Ocd Plus formlly oc -illnesses-and_creativity.net

 

Ocd and More

The on-line journal/blog of a sufferer of obsessive-compulsive disorder OCD.

If writing did not exist, what terrible depressions we should suffer from.
Sei Shnagon c. 966 – 1013

July 2007

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Blog Roll

Blog Roll disclaimer*

Links to recommended blogs:

OCD

Wiping The Crazy Off My Face

Incertus - The Weblog of Doubt and Other Disorders

There is a diary included as part of the following website:

My Obsessively Clean Den

Where Justin can be Justin

Agoraphobia:

Agoraphobic
English Guy
Downunder

Bipolar and OCD:

Gail's journal

New!

Disjointed Thoughts

Autism:

Donna Williams’ Blog

Ballastexistenz

A Blog from Another World

Attention Deficit disorder ADD:

Living with ADD

A personal selection of Interesting Blogs not related to mental health or conditions of any kind:

The Action Blog:
Save an endangered species, protect human rights, save a forest.

Gristmill: The environmental news blog |

This blog is part of Grist Magazine's website, a magazine dedicated to environmental issues.

Positive Attitude Quotes, Free Happy Positive Loving Messages, Popular Motivativational sayings.

A good selection of interesting quotations

 

 

 

 

 

July 1st

The link below will take you to a very supportive and inspirational OCD website by a sufferer of OCD, the website is called
I am: An exploration into Obsessive Compulsive Disorder (OCD)

There are personal stories, art and poetry for you to download.  This website is well worth a visit

It takes time to create, maintain and organise a website, so please take the time to visit this website and indeed any personal website created by a sufferer of OCD or other anxiety disorders. Although professionals know a considerable amount about OCD and other anxiety disorders, it is really only we who suffer in this way who really know what it is like to have to live with these conditions and the detrimental effects they have on our lives.

July2nd

Today we decided to visit St Abbes, a delightful and very picturesque coastal village in Scotland, we went last year and I have written about this in my blog in the September entries. It is a fair way away for us to travel, a hundred mile trip, so it can be rather daunting for me with my problems particularly IBS and migraine and of course it is taken as read that OCD will present so many problems that it would be impossible to talk about them all here. Sometimes I consider that my whole thinking process is tainted by OCD. The fact that we going to St Abbes today has partly to do with my OCD, in this instance the fear of changing plans or going against what either my husband or son have suggested should this result in dire consequences, a superstitious fear which I have mentioned many times . Neither my husband or son is very good at changing the original plan either as I have also mentioned on other occasions when telling you about this particular frustrating and indeed anxiety provoking type of OCD and therefore despite the appalling weather and the almost certainly of rain my husband is set on travelling this relatively long distance, which would be less noticeable if we were likely to at least be greeted with reasonable weather on our arrival. Travelling by car such distances is not only exhausting but expensive and perhaps one should learn to pick ones times to go when the chances of at least a dry day are likely.

Recently my IBS has become worse with frequent need of a toilet and that in addition to irritable bladder would be a bane in anyone's life, not to mention the chances of a migraine attack whenever I am out, but with the addition of OCD it is a nightmare of hellish proportion and at times I do not know how the hell I cope. For all intents and purposes it may seem that I contend with my problems and rise above them and go out anyway and it all looks very commendable not giving into perversity and I should pat myself on the back and tell myself what a brave soul that I am. But if I look at my thinking in this and similar situations the truth of the matter however is quite the contrary. For frequently I am driven out against my better judgment, often not feeling well, solely as a result of my aberrant thinking, which in this case concerns the knowledge that if I do not go out the result will be that for the entire day I will be tormented by guilt and that constant nagging thought which tells me that I did the wrong thing and I should have gone; that I am letting everyone down or I am changing fate by changing our plans which may result in dire consequences. I honesty think that there would be few people who would venture out particularly such long distances with the threat of a migraine, sometimes severe tension headaches and IBS and have to confront using some particularly disgusting toilets which is an horrendous ordeal for a sufferer of OCD. But such determination is yet again an instance of choosing the lesser of two evils, the stronger fear over writing the lesser fear.

At one point I told my husband that the time is coming that I will no longer be able to cope as there is now so many things wrong with me that a trip out is an endurance test rather than a pleasurable pursuit. While they admire the scenery and decide where to go and what to do all I can think of is where is the next toilet, a twinge of pain and I am scared that a migraine is imminent and even if this does not happen the fear that it will is significant, and even if the headache turns out to be a tension headache this although more manageable is a considerable detriment. My son points to this and that, places of interest and natters about the history and so on and I am barely giving this any attention so stressed with anxiety as in turn neither he nor my husband really understand either my fear or the misery of these conditions one of which alone is debilitating let alone all three.

Yesterday was particularly stressful, my IBS necessitated frequent stops at the few places on our journey where there were toilet faculties . By the time we retuned home I was desperate to discard all my cloths, shower and change. I think that the state of most of the public toilets in the UK is a disgrace for a wealthy so called developed country. That is of course when there are conveniences as recently many public toilets have been closed, which is a huge problem for people like me, as the local council have closed so many toilets and the ones that are open are closed as early as five o clock. It is indeed a difficult world for anyone who has any kind of disability or sickness. I think one of the reasons many toilets have been closed is because of a new law which came into being in 2004 that all public places had to provide facilities for the disabled and so instead of installing disabled toilets it was easier to close down the public toilets, the logic being that if there are no public toilets for anyone the counsel will not be required to provide a disabled toilet. Perhaps I am wrong however these days nothing would surprise me as the devious can always find a loophole in any law, however it could simply be due to cut backs. Which of course does not make it right either. Really I think we are digressing into the past rather than progressing towards a future when everyone's needs are catered for.

Yesterday was a nightmare. I think that most cleaners of toilets clean the floor and that is about it, often you enter a toilet the floor is swimming with disinfectant while the toilet and wash basins are filthy. You might get lucky and the seat is wiped but other than that for the most part the toilets I visited yesterday where in a disgusting condition. In one there was something unimaginable smeared up the walls the cleaner must obviously ignores this as it has been there a long time. Often there is the usual mindless graffiti which although is not an hygiene problem does add to the general rundown, nobody-gives-a-dam type of feeling one gets increasing nowadays in many public areas not just toilets. By the end of the day I was on the verge of hysterics and the fact that I got a stomach ache and was too fearful to eat should I become ill added to the misery. My handbag became contaminated in the toilet with the gunge up the walls as it accidentally came intact with this stuff and I have had to discard it and will most likely never be able to use it again.

I really do try to get a more realistic perspective but now I am so sensitive to everything thing in my environment and see just about everything as a potential threat to myself of others at worse or as an extreme frustration at best. I remarked to my son that just lately I feel that life is an obstacle course.

We stop to look at an old church, we have been here before, it is thankfully not open. No its not that I do not wish to look inside although it can at times be difficult because of my religious OCD, but rather it is due to social anxiety because I cannot engage in conversation with whoever is there to show people around as was the case last time. But my heart sinks as yes there is someone here painting the door and oh dear he is only too keen to show us round. I pretend to show interest, no it is not that I am not interested it is just that I am anxious and there is the conversation, the eye contact difficulties and I can’t wait to leave while my son totally oblivious to all my anxieties takes endless photographs. My husband keeps chatting and it seems to be forever before we leave as I edge towards the door. My son and I have problems with social interaction but somehow my son seems to manage and presents a more coping facade although he is getting increasing less able to cope with social encounters particularly those right out of the blue, however because old churches are one of his keen interests he is able to hold a conversation otherwise he like me cannot engage in small talk. Besides the conversation difficulties I am constantly anxious, anticipatory, sometimes for reasons not clearly defined.

When we arrived at St Abb's the heavens opened and monsoon like rain drenched us and the few other brave visitors. I have never seen rain like it, it ran down the road like a river and like a waterfall it came down the side of the hill. St Abbes is such a pretty peaceful place and there would have been a time that I would have appreciated its natural beauty, it’s peace and tranquilly despite the dreadful weather. Yes indeed I would even have appreciated the rain and the pounding sea as it splashed against the rocks with some delightful exhilaration but now I am so tense and afraid that I can see nothing past this , this ever present feeling of intense anxiety and dreadful apprehension waiting for some disaster to happen. Continually stressed by so many things in my day to day existence, I see the potential for disaster everywhere.

We decided to call it a day and return home via Alnwick, famous for its castle ( part of one of the Harry Potter films was filmed here) and the second-hand bookshop one of the largest in the UK. We where headed for the bookshop which is perhaps where we should have gone on such a day in the first place. Leaving St Abbes with much regret feeling as though we should stay anyway notwithstanding the weather we made our way to have a quick look at the neighbouring bay. This is the way it is now for me as soon as a decision is made, and it was not mine as I can’t make decisions, I promptly regret agreeing and feel I am giving in or missing out and yes it does make me depressed. The road became quickly flooded I was fearful though there was really no threat, but the fear that the car would be stuck in deep water was scary, my fear of being ill, getting a migraine, what would I do. I can‘t tell you how anxious these situations are for me and how sensitive I have become to such possibilities. I feel as though I am now so sensitive to my environment, so effected by every aspect of life that even little annoyances take on a mammoth proportion and for most of the time my trepidation tightens a knot in my throat as fearful scenarios present in rapid succession.

The bay is just beautiful and is natural apart from a few beach huts and thankfully a toilet albeit the usual unhygienic nightmare. There is a large hotel and a car park but neither is obvious from the perspective of the beach, which is a rarity virtually unspoilt. The beach is sandy and on a better day it is probably a popular place but today apart form a group of school children who must have just stood there during the downpour as there is no shelter, there is no one about. I love the sea, the sound of the waves pounding on the beach but today I am anxious restless and I fail to notice the splendid scenery or hear the sea due to the focus on my fears and the need to keep moving. I feel as though I have gone merely as a gesture to feel that, well... I have been there and done that. Rather like an actress fulfilling her role in a play making sure I act out all the required scenes rather than actually appreciate in any real sense the experience of being here. I know this, this is not said in retrospect now as I write here. No indeed whilst standing on this beach I know that I am failing to enjoy what once brought enormous pleasure, what once bought delight and lifted my spirits, but now instead my mind is filled with one anxious fear after another.

We stop off at Alnwick mainly to while away the time so as not to get caught up in rush hour traffic . I panic when stuck in traffic feeling tramped fearful should I get a migraine, a stomach ache. My son is an avid reader as I have said before but today he and indeed all of us seem to find nothing of interest. Depression often saps ones motivation or enthusiasm and of late I find it difficult to be interested in anything. And of course my superstitious obsession with a certain unlucky number interferes with selecting a book and reading. I enjoy reading but it has to be the right book and just lately I find it difficult to concentrate on anything in the least complex. There is a biography I would like to read but the person concerned has an illness and I fear that my hypochondria will come into play and I shall worry, I have to be so careful and generally try to not read or watch TV programmes and so on which focus in any detail on a particular illness, as I imagine that I have symptoms of this illness or it makes me depressed or even guilty that I do so much complaining. Yes indeed selecting books can be difficult, in fact just lately everything in my entire life is a misery interfered with by OCD and the other co morbid conditions from which I suffer and I fear that every time I try and do anything from getting out of bed in the morning to going back to bed at night has became a struggle with one or more disorders or conditions. Yes indeed life now seems like some obstacle course with the obstructions becoming increasing more frequent and more insurmountable.

June 3rd

With some hesitation after months of obsessing, checking and doubting the appropriateness of my considerations or the need to share them I am finally about to publish in some detail the reasons why I consider that in addtion to my OCD I may have Aspergers syndrome. I have asked my doctor for a referral and she is looking into the matter although there may not be any diagnostic asessment services locally and I am not in any position to travel further a field so a favourable outcome remains uncertain. I must emphasise that OCD is my priority and that I consider that if I do indeed have AS, my OCD is nonetheless a separate condtion and too severe to be considered as part of AS. Well all of this is explained very clearly in these accounts so I will not elaborate further here. 

As those of you who regularly visit my blog know only too well, I have seriously considered this possibilty since my son first received his diagnosis two years ago but I can never feel certain that my assumptions are correct without a formal diagnosis which may prove impossible. I have most of the symptoms except the good memory and nerdiness associated with AS. However nerdiness and a good memory are a matter of perspective and these manifestations of AS may not present as one would expect. For instance generally my memory is poor however in some instances I can recall things well that others tend to forget, my memory is therefore patchy, particularly if I am not interested in something my memory will fail me. But I do not have the excellent memory for facts associated with AS. However there are people with memory problems who nonetheless receive a diagnosis

In short I think only a professional can make an accurate diagnostic asessment for AS. There are many condtions which for me remain undiagnosed such as hypochondria but it is very obvious that in addtion to OCD I am an hypochondriac, I do not require a formal diagnoses for this although I think all co-morbid condtions require formal recognition by doctors and mental health professionals and not dismissed with the vague generic diagnosis of anxiety. Which is the diagnosis I had right up until I was admitted to hospital where I received the diagnosis of OCD.

Do I have I AS or is this simply a bee in my bonnet as my mother used to say, an obsessive type preoccupation. My son certainly thinks that I have AS and if we go by the logic of it taking one to one than perhaps I have AS. Whatever, it is a consideration that will haunt me until I know one way or another. The problem of course is that I indeed have many of the symptoms,for want of a better word, of AS, (I know some people with AS do not like the word symptom some seeing this condtion as simply another way of being)  so my considerations my indeed be quite valid notwithstanding my obsessive preoccupation with this issue.  Many people are happy to diagnose themselves, however as a sufferer of OCD there is always doubt. As the disease ,OCD,  becomes more pervasive you arrive at the stage where you do not know if your considerations are rational, realistic, logical and so on, so you cannot make an informed decision concerning just about anything and this is particualry so with a complex consideration such as this.

I hope that even if my attempt to get an official diagnosis is unsuccessful that having written my reasons here in such detail may quell for me the need to keep obsessing about this issue. I also hope that someone who is either a professional in the area or is in any way knowledgeable about the subject will give his or her opinion although I cannot imagine anyone taking the time to read these rather lengthy accounts. It is also my hope that my writings on this matter may help others with similar considerations.

My doctor's advice that it might be better to address the issues rather than obsess about a diagnosis, and indeed if a diagnostic assessment is not to available to me for  whatever reason, is indeed wise sensible advice. Although how I go about this is anyone's guess and there is or so it appears only CBT or medication available which would really be no use concerning the social interaction problems and other issues of AS. Social skills training might be helpful but it is the problem of not knowing what to talk about before I even begin to formulate how I am going to coherently express myself, that cannot be helped by social skills training, which is more appropriate for a child as by my age I do know by learning if not by instinct most considerations concerning manners and etiquette in the most common social scenarios. It is more my inability to express myself that is the problem - well I will not go into detail here as all is explained in the two articles.

Of course a diagnosis will make things easier when receiving therapy for my OCD if this ever happens but there again mental health professionals cannot always consider every aspect of each person's condition.  No one is ever going to be fully aware of each of my difficulties as I have so many, such is impossible not even my son and husband are always mindful of my problems.  A diagnosis I guess is required for me to simply know one way or another, it does of course make matters easier when describing ones condtion; rather than listing symptoms such as, social anxiety, not able to engage in small talk, not able to cope in groups, socially inept, have sensory issues to bright light, noise and so on and on, it is simply easier to say I have AS.

The outcome remains to be seen, it is difficult to diagnose an OCD sufferer with AS, there are overlaps as OCD symptoms present for a significant percent of people with AS and it is only when the obsessive compulsive symptoms are severe in a person with AS that a separate diagnosis of OCD is given. It is therefore less common to receive a duel diagnosis of OCD and AS. Particularly in my case where OCD is for me the primary condtion which has involved most of my attention to such an extent that I have not had the wherewithal to consider to any great degree other condtions which are of less detriment but which have nonetheless effected my OCD and my life in general, such as AS. Moreover some diagnosticians are hesitant to give a diagnosis without some early family background information provided by a relative who knew you as a child. I am the only one left of my family there is no one alive who knew me as a child. I do have some memories and second hand accounts of what happened during my childhood which is discussed in the writings linked below but these accounts are limited and vague and there are no medical records available.

Notwithstanding such difficulties in diagnosis it is obvious that I have at the very least autistic traits and I believe this is very common with many OCD sufferers - at least in my opinion. Whether I have AS or just autistic traits or this is simply an OCD type of thinking, (the fixation type of thinking where we tend to get hold of an idea and obsess about it but not in the classic obsessive compulsive way) I hope that what I have written is of help to anyone who is having similar considerations or anyone simply interested in how people like me think.

I will return to his matter as the situation warrants but will no longer labour the point here on my blog concerning the whys and wherefore of my considerations on the matter of a diagnosis of AS or otherwise - at least I will try my best to refrain from so doing as of course it has become in itself an obsession notwithstanding the validity of this consideration. Naturally I will mention the problems which arise from these symptoms regardless of a formal diagnosis or otherwise such as my social interaction difficulties because no condition works in isolation, all conditions coalesce to some extent, they interact one with another. In fact particualry with OCD where all too often it turns its focus on other condtions from which we may sufferer even physical ones such as migraine, I have had many obsessions and compulsions relating to this condition. All anxiety disorders are detrimentally effected by communication problems, imagine being an agoraphobic for instance and after struggling to go out to also have to contend with another fear, the fear of social interaction, surely a problem with social anxiety will greatly effect the favourable prognosis of a sufferer of agoraphobia . My sister often found the condition of agoraphobia compounded by her social anxiety. After making progress with her agoraphobia enough to go out alone she continued to be impeded in living a normal life due to fears of meeting and associating with people. It is of no use treating someone for agoraphobia only to find that he or she still cannot go out because of a social anxiety problem. Yes all conditions interact with one another and none should be considered or treated in isolation. Ideally all disorders and conditions should be identified and addressed.

The link below will take you to an introductory page where there will be two links.

The first is to the extended version which is a more detailed account of the reasons why I think I may have AS and contains anecdotes and more personalised information.

The second link is the shorter version which I edited for my psychologist to read.


Aspergers syndrome: A personal Consideration. Introduction

July 7th

Today whilst searching on the net for something interesting to mention here on my blog I came upon a useful website which offers a Free on-line CBT based course. That's right it is free! I have carefully searched the website and according to my understanding there seems to be no catch and it appears to be funded by the National health Service NHS. Although the website is Scottish based the course can be undertaken by anyone anywhere in the world, it is not restricted to Scotland or the UK. You do not have to give details of your name or address only a user name is required. Also a short questionnaire but as far as I can ascertain no personal details are required other than basic location, country.

Listen to the audio introduction by going to the left hand panel and clinking "About The Course" If for any reason you find it easier to read text rather than listen to the audio you can read more or less the same introduction.

I will be registering for the course as it looks well worth a try. I do not expect it will have a huge impact on our respective conditions particualry if it is severe and chronic but if the course helps in some areas to improve your quality of life than it is well worth the time taken. But who knows when my OCD first presented in a significant way simply sharing my problems with my husband helped me to overcome at least for a time the first real full blown manifestations of this disorder.  So do consider giving this course a try.

Home - Living Life to The Full

 

June 8th

As those of you know who visit here regularly I do not publish entries each day as they are written due to OCD checking obsessions and compulsions and anxieties about what I have written, again this is all explained in some detail elsewhere on my blog. Instead several are published in a batch after exhaustive checking and obsessing. I wish this was not so but right now this is the best I can do. Today the July entries have still not been published because of difficulties with the extended version of the article Asperger Syndrome: A Personal Consideration, mentioned in a previous entry above. This is a good example of conflicting OCD issues and the pervasive nature of this disorder, the thinking process of which at times seems so real that one is at a loss to know if ones reasoning, decisions and general cognitive processes arise from the normal thinking of the real person who lies beneath all the garbage of aberrant OCD thinking or not. How many of us stop to analyse our more subtle thinking, but if we do it is sometimes a surprise to find on closer examination that perhaps our ideas on this or that issue are tainted by OCD's negative and obsessive thought processes. However the most difficult problem lies in the fact that there are times when we do not know if our thinking is normal thinking or thinking borne of OCD.

This particular article is really not ready for publication. I know that I am not a professional writer and may therefore be forgiven for the occasional mistake, although these are more than occasional, and the tendency to make mistakes and not notice them despite considerable editing- all right obsessively checking- I consider the result of ADD. However this article is not ready for publication for more reasons than the odd spelling or typing errors missed despite dozens of checking sessions. The article particualry in the beginning is very repetitive and I have read it over and over trying to edit it to make it more concise and to eliminate repetition but somehow I simply am unable to do so without beginning afresh and after months and months of writing, obsessing, checking, rearranging, I am just too exhausted to do this. Moreover to do so would take my attention from other projects for my website. Abandoning the article is not an option either as I feel I really need to discuss my consideration that I may have AS and until I do so I feel I will never have any peace from obsessing about this issue, which although a personal consideration, I believe that it nonetheless throws light on certain issues concerning OCD. Namely that I believe that many OCD sufferers have at least some autistic traits and that there is a connection, the reasons of  which I will discuss in another article when I have finished writing it and obsessing over it, so please do not hold your breath it will be along time in the making as is everything here on my website:-) - I really must get some smiley icons I rather think that newcomers to the net may not know what that last symbol means.  Publishing will be a release perhaps from ruminating about AS even if no one reads it or comments or confirms or otherwise my assumptions concerning the possibilty I may have AS in addition to OCD.

Somehow though I rather think that publishing it in the rambling waffling state it is in will only replace one torment for another and my attention will turn to my perfectionist issues and I will be constantly reading and re-reading trying to eliminate the repetitive nature of the beginning of this article, so I can't win and it is like that isn't  it with  OCD. You finally give into to your worries, your fears, your compulsions, and in this case a driving obsession to complete something hoping to relieve the pressure of torment, anxiety, depression or frustration only to find that another obsession, compulsion or preoccupation has arisen as your mind either turns to another aspect of the original obsession or it homes in on something new and there is never any peace for the poor unfortunate sufferer of OCD.

I apologise if this article concerning AS appears self indulgent, which of course it is but it may help others similarly preoccupied with this consideration. If nothing else it serves to stand as an example of my obsessive nature which strays into all facets of my life and thinking process and is not merely centred on the stereo typical manifestations of OCD.

Well today the sun is shinning, yesterday was a glorious day with only one shower, a wonderful relief after weeks of rain and misery. The wind was blowing, the air was fresh, the sound of rustling leaves in the trees I always  find such a delight and perhaps now we can have some summer to dispel or at at least mitigate the gloom of depression made worse by dull cold and miserable days. But lets not forget the on going misery of many people who have been flooded out of their homes and more importantly have lost loved ones both here and abroad for whom the misery goes on day after day for months even years. Don't you find that at first people are helpful sympathetic when you have a tragedy or traumatic experience or you are ill than after a time no one seems to care or even member that you continue to suffer.

July 10th

Today we are again in Whitby in North Yorkshire, I have written about a similar day trip last year and this year it is pretty much the same accept the weather is somewhat cooler although as last year we had a thunderstorm during our return journey across the moors. The rain was torrential and like our experience at St Abbes the previous week the roads flowed with water like a stream or river. My son joked about the possibilty of flash floods and I became anxious although the likelihood of such an occurrence was virtually nil. I felt sorry for sheep who just had no option but to stand stock still while the rain relentlessly pelted down. Neither open moor land nor fields providing any  shelter for any creature. They looked dejected forlorn.

I find Whitby a crowed difficult place to be, the quaint but narrow streets make crowds difficult to avoid, the stress of noise and so many poor dogs dragged about on leads through the crush of people is I imagine as unpleasant for the dog as it is stressful and anxiety provoking for me. Today I simply am so stressed I appreciate little of this trip out. And even in the less crowded, and in some cases virtually remote, coastal villages where we stopped on the way I was anxious unable to relax, so many fears keep me for ever vigilant should an unexpected confrontation with my fears occur, such as an unleashed dog for instance despite the fact that at one place there was nothing much except a few houses and a farm, but in the distance the bark of a dog has my hackles rising so to speak. I am just so tense now despite the fact that most of the time there is no reason, at least no real reason. However I think that this anxiety is the result of some automatic response that is set into motion even without the precipitating thoughts or occurrences such as the dog barking. Also the recent escalation of my IBS symptoms has made me ever more anxious about a toilet as here there are none.

At kettleness it is so beautiful the view from the cliff top is magnificent and there is a break in the clouds and the whole vista is enhanced by radiant sunshine. Yet I am too wound up with anxiety to fully appreciate this. I would like nothing more than to follow the footpath along the cliff but fear prevents me from doing so as I know that my anxiety for one reason or another will mitigate any benefit that such a walk would once have afforded. I feel guilty as though I am a burden to my husband and son but today I simply cannot cope with a long walk or even a short walk. Yes indeed one feels better out in nature in the warmth of the sun but anxiety after so many years impinges upon what would have been a very therapeutic situation and eventually I fail to appreciate this except now in retrospect as I write here now.

I manage to struggle though the day somewhat exhausted feeling contaminated yet again by fifthly toilets. There is a charge of 40 pence, an hundred percent increase on last year, for a much clearer toilet near the bus station. There is also a shower. I am so tempted as I feel so contaminated but I resist this urge as the anxiety and stress that would occur for all sorts or reasons would cancel out the monetary relief that such a shower would bring.

I do feel rather uncomfortable about such complaining but my blog is about my experiences with OCD and other co morbid conditions so I need to include this and at times despite the excess of such continuous complaint I feel as though I fail in this to a great extent, for it is impossible for me to tell you precisely the pervasive effects of the torment of this disorder and how I battle with it day after day. It seems that every where I go at home or elsewhere it is a struggle of mammoth proportion accentuated by other condtions such as migraine and IBS. The nightmare of OCD rituals when I use a toilet cannot be described as such is exhausting neither can I tell all the thoughts which crowd my mind in a constant stream, thoughts of contamination, existential anxieties, religious and superstitions ruminations and compulsions the whole miserable array of OCD manifestations accompanies me everywhere or so it seems. But today perhaps that is enough about my complaining and I would now like to comment on other issues of interest 

A degree of existential anxiety naturally rears its ugly head in old churches but the one in Whitby, St Mary's, is interesting particualry so is the curious epitaph the 'Huntrodd's Memorial' it tells of  the strangest of coincidences, if of course it is to be believed.  Below is a photograph of the inscription .

 

St Mary's church is situated on the cliff top, and is accessed after an arduous club of a steep flight of steps known as the "199 steps".

Below are views of Whitby and Kettleness.

These photographs are sized for use as desktop wallpaper and open into a new window.

 

Whitby

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Cliffs at Kettleness

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Photographs where  taken by kevin

July 12th

The world is a dangerous place to live; not because of the people who are evil, but because of the people who don't do anything about it.
Albert Einstein

I had a shocking experience today however nothing compared to the trauma suffered by the young couple who where attacked outside a supermarket in a nearby town.
 

I need today to eat my words about being a pacifist for today had I been able I would really have liked to have taken to task a group of delinquents who attacked a young man and his girl friend right in front of a Supermarket in a packed car pack and not one person did a thing to stop it. The four closest people where an elderly couple, myself and a sales assistant, a young man who did nothing to stop it. I was shocked at the time about this lack of action on his part but had he done so he too would likely have finished up badly injured as there were just too many of them. I tried to stop the assault by shouting and threatening to call the police but they took no notice. I was even tempted to intervene and although it is ridiculous for a woman to do so I feel very guilty that I did not. I am reckless that way and if it were not for the headaches who knows I may well have done so. I asked several people to call the police including this sales assistant who in fact had a mobile phone, but no one did anything but stand there. I guess that perhaps they were too shocked. It was all over quickly they, four of them, all ran away.  The man looked badly hurt. I spoke to the girl she said they did not know them and they were drunk and just attacked them. It was the most shocking thing I have ever seen. I am so angry and would have liked to have had the ability to give these yobs a taste of their own medicine. I was shaking all over for hours but mostly with rage. I am still angry now, it is boiling up inside I get so angry sometimes but this time such anger is justified. Just writing about it now I feel like crying as of course I am writing this a couple of days later because I was naturally just too shocked to come here on the day of the incident and write in my blog. I felt so useless unable to do anything save shout at them.
 
When I was younger my husband and I where members of a karate club for two years and we where at the level of green belt. I became pregnant with my son and never went back. Yesterday how I wished that I had continued with my karate as I would no doubt be more healthy than I am now instead of being riddled with aches and pains and more importantly I could have done something to stop or at least impede them. Or would I, it is easy to say this in retrospect. My son said that really I had taken a risk shouting at them but I could not just stand there and do nothing, the fear of guilt for not at least trying something being perhaps the overriding factor.  I cannot bear violence, its bad enough on TV and I have stopped watching some of the more gratuitous over the top violent TV programmes. The reality of such violence however as it takes place in front of your own eyes is even more shocking . I cannot understand why people behave that way. Nonetheless I would have been more than happy to take a little justifiable violence against those morons if I had been able. I know violence begets violence and for the most part I like to think of myself as a pacifist. I do not believe in violence of any kind, be it against man or animal but yesterday my anger towards these hooligans was hugely motivating, enough that I would have liked to have had the ability to give them what they deserve.  Such wanton acts of aggression not only causes damage in the physical sense of a swollen face, cuts and bruises which eventually will heal, but the mental  trauma could destroy permanently the lives of this young and his girl friend, it is the kind of incident that leads to conditions such as post traumatic stress disorder. Also for those who witnessed this shocking event much mental aguish may result.

I am still getting over the shock of this occurrence and it is prying on my mind now quite a bit. The night of the incident I could not sleep too well, mental images playing like a video in my mind and my anger boiling like a volcano ready to irrupt. I would in fact not visit this town again except for the fact that our doctor's surgery is there, in fact the whole thing took place only a few yards away. I had sent in my husband to make an appointment because I could not cope due to social anxiety with trying to explain to the receptionist why I needed an earlier appointment than the one allocated. How I wish I had gone inside the doctors, if I had done so I would have missed it all. 

My son and his friend where attacked some years ago in a car park after visiting the cinema when we lived in the south east . It was not such a serious attack as the one I witnessed but nonetheless it was awful and it took some time for me to stop worrying about it. So now again I will be anxious every time he goes out. Why do people behave so badly towards one another?

I am finding it difficult to continue with this account or my feelings regarding this as it is making me increasingly anxious to do so. So I will leave it there for now no doubt I will mention this again as it was a shocking incident and one which I will never forget.

 

July 14th

All beings tremble before danger, all fear death. When a man considers this, he does not kill or cause to kill.
 
All beings fear before danger, life is dear to all. When a man considers this, he does not kill or cause to kill.
Buddha Dhammapada, 129-130
 

Today I really feel as though I just can’t write or be bothered to do anything. Yes I am sitting here now and typing this hoping for inspiration. Sometimes though you can get so low that nothing inspires you, your motivation is sapped, non existent and you’ re quite simply sick to death of everything and everyone. Just lately I feel that despite all my writing here that I still cannot accurately express what it is really like to have OCD. Often this simply arises from my communication problems which although better expressed by writing remain grossly inadequate. OCD itself causes further impediments, fears of causing harm greatly interfere with really telling it like it is should this or that person be upset.This is of course worse as more people write to me and therefore I know for a surety that this or that will likely cause offence and upset.  Not of course I wish this to deter anyone from writing too me it is merely a statement of fact like any other so please continue to write with comments and so on. So this is a serious hindrance to this fixation of mine where I have to endeavour to try and tell my story in the raw and unadulterated reality. For indeed my life is more wretched than I can ever possibly convey.

For instance I am an extremely angry person more so that you might imagine and the day of the attack of the young man and his girl friend my anger exploded life mount Vesuvius and I wanted to take real action and had I the necessary physical strength there would be four young men in hospital now - at least I would like to think so... But who knows . But my anger consumed me I shock with a rage that was indeed most terrible. Today at the very thought my anger consumes me and I despise utterly these evil no good thugs who take up space that other more noble creatures could occupy .

It is extremely difficult to describe the person that is me, the being that looks through these eyes, my thoughts, my beliefs and whatever it is that presents a facade that passes for me, as of course all ones personality is effected by OCD. I get angry that few really understand the difficulties that I am having despite my working myself to exhaustion in order to convey such an understanding. However I have to realise that there is no such thing as a theory of mind
(Theory of mind - Wikipedia, the free encyclopedia ) , at least in my opinion, and that no one is emphatic and no one really understands the sufferings of another, even of a fellow sufferer. For whoever we are or from what malady we suffer each and every person is unique, no two illnesses even physical ones manifest in entirely the same way. Neither does an individual's reactions to any illness present in the same way, such is effected by our world view, our up-bringing , our cultural heritage, even our material circumstance: I am sure that an aesthetically pleasing comfortable environment with no money worries, quite and peaceful would to a degree mitigate my depression in some situations other than of course the most dire. But there again this depends on other circumstances, Howard Hughes's wealth I would imagine made his OCD worse as he had less incentive perhaps to cope with his severe manifestation of contamination OCD. Much easier to give into ones fears when the means to do so are at ones disposal. For instance Hughes once burnt all his clothing, I assume due to contamination fears. Such an extreme behaviour would of course not be possible for most of us, but there again who knows during a severe contamination scare no ones knows what one would do, but generally the rest of us less financially able simply wash our cloths albeit with OCD behaviours such as repeated washing, soaking in disinfectant even bleach which was once the case for me during a particularly difficult time. All these variables, of which there are an infinite number, mean that no two of us are ever entirely the same and therefore our individual conditions will be effected accordingly.

The sad thing is we really can’t understand the sufferings of another, and in some ways this is a good thing, although we can feel so very very alone at times. But can you imagine for one moment what it would be like to feel the pain, the suffering and torment of others, to really have true empathy. I think that I only have a sense of empathy for people who are unhappy and this is more to do with transference of my own misery, applying mind states to other people which may not in reality exist. I believe none of us have true empathy and we fail to see others as real people with the same feelings wants, needs, fears , aspirations as ourselves. For indeed if such true empathy existed and could be experienced by every person there would be no evil in the world, no unnecessary suffering as the result of our lack of understanding that other people have feelings, that they too exist, that they can be hurt, that they too can feel pain, loneliness, joy, pleasure and indeed all the nuances of feelings that we as human beings can experience. And indeed animals. Many try to condone the evil of rearing and slaughtering animals for food by telling themselves that animals have no feelings that they have no soul or thinking mind. But those of you who own a dog or a cat no full well that this is not true. Animals experience a whole range of emotions and it cannot ever be argued that they do not feel pain and fear. To my way of thinking earth is more like some hell realm depicted in the religious mythology of just about every creed. How can it be otherwise. Think about it, isn't nature just awful the way one being preys on another for its survival.  However as human beings we should have long ago transcended this facet of existence and should have by now eliminated the slaughter of other beings for food, there is now no longer any reason to eat meat.  From my perception the rearing and slaughtering of millions of sentient beings is a horror straight from hell which preys on my mind, that weights down my heart and which I find increasingly more difficult to bear. At about this time of the year all those sweet adorable little lambs that people stop to admire and to take pictures of to hang on their walls will be rounded up taken from their mothers and killed. To me this is a horror that is unbearable. I recall after my sister died returning home to the shock of seeing the countryside suddenly deserted empty of these adorable innocent creatures who harm no one and it bought to my mind a great sadness.

It can be a very lonely experience sometimes, no not just having OCD but being alive . I think that those of us of a sensitive disposition notice this loneliness more than perhaps others do who successfully ignore or fail to recognise such feelings .

For most of the time despite my endeavour I fail to really tell you what it is like to have OCD and indeed all the other disorders and conditions from which I suffer, what it is like to be me, what ever that me is.

I hope to try to improve this and write how I feel without missing this or that out, hence the mention of my beliefs concerning the slaughter of animals for food and how it effects me. At times I have hesitated to do so for fear of causing upset or distress but unless I open up and share all the aspects of my existence I can never fully explain the true and complete nature of my OCD. In addition it would be nice if what I said did something to make people realise that all creatures wish to live and that all beings do indeed fear death and perhaps it is time we stopped this heinous atrocity which so many take for granted without thinking, which was the case for me also until about fifteen years ago before I became vegetarian.

"Eating meat causes environmental destruction, damages human health, contributes to global hunger and inflicts immense suffering on billions of animals across the world. Viva! believes that the solution to all these problems is in our own hands: the best way to stop the destruction and the cruelty is to stop eating animals now."

Please Visit Viva's website
Viva! - Vegetarians International Voice for Animals

Until the end of his long Life C.G.Jung often refused to write an autobiography stating that he considered that that no one was really capable of writing the truth about themselves. Perhaps this is true but I hope to try with more effort to overcome some of the obstacles to improving this and I now apologise if I inadvertently upset anyone in the process. This is a blog and a journal and it should contain my opinions on matters of religion, politics, and indeed anything and everything that comprises my personality, whether or not such is effected by OCD is I am afraid undeterminable for even I do not know which thoughts, beliefs and ideals arise from OCD or the person who I was meant to be or perhaps I should say the person I would have been had I not had the misfortune to have a neurological disorder called OCD which is further effected and compounded by Aspergers syndrome/social anxiety, hypochondria, fibromyalgia, migraine .. and well you know the list ... if you have been reading my blog that is.

July 15th

There are people who are always anticipating trouble, and in this way they manage to enjoy many sorrows that never really happen to them.
Henry Wheeler Shaw
 

We live within in reasonable travelling distance of Lindisfarne,
The Holy Island of Lindisfarne.  also called holy island because of its history as the centre of Christianity here in the north east. The island was once solely inhabited by monks and the ruins of the priory remain to day in the care of English heritage. There is also of interest a 17th century castle , a nature reserve and stretches of shingle and sandy beaches. The tiny village has interesting shops with all sorts of  paraphernalia associated with Lindisfarne. The island is indeed a popular tourist attraction. The only problem is... it is an island. It is accessible by a causeway, however the causeway is only available at certain irregular times during the day in accordance with the movements of the tide which when it is in completely covers the mile long causeway, so visitors need to be mindful of the time tables as it is dangerous to be caught on the causeway as the tide comes in quite quickly. You can of course stay while the tide is in but for me this causes anxiety. We like to visit this island a couple of times each year despite the crowds but there is apprehension, a type of anxiety that is similar to OCD but really cannot be described as OCD, this kind of anxiety is more the result of what is called general anxiety with which I believe that most people with an anxiety disorder suffer in addition to their primary conditions. This kind of general anxiety also often includes a type of apprehensive unease resulting from kind of negative way of thinking called catastrophizing, and you may be surprised that many people do this even though for the most part they may not do so to the extent that this anxiety would be classed as an anxiety disorder.

What is Catastrophizing ? This is what occurs when you imagine the worse possible outcome in any circumstance or situation, particularly concerning circumstances where in reality any danger or negative outcome is unlikely. It is a very common way in which we disturb or stress ourselves as we assume the worse possible consequence in any situation. As already mentioned it is not the prerogative of anxiety disorder suffers but from time to time most people find themselves embroiled in catastrophizing. In fact it is quite easy to get caught up in this kind of thinking without realising that such is inappropriate, its presentation is perhaps less easily recognised as irrational than for instance OCD or agoraphobia to name just two common anxiety disorders where the reasoning behind ones fears is more obviously irrational.

Catastrophizing is stressful and exhausting the imagined scenario producing in many cases extremes of anxiety occasionally boarding on panic in some circumstances. For instance I rarely use a lift because of the torment of such catastrophizing scenarios. If of necessity this is required however my heart will be pounding, fear will turn my legs to jelly, tighten that lump in my throat as thoughts and indeed imagines arise in my mind of the left getting stuck; in which case what if I get migraine, an acute attack of IBS. More thoughts will include crashing down to the basement. The lift only has to pause for but a moment and I am panic stricken. When we lived near London the underground eventually became a place of much catastrophizing, when the train paused in a tunnel I noticeably panicked, my thoughts and my minds eye generating a disastrous scene of a collision, being trapped, fire, pain and death. After the panic became less I noticed no on else was the least perturbed sitting reading newspapers, chatting, even sleeping.

Concerning staying in Lindisfarne whilst the tide is in, presents scenarios of disaster to some degree or another. Apart from the general feeling that one is trapped on this tiny island there is the anxiety concerning what would happen if I was taken ill. Even if it where not of a serious nature and would not warrant a visit to hospital it would be stressful nonetheless not being able to return home immediately, the very thought of which provokes fear. But what it I or my son or husband needed hospital treatment urgently? Yes a helicopter would be called in but when you have a fear of flying this is of little consolation. So I endeavour to leave the Island before the tide comes in. Of course a similar scenario could occur elsewhere in some of the more remote regions of the UK. But in the main this thought does not occur elsewhere. 

It is of course essential to check the time tables as it is very dangerous to make the crossing when the tide is coming in. However having undertaken the necessary checks that should be an end of the matter. For me however I am very careful, ever cautious I allow more than enough time to cross the cause way both to and from the Island, leaving at least an hour before it would be necessary to do so prompted by anxiety should there be a crush of people all trying to get out the car park at one time with the result of getting struck on the causeway with the tide coming in. Even when all such precautions have been undertaken still there is the, what will happen if the car breaks down on the course way scenario and we cant get it moving and the tide is coming in.

I think that people with a neurotic temperament tend to focus the subject of their catastrophizing on scenarios more removed from reality, less likely to occur. However I tend to catastrophize about even the smallest of issues with even the miniscule likelihood of a negative outcome.

However as already mentioned anyone can become prone to catastrophizing. Here is a possible scenario of perhaps a more likely realistic cause of worry which although remains exaggerated is perhaps more difficult for the person so effect to recognise as an inflated and irrational response. For instance you are an employee of a company which has been taken over and you have a new boss. You have been an employee of long standing, a good efficient, reliable worker, an asset. Yet you worry that you may loose your job, even though there is no reason to assume this will happen the worry eats away at you and than you begin to imagine so many possible consequences rather like a Chain reaction of thoughts which ultimately leads to a catastrophic scenario with a negative conclusion. You begin to worry that if you loose your job, you may not get another, you than worry about how are you going to pay your mortgage or your rent. You think for ways around this, what will I do in this or that situation, you obsess about this but cannot find a positive solution and the more and more your thoughts become increasingly negative. You image you will loose you home, you will be on the street in debt, in in prison for not paying your council tax and so on and on and you can finish up depressed and in effect unable to work. Yes indeed just maybe this scenario is a possibility but many people tend to fret away their lives with such speculation . My brother-in-law found himself on the depressive ward in a psychiatric hospital because he worried himself sick about money although he had a reasonable amount in the bank and a steady job, a job which he had been in for twenty years since leaving school.

It is difficult enough having OCD or whatever your primary anxiety disorder is without this awful tendency to worry and to catastrophize. It haunts us in our dreams or takes away our ability to sleep, it occupies our thoughts even while we are doing other things. It is an insidious misery and one which often we fail to identify as the cause of or an increase in depression.

Such scenarios add to the mix of misery which not only blights your life but increases your overall anxiety which in turn effects your mood and your primary condition, as additional anxiety no matter what its cause will effect and make worse any anxiety disorder. This is one of the reasons that during times of additional stress or anxiety our conditions become much worse at least this is the case with OCD.

Sadly I have no solution. However simply recognising what is taking place in your mid is an important step towards tackling this type of anxiety. Often when we notice an increase in depression it is possible that such an increase is the result of what we are thinking. Often for people with OCD and to come extent other anxiety disorders we can be so preoccupied on recognising and coping with OCD thoughts and how these effect our mood that we can overlook this less obvious cause of anxiety and depression. Sometimes just talking over the situation with another perosn helps to bring about some relief and also to help us gain a more rational perspective. Writing down the scenario also helps you to see more clearly where your thoughts lead, as one thought generates another and another and so on in an increasingly stressful chain reaction of catastrophic thinking.  I think the greatest problem for many is finding someone with whom we can share our thoughts.  Someone who is willing to take the time, someone who is basically rational and who will not ridicule you.  One of the difficulties I experience is finding someone who will not fob you off with any old response in order to continue with their own agenda. Sounds cynical I know but this has happened to me on many occasions but mostly by people who are also preoccupied with their own catastrophizing which sadly is becoming an increasingly more common problem.

A good solution at least as a means of a respite is of course keeping busy, keeping your mind intensively occupied. Although perhaps this only serves to delay worrying until later, however you may find that when the worries scenarios return they are less powerful.

Blessed is the person who is too busy to worry in the daytime, and too sleepy to worry at night.
Leo Aiken

If you can’t sleep, then get up and do something instead of lying there and worrying. It’s the worry that gets you, not the loss of sleep.
Dale Carnegie

The best cure for worry, depression, melancholy, brooding, is to go deliberately forth and try to lift with one's sympathy the gloom of somebody else.
Arnold Bennett
 

July15th

Indecision is debilitating; it feeds upon itself; it is, one might almost say, habit-forming. Not only that, but it is contagious; it transmits itself to others.
H. A. Hopf
 

Another grey day, a thick fog hangs over the nearby fields if it were not for the humid temperature you would think it was November. The weather is having  a profound effect on all of us, my son in particular is effected by the dull dreary weather which has been with us since the end of April with only a few short respites. The forecast for this week is for unsettled weather which means more of the same. For people who suffer with depression this weather is a considerable detriment, it not only increases their depression but saps motivation. This is also the case for most people to some degree but for people with chronic depression it is a considerable blight particularly after looking forward to a good summer having been made confident by the incredibly warm and sunny April.

My husband appears less effected by the weather seemingly to take everything in his stride and he is willing to go along with plans for a day out even if it is pelting down with rain.  However this may result form his inability to cope with changing plans at the last minute rather than bloody minded determination to make the best of a bad situation. And indeed the effects of the weather has increased this problem with changing plans, which is a significant one also for both my son and I. Indecisiveness and anxiety over the least little change has us increasingly more and more stressed, unable to know what to do.  The inability to make a decision is quite a problem for people who suffer with anxiety and depression, indeed indecisiveness is a symptom of both depression and anxiety. Indecisiveness however increases anxiety which in turn increases indecisiveness it is cyclical and eventually one can find ones self in the position that one tries to avoid making even the simplest of decisions. In fact at times I can become anxious whenever the most inconsequential of decisions is required.

Indecision can become a huge problem and I increasingly begin to defer even the simplest of decisions or not changing from a prescribed course of action when something more suitable presents itself. Even something as common place as changing from one product to another becomes a source of anxiety.  After a time one feels that every decision is the wrong one and no matter what you decide as time passes you feel that you should have done otherwise. This sometimes occurs with even the smallest of decisions.

To someone reading this who does not suffer the torment of any mental affliction this problem may appear inconsequential, however if accompanied by a pervasive disorder of the mind such as OCD the addtion of such indecisiveness yet again compounds the anxiety of OCD as indecisiveness again generates more anxiety and increases of stress or anxiety accentuate OCD. Indecisiveness can really be a major problem in its own right. I know of someone who became virtually incapacitated by indecisiveness unable to make even the most basic of decisions to the extent that he could not marry the girl he loved and eventually he became dependant on others.

I am not at that stage and hopeful never will be, however indecisiveness can be quite a detriment nonetheless, in less extreme cases it is indeed inhibiting and at times incapacitating. For the OCD sufferer indecisiveness can be made worse of course by OCD, and OCD thinking adds to the mix of the opposing thoughts that whirl around and around in ones mind whilst in the process of decision making. In fact it was decision making that may well have precipitated the compulsive swearing of vows which presented, and continues to present to a great degree as part of my religious OCD. When a decision was required even the most inconsequential the compulsion beset me to swear an oath on someone's life that I would do this or that or conversely not do something. Often at times I ended up not being about do or behave in the way I would have wished because of the fear that the person named might die. This was a real torment and you can read about this facet of my OCD in detail in my memoir. I really do not feel inclined to discuss this further here, not just because it is unnecessary to do so as I have explained this bizarre OCD behaviour in great detail elsewhere, but rather it is because this is so painful for me to tell you now and may precipitate an increase in this compulsion.

One of the most trying and inhibiting areas where indecisiveness presents is in my art work. There are two anxieties which at times prevent me from picking up my paintbrush or pencil, one is fear of making mistakes resulting in imperfection, the other is indecision. (There is also  depression which I guess results from perfectionism and feeling I have no talent which in truth is the case according to my perspective but that is another matter for another time perhaps.) Often I simply cannot decide what to draw, fortunately, touch wood - another OCD obsession to have to say or in this case write touch wood when tempting fate by making  a positive statement and to also touch something made of wood as I am just about to do right now, and it has to be raw wood unpainted -  OCD does not come into the decision making problem concerning my art work. Nonetheless this inability to decide upon a  subject to draw, and it is mostly drawing rather than painting where decision making is the most problematic, is really a misery. Here I am struggling constantly to find distraction from my OCD only to find myself enmeshed in the torment of indecision which has to be overcome somehow otherwise it, much like OCD, could incapacitate me until such distractions become impossible to pursue. Life is such a struggle every minute of every day and at times I wonder if there is anything about my life that is normal.

I used to be indecisive, now I'm not sure."
unknown

July 19th

I start to think there really is no cure for depression, that happiness is an ongoing battle, and I wonder if it isn't one I'll have to fight for as long as I live. I wonder if it's worth it.
Elizabeth Wurtzel

In the library this afternoon I noticed a book something about ten ideas to combat depression. Although I feel rather sated with such ideas, feeling there is not much that will ever have any profound effect on my depression I picked up this book and indeed there was nothing particularly new, although I only briefly glanced over it, and all the exercises and programmes designed to help lift your mood where pretty much ideas I have heard before. There was a section about finding things within your life that you enjoy. There was also a practical assignment of writing them down and making a schedule during the day which allows you to pursue these pleasurable activities that have either given pleasure now or have done so in the past when perhaps you where either less depressed or not depressed at all. The latter state of being I cannot relate to and which I have not had any experience off during the last thirty or more years.

There was further advice about what to do if you where too depressed to complete such a schedule. There was nothing however about what to do if you are too depressed even to bother to check the book out of the library or purchase a copy if you were in a book store. Such books may be of help to those who suffer with milder depression but for others whose depression is deeper there is little of any real help as you may simply be to depressed to even take the book from the shelf, buy or borrow it, or even be in the library or bookstore let alone read and complete the exercise, albeit in smaller segments as suggested.

Today I was deeply depressed, both my husband and I were wandering about the city aimlessly, undecided where to go or what to do. The weather here has been just awful and the only day this week it has been fine we had a visitor who discussed some rather depressing issues. After which we came into town to wander about doing a bit of shopping which was not essential or urgent and which increased my anxiety. I am looking for clothes that will not drive me crazy due to sensitivity issues to rough clothing - and I am not talking about in comparison to normal standards - and clothing that feels comfortable, no tight or annoying features such as for example skirts which are now fashionable with clinging linings that wrap round your legs and are an irritation.

Here in the UK it is the tail end of the July sales and there are some quite cheap garments but there is anxiety about spending even the smallest amounts of money, particularly if I buy something that I cannot wear - I can’t try anything on because of the fear of OCD contamination, I feel contaminated and consider that I would contaminate the garment and I would therefore have to buy it so as not to contaminate for someone else, so there is no point trying it on. I tend because of this problem to buy cloths that are too big and consequently I am going about with a huge safety pin in a skirt to stop it falling down, once with disastrous and embarrassing consequences. So there is indecision here, much anxiety knowing which size... well there are so many things that have to be considered that my mind is in a whirl of confusion and we are in and out of shops feeling as though I simply want to go home and just manage with the cloths I feel comfortable in even though they are splashed with paint or just old and worn.

I am getting hotter as the temperature has increased, I can’t take off my coat because I feel awkward as I am wearing one of these comfy garments as I had felt too depressed to bother to change into something better but less comfortable. My husband who really does not understand all the complexity attached to this insists I buy the normal size and just to get some peace I do so in order to stop his nagging, which he sees as encouragement, and to stem the maelstrom of thoughts with all their negative scenarios, telling myself that I can try it on straight after a shower and putting on clean underclothes and if it does not fit returning it too the shop knowing that in reality the situation is such that even after all this cleansing I will be unable to return a garment I have tried on. I have many such cloths in my wardrobe, my husband forgets about them the way men do. I do feel guilty about the fear of causing harm which overrides the guilt of buying something I am unable to wear.

Feeling increasingly more depressed with indecision making it almost impossible to do much of anything we wander into the library to see if there are any books of interest, which in most cases there are not. For a city the library here is somewhat disappointing. I have read most of the books which are of interest to me. But I always check out the psychology books, books on religion, philosophy, esoterica, self help, art, travel and autobiographies. In the self help section there is the aforementioned book and yes I am by now simply too depressed to bother to borrow it to see if there is indeed any new ideas to alleviate depression.

This is one of the problems with depression, even mild or moderate depression if it is chronic will sap your motivation. It is like struggling against an immovable object of great resistance, it is the mental equivalent of trying to push against a brick wall and expect to be able to move it. At least it feels that way although that analogy is perhaps rather extreme. It is a constant battle against ones self, a divided self. The mind or whatever it is that makes you you and which recognises this depression as something with which it needs to contend tries to resist, but as this depression increases it becomes more of a struggle to push through this formidable barrier. You are constantly fighting against yourself, the depression aspect of yourself is not easily defeated and even if you do go against its inclination to literally immobilise you both physically and mentally there is no sense of satisfaction as a result of your efforts, as despite your pains you are still depressed, your heart is heavy there is that weight over your chest which is felt like an illnesses. Well most people experience this kind of feeling from time to time, most people know depression, misery, unhappiness even though it may not be chronic. Try to imagine that for me and others like me this feeling is there all the time to varying degrees, it never ever goes away. Sometimes it is less so and you can somewhat experience that feeling of ease from its clutches but nevertheless there is always a degree of depression remaining. Such respite in fact may highlight for you how deeply you are depressed and how life could be if only you could remain in this respite. And in fact in some way overall this may increase your depression as you know that for you you have to work at alleviating your depression and there are times no matter what you do you know that just can’t seem to bring about any lasting relief.

I guess that is how I feel right now. Each day is a struggle and oftentimes the effort of just trying not to sink too deeply into depression or to succumb to increasingly more and more things in my environment that seem to worsen my depression seems impossible. Naturally OCD and GAD are breeding grounds for depression, but there are other thoughts which are less obvious which oftentimes times go overlooked and which bring about a lowering of mood. These thoughts and perceptions seem to increase until you become so sensitive to any kind of real or imagined negativity, when the tiniest of problems seem huge and insurmountable. Moreover often the effects of trying to relieve your depression in fact increases your depression. So really one needs to look at depression, which although is a chemical imbalance to some degree, can also be caused or made worse by what we think and how we perceive any event in our lives from the insignificant to significant. But there again sometimes you can be so low in mood that you simply cannot be bothered to try, and sometimes the effort of so doing, and constantly looking for happiness can in itself be a frustrating exercise which brings about an increase in your depression and even make you feel guilty that you feel the way that you do
.
 

July 19th

And by the way, everything in life is writable about if you have the outgoing guts to do it, and the imagination to improvise. The worst enemy to creativity is self-doubt.
Sylvia Plath

Well I do not feel much like writing today, in fact I am becoming increasingly depressed by my inability to express myself. I considered the above entry to be rather muddled, confused and I have read it over and over and cannot improve it and it is now only published in order that I can move on and hopeful forget about it. It is as though even the medium of writing is becoming a difficult way of communication. I have previously gone into much detail concerning the difficulties which I have with my writing; the OCD obsessions about saying something which may cause harm and so on. This anxiety has been accentuated recently as some people have misinterpreted some of the things I have written. In reality this may not even be my fault and may be a consequence of today's impatience which makes people rush through everything with the result that they either do not comprehend what I have said - or anyone else for that matter - or they simply misinterpret it. I do tend to over react, become anxious and depressed even though such misinterpretations are inconsequential and are either easily rectified or ignored.

I am also finding that indeed I am having difficulties understanding things I once understood or remembering what I have read with the consequence I begin to consider it not worth bothering to read at all, and I find myself thinking what is the point of reading this or that. Yes I do like to read complex books, I am not keen on fiction unless there is something to be learned from it . So it is depressing to find myself taking forever to read a relatively short book, to find myself abandoning it half way through because I either can’t comprehend or recall what I have read. And of course all this is in addition to my superstitious OCD concerning an unlucky number which interferes with reading.

It is my understanding that many sufferers of anxiety disorders find it difficult to concentrate on reading and this has been the case for me for a while now. Moreover if I look back over my life there have been many times when I have found myself struggling to read a book, particularly where there are unfamiliar words, such as foreign names or imaginary names such as those used in science fiction which I like to read, if I do read fiction. I have struggled to continue reading despite these difficulties but now I feel that this is such a huge struggle with little return other than feeling that I am loosing myself in my disorders if I do not persist with reading. As a child comprehension was difficult it was not easy to remember or relate to what I had read. In adulthood reading improved and I can as I have explained before understand some complex issues as I read however I cannot relate them either by speaking or writing about them and moreover just lately I have difficulty remembering what I have learnt. There was a time that I considered that I could understand nothing very complex until I realised that it was simply due to a lack of confidence, a kind of OCD doubting. This was particularly the case when at thirty two years of age I finally sat for two GCE courses and to my amazment passed both at A level despite thinking that I had understood nothing and would fail miserably. The doubting disease of OCD is indeed pervasive and more subtle than one might think.

Nonetheless learning is difficult it has and always will be a slow process for me and now as I grow older it is once again becoming more difficult to concentrate and comprehended. Yes I have learnt use a computer, it took eight months and lots of help from technical support and I have learnt to create a website but it was an enormous struggle, it did not come easily. With reading now I find myself having to read the same page twice, or after turning the page finding that I have completely forgotten what I have been reading. I am continuing to read C.G. Jung’s autobiography which at first seemed okay but now it is becoming complicated and nothing makes sense. Mind you his ideas are quite complex, bizarre in fact. Nonetheless I am becoming increasingly depressed by the fact that it is becoming more difficult to read anything. On the internet if faced with a lengthy piece of writing I have to make myself concentrate, the temptation is to give up and not bother. But somehow I have to struggle with this. Reading is important to me, when the headaches where at their most severe some seventeen years ago when they first began to present everyday, besides the pain the headaches where a misery because I missed reading as the headaches where simply too severe to do so.

I know that I write so much here and now with the increase in such difficulties of concentration and comprehension I do wonder if anyone else with an anxiety disorder is having these difficulties, and if in fact anyone is really in a position to read what I write.

I guess I am really feeling miserable today and well most days. There seems to be more of my life effected by depression and OCD and it is a real battle sitting here today trying to explain to you this problem. 

July 20th

A question on an AS forum I was visiting went something like this:

Did you chew or twirl your hair as a chid?

As a child! What about as an adult? I twirl my hair,  is that not normal than? Anyone else twirl their hair? Is this an Aspie thing.

Yes I continue to obsess about whether or not I have AS and tonight I am scouring the AS forums which are in fact the best places to find out what it is like to have AS. Since publishing the articles on my website and sending my doctor the shorter version of the two I have obsessed less about this but still there is the need to know one way or another. Although this need is now less urgent as I have now done all I can do to get a diagnosis unless I can summon the nerve to trawl round the internet and ask the experts in this field to read my articles and give me their opinion. I am not sure I have the confidence, at least not right now. After all these days it seems everyone is just too busy and even the short article is long.

Incidentally despite the previous entry concerning my anxieties about memory, comprehension, and reading I continue to read with more ease books on autism in general and of course AS and it has in itself become a perseveration, an obsessive interest in its own right and not just because my son has AS or my endeavours to ascertain if I too have this condition. I guess with reading I have to have this excessive interest and without it my mind finds it even more difficult focus.

Whilst visiting AS forums I came across the  link below to an on-line test which measures your memory, your visual and face recognition; difficulty with recognising faces is called Prosopagnosia. Some people, and this includes myself, have difficulties remembering faces. Many people with AS have this difficulty although it is not in the diagnostic criterion.

To take the test click   Visual and Face Recognition Tests on the Internet.

Allow yourself time, you need a good fifteen minutes, more if possible. I was distracted so try to find a quite time when you will not be disturbed.  my results indicated difficulty with face recognition I had a percentile of 1.

 

July 26th

There are days when solitude is a heady wine that intoxicates you with freedom, others when it is a bitter tonic, and still others when it is a poison that makes you beat your head against the wall.
Colette
 

My son who has Aspergers syndrome AS is becoming increasingly more depressed. I simply do not know what to do, it is a difficult situation. Today he had a routine consultation with the doctor who has increased his medication.  Medication seems to take the edge of his depression, at least for a while, nonetheless periodically he has episodes of a more profound type of depression, which saps completely the little motivation which he has. Our situation is difficult because we are all three of us suffering from a mental health problem of one type or another, depression being common to the three of us. My husband is depressed but seems not to recognise or accept this and I believe that this can happen because either the person has not experienced these feelings before, (however this is difficult to imagine as most people have unhappiness from time to time which although it is not depression as such nevertheless provides a modicum of insight into what it is like to be depressed) or he has been chronically depressed for so many years that such feelings are experienced as normal. My husband's depression in retrospect has always been present perhaps but mild and I have probably been so embroiled in my own suffering that I did not notice. His depression however is worse since he was made redundant and we came to live here in the northeast where our lives have been difficult for so many reasons, some of which have been explained in my blog and elsewhere on my website. Both my son and I consider that also my husband may have some form of mild autism. He is very withdrawn, to some degree he always has been lost in his own world and this is increasingly more so now. I know that many people may think I have an obsession with autism and it is inconceivable that each member of a family can have some aspect of this condition and this is really just some OCD obsession of mine, and that in reality this is unlikely to be any more relevant than the rest of my more obvious manifestations of OCD. Moreover many people  have the erroneous concept that people with a diagnosis of autism make up only the two the two extremes of this condition, the child sitting in a corner rocking lost in his own world or the autistic savant portrayed by Dustin Hoffman in the film Rain Man. There are however variations, gradations, autism is a spectrum, a continuum and includes ADD, ADHD, AS in addtion to  Kanner's Autism which in itself consists of varying degrees of functionality. There are degrees of severity as there are in any condtion. Furthermore it is my opinion that there is a connection between autism and OCD as both condtions seem to appear in the same families.

Although strictly speaking AS is a learning disorder, people with this condition however experience depression and anxiety disorders, most commonly obsessive compulsive behaviours which if severe may warrant a separate diagnosis of OCD. My son has OCD traits and has a diagnosis of anxiety and depression. It is the depression and anxiety that makes life difficult for him. Such is due to and accentuated by social interaction problems which make if difficult for him to make friends or have any kind of close relationship with others. It is a catch twenty two situation for many people with AS. Often the person with AS wants to have friends and wishes to socialise but is unable to do so, and this is the nature of this lonely condition, in social interaction and in other aspects of his existence he is a square peg trying to fit into a round hole.  Since moving here to the Northeast my son has neither sought nor made friends and has now rather accepted the situation, which is not a good thing. His anxiety has increased and he now finds as I do that even the least degree of inconvenience or obstacle in life is seen as huge and insurmountable, making a mountain out of a mole hill rather fits the description of this type of thinking which results from prolonged anxiety. The medication he says helps him to be less stressed but still his anxiety and stress are nonetheless significant.

For most of the time there is little association between ourselves and other people, other than each other we have little contact with anyone. My son's and my social activities are limited to a
befriender , a volunteer from a charity who visits with a person who is isolated by circumstances of illnesses. For instance my son's befriender was arranged for him through the autistic society, mine through a local charity for the mentally ill. 

A lot of extra tension arises with the interaction which occurs between the three of us, and often our obsessions, and yes my husband also displays some mild obsessive compulsive behaviours as a result of depression, are incongruous and incompatible to the extent that we often upset one another. Depression is in a way "infectious" not in a literal sense of course but one person's mood effects another's, particualry when living together. So life is very difficult for all of us and it is inconceivable that patients with mental health problems and conditions such AS are treated in isolation. In the USA according to my understanding family therapy is a common practice yet here in the UK there is no equivalent. It is very difficult to make progress in isolation and in some instances your progress could have an adverse effect on another family member. For instance some years ago a psychologist wanted to come to my home for desensitisation therapy for my contamination OCD. This would probably involve me deliberately contaminating my home with "unclean hands" in the OCD sense. However my son having mild OCD traits and who was not receiving therapy would find that his home had become contaminated, at least according to his perspective, and he would not be able to cope and this may even have resulted in a worsening of his symptoms. Imagine you have OCD and someone came into your home and deliberately contaminated it and you now felt that all your possessions where contaminated, how anxious  and yes frightened you would be.  You might be so traumatised by this that your OCD becomes as a consequence more severe as you are now unable to cope with this sudden increase in contamination which until now you had carefully avoided. Everyone has to feel ready for desensitisation therapy, it will not work if it is forced upon you and it may even have the reverse effect. For all intents and purposes if I had accepted this offer of desensitisation therapy it could have made my son's situation worse . So in some cases you have to consider the effects on other family members if they also have a similar condtion. So you see there may be times when therapy should involve the whole family in a controlled organised way.

No I am not complaining about the health service, I understand that resources are finite and that perhaps such is at this time impossible. However there should be more effort made to improve health care for the mentally ill and for others in society who struggle with chronic illnesses, more should be done to treat a family as a whole rather than treat anyone in isolation. Yes it is often said that we expect too much from others, from society in general, but hey we are supposed be a progressive society, we consider ourselves the highest evolved creature on the planet although in my opinion this is debatable. Should not our progress include societies' acceptance that many people need care, that many people cannot function alone and that yes indeed many people are dependent on others, on society, on social services and charities for their welfare and survival. But do not forget that many people who cannot function independently nevertheless have the same aspirations as anyone else and moreover with a little support many may be more able to contribute to society in some way, but without such support they cannot do so. My son has a talent for art, it comes naturally but his depression and anxiety is destroying his creativity, but with a little structured help and support he could perhaps use his talent to benefit himself and others, not necessarily in terms of finance for most artists  paint  to enhance their own lives and the lives of others. Such was Van Gough motivation for painting.

July 26th

We experience moments absolutely free from worry. These brief respites are called panic.
Cullen Hightower
 

I really ache just awful today. I have fibromyalgia, no formal diagnosis of course but that is most certainly what these aches and pains are.  I over did it the other day cleaning the sitting room from top to bottom because of all the flies which we keep getting seemingly out of nowhere.  Over exertion is not good for fibromyalgia so this morning I am suffering with a dramatic increase in aches and pains.

As a rule, what is out of sight disturbs men's minds more seriously than what they see.
Julius Caesar

When we came back from a trip out to Castle Howard in Yorkshire, where incidentally the popular 1980s TV series Brides Head Revisited was filmed we came home to a sitting room full of flies, it felt like a scene from the film the Amityville Horror ... well... rather an exaggeration, there where half a dozen or so big blow flies which for a contamination OCD sufferer indeed feels scary but in a different way. It had been a pleasant day out despite my anxiety that I might get a migraine and or it might be the day flying ants fly as they do about this time of year and of which I am extremely phobic with the result of very audible screaming and panic which unlike the more chronic type of anxiety cannot be hidden. The day had been pleasant notwithstanding the usual anxiety about toilets and panic over twinges of headaches, getting lost in the woods and checking for evidence that the ants where not flying and worrying about being too far from the car should this happen. Than to arrive home and find these flies. I wonder sometimes if there is any peace in this world and life to me appears to be one problem after another and not even one day can pass without something new with which to contend. My son says it looks like they have hatched although flies don't hatch in the literal sense of the meaning as they of  cause morph from maggots which are hatched from eggs the fly lays on rotten food. Nothing of this sort would exist within my home of course, but they have most definitely come from somewhere inside the house.

Freaked out as it is because of contamination fears concerning the flies my anxiety and indeed my son's is compounded as the toilet pipe that feeds the water to flush the bowel is leaking!  The seal has broken. A hasty dash to the local DIY before closing we buy seals which don't work and break. What to do, more anxiety, these days after recent experiences we are loathed to call out a plumber as we plain and simply trust no one. Finally my husband remembers we are insured with the local water company who have a twenty four hour call out service, but when we enquire it is not an emergency and someone will call the next day. Therefore over night we have to use buckets to flush the toilet, an anxiety provoking and exhausting task. Worry worry so many catastrophizing scenarios: will the whole system need replacing, will we need a new toilet, how will we afford it? The next day the plumber came, fixed the problem in a short time and actually devised us not to get a new modern system which is unreliable.

But today there is still the flies which keep appearing. I cannot of course kill them and we have to try and get them to go out the window or catch them in a glass. But where are they coming from? I determined to clean the sitting room from top to bottom and to try to locate where they keep coming from. It is stressful and exhausting and takes most of the day. But still we find no trace of how these files keep getting in and still today some three days on every now and again one or two appear, there is one now here this morning trying to get out of the closed window. And still as far as I know those flying ants have not yet flown so today although the sun shines and there is promise of fine weather I will still be anxious and watchful and nervous about going out. However as there is no definite day upon which these creature fly, but it is usually the end of July early August, I cannot of course stay indoors for such a length of time.

When you have so many obsessions, compulsions, phobias and suffer with depression life is indeed difficult and what other people take in their stride I and others like me can barely cope as after a while more and more aspects of your life seem increasingly more difficult to deal with. For instance now my glasses are smeared, it really irritates me, but really it is no big deal even though because of my aching muscles it is difficult for me to get down stairs to the bathroom to clean them, nonetheless there is an overreaction of great irritation and angst regarding this relatively minor inconvenience.

July 30th

Well today after more than the usual amount of anxiety I finally publish the last few days entries. Sometimes it can be just so frustrating to have OCD and the torment is awful and you are at times tempted to just give up and let it have its own way. I try to persist and carrying on and work round my OCD however the OCD manifestations which interfere with my writing are becoming an increasing battle to contend with. Sometimes I think that it is only from sheer exhaustion and apathy borne of the anxiety and constant checking that finally induces me to publish my entries.

I cannot believe that OCD arises from anxiety that anxiety and life circumstances brings about this condition. Rather I consider that OCD is a neurological condtion with psychological components , the individual manifestations of which are the result of up bring, life circumstances , ones world view and indeed ones interests all shape the type of OCD from which we suffer. Note all obsessions and compulsions focus upon what means the the most to us or what we are involved in, our interests for example, until I created this website the anxiety about writing and the obsessions and compulsions which accompany it where not as severe as they are now. What do you think is the cause of OCD?

 


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