to hit the correct keys whist trying to compose a sentence. I have also to correct my many mistakes, the kind the teachers would refer to as careless errors. For these reasons it would be impossible to present this to you to in hand writing as mistakes here are worse and also my hand writing is illegible.. Moreover it takes me many many hours to write because of my OCD concerns about making mistakes and writing something that may be harmful or misunderstood. Writing is therefore further hindered by checking compulsions. I know I have written much about my OCD which you have read however this took many hours and much of it was written previously months ago. It is in any case much easier to write an account of my problems in the manner I have previously presented to you in “My Story” from my website, the account I wrote about my present situation concerning OCD and other problems, and the account about my speculation that I may have Asperger syndrome. This type of essay like writing is much easier for me. Also even though I have said that it is easier for me to write than to speak, writing is easier not easy. Communication of any kind is difficult for me and both written and oral are difficult and filled with frustration

Headaches also present difficulties as due to concentration these become more of a problem when trying to record these thoughts which are often difficult to put into words. I am also often too anxious and depressed, it is not easy to find the motivation although I have struggled with this and have done the best I can.

Some of the pages are not dated I could not go back and do them after printing as I am so unorganised and my brain gets tired and my thinking confused and as a consequence much time would be lost. Neither are the thoughts in the sequence they occurred there is not one day which contains every thoguht in consecutive order, or indeed every thought. Because of the frequency of my thoughts I have often forgot to record them and have added them later as it occurred to me that I should have added this or that thought. To cut a long story short the forms are rather muddled and disorganised. To be honest I found the whole thing a huge ordeal which increased the intensity of my headaches and stress levels, it also increased my feelings of inadequacy as it does appear, from my asking others on the net how they coped, that none have experienced the difficulties I seem to be having. For a few days I gave up altogether. However I believe, as I have mentioned to you, that other difficulties in addition to OCD, such as Migraine and daily tension headaches, perhaps Aspergers syndrome and ADD and problems with spelling and writing as mentioned above also in their own way bring added difficulties. Regardless of the lack of a formal diagnosis of AS and ADD I have many of the symptoms of both these conditions - I most certainly have some attention deficit and an inability to organise, all of these difficulties have been a significant hindrance.

Incidentally I have noticed that because I am so overwhelmed with so much writing and there is a deadline I have had to compromise my perfectionism quite a bit. Yes it is very anxiety provoking, the forms are in such a muddle as I have mentioned before and things have been repeated with entries included twice, spelling mistakes and careless errors all of which are impossible for me to correct in the time I have. I feel extremely anxious and depressed about the muddled confusion on these forms. The last four pages I have just listed some thoughts as they came and when it was possible for me to record them.

Please bear in mind that all these thoughts are only a fraction of the thoughts that pass through my mind in the course of a day and are not representative of the pervasive extent of my condition. Many thoughts have not been recorded simply because I have not had to confront certain situations, for example there is no mention of my inability to go out alone which is due to not being able to cope with my OCD and the fear of having a migraine attack and not being able to get home.

Now I do not want anyone to be put off CBT and I am rather regretting not continuing but I really thought such a short course of therapy would only skim the surface and when left to my own devices the whole thing would start all over. Also you should be mindful that it is in fact not your OCD thinking that is making the decisions as I think may be the case here. Your mind will tell you all sorts of reasons why you cannot do this or that and afterwards in retrospect you realise this. Sometimes there is no clear cut dividing line between OCD thinking and your normal thinking if indeed there is any normal thinking left. Normal thinking seems only to arise in hindsight when it is too late to reverse your decision and than you are left with the torment later when you have realised that perhaps your decision was based on OCD’s delusional, negative and very destructive thinking. Often though a rational perspective of another person is needed, otherwise it can be days, months even years before we can spot the OCD thinking and how it has really controlled the decision we have made. This kind of OCD covert pure O thinking is less obvious than is the thinking concerning for instance contamination fears, it is more subtle and not easily spotted and you can be carried away in what can only be described as psychotic episodes when it appears that all insight has failed you and you are led away into all kinds of negative delusional thinking.

The following book was recommended to me by my psychologist. I have not as yet purchased a copy but intend to do so. The book is entitled, Mind Over Mood: Cognitive Treatment Therapy Manual for Clients by by Christine Padesky and Dennis Greenberger.

May 25th

Continuing with the subject of the last entry concerning OCD and how difficult it can be to differentiate between rational thoughts and those that are of an OCD nature. Again it is the less obvious thoughts which cause the greatest problems for me, at least now. In the beginning of the full blown emergence of my condition this was not the case when indeed religious thoughts that where obviously of a neurotic nature all seemed very real and I was carried away by them for over six months before I began to gain some insight into the fact that such thoughts and consequent behaviours were not normal and that I was having some problems for which I needed help. The religious thoughts do remain and still today despite my insight I continue to experience problems and loose contact with reality and persist in giving credence to the but “What If” way of thinking and I remain unable to go against the strong compulsions that arise from these thoughts. And all this despite the fact that I am now agnostic. Such is also the case concerning my superstitious anxieties with the number which I cannot now right down no matter how much self talk I give myself concerning the illogical down right stupidly of this thought and consequent compulsions.

In recent years thoughts of a less bizarre nature have also plagued me with much anxiety and these thoughts concern more usual day to day thinking, like the religious thoughts these are nonetheless inappropriate however unlike the religious intrusive thoughts these thoughts are difficult to assign a label of normal or abnormal and I can be in quandary of indecision.

A while back we needed to travel quite a long way; I was worried should my migraine medication stop working as I had been taking so many doses in the last few months due to a sudden and drastic increase in my migraine attacks. There is an alternative medication which consists of a combination of Codydramol and Lorazepam. This is less satisfactory than my regular migraine medication Diclofenac because this combination makes me sick and also lorazepam is very additive and the effectiveness wears off quickly, but it is okay in the short term for a few days should I require it as back up for for my usual medication. Now I was anxious to ask my doctor because on a previous occasion I had been turned down for a prescription of lorazepam; the doctor, who was only a stand in, had not bothered to ask why I needed them but gave me a lecture about possible effects of addiction and brain damage, he assumed as a sufferer of an anxiety disorder I was popping pills to ward off an anxiety attack which was not the case. I was at the time simply not able to express to him articulately why I needed this medication so this was one reason for my hesitancy. Another reason was my notion that the doctor would think this a classic case of castastrophising, obsessing about the possibility of my medication not working and that to request back up was neurotic. Was this an OCD motivated request or was it sensible logic, the kind of thing a non sufferer would do? I really ruminated about this for days ahead of the appointment writing it down precisely certain I was being neurotic and that my request would be denied. It does not sound much in the scheme of all things OCD but to each his own as it where, for me this problem generated a huge amount of depression and this consequence was of course in itself irrational. Although because of the  decrease in my ability to orally articulate I simply handed the doctor what I had written. She seemed rather genuinely nonplussed, kind of surprised that I was exhibiting obvious anxiety about requesting this medication which she said was indeed a very sensible request particularly if getting medical attention would be difficult as could well be the case in an area in which I do not live. In fact many people have two types of medication for migraine,  one as a back up but, I hasten to add, this must be done through your doctor as of course you cannot take certain types of painkillers together: for example you cannot take two types of Paracetamol even though they are included in separate types of medication as this would be an over dose. So in this case the notions which I thought where irrational borne of OCD where in fact considered sensible by my doctor.

One year whilst on holiday to Glastonbury in Somerset we ascend the Tor on a cold and misty morning. This is another aspect of OCD which I must mention another time and that is the neurotic compulsion to feel that one has to do certain things because in the past one has always done so. For instance in this case if we do not ascend the Tor which is quite a struggle for me in recent years I feel uncomfortable as though I am missing out on something and the holiday is not satisfactory as a result. Anyway this is not the point I am making right now. The tower which crowns the top of the Tor, which is an ancient monument the ruins of St Michaels church, is so often subjected to mindless graffiti and often much litter accumulates. This particular morning inside the tower was a pile of discarded bottles of alcohol just left there in a heap. It did not for one minute occur to me that it was my responsibility to pick up these bottles even though I have this kind of OCD. This was possibly because of my contamination fears; sometimes in the case where two opposing OCD behaviours present the stronger anxiety, obsession and consequent compulsion will cancel out the obsession and compulsion which is less anxiety provoking. Besides I was huddled in the corner trying to avoid two somewhat hyperactive dogs who where running with great exuberance here there and everywhere. The owner a friendly women, although I had to make a comment about not wishing the dogs to come near as their paws where muddy, decided it was her responsibility to collect these bottle and take them down to the bin at the entrance to the footpath. Now had I done this both my husband and son and no doubt anyone familiar with OCD and the sense of hyper-responsibility many sufferers experience may have said that this was not my responsibility and that picking up these bottles, which was no simple task as there where at least a dozen or more, putting them into two carrier bags and struggling down the Tor with them was inappropriate and a classic example of OCD over responsibility. What do you think? Can you see the dilemma in these subtle, less obvious types of OCD. In such a situation as those cited and many others it is sometimes not possible to know if the thought arises from OCD or more rational thinking. After all this lady most likely lived there in the town but in any case few people would have taken these bottles down on this very windy day. In some ways it depends on perspective, if one is carrying the bottles down because one has a fear that something awful might happen if one does not do this than it is OCD. However the problem remains regardless of motivation: when do you know whether your actions are appropriate or otherwise? Without OCD would you feel so responsible as for instance in the case of an occurrence a couple of weeks ago when a lamb was in the middle of the road in danger of being killed or causing an accident and killing others.

The lamb came running out of the undergrowth, the poor little thing was in a state of absolute frenzy. It had escaped the confinement of a near by field where it's mother was bleating in distress and it could not remember how to get back and was running in frantic panic into the road. Passing traffic ignored it barely slowing down despite my frantic waving trying to indicate a problem. Prior to this both my husband and son groaned with the anticipation, the knowledge that I could not drive on by. But what to do, there was no farm house in sight. I could see no where from which this lamb could have escaped. My husband insisted it was impossible to try and get it back in the field but taking no notice I walked along the road anxious not to leave it to fate both for OCD reasons of anxiety about failing to take action and for genuine concerns for the lamb. I had of course no idea what I was going to do as OCD contamination fears would prevent me from touching the animal although in dire circumstances I may well have done so. Whatever it would not be easy to get this lamb back in the field, like all members of its species it was extremely timid. Neither my husband or son had gotten out of the car but fortunately for me a cyclist came a long and dismounted. I wondered why he was stopping, it simply did not occur to me that he too had stopped to try and help this lamb because mostly people just pass by. By this time both my son and husband had joined us and we tried to corner the lamb. The cyclist managed to trap it in the undergrowth and pick it up and leaning over the fence to place it back in the filed where it rushed with haste to its frantic mother for a feed. The cyclist had cut himself and I was concerned but had no way of helping but I did worry about this feeling somehow responsible, but even if we had not been there I am sure that the cyclist would have stopped anyway.

Again if no one else had stopped it would have been considered as taking responsibility that was not mine to take. Yes maybe OCD thoughts did play a part in the whys of the matter but where my intended actions and concerns justified. The cyclist did not stop to analyse his actions, or consider whether it was his responsibility or not But with OCD in this sort of situation it is not easy to know what is normal behaviour and what is not. Quite honestly people generally speaking need to think that perhaps it is time that they considered that things within their lives, in the environment, in their interactions with others are perhaps their responsibility instead of leaving it up to some one else.

During childhood and early adulthood I lived in the midlands. In those days when there was a heavy fall of snow everyone went out and swept the snow from the pavement in front of their house, the only exception where people who where too old or disabled to do so, but more often than not a considerate neighbour would do this task for them. It cleared the pavements and made walking much easier and safer. Now no one does this. When I went to live in Sussex the first time it snowed when we had our own home I swept the snow away from the front pavement of both ours and our neighbour's house. But no one else did and eventually also in the midlands this happened less and less often. People today think it is always someone else's responsibility to come a long and sort it out. I know with OCD being over responsible can become very intense until you convince yourself that everything is your responsibility and as other people get to know this you can find yourself taken advantage of. For people with OCD it is often difficult to know where to draw the line concerning what is our responsibility and what is not, is it my responsibility or is it just the OCD telling me it is. The same applies with other less obvious manifestations of OCD when it is not clear which thought and subsequent action rises from our OCD and when it is in fact normal behaviour. Yes if the thoughts that motivate the behaviour have an OCD type reasoning behind them yes it could well be an OCD thing and inappropriate but this may not always be the case. You can still have OCD thoughts that make you feel its your responsibility and the thoughts come telling you that something awful will happen to your family if you do not do this or that and fear takes over and you give in to this fear and do whatever. However just because the thoughts have intruded does not necessarily mean your final actions where inappropriate. These thoughts are now so habitual that they crop up in any situation where you feel that something is your responsibility. So in some instances it is not easy for the person who has OCD, who is trying to cope with their disorder and trying to overcome its compulsions, if he or she is unsure that the action they are about to take is due to OCD and therefore inappropriate. Was it over-responsibility to rescue the lamb? The cyclist didn’t think so. Was it over-responsibility to collect the bottles from the top of the Tor, the dog walker did not think so. One of the greatest difficulties when challenging OCD behaviours is knowing what is normal and what is not and even with the more obvious contamination OCD manifestations it can be very difficult to recall how you once behaved and what is now normal for you.

When I was a child we had only one bath each week and washes in between, except for the fact as a child and most certainly as an adolescent I did not care to stand in a freezing unheated bathroom and wash every day. I am ashamed to admit this I was not a very clean person, my time was for doing other things washing was not one of them. Most certainly hygiene and worrying about germs was not a problem and I recall being fascinated when in the sixties the newspapers where full of news articles about Howard Hughes and his strange obsession with germs. Indeed I remember  saying to my mother that I can’t imagine being like that, we all thought his behaviours truly bizarre. My mother used to have to nag both my sister and I into having a bath the thought that one day her daughter would become like Howard Hughes would not have occurred to her at all. OCD had of course reared its ugly head but contamination fears where at that time not its manifestation. In early adulthood before the emergence of my full blown OCD which went on to include severe contamination OCD I was a little more hygienic but certainly not the way most people where in the mid seventies. So if I where to challenge my OCD behaviours which I have done two or three times in the past, including a three month stay in hospital, I found that the greatest difficulty was not knowing what normal behaviour was concerning many of my OCD behaviours and this I believe has had an effect upon the progress I made or rather didn't make. Yes I made some recovery but it was never sustained the OCD always came back sometimes to a lesser degree but than a new obsession would rise its ugly head and the whole process would begin again. One of the biggest problems is my inability to generalise. When I found out what was normal in a certain situation I could not carry this over and adapt it too a different situation and would have to check if this or that was normal and this in itself became a compulsion, OCD is a very pervasive complex disorder not easy to cope with without help and even with help it can be a struggle to contend with the way it morphs, reintroduces itself into your life and once the support is taken away, which it invariably is, and you are left to your own devices it once again takes over you life. This is my experience, it may not be the same for you there are a number of people for whom unfortunately for reason not known seem to have intractable OCD.

May 26th

We have all gone down with some dreadful infection. I have not felt so ill for years. The infection has gone to my chest and I have felt as though I have been torn apart by coughing and sneezing which makes it difficult when you are prone to chronic headaches. Despite my contamination OCD I rarely get ill - at least not now in adulthood and do not recall having flu ever, well not until now if indeed this is what this is. In childhood however it was quite a different story and I had a good number of very serious and potentially life threatening conditions including pneumonia, whooping cough and even scarlet fever. I had the awful thought this morning that now as I am getting older I will be prone to some very nasty illnesses.

Life right now is very difficult and the onset of this illness is not making things any easier. I in fact had the beginnings of this when I had to go and see the psychologist and this did not help me to think clearly and now also I worry I may have passed on this infection to her.

I did not actually turn down treatment in so many words, at least not at the beginning but merely said that I found it difficult to fill in the forms and that the cure seemed worse than the disease which was a poor choice of words, but because of my social ineptness sometimes I do not always say the most appropriate thing, or at least it could be expressed in a better way, and finish up giving the wrong impression. As soon as I made this remark I regretted it even though I had practiced how I was going to express my problems. All I really wanted to do was point out the difficulties I was experiencing, at that point I had not made any final decision not to continue. I had been rather confused unsure whether or not at this juncture I had been accepted for therapy and this sapped my motivation thinking that all this very time consuming writing could be for nothing. Now do remember I have communication problems and although writing is easier than speaking it is by no means easy

It takes me an enormous amount of effort to come up with the right words to produce all this writing. It is by no means as easy as you might expect, it takes many many hours. This is even more difficult when I need to express myself concisely as would be the case with the automatic thought forms. The psychologist gave me an example of how I would express my thoughts using a recent encounter with someone on the road who overtook us in a dangerous manner as a case in point. I can't recall her exact words but it was a couple of very short sentences along with the possible emotions I may have experienced such as anger and stress, she did not hesitate struggling to find the right words, there was no delay in response, instantly she found the appropriate way to express this and she finished by saying :" It is as easy as that". But sadly for me it is not, although I did not say so. It would take me a long time to formulate the words or to think of the right way to phrase the sentence, such for me is not automatic, it takes time for me to process information. Than of course there is the OCD doubting and checking compulsion which does get in the way and which I can't just disregard because I am in a therapy situation, as of course if it were that easy to do so I would not need therapy in the first place.  Over the last two weeks or so it has been a nightmare of frustration. I do now obsess rather over that last conversation and hoped that she did not think I had gone for a diagnosis of Aspergers and nothing else. I worrying I might have given this impression. This of course was not the case as regardless of diagnoses all issues can be addressed indeed you do not have to have any specific condition to benefit CBT. However I believe that to treat any patient effectively all conditions have to be diagnosed and the patient treated as a whole and at first I admit I was rather disappointed. However I got the impression that a psychologist offering CBT is not really concerned about diagnosis seeming to accept the ones you previously have but not willing or able to provide further diagnoses this I imagine is under the remit of the psychiatrist.

My psychologist in fact could not give me an assessment for AS. At our first session she asked me to explain my situation but I can not recall how, it was not a direct question, and in retrospect I get the impression that perhaps she was not asking me to list my diagnoses as such. In fact I did not understand exactly what was required so I told her about being formally diagnosed with OCD and depression but also mentioned other disorders which I suffer with such as GAD, hypochondria and finally my social anxiety problems which at this preset time I consider may be Aspergers syndrome, for reasons of which you are now familiar. The last of which I rambled on a bit about anxious to justify what may seem in itself a neurotic notion, a kind of variation on hypochondriacal imaginings. I somehow lost all confidence that my consideration that I may have AS was valid. It is amazing how quickly we can loose self confidence when the time comes and we have to justify such reasoning. During the week preceding this appointment I had obsessed about making this request and asking for a assessment writing in some detail why I think I may have AS. But it was not until I was sitting in her consultation room that I final made the decision to broach the subject. I than gave her my papers, extensive writing concerning my problems 38 pages of A 4 single spaced. She accepted them without much comment seemingly not to appear surprised or overwhelmed by the amount of writing, all my worrying about overdoing this was all for nothing. Which just goes to illustrate how much we can spend our lives worrying about what might or might not happen particularly concerning other peoples reactions. Psychologists are just like anyone else, each is an individual with his or her own ideas and just because I had difficulty getting the previous psychologist to look at my writings did not necessarily mean this would be the case every time and from past experience it had not been, but I had focused on the negative experience rather than the positive one and had worried and obsessed unnecessarily in this instance. She did not seem that taken aback with this idea concerning AS but told me that she was not qualified to make the assessment the only person who could do so was the psychologist who had decided not to other me therapy. I did not know what to say. She further suggested that what I may think of as the symptoms of AS where in act symptoms of anxiety - at least that was my understanding at the time, however I cannot be sure how accurate my assumptions where. Yes indeed there are similarities and sensory issues can be the result of high anxiety however there are other symptoms that could not be related to anxiety and more accurately fit the diagnosis of AS but at this point I had not had an opportunity to explain these symptoms and of course the psychologist could not read my notes while I waited so she was not aware of the facts behind my reasoning concerning the possibility I may have AS.

The subject of assessment for AS was not mentioned again during the subsequent  four sessions but she had read what I had written which included : 16 pages of My Story from my website; 10 pages concerning my present situation with OCD; 4 pages about my migraine, IBS and fibromyalgia and my 8 pages stating my reasons for thinking I may have AS. She had read all this understanding that I was better able to explain my circumstances in this way and would have addressed all of these issues not just the ones with a specific diagnosis. I got the impression that in principle CBT in general address the problems and is not interested in specific diagnoses. However I think diagnoses are important,  sufferers of these very pervasive debilitating condtions find comfort and a sense of belonging when they are diagnosed, most people need to identify with others who are experiencing similar difficulties with life. They need to put a label on why this or that is happening to them, why they feel alienated, different from others, why life does not seem to unfolded the way it does for normal people. Without a diagnosis you are simply not confident enough to present yourself for instance at support groups or even on-line groups. I find it disappointing that still after so many years mental health professionals just do not understand this. I can appreciate the CBT approach of not focusing on specific diagnoses and indeed this is a good idea for other issues often need addressing which would other wise be overlooked if attention was only upon specify diagnosed conditions.  And indeed this has been the case throughout my life when it appears that my social anxiety was never really addressed not even during the three weeks that I spent in hospital. Most sufferers life a label it is as simple as that and often just knowing what is wrong with them and that there are others in similar position can do much to enhance their lives and speed up the process of recovery or improvement. I was better able to understand my condition when I was formally diagnosed in hospital as having OCD. I was therefore in a much better position to join support groups and find appropriate information.

I think this psychologist may have given me an asessment if you had been qualified to do so but really that is not what CBT is about. She was at all times very pleasant and had sympathy for the difficult life I have had. She had been prepared to at least find ways of helping me cope more effectively but could not address such a long standing problem in eight weeks. Yes indeed I do have regrets and feel that once again neurotic thinking has intervened however I did find my situation rather confusing and felt as though somehow I missed or misunderstood quite what was expected and I was not sure if I was still undergoing an asessment or had began therapy proper.  I felt very guilty as though I had let her down.

I feel very awkward going back to my doctor who had requested that I see someone as soon as possible and now feel guilty and uncomfortable as though it may appear as though I do not want get better, as this is not the case.

I think that to get the best out of CBT you need to know something of what to expect. I asked my psychologist the kind of person who would not be suitable for therapy, and along with those seeking a diagnosis you are not suitable for therapy if you have a learning disorder which is of course obvious if you cannot read or write CBT is not possible. There where other reasons such as psychotic illnesses - in fact there was such a long list I lost concentration and spaced out. I felt guilty about that and hoped that she had not noticed but most people do it can be quite obvious at times. Yes guilt was mentioned on the emotions section of my automatic thoughts list  a good number of times. Certainly  my inability to express myself would be a hindrance , but perhaps I was looking too deeply into this after all ones writing does not need to be explicit, eloquent or grammatically correct it just has to express the situation and the emotions experienced. Perhaps I was making it more complicated than it really was.

May 26th

One of the difficulties that people with anxiety disorders have about appointments is waiting for his or her turn in the patient waiting room. My son gets so stressed by sitting in waiting rooms that he delays going to see his doctor. This has also been a significant problem for me now for some time since my sensitivity issues became more accentuated.  Yes partly it is impatience particularly if you are having an unpleasant examination and want nothing more than to get it over and done with or you are overwhelmed by the close proximity of the other patients, the noise from the incessant ringing of telephones, conversations and nowadays increasing the babble of radio or TV. The coffee table upon which there was once a selection of magazines is generally gone, it has been relapsed by radio and TV. Our local hospital has two TVs in the Ear Nose and Throat departments waiting room. Seats are arranged directly in the front of the TV. You enter and most people are staring at the TV like a bunch of zombies. I find it unsettling why can't people simply wait their turn read a magazine, a newspaper or a book or just sit quietly. Often when I go to accompany my husband for his appointments at the hospital I have to go and wait for him in the car park as I just can't cope with the noise. Do people like the addition of TV and radio in the waiting room. One clinic there is a drone of a middle of the road radio show interspersed with the babble of the presenter the sound quality is poor it is nothing more than an annoyance at best, but a source of anxiety at worse.

The worse waiting room I have had to endure was the one in which I had to wait to see my psychologist. The medical centre where the appointment was to take place was new to me, at least I have never been inside. It was a doctor’s surgery in a local village and not my own doctor’s surgery. I find I have nowadays an anxiety about anywhere unfamiliar a relatively mild anxiety nonetheless it all takes its toll on the overall anxious feelings. The waiting room and other surroundings was more like a hospital, and an old fashion one at that, than a modern doctor’s surgery and the reception area was more like that in a bank where the receptionist was enclosed behind glass. For my first appointment I was early, I doubted I had the correct location even though I had checked it several times . However I am always early, anxious not to be late I go to appointments ridiculously early, it irritates my husband who of course has to accompany me and stay there during the appointment as I panic if he wonders off and I happen to come out of the consultation earlier than expected. So he has an hour and a half stuck in this dreadful depressing windowless waiting room rather like stepping into some time warp and finding oneself back in the sixties with the additional paranoia of the added securities that despite the old-fashioned surrounding is a more modern phenomenon, where shouting through glass now seems commonplace. I hate to have to shout through glass it is stressful and takes away your privacy.

I needed to use the toilet, of course I have both IBS and irritable balder, my tension was though the roof such is therefore inevitable. I stood outside the toilet for about five minutes like an idiot, having tried the door and finding it locked , until I am told that I needed to get a key from reception. I could not believe what I was hearing I felt like bursting into tears. Apparently the toilets where locked because children came in and made a nuisance of themselves in the toilets. So now I had to go to reception and wait in a queue for at least five minutes to get the key! I really felt like I wished to turn round and go home. Mostly in such stressful circumstances I will need to use the toilet two or three times and each time having to ask for the key was a nightmare for anyone who is anxious. Surely it could be more acceptable, if this ludicrous over reaction to kids messing about in he toilets was necessary, easier and more pleasant for patients if the key was simply left on a hook near the reception. People with bladder problems also could find this inconvenient and so could very young children and older people who often need to go urgently. The next fifteen minutes dragged on seemingly interminably until finally I was asked to go upstairs where I would be met by the psychologist. This doctor's surgery here appeared even more hospital like and an old fashioned one at that. The main door at the top of the stairs could not be opened from the outside I had to wait for the psychologist to admit me. Indeed I most definitely consider this just about the worst place to wait for an appointment the only plus side was there was no music, radios or TV! However thereafter I arrived exactly on time to avoid having to wait too long. The toilet situation though made a stressful appointment more stressful, I dare not have a drink until I had arrived home, so that morning I did not drink until about 11.30. I can't help but wander, do these people think these ideas through before introducing them, a doctor's surgery of all places surely someone should realise that having to get the key would make things difficult for a good number of people. I cannot understand why no one challenges these ill thought out solutions to what really is only a minor problem. The reception was after all right near the entrance surely a better eye could be kept on who enters the building

My personal award for the best waiting room is the dentist. No music, radio or TV  Pleasantly furnished, light, but not fluorescent lighting, natural lighting, mostly no other patients because he is the only dentist so its ideal which is a good thing considering my dentist phobia. As silly as this may seem to others not effected by such things as noise, lights and so on, but the waiting room is one of the reasons we choose this dentist. When you are already very anxious the last thing you want is noise and racket. Our previous dentist in Sussex even had the radio in the consultation room. I wonder if anyone has asked the patients what they want. 
 

May 28th

Its bank holiday Monday here in the UK. It looks from my window more like a winter holiday. Here in the last couple of weeks the weather has been miserable, cold and wet. The last few days have been particualry cold the chill in this room when I entered took me by surprise this morning, I have rarely felt it quite so intensely even during winter. Awhile ago there was a shower of hail.

We all continue to be very unwell, yesterday I was on the verge of hysterics. I am used to not being well with the headaches, aches and pains and so on but this infection that has gone to my chest is just awful, I could barely eat yet felt hungry, I felt weak and weary just dreadful . The weather adds to this misery chills you right inside. The promises of a long hot summer now seems very far away as is the usual talk of global warming and melanoma each time the sum comes out. It does seem these days does it not that society in general always focuses on the negative and when something positive occurs like a pleasant warm sunny April all you hear on the news and current affairs programmes were the dire implications of global warming and endless advice about how to avoid skin cancer. Apparently no sun tan oil is adequate and an article in the medical journal the Lancet advised wearing thick dark clothing such as denim and black T shirt and wear a hat. Yes of course we need to be aware of the harmful effects of the sun but do we have to add so much negativity each and every time there is an improvement in the weather. It is very difficult for those of us who are in any way easily depressed to have our depression and tendency towards negativity validated by society. If the sun ever shines again which I am sure it will, although for us to day it might seem it never will, can we not enjoy it without the constant reminders of global warming and other negative issues.

May 29th

I am finding it increasingly difficult to include entries for my blog or any other written material on my website because of all the checking and ruminating about content. I am also concerned about so much negative content; while everyone raves about CBT saying it is the best thing since sliced bread I can't cope with it and I feel not only a failure but also that it might not be such a good idea to write so much about why things did not go the way I had hoped. Mind you there was so much more I could have written but some things remain private as they do for anyone and therefore no one should make a decision about CBT based upon my experiences or anyone else's.  I think I reveal far too much of my life sometimes and at times this too can make me feel rather uncomfortable. I also find it difficult to find some positive content to counter balance some of the more negative aspects of my personal ramblings but unlike a writer of for instance a current affairs blog, a writer of a personal blog of this nature cannot always find new or positive  content to include and I am often stuck with nothing much to say other than the negative occurrences in my life which concern the conditions from which I suffer.

I would like to publish entries as they are completed instead of in batches after endless checking and obsessing. But checking and obsessing is not the only problem, it takes some organisation to include daily entries or to publish entries as they are written and I feel if I attempt this I will actually include fewer entries.  My organisation skills are non existent. My husband recently bought me a pill organiser, a plastic box divided into the seven days of the week into which you put each day's medication so you can see if you have taken your pills or not. Just lately I either forget to take my medication or I take it than minutes later doubt I have done so. A good idea you might think and in theory yes it is for most people unless you have ADD. I simply can't get this box organised; I managed once for a few days but got flustered and took pills from the wrong days. It has to do with lack of attention, not being interested in routines which are boring and my mind is everywhere except focused upon what I am supposed to be doing at the time. I am finding everything even taking pills is an irritating interruption, you know the kind of feeling where there is always something do be done, lots of little things that consume your time yet not give you any satisfaction.

Continuing the comments about waiting rooms there is one thing I should say and that is for the most most part the staff are always pleasant and helpful. Behind what may appear negative there is often something positive. And we should also bear in mind these things are not done to annoy us or anyone else. Unless people complain it is unlikely that things will change. I do not believe that anyone has  any theory of mind, no one knows what it is like to be another perosn, no one can know how you feel or what your views are about music or a TV in waiting rooms or elsewhere unless we complain or make some comment. Although these things are not done to annoy us the fact remains that the level of noise in public places does annoy a lot of people.

Maybe there are times when we cannot say anything very positive but instead we can take positive actions. Here are a number of urgent actions you can take to help wildlife from campaigns organised by the IFAW. Here is just one of these campaigns which mostly involve signing sending a letter or e-mail which takes only a few moments. You do not have to register to take part.

"Bidding for extinction
eBay™ is the Internet’s single biggest shop window.  And as this report indicates, national websites run by eBay are being used as one of the main channels through which illegal trade in wildlife and wildlife products is conducted over the Internet.  A comprehensive and alarming failure by eBay to stop this wildlife trade is allowing users to buy and sell wildlife products made from some of the world’s most endangered species."

"Please take a moment to send a letter to eBay corporate headquarters, urging eBay to enforce a complete global ban on ivory sales immediately."

To help in this and other urgent actions please click: Take Action.


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Concerning blogs : Although I have initially looked through the recommended blogs in my blog roll I have not read every single entry and have selected each on its overall merit: interesting regular entries . However the comments and opinions of the respective blog owners do not necessarily reflect my own opinions.

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I will endeavour to reply to all e-mail, however please bear in mind that I have a number of quite debilitating illnesses and there may be times when there will be considerable delay. Also I will not publish anyone's comments, as appears to be the procedure with blogs, without permission of the author : If you would like me to publish your comments please indicate clearly at the end of your e-mail.

All comments are welcome including polite constructive criticism and difference of opinion. However I reserve the right not to publish anything that I consider would be offensive or in any way of detriment to anyone particularly those who sufferer with the illnesses included on this web site

 

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