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Blog Roll
Blog Roll disclaimer*
Links
to recommended blogs:
OCD
Wiping The Crazy Off My Face
Incertus - The Weblog of Doubt and Other Disorders
There is a diary included as
part of the following website:
My Obsessively
Clean
Den
Where Justin can be Justin
Agoraphobia:
Agoraphobic
English Guy
Downunder
Bipolar and OCD:
Gail's journal
New!
Disjointed Thoughts
Autism:
Donna Williams’ Blog
Ballastexistenz
A Blog from Another World
Attention Deficit disorder ADD:
Living with ADD
A
personal selection of Interesting Blogs not related
to mental health or conditions of any kind:
The Action Blog:
Save an
endangered species, protect human rights, save a
forest.
Gristmill: The environmental news blog |
This blog is part of
Grist Magazine's
website, a magazine dedicated to environmental
issues.
Positive Attitude Quotes, Free Happy Positive Loving
Messages, Popular Motivativational sayings.
A
good selection of interesting quotations
|
July 1st
The link below will take
you to a very supportive and inspirational OCD website by a sufferer of
OCD, the website is called
I am: An exploration into Obsessive Compulsive Disorder (OCD)
There are personal
stories, art and poetry for you to download. This website is well
worth a visit
It takes time to
create, maintain and organise a website, so please take the time to
visit this website and indeed any personal website created by a sufferer
of OCD or other anxiety disorders. Although professionals know a
considerable amount about OCD and other anxiety disorders, it is really
only we who suffer in this way who really know what it is like to have
to live with these conditions and the detrimental effects they have on
our lives.
July2nd
Today we decided to
visit St Abbes, a delightful and very picturesque coastal village in
Scotland, we went last year and I have written about this in my blog in
the September entries. It is a fair way away for us to travel, a hundred
mile trip, so it can be rather daunting for me with my problems
particularly IBS and migraine and of course it is taken as read that OCD
will present so many problems that it would be impossible to talk about
them all here. Sometimes I consider that my whole thinking process is
tainted by OCD. The fact that we going to St Abbes today has partly to
do with my OCD, in this instance the fear of changing plans or going
against what either my husband or son have suggested should this result
in dire consequences, a superstitious fear which I have mentioned many
times . Neither my husband or son is very good at changing the original
plan either as I have also mentioned on other occasions when telling you
about this particular frustrating and indeed anxiety provoking type of
OCD and therefore despite the appalling weather and the almost certainly
of rain my husband is set on travelling this relatively long distance,
which would be less noticeable if we were likely to at least be greeted
with reasonable weather on our arrival. Travelling by car such distances
is not only exhausting but expensive and perhaps one should learn to
pick ones times to go when the chances of at least a dry day are likely.
Recently my IBS has become worse with frequent need of a toilet and that
in addition to irritable bladder would be a bane in anyone's life, not
to mention the chances of a migraine attack whenever I am out, but with
the addition of OCD it is a nightmare of hellish proportion and at times
I do not know how the hell I cope. For all intents and purposes it may
seem that I contend with my problems and rise above them and go out
anyway and it all looks very commendable not giving into perversity and
I should pat myself on the back and tell myself what a brave soul that I
am. But if I look at my thinking in this and similar situations the
truth of the matter however is quite the contrary. For frequently I am
driven out against my better judgment, often not feeling well, solely as
a result of my aberrant thinking, which in this case concerns the
knowledge that if I do not go out the result will be that for the entire
day I will be tormented by guilt and that constant nagging thought which
tells me that I did the wrong thing and I should have gone; that I am
letting everyone down or I am changing fate by changing our plans which
may result in dire consequences. I honesty think that there would be few
people who would venture out particularly such long distances with the
threat of a migraine, sometimes severe tension headaches and IBS and
have to confront using some particularly disgusting toilets which is an
horrendous ordeal for a sufferer of OCD. But such determination is yet
again an instance of choosing the lesser of two evils, the stronger fear
over writing the lesser fear.
At one point I told my husband that the time is coming that I will no
longer be able to cope as there is now so many things wrong with me that
a trip out is an endurance test rather than a pleasurable pursuit. While
they admire the scenery and decide where to go and what to do all I can
think of is where is the next toilet, a twinge of pain and I am scared
that a migraine is imminent and even if this does not happen the fear
that it will is significant, and even if the headache turns out to be a
tension headache this although more manageable is a considerable
detriment. My son points to this and that, places of interest and
natters about the history and so on and I am barely giving this any
attention so stressed with anxiety as in turn neither he nor my husband
really understand either my fear or the misery of these conditions one
of which alone is debilitating let alone all three.
Yesterday was particularly stressful, my IBS necessitated frequent stops
at the few places on our journey where there were toilet faculties . By
the time we retuned home I was desperate to discard all my cloths,
shower and change. I think that the state of most of the public toilets
in the UK is a disgrace for a wealthy so called developed country. That
is of course when there are conveniences as recently many public toilets
have been closed, which is a huge problem for people like me, as the
local council have closed so many toilets and the ones that are open are
closed as early as five o clock. It is indeed a difficult world for
anyone who has any kind of disability or sickness. I think one of the
reasons many toilets have been closed is because of a new law which came
into being in 2004 that all public places had to provide facilities for
the disabled and so instead of installing disabled toilets it was easier
to close down the public toilets, the logic being that if there are no
public toilets for anyone the counsel will not be required to provide a
disabled toilet. Perhaps I am wrong however these days nothing would
surprise me as the devious can always find a loophole in any law,
however it could simply be due to cut backs. Which of course does not
make it right either. Really I think we are digressing into the past
rather than progressing towards a future when everyone's needs are
catered for.
Yesterday was a nightmare. I think that most cleaners of toilets clean
the floor and that is about it, often you enter a toilet the floor is
swimming with disinfectant while the toilet and wash basins are filthy.
You might get lucky and the seat is wiped but other than that for the
most part the toilets I visited yesterday where in a disgusting
condition. In one there was something unimaginable smeared up the walls
the cleaner must obviously ignores this as it has been there a long
time. Often there is the usual mindless graffiti which although is not
an hygiene problem does add to the general rundown, nobody-gives-a-dam
type of feeling one gets increasing nowadays in many public areas not
just toilets. By the end of the day I was on the verge of hysterics and
the fact that I got a stomach ache and was too fearful to eat should I
become ill added to the misery. My handbag became contaminated in the
toilet with the gunge up the walls as it accidentally came intact with
this stuff and I have had to discard it and will most likely never be
able to use it again.
I really do try to get a more realistic perspective but now I am so
sensitive to everything thing in my environment and see just about
everything as a potential threat to myself of others at worse or as an
extreme frustration at best. I remarked to my son that just lately I
feel that life is an obstacle course.
We stop to look at an old church, we have been here before, it is thankfully
not open. No its not that I do not wish to look inside although it can
at times be difficult because of my religious OCD, but rather it is due
to social anxiety because I cannot engage in conversation with whoever
is there to show people around as was the case last time. But my heart
sinks as yes there is someone here painting the door and oh dear he is
only too keen to show us round. I pretend to show interest, no it is not
that I am not interested it is just that I am anxious and there is the
conversation, the eye contact difficulties and I can’t wait to leave
while my son totally oblivious to all my anxieties takes endless
photographs. My husband keeps chatting and it seems to be forever before
we leave as I edge towards the door. My son and I have problems with
social interaction but somehow my son seems to manage and presents a
more coping facade although he is getting increasing less able to cope
with social encounters particularly those right out of the blue, however
because old churches are one of his keen interests he is able to hold a
conversation otherwise he like me cannot engage in small talk. Besides
the conversation difficulties I am constantly anxious, anticipatory,
sometimes for reasons not clearly defined.
When we arrived at St Abb's the heavens opened and monsoon like rain
drenched us and the few other brave visitors. I have never seen rain
like it, it ran down the road like a river and like a waterfall it came
down the side of the hill. St Abbes is such a pretty peaceful place and
there would have been a time that I would have appreciated its natural
beauty, it’s peace and tranquilly despite the dreadful weather. Yes
indeed I would even have appreciated the rain and the pounding sea as it
splashed against the rocks with some delightful exhilaration but now I
am so tense and afraid that I can see nothing past this , this ever
present feeling of intense anxiety and dreadful apprehension waiting for
some disaster to happen. Continually stressed by so many things in my
day to day existence, I see the potential for disaster everywhere.
We decided to call it a day and return home via Alnwick, famous for its
castle ( part of one of the Harry Potter films was filmed here) and the
second-hand bookshop one of the largest in the UK. We where headed for
the bookshop which is perhaps where we should have gone on such a day in
the first place.
Leaving St Abbes with much regret feeling as though we should stay
anyway notwithstanding the weather we made our way to have a quick look
at the neighbouring bay. This is the way it is now for me as soon as a
decision is made, and it was not mine as I can’t make decisions, I
promptly regret agreeing and feel I am giving in or missing out and yes
it does make me depressed. The road became quickly flooded I was fearful
though there was really no threat, but the fear that the car would be
stuck in deep water was scary, my fear of being ill, getting a migraine,
what would I do. I can‘t tell you how anxious these situations are for
me and how sensitive I have become to such possibilities. I feel as
though I am now so sensitive to my environment, so effected by every
aspect of life that even little annoyances take on a mammoth proportion
and for most of the time my trepidation tightens a knot in my throat as
fearful scenarios present in rapid succession.
The bay is just beautiful and is natural apart from a few beach huts and
thankfully a toilet albeit the usual unhygienic nightmare. There is a
large hotel and a car park but neither is obvious from the perspective
of the beach, which is a rarity virtually unspoilt. The beach is sandy
and on a better day it is probably a popular place but today apart form
a group of school children who must have just stood there during the
downpour as there is no shelter, there is no one about. I love the sea,
the sound of the waves pounding on the beach but today I am anxious
restless and I fail to notice the splendid scenery or hear the sea due
to the focus on my fears and the need to keep moving. I feel as though I
have gone merely as a gesture to feel that, well... I have been there
and done that. Rather like an actress fulfilling her role in a play
making sure I act out all the required scenes rather than actually
appreciate in any real sense the experience of being here. I know this,
this is not said in retrospect now as I write here. No indeed whilst
standing on this beach I know that I am failing to enjoy what once
brought enormous pleasure, what once bought delight and lifted my
spirits, but now instead my mind is filled with one anxious fear after
another.
We stop off at Alnwick mainly to while away the time so as not to get
caught up in rush hour traffic . I panic when stuck in traffic feeling
tramped fearful should I get a migraine, a stomach ache. My son is an
avid reader as I have said before but today he and indeed all of us seem
to find nothing of interest. Depression often saps ones motivation or
enthusiasm and of late I find it difficult to be interested in anything.
And of course my superstitious obsession with a certain unlucky number
interferes with selecting a book and reading. I enjoy reading but it has
to be the right book and just lately I find it difficult to concentrate
on anything in the least complex. There is a biography I would like to
read but the person concerned has an illness and I fear that my
hypochondria will come into play and I shall worry, I have to be so
careful and generally try to not read or watch TV programmes and so on
which focus in any detail on a particular illness, as I imagine that I
have symptoms of this illness or it makes me depressed or even guilty
that I do so much complaining. Yes indeed selecting books can be
difficult, in fact just lately everything in my entire life is a misery
interfered with by OCD and the other co morbid conditions from which I
suffer and I fear that every time I try and do anything from getting out
of bed in the morning to going back to bed at night has became a struggle
with one or more disorders or conditions. Yes indeed life now seems like
some obstacle course with the obstructions becoming increasing more
frequent and more insurmountable.
June 3rd
With some hesitation
after months of obsessing, checking and doubting the appropriateness of
my considerations or the need to share them I am finally about to
publish in some detail the reasons why I consider that in addtion to my
OCD I may have Aspergers syndrome. I have asked my doctor for a referral
and she is looking into the matter although there may not be any
diagnostic asessment services locally and I am not in any position to
travel further a field so a favourable outcome remains uncertain. I must
emphasise that OCD is my priority and that I consider that if I do indeed
have AS, my OCD is nonetheless a separate condtion and too severe to be
considered as part of AS. Well all of this is explained very clearly in
these accounts so I will not elaborate further here.
As those of you who
regularly visit my blog know only too well, I have seriously considered
this possibilty since my son first received his diagnosis two years ago
but I can never feel certain that my assumptions are correct without a
formal diagnosis which may prove impossible. I have most of the symptoms
except the good memory and nerdiness associated with AS. However nerdiness and a good memory are a matter of perspective and these
manifestations of AS may not present as one would expect. For instance
generally my memory is poor however in some instances I can recall
things well that others tend to forget, my memory is therefore patchy,
particularly if I am not interested in something my memory will fail me.
But I do not have the excellent memory for facts associated with AS.
However there are people with memory problems who nonetheless receive a
diagnosis
In short I think only a
professional can make an accurate diagnostic asessment for AS. There are
many condtions which for me remain undiagnosed such as hypochondria but
it is very obvious that in addtion to OCD I am an hypochondriac, I do
not require a formal diagnoses for this although I think all co-morbid
condtions require formal recognition by doctors and mental health
professionals and not dismissed with the vague generic diagnosis of
anxiety. Which is the diagnosis I had right up until I was admitted to
hospital where I received the diagnosis of OCD.
Do I have I AS or is
this simply a bee in my bonnet as my mother used to say, an obsessive
type preoccupation. My son certainly thinks that I have AS and if we go
by the logic of it taking one to one than perhaps I have AS. Whatever, it is a consideration that will haunt me
until I know one way or another. The problem of course is that I indeed
have many of the symptoms,for want of a better word, of AS, (I know some
people with AS do not like the word symptom some seeing this condtion
as simply another way of being) so my considerations my indeed be
quite valid notwithstanding my obsessive preoccupation with this issue. Many people are happy to diagnose themselves, however
as a sufferer of OCD there is always doubt. As the
disease ,OCD, becomes more pervasive you arrive at the stage where
you do not know if your considerations are rational, realistic, logical
and so on, so you cannot make an informed decision concerning just about
anything and this is particualry so with a complex consideration such as
this.
I hope that even if my
attempt to get an official diagnosis is unsuccessful that having written
my reasons here in such detail may quell for me the need to keep obsessing
about this issue. I also hope that someone who is either a professional
in the area or is in any way knowledgeable about the subject will give his
or her opinion although I cannot imagine anyone taking the time to
read these rather lengthy accounts. It is also my hope that my writings
on this matter may help others with similar considerations.
My doctor's advice that
it might be better to address the issues rather than obsess about a
diagnosis, and indeed if a diagnostic assessment is not to available to
me for whatever reason, is indeed wise sensible advice. Although
how I go about this is anyone's guess and there is or so it appears only
CBT or medication available which would really be no use concerning the
social interaction problems and other issues of AS. Social skills
training might be helpful but it is the problem of not knowing what to talk about
before I even begin to formulate how I am going to coherently express
myself, that cannot be helped by social skills training, which is more
appropriate for a child as by my age I do know by learning if not by
instinct most considerations concerning manners and etiquette in the
most common social scenarios. It is more my inability to express myself that is
the problem - well I will not go into detail here as all is explained in
the two articles.
Of course a diagnosis
will make things easier when receiving therapy for my OCD if this ever
happens but there again mental health professionals cannot always
consider every aspect of each person's condition. No one is ever
going to be fully aware of each of my difficulties as I have so many,
such is impossible not even my son and husband are always mindful of my
problems. A diagnosis I guess is required for me to simply know
one way or another, it does of course make matters easier when
describing ones condtion; rather than listing symptoms such as, social
anxiety, not able to engage in small talk, not able to cope in groups,
socially inept, have sensory issues to bright light, noise and so on and
on, it is simply easier to say I have AS.
The outcome remains to
be seen, it is difficult to diagnose an OCD sufferer with AS, there are
overlaps as OCD symptoms present for a significant percent of people with
AS and it is only when the obsessive compulsive symptoms are severe in a
person with AS that a separate diagnosis of OCD is given. It is
therefore less common to receive a duel diagnosis of OCD and AS.
Particularly in my case where OCD is for me the primary condtion which
has involved most of my attention to such an extent that I have not had
the wherewithal to consider to any great degree other condtions which
are of less detriment but which have nonetheless effected my OCD and my
life in general, such as AS. Moreover some diagnosticians are hesitant to
give a diagnosis without some early family background information
provided by a relative who knew you as a child. I am the only one left
of my family there is no one alive who knew me as a child. I do have
some memories and second hand accounts of what happened during my
childhood which is discussed in the writings linked below but these accounts
are limited and vague and there are no medical records available.
Notwithstanding such
difficulties in diagnosis it is obvious that I have at the very least
autistic traits and I believe this is very common with many OCD
sufferers - at least in my opinion. Whether I have AS or just autistic
traits or this is simply an OCD type of thinking, (the fixation type of
thinking where we tend to get hold of an idea and obsess about it but
not in the classic obsessive compulsive way) I hope that what I have written is of help to
anyone who is having similar considerations or anyone simply interested
in how people like me think.
I will return to his
matter as the situation warrants but will no longer labour the point
here on my blog concerning the whys and wherefore of my considerations
on the matter of a diagnosis of AS or otherwise - at least I will try my
best to refrain from so doing as of course it has become in itself an
obsession notwithstanding the validity of this consideration.
Naturally I will mention the problems which arise from these symptoms
regardless of a formal diagnosis or otherwise such as my social
interaction difficulties because no condition works in isolation, all
conditions coalesce to some extent, they interact one with another. In
fact particualry with OCD where all too often it turns its focus on
other condtions from which we may sufferer even physical ones such as
migraine, I have had many obsessions and compulsions relating to this
condition. All anxiety disorders are detrimentally effected by
communication problems, imagine being an agoraphobic for instance and
after struggling to go out to also have to contend with another fear,
the fear of social interaction, surely a problem with social anxiety
will greatly effect the favourable prognosis of a sufferer of
agoraphobia . My sister often found the condition of agoraphobia
compounded by her social anxiety. After making progress with her
agoraphobia enough to go out alone she continued to be impeded in living
a normal life due to fears of meeting and associating with people. It is
of no use treating someone for agoraphobia only to find that he or she
still cannot go out because of a social anxiety problem. Yes all
conditions interact with one another and none should be considered or
treated in isolation. Ideally all disorders and conditions should be identified and addressed.
The link below will
take you to an introductory page where there will be two links.
The first is to the
extended version which is a more detailed account of the reasons why I
think I may have AS and contains anecdotes and more personalised
information.
The second link is the
shorter version which I edited for my psychologist to read.
Aspergers syndrome: A personal Consideration. Introduction
July 7th
Today whilst searching on the net for something interesting to mention
here on my blog I came upon a useful website which offers a Free on-line
CBT based course. That's right it is free! I have carefully
searched the website and according to my understanding there seems to be
no catch and it appears to be funded by the National health Service NHS.
Although the website is Scottish based the course can be undertaken by
anyone anywhere in the world, it is not restricted to Scotland or the UK.
You do not have to give details of your name or address only a user name
is required. Also a short questionnaire but as far as I can ascertain no
personal details are required other than basic location, country.
Listen to the audio
introduction by going to the left hand panel and clinking "About The
Course" If for any reason you find it easier to read text rather than
listen to the audio you can read more or less the same introduction.
I will be registering
for the course as it looks well worth a try. I do not expect it will
have a huge impact on our respective conditions particualry if it is
severe and chronic but if the course helps in some areas to improve your
quality of life than it is well worth the time taken. But who knows when
my OCD first presented in a significant way simply sharing my problems
with my husband helped me to overcome at least for a time the first real
full blown manifestations of this disorder. So do consider
giving this course a try.
Home - Living Life to The Full
June 8th
As those of you know who visit here
regularly I do not publish entries each day as they are written due to
OCD checking obsessions and compulsions and anxieties about what I have
written, again this is all explained in some detail elsewhere on my
blog. Instead several are published in a batch after exhaustive checking
and obsessing. I wish this was not so but right now this is the best I
can do. Today the July entries have still not been published because of
difficulties with the extended version of the article Asperger Syndrome:
A Personal Consideration, mentioned in a previous entry above. This is a
good example of conflicting OCD issues and the pervasive nature of this
disorder, the thinking process of which at times seems so real that one
is at a loss to know if ones reasoning, decisions and general cognitive
processes arise from the normal thinking of the real person who lies
beneath all the garbage of aberrant OCD thinking or not. How many of us
stop to analyse our more subtle thinking, but if we do it is sometimes a
surprise to find on closer examination that perhaps our ideas on this or
that issue are tainted by OCD's negative and obsessive thought
processes. However the most difficult problem lies in the fact that
there are times when we do not know if our thinking is normal thinking
or thinking borne of OCD.
This particular article is really not
ready for publication. I know that I am not a professional writer and
may therefore be forgiven for the occasional mistake, although these are
more than occasional, and the tendency to make mistakes and not notice
them despite considerable editing- all right obsessively checking- I
consider the result of ADD. However this article is not ready for
publication for more reasons than the odd spelling or typing errors
missed despite dozens of checking sessions. The article particualry in
the beginning is very repetitive and I have read it over and over trying
to edit it to make it more concise and to eliminate repetition but
somehow I simply am unable to do so without beginning afresh and after
months and months of writing, obsessing, checking, rearranging, I am
just too exhausted to do this. Moreover to do so would take my attention
from other projects for my website. Abandoning the article is not an
option either as I feel I really need to discuss my consideration that I
may have AS and until I do so I feel I will never have any peace
from obsessing about this issue, which although a personal consideration,
I believe that it nonetheless throws light on certain issues concerning
OCD. Namely that I believe that many OCD sufferers have at least some
autistic traits and that there is a connection, the reasons of
which I will discuss in another article when I have finished writing it
and obsessing over it, so please do not hold your breath it will be along
time in the making as is everything here on my website:-) - I really
must get some smiley icons I rather think that newcomers to the net may
not know what that last symbol means. Publishing will be a release
perhaps from ruminating about AS even if no one reads it or comments or
confirms or otherwise my assumptions concerning the possibilty I may
have AS in addition to OCD.
Somehow though I rather think that
publishing it in the rambling waffling state it is in will only replace
one torment for another and my attention will turn to my perfectionist
issues and I will be constantly reading and re-reading trying to
eliminate the repetitive nature of the beginning of this article, so I
can't win and it is like that isn't it with OCD. You finally
give into to your worries, your fears, your compulsions, and in this
case a driving obsession to complete something hoping to relieve the
pressure of torment, anxiety, depression or frustration only to find
that another obsession, compulsion or preoccupation has arisen as your
mind either turns to another aspect of the original obsession or it
homes in on something new and there is never any peace for the poor
unfortunate sufferer of OCD.
I apologise if this
article concerning AS appears self indulgent, which of course it is but
it may help others similarly preoccupied with this consideration. If
nothing else it serves to stand as an example of my obsessive nature
which strays into all facets of my life and thinking process and is not
merely centred on the stereo typical manifestations of OCD.
Well today the sun is
shinning, yesterday was a glorious day with only one shower, a wonderful
relief after weeks of rain and misery. The wind was blowing, the air was
fresh, the sound of rustling leaves in the trees I always find
such a delight and perhaps now we can have some summer to dispel or at
at least mitigate the gloom of depression made worse by dull cold and
miserable days. But lets not forget the on going misery of many people
who have been flooded out of their homes and more importantly have lost
loved ones both here and abroad for whom the misery goes on day after
day for months even years. Don't you find that at first people are
helpful sympathetic when you have a tragedy or traumatic experience or
you are ill than after a time no one seems to care or even member that
you continue to suffer.
July 10th
Today we are again in
Whitby in North Yorkshire, I have written about a similar day trip last
year and this year it is pretty much the same accept the weather is
somewhat cooler although as last year we had a thunderstorm during our
return journey across the moors. The rain was torrential and like our
experience at St Abbes the previous week the roads flowed with water
like a stream or river. My son joked about the possibilty of flash
floods and I became anxious although the likelihood of such an
occurrence was virtually nil. I felt sorry for sheep who just had no
option but to stand stock still while the rain relentlessly pelted down.
Neither open moor land nor fields providing any shelter for any
creature. They looked dejected forlorn.
I find Whitby a crowed
difficult place to be, the quaint but narrow streets make crowds
difficult to avoid, the stress of noise and so many poor dogs dragged
about on leads through the crush of people is I imagine as unpleasant
for the dog as it is stressful and anxiety provoking for me. Today I
simply am so stressed I appreciate little of this trip out. And even in
the less crowded, and in some cases virtually remote, coastal villages
where we stopped on the way I was anxious unable to relax, so many fears
keep me for ever vigilant should an unexpected confrontation with my
fears occur, such as an unleashed dog for instance despite the fact that
at one place there was nothing much except a few houses and a farm, but
in the distance the bark of a dog has my hackles rising so to speak. I
am just so tense now despite the fact that most of the time there is no reason, at least
no real reason. However I think that this anxiety is the result of some
automatic response that is set into motion even without the
precipitating thoughts or occurrences such as the dog barking. Also the recent
escalation of my IBS symptoms has made me ever more anxious about a toilet
as here there are none.
At kettleness it is so
beautiful the view from the cliff top is magnificent and there is a
break in the clouds and the whole vista is enhanced by radiant sunshine.
Yet I am too wound up with anxiety to fully appreciate this. I would
like nothing more than to follow the footpath along the cliff but fear
prevents me from doing so as I know that my anxiety for one reason or
another will mitigate any benefit that such a walk would once have
afforded. I feel guilty as though I am a burden to my husband and son
but today I simply cannot cope with a long walk or even a short walk. Yes indeed one feels
better out in nature in the warmth of the sun but anxiety after so many
years impinges upon what would have been a very therapeutic situation
and eventually I fail to appreciate this except now in retrospect as I
write here now.
I manage to struggle
though the day somewhat exhausted feeling contaminated yet again by
fifthly toilets. There is a charge of 40 pence, an hundred percent
increase on last year, for a much clearer toilet near the bus station.
There is also a shower. I am so tempted as I feel so contaminated but I
resist this urge as the anxiety and stress that would occur for all
sorts or reasons would cancel out the monetary relief that such a
shower would bring.
I do feel rather
uncomfortable about such complaining but my blog is about my experiences
with OCD and other co morbid conditions so I need to include this and at
times despite the excess of such continuous complaint I feel as though I fail in this to a great
extent, for it is impossible for me to tell you precisely the pervasive effects of
the torment of this disorder and how I battle with it day after day. It
seems that every where I go at home or elsewhere it is a struggle of
mammoth proportion accentuated by other condtions such as migraine and
IBS. The nightmare of OCD rituals when I use a toilet cannot be
described as such is exhausting neither can I tell all the thoughts which
crowd my mind in a constant stream, thoughts of contamination,
existential anxieties, religious and superstitions ruminations and compulsions
the whole miserable array of OCD manifestations accompanies me everywhere
or so it seems. But today perhaps that
is enough about my complaining and I would now like to comment on other
issues of interest
A degree of existential
anxiety naturally rears its ugly head in old churches but the one in
Whitby, St Mary's, is interesting particualry so is the curious epitaph
the 'Huntrodd's Memorial' it tells of the strangest of
coincidences, if of course it is to be believed.
Below
is a photograph of the inscription .
St Mary's church is
situated on the cliff top, and is accessed after an arduous club of a
steep flight of steps known as the "199 steps".
Below are views of Whitby
and Kettleness.
These
photographs are sized for use as desktop wallpaper and open into a
new window.
Photographs where
taken by
kevin
July 12th
The
world is a dangerous place to live; not because of the people who are
evil, but because of the people who don't do anything about it.
Albert Einstein
I had a shocking
experience today however nothing compared to the trauma suffered by the
young couple who where attacked outside a supermarket in a nearby
town.
I need today to eat my words about being a pacifist for today had I
been able I would really have liked to have taken to task a group of
delinquents who attacked a young man and his girl friend right in
front of a Supermarket in a packed car pack and not one person did a
thing to stop it. The four closest people where an elderly couple,
myself and a sales assistant, a young man who did nothing to stop it. I was shocked at the time about this lack of action on his part
but had he done so he too would likely have finished up badly injured as
there were just too many of them. I tried to stop the assault by
shouting and threatening to call the police but they took no
notice. I was even tempted to intervene and although it is
ridiculous for a woman to do so I feel very guilty that I did not. I
am reckless that way and if it were not for the headaches who knows
I may well have done so. I asked several people to call the police
including this sales assistant who in fact had a mobile phone, but no
one did anything but stand there. I guess that perhaps they were too
shocked. It was all over quickly they, four of them, all ran
away. The man looked badly hurt. I spoke to the girl she said
they did not know them and they were drunk and just attacked them.
It was the most shocking thing I have ever seen. I am so angry and
would have liked to have had the ability to give these yobs a taste of
their own medicine. I was shaking all over for hours but mostly with
rage. I am still angry now, it is boiling up inside I get so angry
sometimes but this time such anger is justified. Just writing about
it now I feel like crying as of course I am writing this a couple of
days later because I was naturally just too shocked to come here on
the day of the incident and write in my blog. I felt so useless
unable to do anything save shout at them.
When I was younger my husband and I where members of a karate club
for two years and we where at the level of green belt. I became
pregnant with my son and never went back. Yesterday how I wished
that I had continued with my karate as I would no doubt be more
healthy than I am now instead of being riddled with aches and pains
and more importantly I could have done something to stop or at least
impede them. Or would I, it is easy to say this in retrospect. My son
said that really I had taken a risk shouting at them but I could not
just stand there and do nothing, the fear of guilt for not at least
trying something being perhaps the overriding factor. I cannot
bear violence, its bad enough on TV and I have stopped watching some
of the more gratuitous over the top violent TV programmes. The
reality of such violence however as it takes place in front of your
own eyes is even more shocking . I cannot understand why people
behave that way. Nonetheless I would have been more than happy to
take a little justifiable violence against those morons if I had
been able. I know violence begets violence and for the most part I
like to think of myself as a pacifist. I do not believe in violence
of any kind, be it against man or animal but yesterday my anger
towards these hooligans was hugely motivating, enough that I would
have liked to have had the ability to give them what they deserve.
Such wanton acts of aggression not only causes damage in the
physical sense of a swollen face, cuts and bruises which eventually
will heal, but the mental trauma could destroy permanently the
lives of this young and his girl friend, it is the kind of incident
that leads to conditions such as post traumatic stress disorder. Also
for those who witnessed this shocking event much mental aguish may
result.
I am
still getting over the shock of this occurrence and it is prying on my
mind now quite a bit. The night of the incident I could not sleep too
well, mental images playing like a video in my mind and my anger boiling
like a volcano ready to irrupt. I would in fact not visit this town
again except for the fact that our doctor's surgery is there, in fact
the whole thing took place only a few yards away. I had sent in my
husband to make an appointment because I could not cope due to social
anxiety with trying to explain to the receptionist why I needed an
earlier appointment than the one allocated. How I wish I had gone inside
the doctors, if I had done so I would have missed it all.
My son and
his friend where attacked some years ago in a car park after visiting
the cinema when we lived in the south east . It was not such a serious
attack as the one I witnessed but nonetheless it was awful and it took
some time for me to stop worrying about it. So now again I will be
anxious every time he goes out. Why do people behave so badly towards
one another?
I am finding it difficult
to continue with this account or my feelings regarding this as it is
making me increasingly anxious to do so. So I will leave it there for
now no
doubt I will mention this again as it was a shocking incident and one
which I will never forget.
July 14th
All beings tremble before danger, all fear death. When a
man considers this, he does not kill or cause to kill.
All beings fear before danger, life is dear to all. When a man
considers this, he does not kill or cause to kill.
Buddha Dhammapada, 129-130
Today I really feel as though I just can’t write or be
bothered to do anything. Yes I am sitting here now and typing
this hoping for inspiration. Sometimes though you can get so low
that nothing inspires you, your motivation is sapped, non
existent and you’ re quite simply sick to death of everything
and everyone. Just lately I feel that despite all my writing
here that I still cannot accurately express what it is really
like to have OCD. Often this simply arises from my communication
problems which although better expressed by writing remain
grossly inadequate. OCD itself causes further impediments, fears
of causing harm greatly interfere with really telling it like it
is should this or that person be upset.This is of course worse
as more people write to me and therefore I know for a surety
that this or that will likely cause offence and upset. Not
of course I wish this to deter anyone from writing too me it is
merely a statement of fact like any other so please continue to
write with comments and so on. So this
is a serious hindrance to this fixation of mine where I
have to endeavour to try and tell my story in the raw and
unadulterated reality. For indeed my life is more wretched than I
can ever possibly convey.
For instance I am an extremely angry person more so that you might imagine and the
day of the attack of the young man and his girl friend my anger
exploded life mount Vesuvius and I wanted to take real action
and had I the necessary physical strength there would be four
young men in hospital
now - at least I would like to think so... But who knows . But
my anger consumed me I shock with a rage that was indeed most
terrible. Today at the very thought my anger consumes me and I
despise utterly these evil no good thugs who take up space that
other more noble creatures could occupy .
It is extremely difficult to describe the person that is me, the
being that looks through these eyes, my thoughts, my beliefs and whatever it is
that presents a facade that passes for me, as of course all ones personality is
effected by OCD. I get angry that few really understand the difficulties that I
am having despite my working myself to exhaustion in order to convey such an
understanding. However I have to realise that there is no such thing as a theory
of mind
(Theory of mind - Wikipedia, the free encyclopedia
)
,
at least in my opinion, and that no one is emphatic and no one really
understands the sufferings of another, even of a fellow sufferer. For whoever we
are or from what malady we suffer each and every person is unique, no two
illnesses even physical ones manifest in entirely the same way. Neither does an
individual's reactions to any illness present in the same way, such is effected
by our world view, our up-bringing , our cultural heritage, even our material
circumstance: I am sure that an aesthetically pleasing comfortable environment
with no money worries, quite and peaceful would to a degree mitigate my
depression in some situations other than of course the most dire. But there
again this depends on other circumstances, Howard Hughes's wealth I would
imagine made his OCD worse as he had less incentive perhaps to cope with his
severe manifestation of contamination OCD. Much easier to give into ones fears
when the means to do so are at ones disposal. For instance Hughes once burnt all
his clothing, I assume due to contamination fears. Such an extreme behaviour
would of course not be possible for most of us, but there again who knows during
a severe contamination scare no ones knows what one would do, but generally the
rest of us less financially able simply wash our cloths albeit with OCD
behaviours such as repeated washing, soaking in disinfectant even bleach which
was once the case for me during a particularly difficult time. All these
variables, of which there are an infinite number, mean that no two of us are
ever entirely the same and therefore our individual conditions will be effected
accordingly.
The sad thing is we really can’t understand the sufferings of
another, and in some ways this is a good thing, although we can
feel so very very alone at times. But can you imagine for one
moment what it would be like to feel the pain, the suffering and
torment of others, to really have true empathy. I think that I
only have a sense of empathy for people who are unhappy and this
is more to do with transference of my own misery, applying mind
states to other people which may not in reality exist. I believe
none of us have true empathy and we fail to see others as real
people with the same feelings wants, needs, fears , aspirations
as ourselves. For indeed if such true empathy existed and could
be experienced by every person there would be no evil in the
world, no unnecessary suffering as the result of our lack of
understanding that other people have feelings, that they too
exist, that they can be hurt, that they too can feel pain,
loneliness, joy, pleasure and indeed all the nuances of feelings
that we as human beings can experience. And indeed animals. Many
try to condone the evil of rearing and slaughtering animals for
food by telling themselves that animals have no feelings that
they have no soul or thinking mind. But those of you who own a
dog or a cat no full well that this is not true. Animals
experience a whole range of emotions and it cannot ever be
argued that they do not feel pain and fear. To my way of thinking earth
is more like some hell realm depicted in the religious mythology
of just about every creed. How can it be otherwise. Think about
it, isn't nature just awful the way one being preys on another
for its survival. However as human beings we should have
long ago transcended this facet of existence and should have by
now eliminated the slaughter of other beings for food, there is
now no longer any reason to eat meat. From my perception
the rearing and slaughtering of millions of sentient beings is a
horror straight from hell which preys on my mind, that weights
down my heart and which I find increasingly more difficult to
bear. At about this time of the year all those sweet adorable
little lambs that people stop to admire and to take pictures of
to hang on their walls will be rounded up taken from their
mothers and killed. To me this is a horror that is unbearable. I
recall after my sister died returning home to the shock of
seeing the countryside suddenly deserted empty of these adorable
innocent creatures who harm no one and it bought to my mind a
great sadness.
It can be a very lonely experience sometimes, no not just having
OCD but being alive . I think that those of us of a sensitive disposition notice
this loneliness more than perhaps others do who successfully ignore or fail to recognise such
feelings .
For most of the time despite my endeavour I fail to really tell
you what it is like to have OCD and indeed all the other
disorders and conditions from which I suffer, what it is like to
be me, what ever that me is.
I hope to try to improve this and write how I feel without
missing this or that out, hence the mention of my beliefs concerning the
slaughter of animals for food and how it effects me. At times I have hesitated
to do so for fear of causing upset or distress but unless I open up and share
all the aspects of my existence I can never fully explain the true and complete
nature of my OCD. In addition it would be nice if what I said did something to
make people realise that all creatures wish to live and that all beings do
indeed fear death and perhaps it is time we stopped this heinous atrocity which
so many take for granted without thinking, which was the case for me also until
about fifteen years ago before I became vegetarian.
"Eating meat causes environmental destruction, damages human health,
contributes to global hunger and inflicts immense suffering on billions of
animals across the world. Viva! believes that the solution to all these problems
is in our own hands: the best way to stop the destruction and the cruelty is to
stop eating animals now."Please Visit Viva's website
Viva! - Vegetarians
International Voice for AnimalsUntil the end of his long Life C.G.Jung often refused
to write an autobiography stating that he considered that that no one
was
really capable of writing the truth about themselves. Perhaps
this is true but I hope to try with more effort to overcome some
of the obstacles to improving this and I now apologise if I
inadvertently upset anyone in the process. This is a blog and a
journal and it should contain my opinions on matters of
religion, politics, and indeed anything and everything that
comprises my personality, whether or not such is effected by OCD
is I am afraid undeterminable for even I do not know which
thoughts, beliefs and ideals arise from OCD or the person who I
was meant to be or perhaps I should say the person I would have
been had I not had the misfortune to have a neurological
disorder called OCD which is further effected and compounded by
Aspergers syndrome/social anxiety, hypochondria, fibromyalgia, migraine .. and
well you know the list ... if you have been reading my blog that
is.
July 15th
There are people who are always anticipating trouble, and in this way they
manage to enjoy many sorrows that never really happen to them.
Henry
Wheeler Shaw
We live within in reasonable travelling distance
of Lindisfarne,
The Holy Island of
Lindisfarne. also called holy island because of its history as the
centre of Christianity here in the north east. The island was once solely
inhabited by monks and the ruins of the priory remain to day in the care of
English heritage. There is also of interest a 17th century castle , a nature
reserve and stretches of shingle and sandy beaches. The tiny village has
interesting shops with all sorts of paraphernalia associated with Lindisfarne. The island is indeed a popular tourist attraction. The only problem
is... it is an island. It is accessible by a causeway, however the causeway is
only available at certain irregular times during the day in accordance with the
movements of the tide which when it is in completely covers the mile long
causeway, so visitors need to be mindful of the time tables as it is dangerous
to be caught on the causeway as the tide comes in quite quickly. You can of
course stay while the tide is in but for me this causes anxiety. We like to
visit this island a couple of times each year despite the crowds but there is
apprehension, a type of anxiety that is similar to OCD but really cannot be
described as OCD, this kind of anxiety is more the result of what is called
general anxiety with which I believe that most people with an anxiety disorder
suffer in addition to their primary conditions. This kind of general anxiety
also often includes a type of apprehensive unease resulting from kind of
negative way of thinking called catastrophizing, and you
may be surprised that many people do this even though for the most part they may
not do so to the extent that this anxiety would be classed as an anxiety
disorder.
What is Catastrophizing ? This is what occurs when you imagine the worse
possible outcome in any circumstance or situation, particularly concerning
circumstances where in reality any danger or negative outcome is unlikely. It is
a very common way in which we disturb or stress ourselves as we assume the worse
possible consequence in any situation. As already mentioned it is not the
prerogative of anxiety disorder suffers but from time to time most people find
themselves embroiled in catastrophizing. In fact it is quite easy to get caught
up in this kind of thinking without realising that such is inappropriate, its
presentation is perhaps less easily recognised as irrational than for instance
OCD or agoraphobia to name just two common anxiety disorders where the reasoning
behind ones fears is more obviously irrational.
Catastrophizing is stressful and exhausting the imagined scenario producing
in many cases extremes of anxiety occasionally boarding on panic in some
circumstances. For instance I rarely use a lift because of the torment of such
catastrophizing scenarios. If of necessity this is required however my heart
will be pounding, fear will turn my legs to jelly, tighten that lump in my
throat as thoughts and indeed imagines arise in my mind of the left getting
stuck; in which case what if I get migraine, an acute attack of IBS. More
thoughts will include crashing down to the basement. The lift only has to pause
for but a moment and I am panic stricken. When we lived near London the
underground eventually became a place of much catastrophizing, when the train
paused in a tunnel I noticeably panicked, my thoughts and my minds eye generating a
disastrous scene of a collision, being trapped, fire, pain and death. After the
panic became less I noticed no on else was the least perturbed sitting reading
newspapers, chatting, even sleeping.
Concerning staying in Lindisfarne whilst the tide is in, presents scenarios
of disaster to some degree or another. Apart from the general feeling that one
is trapped on this tiny island there is the anxiety concerning what would happen
if I was taken ill. Even if it where not of a serious nature and would not
warrant a visit to hospital it would be stressful nonetheless not being able to
return home immediately, the very thought of which provokes fear. But what it I
or my son or husband needed hospital treatment urgently? Yes a helicopter would
be called in but when you have a fear of flying this is of little consolation.
So I endeavour to leave the Island before the tide comes in. Of course a
similar scenario could occur elsewhere in some of the more remote regions of the
UK. But in the main this thought does not occur elsewhere.
It is of course essential to check the time tables as it is very dangerous to
make the crossing when the tide is coming in .
However having undertaken the necessary checks that should be an end of the
matter. For me however I am very careful, ever
cautious I allow more than enough time to cross the cause way both to and from
the Island, leaving at least an hour before it would be necessary to do so
prompted by anxiety should there be a crush of people all trying to get out the
car park at one time with the result of getting struck on the causeway with the
tide coming in. Even when all such precautions have been undertaken still there
is the,
what will happen if the car breaks down on the course way scenario and we cant
get it moving and the tide is coming in.
I think that people with a neurotic temperament tend to focus the subject of
their catastrophizing on scenarios more removed from reality, less likely to
occur. However I tend to catastrophize about even the smallest of issues with
even the miniscule likelihood of a negative outcome.
However as already mentioned anyone can become prone to catastrophizing. Here
is a possible scenario of perhaps a more likely realistic cause of worry
which although remains exaggerated is perhaps more difficult for the person so
effect to recognise as an inflated and irrational response. For instance you are
an employee of a company which has been taken over and you have a new boss. You
have been an employee of long standing, a good efficient, reliable worker, an
asset. Yet you worry that you may loose your job, even though there is no
reason to assume this will happen the worry eats away at you and than you begin
to imagine so many possible consequences rather like a Chain reaction of
thoughts which ultimately leads to a catastrophic scenario with a negative
conclusion. You begin to worry that if you loose your job, you may not get
another, you than worry about how are you going to pay your mortgage or your
rent. You think for ways around this, what will I do in this or that situation,
you obsess about this but cannot find a positive solution and the more and more
your thoughts become increasingly negative. You image you will loose you home,
you will be on the street in debt, in in prison for not paying your council tax
and so on and on and you can finish up depressed and in effect unable to work.
Yes indeed just maybe this scenario is a possibility but many people tend to
fret away their lives with such speculation . My brother-in-law found himself on
the depressive ward in a psychiatric hospital because he worried himself sick
about money although he had a reasonable amount in the bank and a steady job, a
job which he had been in for twenty years since leaving school.
It is difficult enough having OCD or whatever your primary anxiety disorder
is without this awful tendency to worry and to catastrophize. It haunts us in
our dreams or takes away our ability to sleep, it occupies our thoughts even
while we are doing other things. It is an insidious misery and one which often
we fail to identify as the cause of or an increase in depression.
Such scenarios add to the mix of misery which not only blights your life but
increases your overall anxiety which in turn effects your mood and your primary
condition, as additional anxiety no matter what its cause will effect and make
worse any anxiety disorder. This is one of the reasons that during times of
additional stress or anxiety our conditions become much worse at least this is
the case with OCD.
Sadly I have no solution. However simply recognising what is taking place in
your mid is an important step towards tackling this type of anxiety. Often when
we notice an increase in depression it is possible that such an increase is the
result of what we are thinking. Often for people with OCD and to come extent
other anxiety disorders we can be so preoccupied on recognising and coping with
OCD thoughts and how these effect our mood that we can overlook this less
obvious cause of anxiety and depression. Sometimes just talking over the
situation with another perosn helps to bring about some relief and also to
help us gain a more rational perspective. Writing down the scenario also helps
you to see more clearly where your thoughts lead, as one thought generates
another and another and so on in an increasingly stressful chain reaction of
catastrophic thinking. I think the greatest problem for many is finding
someone with whom we can share our thoughts. Someone who is willing to
take the time, someone who is basically rational and who will not ridicule you.
One of the difficulties I experience is finding someone who will not fob you off
with any old response in order to continue with their own agenda. Sounds cynical
I know but this has happened to me on many occasions but mostly by people who
are also preoccupied with their own catastrophizing which sadly is becoming an
increasingly more common problem.
A good solution at least as a means of a respite is of course keeping busy,
keeping your mind intensively occupied. Although perhaps this only serves to
delay worrying until later, however you may find that when the worries scenarios
return they are less powerful.
Blessed is the person who is too busy to worry in the daytime, and too
sleepy to worry at night.
Leo Aiken
If you can’t
sleep, then get up and do something instead of lying there and worrying. It’s
the worry that gets you, not the loss of sleep.
Dale Carnegie
The best cure for
worry, depression, melancholy, brooding, is to go deliberately forth and try to
lift with one's sympathy the gloom of somebody else.
Arnold Bennett
July15th
Indecision is debilitating; it feeds upon itself; it is, one might almost say,
habit-forming. Not only that, but it is contagious; it transmits itself to
others.
H. A. Hopf
Another grey day, a thick fog hangs over the nearby fields if it
were not for the humid temperature you would think it was November. The weather
is having a profound effect on all of us, my son in particular is effected
by the dull dreary weather which has been with us since the end of April with
only a few short respites. The forecast for this week is for unsettled weather
which means more of the same. For people who suffer with depression this weather
is a considerable detriment, it not only increases their depression but saps
motivation. This is also the case for most people to some degree but for people
with chronic depression it is a considerable blight particularly after
looking forward to a good summer having been made confident by the incredibly
warm and sunny April.
My husband appears less effected by the weather seemingly to take everything
in his stride and he is willing to go along with plans for a day out even if it
is pelting down with rain. However this may result form his inability to
cope with changing plans at the last minute rather than bloody minded
determination to make the best of a bad situation. And indeed the effects of the
weather has increased this problem with changing plans, which is a significant one
also for both my son and I. Indecisiveness and anxiety over the least little
change has us increasingly more and more stressed, unable to know what to do.
The inability to make a decision is quite a problem for people who suffer with anxiety and depression,
indeed indecisiveness is a symptom of both depression and anxiety. Indecisiveness
however increases anxiety which in turn increases indecisiveness it is cyclical and
eventually one can find ones self in the position that one
tries to avoid making even the simplest of decisions. In fact at times I can
become anxious whenever the most inconsequential of decisions is required.
Indecision can become a huge problem and I increasingly begin to defer even the
simplest of decisions or not changing from a prescribed course of action when
something more suitable presents itself. Even something as common place as
changing from one product to another becomes a source of anxiety. After a time one feels that every
decision is the wrong one and no matter what you decide as time passes you feel
that you should have done otherwise. This sometimes occurs with even the
smallest of decisions.
To someone reading this who does not suffer the torment of any mental
affliction this problem may appear inconsequential, however if accompanied by a
pervasive disorder of the mind such as OCD the addtion of such indecisiveness
yet again compounds the anxiety of OCD as indecisiveness again generates more
anxiety and increases of stress or anxiety accentuate OCD. Indecisiveness can
really be a major problem in its own right. I know of someone who became
virtually incapacitated by indecisiveness unable to make even the most basic of
decisions to the extent that he could not marry the girl he loved and eventually
he became dependant on others.
I am not at that stage and hopeful never will be, however indecisiveness can
be quite a detriment nonetheless, in less extreme cases it is indeed inhibiting
and at times incapacitating. For the OCD sufferer indecisiveness can be made
worse of course by OCD, and OCD thinking adds to the mix of the opposing
thoughts that whirl around and around in ones mind whilst in the process of
decision making. In fact it was decision making that may well have precipitated
the compulsive swearing of vows which presented, and continues to present to a
great degree as part of my religious OCD. When a decision was required even the
most inconsequential the compulsion beset me to swear an oath on someone's life
that I would do this or that or conversely not do something. Often at times I
ended up not being about do or behave in the way I would have wished because of
the fear that the person named might die. This was a real torment and you can
read about this facet of my OCD in detail in my
memoir. I really do not feel
inclined to discuss this further here, not just because it is unnecessary to do
so as I have explained this bizarre OCD behaviour in great detail elsewhere, but
rather it is because this is so painful for me to tell you now and may
precipitate an increase in this compulsion.
One of the most trying and inhibiting areas where indecisiveness presents is
in my art work. There are two anxieties which at times prevent me from picking
up my paintbrush or pencil, one is fear of making mistakes resulting in imperfection, the
other is indecision. (There is also depression which I guess results from
perfectionism and feeling I have no talent which in truth is the case according
to my perspective but that is another matter for another time perhaps.) Often I
simply cannot decide what to draw, fortunately, touch
wood - another OCD obsession to have to say or in this case write touch wood when tempting fate by
making a positive statement and to also touch something made of wood as I
am just about to do right now, and it has to be raw wood unpainted - OCD
does not come into the decision making problem concerning my art work.
Nonetheless this inability to decide upon a subject to draw, and it is
mostly drawing rather than painting where decision making is the most
problematic, is really a misery. Here I am struggling constantly to find
distraction from my OCD only to find myself enmeshed in the torment of
indecision which has to be overcome somehow otherwise it, much like OCD, could
incapacitate me until such distractions become impossible to pursue. Life is
such a struggle every minute of every day and at times I wonder if there is
anything about my life that is normal.
I used to be indecisive, now I'm not sure."
unknownJuly 19th
I start to think
there really is no cure for depression, that happiness is an ongoing battle, and
I wonder if it isn't one I'll have to fight for as long as I live. I wonder if
it's worth it.
Elizabeth Wurtzel
In the library this afternoon I noticed a book something about ten ideas to
combat depression. Although I feel rather sated with such ideas, feeling there
is not much that will ever have any profound effect on my depression I picked up
this book and indeed there was nothing particularly new, although I only briefly
glanced over it, and all the exercises and programmes designed to help lift your
mood where pretty much ideas I have heard before. There was a section about
finding things within your life that you enjoy. There was also a practical
assignment of writing them down and making a schedule during the day which
allows you to pursue these pleasurable activities that have either given
pleasure now or have done so in the past when perhaps you where either less
depressed or not depressed at all. The latter state of being I cannot relate to
and which I have not had any experience off during the last thirty or more
years.
There was further advice about what to do if you where too depressed to complete
such a schedule. There was nothing however about what to do if you are too
depressed even to bother to check the book out of the library or purchase a copy
if you were in a book store. Such books may be of help to those who suffer with
milder depression but for others whose depression is deeper there is little of
any real help as you may simply be to depressed to even take the book from the
shelf, buy or borrow it, or even be in the library or bookstore let alone read
and complete the exercise, albeit in smaller segments as suggested.
Today I was deeply depressed, both my husband and I were wandering about the
city aimlessly, undecided where to go or what to do. The weather here has been
just awful and the only day this week it has been fine we had a visitor who
discussed some rather depressing issues. After which we came into town to wander
about doing a bit of shopping which was not essential or urgent and which
increased my anxiety. I am looking for clothes that will not drive me crazy due
to sensitivity issues to rough clothing - and I am not talking about in
comparison to normal standards - and clothing that feels comfortable, no tight or
annoying features such as for example skirts which are now fashionable with
clinging linings that wrap round your legs and are an irritation.
Here in the UK it is the tail
end of the July sales and there are some quite cheap garments but there is
anxiety about spending even the smallest amounts of money, particularly if I buy
something that I cannot wear - I can’t try anything on because of the fear of
OCD contamination, I feel contaminated and consider that I would contaminate
the garment and I would therefore have to buy it so as not to contaminate
for someone else, so there is no point trying it on. I tend because of this problem
to buy cloths that are too big and consequently I am going about with a huge
safety pin in a skirt to stop it falling down, once with disastrous and
embarrassing consequences. So there is indecision here, much anxiety knowing
which size... well there are so many things that have to be considered that my
mind is in a whirl of confusion and we are in and out of shops feeling as though
I simply want to go home and just manage with the cloths I feel comfortable in
even though they are splashed with paint or just old and worn.
I am getting hotter as the temperature has increased, I can’t take off my coat
because I feel awkward as I am wearing one of these comfy garments as I had felt
too depressed to bother to change into something better but less comfortable. My
husband who really does not understand all the complexity attached to this
insists I buy the normal size and just to get some peace I do so in order to
stop his nagging, which he sees as encouragement, and to stem the maelstrom of
thoughts with all their negative scenarios, telling myself that I can try it on
straight after a shower and putting on clean underclothes and if it does not fit
returning it too the shop knowing that in reality the situation is such that
even after all this cleansing I will be unable to return a garment I have tried
on. I have many such cloths in my wardrobe, my husband forgets about them the
way men do. I do feel guilty about the fear of causing harm which overrides the
guilt of buying something I am unable to wear.
Feeling increasingly more depressed with indecision making it almost impossible
to do much of anything we wander into the library to see if there are any books
of interest, which in most cases there are not. For a city the library here is
somewhat disappointing. I have read most of the books which are of interest to
me. But I always check out the psychology books, books on religion, philosophy,
esoterica, self help, art, travel and autobiographies. In the self help section
there is the aforementioned book and yes I am by now simply too depressed to
bother to borrow it to see if there is indeed any new ideas to alleviate
depression.
This is one of the problems with depression, even mild or moderate depression if
it is chronic will sap your motivation. It is like struggling against an
immovable object of great resistance, it is the mental equivalent of trying to
push against a brick wall and expect to be able to move it. At least it feels
that way although that analogy is perhaps rather extreme. It is a constant
battle against ones self, a divided self. The mind or whatever it is that makes
you you and which recognises this depression as something with which it needs to
contend tries to resist, but as this depression increases it becomes more of a
struggle to push through this formidable barrier. You are constantly fighting
against yourself, the depression aspect of yourself is not easily defeated and
even if you do go against its inclination to literally immobilise you both
physically and mentally there is no sense of satisfaction as a result of your
efforts, as despite your pains you are still depressed, your heart is heavy there
is that weight over your chest which is felt like an illnesses. Well most people
experience this kind of feeling from time to time, most people know depression,
misery, unhappiness even though it may not be chronic. Try to imagine that for
me and others like me this feeling is there all the time to varying
degrees, it never ever goes away. Sometimes it is less so and you can somewhat
experience that feeling of ease from its clutches but nevertheless there is
always a degree of depression remaining. Such respite in fact may highlight for
you how deeply you are depressed and how life could be if only you could
remain in this respite. And in fact in some way overall this may
increase your depression as you know that for you you have to work at
alleviating your depression and there are times no matter what you do you know
that just can’t seem to bring about any lasting relief.
I guess that is how I feel right now. Each day is a struggle and oftentimes the
effort of just trying not to sink too deeply into depression or to succumb to
increasingly more and more things in my environment that seem to worsen my
depression seems impossible. Naturally OCD and GAD are breeding grounds for
depression, but there are other thoughts which are less obvious which oftentimes
times go overlooked and which bring about a lowering of mood. These thoughts and
perceptions seem to increase until you become so sensitive to any kind of real
or imagined negativity, when the tiniest of problems seem huge and
insurmountable. Moreover often the effects of trying to relieve your depression
in fact increases your depression. So really one needs to look at depression,
which although is a chemical imbalance to some degree, can also be caused or made
worse by what we think and how we perceive any event in our lives from the
insignificant to significant. But there again sometimes you can be so low in
mood that you simply cannot be bothered to try, and sometimes the effort of so
doing, and constantly looking for happiness can in itself be a frustrating
exercise which brings about an increase in your depression and even make you
feel guilty that you feel the way that you do.
July 19th
And by the way,
everything in life is writable about if you have the outgoing guts to do it, and
the imagination to improvise. The worst enemy to creativity is self-doubt.
Sylvia Plath
Well I do not feel much like
writing today, in fact I am becoming increasingly depressed by my inability to
express myself. I considered the above entry to be rather muddled, confused and
I have read it over and over and cannot improve it and it is now only published
in order that I can move on and hopeful forget about it. It is as though even the medium of writing is becoming a
difficult way of communication. I have previously gone into much detail concerning the
difficulties which I have with my writing; the OCD obsessions about saying
something which may cause harm and so on. This anxiety has been accentuated
recently as some people have misinterpreted some of the things I have written.
In reality this may not even be my fault and may be a consequence of today's
impatience which makes people rush through everything with the result that they
either do not comprehend what I have said - or anyone else for that matter - or
they simply misinterpret it. I do tend to over react, become anxious and
depressed even though such misinterpretations are inconsequential and are either
easily rectified or ignored.
I am also finding that indeed I am having difficulties understanding things I
once understood or remembering what I have read with the consequence I begin to
consider it not worth bothering to read at all, and I find myself thinking what
is the point of reading this or that. Yes I do like to read complex books, I am
not keen on fiction unless there is something to be learned from it . So it is
depressing to find myself taking forever to read a relatively short book, to
find myself abandoning it half way through because I either can’t comprehend or
recall what I have read. And of course all this is in addition to my superstitious
OCD concerning an unlucky number which interferes with reading.
It is my understanding that many sufferers of anxiety disorders find it
difficult to concentrate on reading and this has been the case for me for a
while now. Moreover if I look back over my life there have been many times when
I have found myself struggling to read a book, particularly where there are
unfamiliar words, such as foreign names or imaginary names such as those used in
science fiction which I like to read, if I do read fiction. I have struggled to
continue reading despite these difficulties but now I feel that this is such a
huge struggle with little return other than feeling that I am loosing myself in
my disorders if I do not persist with reading. As a child comprehension was
difficult it was not easy to remember or relate to what I had read. In adulthood
reading improved and I can as I have explained before understand some complex
issues as I read however I cannot relate them either by speaking or writing
about them and moreover just lately I have difficulty
remembering what I have learnt. There was a time that I considered that I could
understand nothing very complex until I realised that it was simply due to a
lack of confidence, a kind of OCD doubting. This was particularly the case when
at thirty two years of age I finally sat for two GCE courses and to my amazment
passed both at A level despite thinking that I had understood nothing and would fail
miserably. The doubting disease of OCD is indeed pervasive and more subtle than
one might think.
Nonetheless learning is difficult it has and always will be a slow process for
me and now as I grow older it is once again becoming more difficult to
concentrate and comprehended. Yes I have learnt use a computer, it took eight
months and lots of help from technical support and I have learnt to create a
website but it was an enormous struggle, it did not come easily. With reading now
I find myself having to read the same page twice, or after turning the page
finding that I have completely forgotten what I have been reading. I am
continuing to read C.G. Jung’s autobiography which at first seemed okay but now
it is becoming complicated and nothing makes sense. Mind you his ideas are quite
complex, bizarre in fact. Nonetheless I am becoming increasingly depressed by
the fact that it is becoming more difficult to read anything. On the internet if
faced with a lengthy piece of writing I have to make myself concentrate, the
temptation is to give up and not bother. But somehow I have to struggle with
this. Reading is important to me, when the headaches where at their most severe
some seventeen years ago when they first began to present everyday, besides the
pain the headaches where a misery because I missed reading as the headaches
where simply too severe to do so.
I know that I write so much here and now with the increase in such difficulties
of concentration and comprehension I do wonder if anyone else with an anxiety
disorder is having these difficulties, and if in fact anyone is really in a
position to read what I write.
I guess I am really feeling miserable today and well most days. There seems to
be more of my life effected by depression and OCD and it is a real battle
sitting here today trying to explain to you this problem.
July 20th
A question on an AS forum I was visiting went something like this:
Did you chew or twirl your hair as a chid?
As a child! What about as an adult? I twirl my hair, is that not normal than?
Anyone else twirl their hair? Is this an Aspie thing.
Yes I continue to obsess about whether or not I have AS and tonight I am
scouring the AS forums which are in fact the best places to find out what it is
like to have AS. Since publishing the articles on my website and sending my
doctor the shorter version of the two I have obsessed less about this but still
there is the need to know one way or another. Although this need is now less
urgent as I have now done all I can do to get a diagnosis unless I can summon
the nerve to trawl round the internet and ask the experts in this field to read
my articles and give me their opinion. I am not sure I have the confidence, at
least not right now. After all these days it seems everyone is just too busy
and even the short article is long.
Incidentally despite the
previous entry concerning my anxieties about memory, comprehension, and reading
I continue to read with more ease books on autism in general and of course AS
and it has in itself become a perseveration, an obsessive interest in its own
right and not just because my son has AS or my endeavours to ascertain
if I too have this condition. I guess with reading I have to have this excessive
interest and without it my mind finds it even more difficult focus.
Whilst visiting AS forums I came
across the link below to an on-line test which measures your memory, your
visual and face recognition; difficulty with recognising faces is called Prosopagnosia.
Some people, and this includes myself, have difficulties remembering faces. Many
people with AS have this difficulty although it is not in the diagnostic
criterion.
To take the test click
Visual and Face Recognition Tests on the Internet.
Allow yourself time, you need a
good fifteen minutes, more if possible. I was distracted so try to find a quite
time when you will not be disturbed. my results indicated difficulty with
face recognition I had a percentile of 1.
July 26th
There are days when
solitude is a heady wine that intoxicates you with freedom, others when it is a
bitter tonic, and still others when it is a poison that makes you beat your head
against the wall.
Colette
My son who has Aspergers syndrome
AS is becoming increasingly more depressed. I simply do not know what to do, it
is a difficult situation. Today he had a routine consultation with the doctor
who has increased his medication. Medication seems to take the edge of his
depression, at least for a while, nonetheless periodically he has episodes of a
more profound type of depression, which saps completely the little motivation
which he has. Our situation is difficult because we are all three of us
suffering from a mental health problem of one type or another, depression being
common to the three of us. My husband is depressed but seems not to recognise or
accept this and I believe that this can happen because either the person has not
experienced these feelings before, (however this is difficult to imagine as most
people have unhappiness from time to time which although it is not depression as
such nevertheless provides a modicum of insight into what it is like to be
depressed) or he has been chronically depressed for so many years that such
feelings are experienced as normal. My husband's depression in retrospect has
always been present perhaps but mild
and I have probably been so embroiled in my own suffering that I did not notice.
His depression however is worse since he was made redundant and we came to live
here in the northeast where our lives have been difficult for so many reasons,
some of which have been explained in my blog and elsewhere on my website. Both
my son and I consider that also my husband may have some form of mild autism. He
is very withdrawn, to some degree he always has been lost in his own world and this is
increasingly more so now. I know that many people may think I have an obsession
with autism and it is inconceivable that each member of a family can have some
aspect of this condition and this is really just some OCD obsession of mine, and
that in reality this is unlikely to be any more relevant than the rest of my more obvious
manifestations of OCD. Moreover many people have the erroneous concept
that people with a diagnosis of autism make up only the two the two extremes of
this condition, the child sitting in a corner rocking lost in his
own world or the autistic savant portrayed by Dustin Hoffman in the film Rain Man. There
are however variations, gradations, autism is a spectrum, a continuum and
includes ADD, ADHD, AS in addtion to Kanner's Autism which in itself consists of
varying degrees of functionality. There are degrees
of severity as there are in any condtion. Furthermore it is my opinion that
there is a connection between autism and OCD as both condtions seem to appear in
the same families.
Although strictly speaking AS is a
learning disorder, people with this condition however experience depression and
anxiety disorders, most commonly obsessive compulsive behaviours which if severe
may warrant a separate diagnosis of OCD. My son has OCD traits and has a
diagnosis of anxiety and depression. It is the depression and anxiety that makes
life difficult for him. Such is due to and accentuated by social interaction
problems which make if difficult for him to make friends or have any kind of
close relationship with others. It is a catch twenty two situation for many
people with AS. Often the person with AS wants to have friends and wishes to
socialise but is unable to do so, and this is the nature of this lonely
condition, in social interaction and in other aspects of his existence he is a
square peg trying to fit into a round hole. Since moving here to the
Northeast my son has neither sought nor made friends and has now rather accepted
the situation, which is not a good thing. His anxiety has increased and he now
finds as I do that even the least degree of inconvenience or obstacle in life is
seen as huge and insurmountable, making a
mountain out of a mole hill rather fits the description of this type of thinking
which results from prolonged anxiety. The medication he says helps him to be
less stressed but still his anxiety and stress are nonetheless significant.
For most of the time there
is little association between ourselves and other people, other than each other
we have little contact with anyone. My son's and my social activities are limited to
a
befriender , a volunteer from a charity who visits with a person who is
isolated by circumstances of illnesses. For instance my son's befriender was
arranged for him through the autistic society, mine through a local charity for
the mentally ill.
A lot of extra tension arises with
the interaction which occurs between the three of us, and often our obsessions,
and yes my husband also displays some mild obsessive compulsive behaviours as a
result of depression, are incongruous and incompatible to the extent that we
often upset one another. Depression is in a way "infectious" not in a
literal sense of course but one person's mood effects another's, particualry when
living together. So life is very difficult for all of us and it is
inconceivable that patients with mental health problems and conditions such AS
are treated in isolation. In the USA according to my understanding family
therapy is a common practice yet here in the UK there is no equivalent. It
is very difficult to make progress in isolation and in some instances your
progress could have an adverse effect on another family member. For instance
some years ago a psychologist wanted to come to my home for desensitisation
therapy for my contamination OCD. This would probably involve me deliberately
contaminating my home with "unclean hands" in the OCD sense. However my son
having mild OCD traits and who was not receiving therapy would find that his
home had become contaminated, at least according to his perspective, and he
would not be able to cope and this may even have resulted in a worsening of his
symptoms. Imagine you have OCD and someone came into your home and deliberately
contaminated it and you now felt that all your possessions where contaminated,
how anxious and yes frightened you would be. You might be so
traumatised by this that your OCD becomes as a consequence more severe as you
are now unable to cope with this sudden increase in contamination which until
now you had carefully avoided. Everyone has to feel ready for desensitisation
therapy, it will not work if it is forced upon you and it may even have the
reverse effect. For all intents and purposes if I had accepted this offer of
desensitisation therapy it could have made my son's situation worse . So in some
cases you have to consider the effects on other family members if they also have
a similar condtion. So you see there may be times when therapy should involve
the whole family in a controlled organised way.
No I am not complaining about the
health service, I understand that resources are finite and that perhaps such is
at this time impossible. However there should be more effort made to improve
health care for the mentally ill and for others in society who struggle with
chronic illnesses, more should be done to treat a family as a whole rather than
treat anyone in isolation. Yes it is often said that we expect too much from
others, from society in general, but hey we are supposed be a progressive
society, we consider ourselves the highest evolved creature on the planet
although in my opinion this is debatable. Should not our progress include
societies' acceptance that many people need care, that many people cannot function
alone and that yes indeed many people are dependent on others, on society, on
social services and charities for their welfare and survival. But do not forget
that many people who cannot function independently nevertheless have the same
aspirations as anyone else and moreover with a little support many may be more able to
contribute to society in some way, but without such support they cannot do so. My
son has a talent for art, it comes naturally but his depression and anxiety is
destroying his creativity, but with a little structured help and support he could
perhaps use his talent to benefit himself and others, not necessarily in terms
of finance for most artists paint to enhance their own lives and the
lives of others. Such was Van Gough motivation for painting.
July 26th
We experience
moments absolutely free from worry. These brief respites are called panic.
Cullen Hightower
I really ache just awful today. I
have fibromyalgia, no formal diagnosis of course but that is most certainly what
these aches and pains are. I over did it the other day cleaning the
sitting room from top to bottom because of all the flies which we keep getting
seemingly out of nowhere. Over exertion is not good for fibromyalgia so
this morning I am suffering with a dramatic increase in aches and pains.
As a rule, what is
out of sight disturbs men's minds more seriously than what they see.
Julius Caesar
When we came back from a trip out
to Castle Howard in Yorkshire, where incidentally the popular 1980s TV series
Brides Head Revisited was filmed we came home to a sitting room full of flies,
it felt like a scene from the film the Amityville Horror ... well... rather an
exaggeration, there where half a dozen or so big blow flies which for a
contamination OCD sufferer indeed feels scary but in a different way. It had
been a pleasant day out despite my anxiety that I might get a migraine and or it
might be the day flying ants fly as they do about this time of year and of which
I am extremely phobic with the result of very audible screaming and panic which
unlike the more chronic type of anxiety cannot be hidden. The day had been
pleasant notwithstanding the usual anxiety about toilets and panic over twinges
of headaches, getting lost in the woods and checking for evidence that the ants
where not flying and worrying about being too far from the car should this
happen. Than to arrive home and find these flies. I wonder sometimes if there is
any peace in this world and life to me appears to be one problem after another
and not even one day can pass without something new with which to contend. My
son says it looks like they have hatched although flies don't hatch in the
literal sense of the meaning as they of cause morph from maggots which are
hatched from eggs the fly lays on rotten food. Nothing of this sort would exist
within my home of course, but they have most definitely come from somewhere
inside the house.
Freaked out as it is because of
contamination fears concerning the flies my anxiety and indeed my son's is
compounded as the toilet pipe that feeds the water to flush the bowel is leaking!
The seal has broken. A hasty dash to the local DIY before closing we buy seals
which don't work and break. What to do, more anxiety, these days after recent
experiences we are loathed to call out a plumber as we plain and simply trust no
one. Finally my husband remembers we are insured with the local water company
who have a twenty four hour call out service, but when we enquire it is not an
emergency and someone will call the next day. Therefore over night we have to
use buckets to flush the toilet, an anxiety provoking and exhausting task. Worry
worry so many catastrophizing scenarios: will the whole system need replacing,
will we need a new toilet, how will we afford it? The next day the plumber came,
fixed the problem in a short time and actually devised us not to get a new
modern system which is unreliable.
But today there is still the flies
which keep appearing. I cannot of course kill them and we have to try and get
them to go out the window or catch them in a glass. But where are they coming
from? I determined to clean the sitting room from top to bottom and to try to
locate where they keep coming from. It is stressful and exhausting and takes
most of the day. But still we find no trace of how these files keep getting in
and still today some three days on every now and again one or two appear, there
is one now here this morning trying to get out of the closed window. And still
as far as I know those flying ants have not yet flown so today although the sun
shines and there is promise of fine weather I will still be anxious and watchful and
nervous about going out. However as there is no definite day upon which these
creature fly, but it is usually the end of July early August, I cannot of course
stay indoors for such a length of time.
When you have so many obsessions,
compulsions, phobias and suffer with depression life is indeed difficult and
what other people take in their stride I and others like me can barely cope as after a while more and more aspects of your life seem increasingly more
difficult to deal with. For instance now my glasses are smeared, it really
irritates me, but really it is no big deal even though because of my aching
muscles it is difficult for me to get down stairs to the bathroom to clean them,
nonetheless there is an overreaction of great irritation and angst regarding this relatively minor inconvenience.
July 30th
Well today after more than the
usual amount of anxiety I finally publish the last few days entries. Sometimes
it can be just so frustrating to have OCD and the torment is awful and you are
at times tempted to just give up and let it have its own way. I try to persist
and carrying on and work round my OCD however the OCD manifestations which
interfere with my writing are becoming an increasing battle to contend with.
Sometimes I think that it is only from sheer exhaustion and apathy borne of the
anxiety and constant checking that finally induces me to publish my entries.
I cannot believe that OCD arises
from anxiety that anxiety and life circumstances brings about this condition.
Rather I consider that OCD is a neurological condtion with psychological
components , the individual manifestations of which are the result of up bring,
life circumstances , ones world view and indeed ones interests all shape the
type of OCD from which we suffer. Note all obsessions and compulsions focus upon
what means the the most to us or what we are involved in, our interests for
example, until I created this website the anxiety about writing and the
obsessions and compulsions which accompany it where not as severe as they are
now. What do you think is the cause of OCD?

*
Disclaimer :
No responsibility is accepted for the content of external links
including blogs:
Concerning blogs : Although I have initially looked through the
recommended blogs in my blog roll I have not read every single entry and have
selected each on its overall merit: interesting regular entries . However the
comments and opinions of the respective blog owners do not necessarily reflect
my own opinions.
*
Contact
I will endeavour to reply to all e-mail, however please bear in mind
that I have a number of quite debilitating illnesses and there may be
times when there will be considerable delay. Also I will not
publish anyone's comments, as appears to be the procedure
with blogs, without permission of the author : If you would like me to
publish your comments please indicate clearly at the end of your e-mail.
All comments are welcome including polite constructive
criticism and difference of opinion. However I reserve the right not to
publish anything that I consider would be offensive or in any way of
detriment to anyone particularly those who sufferer with the illnesses
included on this web site.
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