Ocd Plus formlly oc -illnesses-and_creativity.net

 

Ocd and More

The on-line journal/blog of a sufferer of obsessive-compulsive disorder OCD.

If writing did not exist, what terrible depressions we should suffer from.
Sei Shnagon c. 966 – 1013

January 2008

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Blog Roll

Blog Roll disclaimer*

Links to recommended blogs:

OCD

Wiping The Crazy Off My Face

Incertus - The Weblog of Doubt and Other Disorders

There is a diary included as part of the following website:

My Obsessively Clean Den

Where Justin can be Justin

Agoraphobia:

Agoraphobic
English Guy
Downunder

Bipolar and OCD:

Gail's journal

New!

Disjointed Thoughts

Autism:

Donna Williams’ Blog

Ballastexistenz

A Blog from Another World

Attention Deficit disorder ADD:

Living with ADD

A personal selection of Interesting Blogs not related to mental health or conditions of any kind:

The Action Blog:
Save an endangered species, protect human rights, save a forest.

Gristmill: The environmental news blog |

This blog is part of Grist Magazine's website, a magazine dedicated to environmental issues.

Positive Attitude Quotes, Free Happy Positive Loving Messages, Popular Motivativational sayings.

A good selection of interesting quotations

 

 

 

 

 

January 3rd

Three days into the New Year, it is 06.30, it is of course still dark and it is blowing a blizzard outside, our first snow this year. Love the snow although I worry about animals such as sheep and cattle out in the snow, particularly in such places as the hills of the Yorkshire dales and the Pennines .

I am glad in some ways all the festivities are over I have mixed feelings about Christmas as it can be a difficult time for me and many others, and often we are expected to carry on and get into the swing of things regardless of our unhappiness or our perspective of what is now essentially a very commercialised festival which for some has no relevance. I grow tired each year of the pressure to comply with what has little meaning to the majority and is nothing more than pressure to buy presents most people do not want and spend money one does not have, to eat and to drink far too much. I mean what is the point of all the drinking people do, or rather drunkenness, there is a difference of course. What relevance is this to Christmas? The same with all the eating and to my perspective the horror of the massacre of millions of living beings, turkeys slaughtered each year to cater for this festival. Incidentally I cannot understand drinking to celebrate anything. I can understand people drinking because they are unhappy although of course I do not condone it as it serves only to make matters worse even though in ones desperation it may appear a quick solution to ease unhappiness. However to drink excessively because some favourable circumstance has occurred is beyond my comprehension. Some years ago someone we know celebrated the birth of a baby and got drunk and was not able to function well the following day and made a mess of a Job he was supposed to do. Why? Surely the birth of this baby after years of he and his wife trying to conceive was in its own right a joyful occasion from his perspective without the need to get drunk.

The new Year is yet another pointless celebration and although I have sent my well wishes it is simply a date on the calendar and no different than a new week, month or day ,and don't lets forget it is not celebrated as such world wide, for instance Chinese new year is not until February.

Nonetheless it is probably a chance to take stock of our lives and make some resolutions to resolve to make improvements. Nonetheless we have to be realistic, just because of a date on a calendar nothing is really going to change and even with all the will in the world we will not be able to set aside the past year’s unhappiness or regrets just because it is new year. However it is as good time as any when we can wish others well and wishing someone a happy new year simply means we are thinking of him or her, if of course our wishes are sincerely and do not arise from the pressure of society. I was not sure who to send new years greetings to not knowing how this will be received. I know during own tragedies experienced at this time of year, the death of my daughter who was still born and the death of my brother-in-law to whom I was close and whom I had known for over thirty years was difficult, and many people expect you to carry on regardless with the charade of Christmas. Which is sadly during such times most definitely a travesty if one cannot set Christmas aside during times of suffering. Moreover this time of year we are painfully reminded of people we have lost or who we no linger see anymore, people with whom we have lost contact and this can bring about unhappiness. If we are alone our loneliness is accentuated and we are made keenly aware that we may not have any friends or that anyone who cares. Holidays of any kind can for many people be a lonely time. Also for those of us who have had difficult lives it can be a time when we feel regret and we may be tormented by what we may perceive as a wasted year even though it is through no fault of our own. Oftentimes society can make those of us with a mental health problems feel guilty despite growing and overwhelming evidence that anxiety disorders are genetically based neurological disorders rather than purely psychological. Therefore we have to ignore such insinuations that we could have tried harder to cope with our respective conditions as like anyone with any medical condition it can at times be impossible to do so and we should not berate ourselves for what others may see as our short comings.

But on the positive side New Year is a good a time as any I guess to make some improvements as long as they are realistic, we can all make some small improvements albeit most likely only superficially. I need to loose weight so this time of year is as a good as any to make this resolve although I have done so now for the last goodness knows how many years without much success except during the time in which I lost so much weight to become on the verge of anorexia. But of course, I hasten to add that is not to be counted as a successful result to dieting.  But loosing weight is by no means a simple matter as often those of us who are depressed eat for comfort and also many medications increases ones weight, something that needs to be considered during this new campaign on TV this morning to make us all feel guilty about being overweight .

I look back at last years resolutions and find little has changed in my life. In fact looking over my blog it is the same old story, the same if not more suffering and misery with OCD, headaches and our general circumstances which seem little improved.

Despite my less than positive slant I do hope that life improves for you all; even though this is an unrealistic wish there is no harm in wishing anyone well but also recognising that the reality for  some of us our our circumstances will change very little .

Consider the advice from the sayings of the Buddha.

The Ease of Serene Calm :

A radiant deity once asked the Buddha:

Those who dwell deep in the forest,
Peacefully living the Noble life,
Eating but a single meal a day,
Why is their appearance so serene ?

Buddha responded:

They do not sorrow over the past,
Nor do they hanker for the future,
They live by just with what is present,
Therefore is their appearance so serene!

By urging towards the unreal future,
By longing back into the lost past,
Fools verily dry up and wither away,
Like a green creeper all cut down...

Source: The Grouped Sayings of the Buddha. Samyutta Nikaya I 5

Sound advice if only we could live this way, living in the moment. Again unrealistic for some of us whose mind's dwell mostly either in the past or the future or for those of us tormented by OCD fixated on whatever our respective manifestation of this disorder is. Regardless of religious beliefs or otherwise the quotation above is something to consider.

 

January 4th

Warning! Spoilers for the film: I Am Legend

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Today the weather is thoroughly miserable, at least yesterday’s snow was bright The gentle fall of snow I find relaxing and I felt annoyed when someone went on about the forecast of rain during the night as though this was an improvement. If today is anything to go by it most certainly is not as the day is dull dreary and damp with grimy clumps of washed out snow clinging tenaciously refusing to leave.

I find increasingly that I am becoming more sensitive. A trip to the cinema to see “I Am Legend “ I found disturbingly depressing and felt really genuinely sad as the plot slowly unfolds concerning the fate of the seemingly sole survivor of some dire catastrophe and his dog. On some level nowadays even with fictitious scenarios there is a sense of sadness; even though I know of course it is fiction it takes on a feeling of personal loss. This is difficult to describe. I had not really taken in exactly what this film was about thinking it was some sort of futuristic post nebular holocaust rather than a very depressing scenario of a cure for cancer by the manipulation of a virus gone horribly wrong resulting in a devastating plague. At one point the symptoms of this new engineered disease being compared to rabies most certainly did not help. Not the best scenario for a contamination anxiety OCD sufferer such as myself, not that of course a nuclear holocaust is not depressing but for me not in the same way as the annihilation of the human race, which I think also included mammals, by a virus or other pathogen. My son doesn't understand this after all death is death and radiation sickness is... well like a disease. But somehow it is different. I don’t really think about or particularly fear a nuclear holocaust although of course I would not want this to happen and no doubt like everyone else if the unthinkable happened I would be afraid. But there is something awful about disease which seems for me personally more horrific and I have been anxious during the recent SARS and bird flu scares yet never ever recall being anxious at the prospect of a nuclear disaster. Not even during the Cuban crisis, although I was only a child the comments of my mother would have scared anyone to death, but for me I never really connected this possibility with reality.

Fear is an odd thing; we can feel exaggerated fear over something that in reality we perhaps do not need to be fearful of and yet not exhibit fear when perhaps it is more appropriate to be afraid. During the mid eighties during an hurricane which unexpectedly hit the south east with wind velocities of over one hundred miles an hour I really was not afraid, in fact I found it exhilarating, awesome despite the fact the we lived in a timber framed cottage and as such may have been more susceptible to serious structural damage resulting in injury more so than most of our neighbours. The next morning I was rather non pulsed when my mother rang up concerned. About what ? I thought at first she had rang because there was something wrong but with her rather than with me and my family. And afterwards, the way other people spoke of how afraid they were, when here was I normally an anxious fearful person who actually enjoyed it. Apart from the loss of frozen food due to power cuts I was delighted to have both my son and husband home for an unexpected holiday. In fact in some bizarre way it helped also to distract for a time from my OCD , yes I even felt a hint of excitement.

Mostly I go to the cinema for my husband and son although of course there are occasions when I do actually enjoy a film or at least find it reasonably entertaining without being too depressing or plan and simply boring. I don't know if this is due to depression but recently there are few films I enjoy, or TV dramas come to that, not that enjoy is a word I can use nowadays concerning anything as most facets of my life are impeded by OCD. Everything seems pointless, bland, boring and I find myself sitting there and wondering what the hell is the point. It feels as though one is living life vicariously through another and when this includes tragedy ,loss, bereavement it can at times feel as though this is personal and is vicariously felt as my loss. Conversely joy, happiness or indeed any kind of positivity is never experienced vicariously in the same way, only the negative events.

Concerning most films nowadays there for me is little in the way of entertainment. I mean really what is entertaining about the annihilation of the human via a virus which wipes out billions leaving a handful of people remaining who due to the effects of the disease become dangerous mutants who wiped out most of the small number of the population who had a natural immunity. I mean how it this entertaining, you do not go away feeling happy unless there is something very seriously wrong with you. Perhaps there is a certain amount of suspense but frankly I have enough anxiety of my own to contend with. I felt really sad when the dog died, on the verge of tears. I think we have enough personal sorrow in our lives, we all do at sometime, but for those of us who it appears are hypersensitive this sorrow can so easily be brought to the fore over increasingly more and more circumstances even those of a fictitious nature.

 

January 6th

Oh the complications of life with OCD! I cannot get my usual paint-on varnish to varnish my paintings. The one I bought causes streaking no matter how careful I am and as a consequence a painting may have been spoilt. The alternative is an aerosol of spray on varnish. I am not keen as the fine particles of the varnish, which result from application in this manner, are more easily absorbed into the lungs. Yes I could wear a mask but the type that would prevent my breathing in such a find spray is expensive and not easy to obtain. The instruction on the tin simply advises working in a ventilated area and not breathing in fumes, which short of holding your breath is somewhat difficult, however the instructions do not mention a mask. There are no dire warnings, such as “solvents can kill “ or a skull and cross bones label which appears on anti-freeze, incidentally we never use antifreezes becasue of this.

However it is not simply the case of my coming to grief by breathing in the fumes as I am sure I can hold my breath long enough to do so, than rush out of the room having first opened the windows to let the fumes disperse. No indeed with my OCD it is of course more complex even than that, which of course to many would appear extreme anyway. Although my advice concerning the use of such chemicals is that one can never be too careful or too complacent I may however treat the matter more extremely than most, but this is of course natural as a sufferer of OCD.

With OCD comes a whole new dimension of perspective, one riddled with anxiety. If I was to spray the varnish onto the painting naturally more than the painting will be covered by the varnish, some will get on my hair, my cloths and anything in close proximity unlike the paint-on variety which is applied more directly to the canvas and more easily contained, controlled. Yes I am aware of course that even this method of application, although more confined will create fumes as of course smells are small airborne particles of the substance. Uggghhh that thought is so unsettling and always comes to mind when I am out and about and may be subjected to odd chemical smells which waft in the air from time to time or in the countryside , manure or even in the city the stench of an unclean public toilets.

With a spray more of these particles will get into the air and on to my cloths hair and so on. The concern here is about it getting on my clothes and poisoning someone or some creature. This is how this fear works: if I leave the house with particles of varnish on my cloths and hair I become anxious should even one particle come into contact with a person or an animal. Such as it falls from my hair on to the ground where it may ingested by an animal, someone's dog for example, even an insect. If it falls from my hair or clothing onto food or onto anything which another person will touch I fear this may cause harm. I try to rationalise this by telling myself that so dangerous a substance would of course not be sold to the general public, but rationalisation has little or no effect when one is in the throes of OCD’s perverted perspective.

To avoid this I will have to varnish my paintings before showering and getting dressed. This means at about 5am instead of coming to work on my computer as is usually the case for me before even showering and changing I will need to go into my already unheated bathroom and open the windows. Stand my painting on an easel, spray it with varnish, whilst holding my breath and leave the room for a while for the fumes to disperse and than showering and putting on fresh cloths and putting my nightclothes into the wash, which I do anyway each day. If I did not do it this way I could not use the varnish because of my fears of causing harm. I have about twenty paintings to treat in this way. I know writing it now just how ludicrous it sounds, it certainly is and it is a misery. The mornings are my worse time of the day when my perspective is less rational, when I am at my most anxious and depressed. However to leave it until later I would finish up showering again and putting on clean cloths. Sometimes one has to work as best one can around ones OCD, partially for me now as I grow older and it appears more so that my OCD is intractable. It is either work round the obsessions and compulsions as best I can or become totally incapacitated by my OCD. I will let you know how this fiasco works out as I have not yet tried to do this and will most likely procrastinate for some time trying to find the courage and motivation . I can only varnish one painting at a time so it means a few days of this misery.

I was really annoyed with the manufacturers for running out of my usual brand. The shop had ordered it but no the manufacturer had run out. This was nearly a month ago. It drives me crazy sometimes and life seems so difficult and as someone said recently nothing is ever easy. But keep in mind that for people like me who suffer so much fear and anxiety everything in life becomes a nightmare of frustration, and the slightest thing that goes wrong or is difficult becomes exaggerated in ones mind and becomes a disaster, a catastrophe and I became irritable angry. I even start worrying about not getting any varnish anywhere in time for the inhabitation despite there being some time to go before the exhibition but it really played on my mind about this varnish, that is in-between all the other grinding misery conjured in my mind by OCD

 

January 10th

Below is link to an interesting article concerning stress and anxiety and the possible role these conditions play in the casusation of diseases such as heart disease, diabetes depression and even cancer.

Stress causes whole body deterioration

I was rather hesitant whether or not to include this article here even though I thought it might be of interest. One of the main reasons for my hesitation is the fact that the research involved experimentation on animals, rats, albeit mainly in the form of behavioural observation. However if such is carried out in a laboratory this interferes with the animal's well-being to some degree.  I would therefore like to state that I am categorically one hundred percent against animal experiments under any circumstances and that includes medical research.  Animals are sentient creatures, they feel pain and  fear in much the same way as we do and to cause any creature to suffer these condtions is to my way of thinking totally abhorrent.  I agonised over the decision to include this article but my not doing so will not of course have any effect one way or another on this dreadful practice.

Besides on reflection including this article gives me an opening to express my thoughts concerning the atrocity of experimenting on animals, which is to me an abhorrent.
 

The article however may be of interest to a number of you as it helps to perhaps gain some insight into why our level of anxiety becomes increasingly more and more sensitive to smaller and small stimuli.  I could of course have told any researcher this , it is common sense is it not. I imagine that most of us who are chronic sufferers of anxiety and stress have noticed how anxiety and stress generate further anxiety and stress. Over the years this anxiety increases to such a degree that we constantly feely anxious and stressed most if not all the time, and we find that as the years go by the tiny difficulties in our lives with which others cope without even thinking become monumental obstacles, which result in enormous increases anxiety and stress disproportionate to the situation, at least by normal consideration. Surely most of us have noticed this. Furthermore the presentation of any of the these conditions such as heart disease further increases our anxiety which is naturally a detriment. I can't imagine anyone being told that they have a serious disease not being anxious.

Although migraine is not mentioned in this particular research many people assume it is related to stress. Most certainly migraine will cause anxiety, stress, even fear and the occurrence of frequent attacks will inevitably perpetuate and increase existing anxiety and stress still further in an increasing downward spiral of incapacitating illnesses.  Last December I had twelve attacks, during the last three days I have had three on three consecutive days. I was in agony last night, even with the help of Diclofenac it is a situation which provokes in me such fear should my medication for some reason cease to be effective. Particularly as the onset of last nights headache presented barely sixteen hours after the previous attack. As I suffer also with chronic daily headache which at times can feel similar to migraine I have to wait some hours before taking my migraine medication as I need to be certain that I take my medication for the right headache as making a mistake will mean hours of pain if later on a migraine presents before the sixteen hour gap between doses has expired. Moreover the depression which result from the frequency of this condition is considerable as it is a great impediment to my life, and remember of course this is in addition to suffering severe OCD. You would need to be a saint in order for this condition not to effect your stress , anxiety and depression levels, particularly with such frequent incidence.  Sitting here now today I have a twinge of head pain, at times such twinges can bring about severe anxiety so much so to be experienced as fear. This is particularly so if I am away from home "The World Health Organization ranked migraine attacks as one of the most disabling conditions known to mankind" says said Dr. Stephen Silberstein, director of the Jefferson Headache Centre at Thomas Jefferson University Hospital in Philadelphia. It is not surprising therefore that even sitting here now writing about my migraine generates an increase in my anxiety.  

Secondly I was anxious to include this article because often such information may increase stress. Being told that the anxiety and stress that we are sadly unable to control may result in the possibilty of serious illnesses can increase further not only our stress but also make us feel frustrated, even angry as we are left to our own devices to fight a battle which we appear to be unable to win. Sometimes such knowledge may make us even more stressed. However such information may help to increase insight into what is happening and why.  I suffer so many illnesses which may or may not be stress related. But if these are indeed part of our conditions we should never feel guilty or weak that we cannot control our anxiety or stress. Often being told that this or that is a result of anxiety, stress or depression can often leave one feeling guilty and hopeless and increase our stress and anxiety further. Moreover oftentimes struggling to control anxiety, which may in any case be beyond our control such as for instance during the effects of  anxiety experienced during a panic attack, may actually create more stress. Yes indeed struggling to relax because we are fearful of the consequences of our stress when under the throes of severe anxiety can make one feel anything but less stressed.

However one should not consider such information as the above  research as an absolute fact as often illnesses associated with stress do not present in everyone who is stressed. For instance it is assumed that stress and anxiety will result in high blood pressure. I am severely stressed,  anxiety is a constant companion, most days my heart may pound with fear, a lump constricts my throat, I m never relaxed . Yet I have text book perfect blood pressure . Amazing! 

Also in this research it appears to be considered that anxiety and stress is learned from parents. Personally I believe, particularly concerning anxiety disorders, that these arise as a result of a genetic predisposition and it therefore may appear this way. It is most likely that although the stress the child or children of anxious parents exhibits - particualry parents with a specific diagnosable anxiety disorder such as panic disorder or OCD - may appear to be learned behaviours, it is however more likely that the child has the same gene for the susceptibility towards these conditions and exhibits similar behaviours as the result of this inherited predisposition rather than from the result of learned behaviour. 

The above six paragraphs are my interpretations and opinions concerning this article . Therefore you are advised to read the article and form your own interpretations.

January 12th

From this Saturday Jan 12th due to illnesses and other commitments such as my exhibition I will only be available to respond to e-mail on three days each week: Tuesday, Friday and Sunday. Please continue to write  as usual but do understand that there may be a delay. I will endeavour as far as possible notwithstanding illness, computer problems or other adversity to reply on one of those days.  Please read the reasons why below.

I am now receiving so much e-mail that it is impossible to respond every day. 

I find that I cannot easily make the transition from one activity to another. The following concerning making the transition from writing e-mail to doing other activities is an example of this problem. If when I come to work on my computer and respond to e-mail I than find it difficult to turn my focus to do other things such as write articles, or blog entries or do other work on my website.  I find I can only focus on one task at a time, I cannot flit from one thing to another as  I loose the thread so to speak and cannot refocus my attention on the new activity. So after writing a couple of e-mails which may take a couple of hours or more I cannot than go on to write my articles or a blog entity as I cannot change my focus easily to do this different task. The answer therefore is for me to have a routine. On certain days I focus on replying and writing e-mail and other days I will write articles or do other work on my computer.  I am a person who needs routine and this is really the only way now I can cope. 

Also concerning e-mail it can at times be stressful because of all my OCD compulsions which require me to edit and check and check over and over for mistakes and worrying about writing something which may be perceived as harmful. I have written extensively about this here on my blog and will not today elaborate further, a compulsion of mine which I must make some effort to ignore.  The point is that although I am pleased as always to hear from fellow sufferers and other interested parties it is exhausting because of my difficulties with writing, particualry e-mail as this is more difficult than writing a blog entry or article.  I apologise for any inconvenience but I am sure most of you will understand.

It is amazing though that some people may not understand this, even fellow OCD sufferers. Sadly I have found of late that some sufferers cannot or will not try to understand the difficulties other sufferers have if their OCD manifests in a different way. This maybe because they are simply too ill to comprehend; locked within their own fearful world the anxieties  and illnesses of another may seem unreal, trivial even.

This does not only apply to OCD of course. I recall my sister telling me that just because a group of people all have agoraphobia does not mean they all can empathise with, accept and understand one another. There are times when one person who can for instance perhaps leave his home to go to the corner shop, albeit with considerable determination and much anxiety, cannot understand the more severely effected agoraphobic who cannot even leave his bed room or in extreme circumstances, as was the case of a friend of my sister's, leave her bed.  Yes indeed it is not easy to understand another's problems and although I have most obsessions and compulsions it seems to one degree or another that there are times when I personally do not understand another sufferer's type of OCD. However I do recognise that just like me that this person's life is tormented and detrimentally effected by their particular manifestation of OCD and I do my best accommodate them. But I am only human and make mistakes and this is why e-mail can be difficult as it causes me to ruminate and feel guilty.

This I will explain in more detail in further entries although I imagine I have touched on this in past entries.

Please do not be put off writing to me I love to hear from visitors to this website, it is just that it will help me cope better if I only respond to e-mail on certain days. It is for me a better more organised routine and is more suitable for my temperament and the difficulties I have with the transition from one task to another. Please continue to write as before but please bear in mind that you may not receive an immediate response. Please also keep in mind I am simply a sufferer of OCD, I am not a counsellor or therapist of any kind and as much as I would like to help others I am sadly not in a position to do so.  If you are having problems and need help please consult a person suitably qualified to do so.

It has become a compulsion to respond the same day and I am struggling to break this compulsion as I am not well enough to do so and it has become rather a torment with my getting up earlier to do so despite often being unwell.

I am trying this routine as an experiment if it does not work out I will continue as before.  The important thing is please do continue writing, even if there is a considerable delay in my response please be assured sort of a major tragedy at some point I will respond.

Yes of course this is all very obsessive/compulsive; I am obsessing as I do about everything in my entire life. I have OCD and this sadly will reflect in every facet of my life. I can't imagine anyone really cares if they receive a delayed reply or no reply at all, a reply from me will not effect anyone's life in any significant way. However if I do not tell you of my intentions I will feel anxiety and the compulsion to check my e-mail everyday and respond straight the way which right now is difficult for the reasons stated above and also due to an increase in my OCD and other conditions particualry migraine and depression.

 

Jan 14th

Today I felt as though I simply did not want to get out of bed , It has been this way now for many months but today I felt so wretched . At one time the computer delivered me from the torment of the morning invasion of worrying OCD thoughts. Even though I had to get out of bed during the wee small hours of the morning to escape the torment the computer was a considerable help and incentive to do so. However now it is more difficult and I tend to lie there depressed and  notwithstanding the continual stream of intrusive thoughts I find it increasingly difficult to get out of bed and come and work on my computer as I once did.

When I first bought my compter it was like a breeze of fresh air into my life and it become an excellent distraction, at least against the more ruminative morbid intrusive type of OCD. Particularly in those days when my husband was at work and my son at college and  I was left alone for hours on end.  Creating my website in the last four years at first gave me enormous satisfaction. Here I could publish my book , an endeavour that due to illness had taken ten years to complete but which sadly alas no publisher was interested in publishing.

The creation of a website had been in my mind for many years right from the time we bought our first computer, in the days when the internet was a tool for information, much of it disseminated freely and not the capitalistic commercialised tool for advertising that it is now where very man had his dog tries to sell just about anything and everything. It was once a source of artistic information and inspiration where you could download photos to paint with out a list of restrictions as long as your arm even when it is for free download. I have OCD scrupulosity, but even if I did not I imagine I would try to respect the rights of others to restrict the use of their work even if it forbids the use of photography for painting albeit at times with much annoyance. I mean really! How many people realise it is strictly specking a violation of copyright to paint from a photograph taken by some else. Crazy!

The internet was once a place to acquire the lasted information on medical research free now more often than not a research paper requires a fee, oftentimes a considerable one at that.

The internet in the main has changed so much in the last nearly eight years since I first came on-line. Advertising greets you everywhere, flashes across the page, unfurls if you accidentally move your mouse in the wrong place. My ISP once had no advertising , than it was a discreet banner now it is pop-ups, even animated mini movies. What a check don't you think, when you pay a subscription to be inundated with advertising.  Yes there are adds on my website but all are for charities for which I receive no payment but still I guess they are adds nonetheless.

How the internet has changed a lot of late but sadly not for the better. Recently with one thing and another I feel less and less comfortable and in some aspects I feel increasingly stressed by the attitudes and behaviours of people on-line. Again recently I was accused of spamming when  I mentioned my website and my book when responding to a post. It had taken a huge amount of courage for me to  post this response, the only perosn who directly commented on my post said that it was a good first post however there followed a sarcastic remark implying that my response contained Spam.  Spam! What Spam? I had mentioned my book as this was appropriate to the subject under discussion and included a link to the main website and a separate link to my blog. This person also has a link to his blog which appears after every one of his posts. So... still mystified. I challenged the poster pointing out I was not selling anything and there was nothing whatsoever commercial about my website but received no response so still rather in the dark on that one. 

If anyone would care to contact me with a clear definition about what is and what is not Spam it would be appreciated. If I can't mention my website when posting to a forum this will limit the number of new visitors I get, as of course as I have previously said my website comes no where near the top of any search engine although this blog lists quite high. Except during the time when my website came on-line I do not go to post on forums with the sole intention of promoting my website, it is only included in my post if it is relevant to the particular thread I am responding to or to the topic I introduce.

Moreover my problems with writing is increasing. More and more I appear to lack the co-ordination to type and to do so fast enough to keep pace with my thoughts which do not present in a manner that is easily written without considerable effort to translate my thoughts into words. Rather like the difficulties I have with speaking I need a considerable time to process information and form it into words, even information and thoughts that I myself have generated .I have to do so as quickly as possible otherwise the train of thought is lost, yet I can't spell so there is yet another impediment and also I can't type without looking at the keyboard and my typing is uncoordinated.

So in order to write I have to translate my thoughts into words and this does not come easily I can assure you and when it comes to e-mail often I have no idea what to say as in this form of writing sometimes the thoughts do not come at all.  Sometimes someone will tell me something and I have no idea what to say and it is a struggle. Conversely once I begin writing it is difficult stop and I become irritated, exhausted. With the writing of articles yet again there are many times there is nothing in my mind while at other times it pours in and the anxiety to write it all down becomes a huge stress, my shoulders and neck aching and I can't stop writing but as I have have shown you before it is a jumble of misspelled words and typing errors and that dam caps lock which is on now as I write this and I have to go back and retype. I have a compulsion to write, at times there are so many thoughts in my mind, things I want to say but the hindrance of trying to find the find the right word than trying to spell it, at least with some semblance of accuracy to register the correct spelling with the word processor, and than trying to put my fingers on the right  keys . Sometimes this is so wearying.

Oftentimes now when I start to write more and more thoughts flood in and I get frustrated, irritated and can't cope with it all  to the extent that I become afraid to begin to type as more and more thoughts pour in and the compulsion to write is overwhelming and trying to spell and type just so exhausting . Of late I have dreaded getting up and starting to write anything, everything...Oh no caps lock on again aggghhhhhhhh  I kid you not. So many many times this happens.  There are times I feel like giving up, people do not understand how difficult things are for me. I appear to lack the coordination to write,  I have found that this has effected my motivation to write or do much of anything and getting up to work on my website has become rather a chore. Naturally of course depression plays a significant role here, that heavy weariness bearing down on my chest. Well if you have ever been depressed you know what I mean and lets face it there can't be any one nor indeed any creature that does not get depressed; pet owners will I am sure have noticed that an animal may become depressed . So most of us know what it feels like even if we have only experienced this occasionally in response to life's adversities which few if anyone escapes. However having that feeling present each and everyday to
some  degree or another with little or no respite saps motivation, paints life with a tinge of grey, everything becomes a burden and even so called pleasurable pursuits become dulled and met with apathy. I can't recall the last time I did not feel the burden of depression over my heart.  it is not easy and I have to force myself at times to do most things not only my writing. Oh if only something nice would happen but when you are depressed you miss the little positives, however from my perspective these seem few and far between.

January17th

My throat is constricted my stomach is churning and my left leg has gone numb. An odd assortment of anxiety symptoms nonetheless these and other odd symptoms appear to accompany moments of extra anxiety. A kind of odd panic attack

I can taste it on my lips, feel it in my mouth, the fumes waft up the stairs and I can smell it here now. It is 6am and half an hour ago I finally decided to try that spray varnish I mentioned in a previous entry which I was anxious to use. I prepare myself in the way describe in the aforesaid entry, opened the window, sprayed the varnish onto my painting in I fear a far too copious amount and fled the room slamming the door behind me.

I decided the only way to carry out this task which would cause the least degree of panic was in the bathroom with the windowing wide open in the early hours of the morning before I showered and dressed. Well all that is explained in the entry on January 6th. However as the toilet is also in the bathroom I am anxious now of going in there, but necessity requires I do, enhanced further no doubt by my anxiety. Silly me I had forgotten this of course. 

I can't describe how panicky I feel, as a person so sensitive to smells it is so overwhelming. I was indeed rather shocked just how strong the fumes where and the warning on the tin echoed round my mind:  don't breath in the fumes . Somewhat difficult with the vapour all over the entire house as it was so strong it even came through the spaces round the door. I know other people use these sprays every day and we also have varnished shelves and in our home and of course gloss paint can be really smelly. However this stuff is strong... or does it just seem this way as I fixate my fear on this product. Those of you who have read my memoir and this blog will know my contamination fear by pathogens has extend from contamination fears concerning bacteria and viruses to include toxins and the fear of causing harm to others by tiny molecules of these toxins getting onto my cloths and hair. Varnish naturally belongs to this category as indeed does anything which is unhealthy to ingest , simple everyday things in common use such as hair spray, bleach,  anything remotely chemical. However in addition I fear it getting it into my lungs and creating personal harm and also setting off a migraine even though gloss paint and regular household varnish appear not to do this.   

Life is so frustrating with OCD you cannot imagine. I have twenty something paintings to treat in this way and after today I wonder how I am going to complete this task. It took two attempts to spray just one painting after which I had to take a shower in a cold  bathroom and today is relatively mild.  Also when you feel so dammed awful with depression and anxiety, when you wake with that dreadful heaviness of heart and have to drag yourself out of bed to do soemthing that you know will increase your anxiety to the level of panic you wonder why bother. After all varnishing paintings is not vital, there is no life shattering consequence if I do not so this, its been an enormous effort just to do the paintings with the conditions from which suffer. But they took better varnished, it protects from scratching, and like any other  person there is no reason why I should not do this. One gets so tried of not being able to do this or that because of OCD or other illnesses.

However the problem with my OCD is that it is so pervasive it intrudes into everything, every endeavour, every action every thought and I have no choice sometimes if I do  not wish to find myself become entirely incapacitated by it, it being of course my OCD depression and all the other bloody awful miserable conditions from which I suffer.

But it is not easy it is stressful and time consuming, right now I have to work within the boundaries of  my compulsions rather than confront them and make preparation, thinking things through so I can take the action which will not leave me feeling afraid that I am contaminated or have contaminated someone else. But it is exhausting and saps ones enthusiasm which is already undermined by constant feelings of depression . Today I am so depressed I feel like crying and I have struggled to come and sit here against overwhelming feelings of not feeling as though I can cope with this endeavour anymore, with all the anxiety about what I write, all the checking and checking and checking, rewriting, deleting and so on and on seemingly getting worse with each passing day.  After a time it becomes a vicious circle depression making OCD worse and consequently the  frustration anxiety and misery of OCD and all the other maladies making the depression worse and so it goes on and on day after  day after day and just lately  I grow weary.

There are now so few things in my life unaffected by OCD that I either stop doing them altogether or I pursue them within the boundaries and restrictions imposed by OCD. My OCD is intractable. I think that that is now certain and there is  little or no hope of improvement without intense therapy and support which is never going to happen. A short course of CBT will do nothing except give me a whole new bunch of stuff to write and as writing is such a trauma I am defected before I even start

Yes to participate in CBT you do have to be able to articulate and record your thoughts as they happen  and if your OCD is severe you can find yourself unable to do this as every action, even and including the writing down of you thoughts is effected by your OCD  in such a way your are defeated before your start. Also oftentimes it is not easy to articulate your thoughts particualry if you have AS  as I beleive I have AS or significant traits thereof .

So it is not easy for me to express my thoughts even in writing which is the easiest of the two options verbal or written but neither is ideal and I most certainly cannot write my thoughts in the concise way required for CBT. Althoguh it might appear that I can express my thoughts here it is not that easy and may take a considerable time for the thought in my mind to be transformed into words that explain the thinking processes in my mind.  My thoughts most certainly do not flow from my mind in to the writing  which you see here with any ease at all and in fact the coordination to type, inability to spell makes the translation of my thoughts even ore problematic.

 

January 23rd

Here is an issue which is of great concern. The following links will take you to information about a campaign against terminator seeds. Terminator seeds are seeds which are genetically modified so they may only be used once, these seeds are sterile; terminator sees are genetically modified to become sterile after the first planting. Terminator seeds are a direct threat to poorer farmers and food sources.

"1.4 billion farmers in the world depend on farmed saved seeds to feed themselves and their families. If terminator gets the go-ahead, it would spell the end of this practice of saving and replanting seeds - and so take control of meeting their own food needs out of farmers' hands."

"Terminator spells trouble for peasant farmers throughout the world because they will no longer be able to save seeds to re-use from one harvest to the next. Many poor farmers cannot afford to buy seeds each year. Instead, they save, swap and share seeds that have been developed over generations. If terminator seeds are spread into the environment farmers will be forced to buy new seeds every time, making them poorer - and the big seed companies richer. Far from helping to tackle poverty, it will increase economic injustice and add to the burdens of those already living in hardship."

"In May 2008 European governments will meet at the Convention on Biodiversity in Bonn to discuss Terminator Seeds. We want them to uphold and strengthen the ban they made in 2000. Poor farmers in the developing world need your help to make this happen. Here are some ways you can help persuade the British Government to do the right thing:"

The above are quotations from the website below

For more information and action you can take please visit Progressio's website

be a SEEDSAVER - home

Terminator seeds are one of the most despicable examples of corporate greed to the detriment of others that I cannot have ever imagined in my wildest most negative of dreams.

In addition to the problems of poor farmers who cannot afford to buy seeds each year if released into the environment Terminator seeds may increase world hunger and poverty.

At the present time there is a ban on terminator seeds but it is feared that this ban maybe overturned at a major meeting of the UN in May 2008.

Please write to your MP, asking him or her to lobby the UK government to support and strengthen the ban on terminator seeds.

There are mostly likely similar campaigns in your country, here is one originating in Canada through which international visitors can also take action :

The Campaign / Ban Terminator - Ban Terminator

Below is a link from the above website where you may Join the campaign for a national ban in your country!

Take Action / Ban Terminator - Ban Terminator

 

January 24th

Just lately my enthusiasm to come here and write has waned. This is most likely due to an increase in depression and anxiety. Also I am feeling somewhat uncomfortable talking about all my problems here but conversely feeling restricted in so many ways about what I can and cannot write. Such restriction arises from OCD fears that perhaps it would be a detriment to say this or that for one or another reasons. I cannot of course precisely say why without talking about things which I am becoming increasing too anxious to write about. Also once I begin writing it can be difficult to stop as more and more thoughts pour in, ideas about things to write and the compulsion to write them as long as they do not become involved in the restrictions which OCD has placed upon me.  So writing can be a frustrating and an anxious endeavour not to mention exhausting. I want so much to speak freely of my life and my thoughts but it is difficult to cast aside my anxieties to do so , particualry fears about casing harm

Also as mentioned in recent previous posts my depression is becoming more profound of late making it difficult for me to get out of bed and if it were not for my obsessions and compulsions I would probably still be there now. Oftentimes ones compulsions over ride depression's lethargy and with a heavy heart I struggle to rise from my bed albeit perhaps not as early as was once the case. Also the fear that if I continue to lie in bed and make no stand against my depression I will find at the end of the day my depression will have increased as I will in addition be riddled with guilt that I allowed depression to have its way. Also if I am late rising my routine is thrown out and this increases my anxiety.

There are also increasing demands on my time, which is unreasonable for a person who is disabled. And make no mistake OCD and other mental health problems have the potential to be severely disabling. Also migraine is a disability, it is notsimply mild headace easily controlled with over the counter medication and in some cases any medication at all.  So I have two seriously incapacitating and disabling conditions. Yes make no mistake we can certainly call ourselves disabled if we have OCD or any other anxiety disorder come to that; agoraphobia for instance is very disabling as you are for all intents and purposes housebound regardless of the absence of any psychical disability. Moreover you can feel shame and guilty that you are not able to overcome this fear and the struggle to do so may become exhausting and lead to a significant depression.

Yesterday wasn't a brilliantly fine day but the air was fresh and coming home from shopping I really felt as though I would love a short walk in the fresh breeze that seemed so pleasant after the bitter cold and wet of the previous few days. As we went by the river I noticed a footpath right long the bank I had not noticed before and would have liked to follow to see where it lead, but as usual fear of coming into contact with someone's lively, too friendly or out of control dog was just so fear inducing I could not. Yes I have walked in the dales but here the possibility of unleashed out of control dogs is less likely due to the sheep which freely roam the dales, although of course  even here thoughtless people with unruly dogs will unleash them regardless and do ruin any peace that might otherwise be had, not to mention cause fear to the sheep or worse.  However in my immediate locality there are just so many dog walkers that I rarely venture far from my home into the neighbouring countryside which is so easily accessible. There are several pretty walks through woodland and by the river but in all the time I  have been here  I have been but twice and each time it was so anxiety inducing, my heart thumping, jumping at every sound with frightful anticipation, I just can't bear to go, the anxiety outweighing the benefits. As we passed by this riverside path I felt a twinge of bitter regret for all the years, all the lost opportunities when OCD has deprived me of so many things in my life and continues to derive me without there being now much hope that for me personally anything will ever be any different. At times we can become complacent with our limited life learning to adapt within its boundaries, as our conditions becomes worse, which sadly happens without treatment or for some of us for any number of reason it seems our condition is intractable, and we adapt and live in an increasingly smaller and smaller periphery of existence. And it is only at certain times that we are made to realise just how disabled we are and that there are so many facets of life that others take for granted which we cannot have any part of .

The mind is powerful and during the throws of neurosis it can be an  extreme impediment to a normal fulfilling existence. OCD is very disabling, incapacitating, at least for me and no doubt many others, it is very pervasive intruding as it does in every aspect of my life . It takes time to comply with OCD, it takes your life, it is an ever present but undesirable companion . Obsessions and compulsions arising from Contamination issues are time consuming, everything takes longer when you have to, for instance wash your hands so many times each day for reasons others would not understand. Such as for example after opening the curtains for fear they are contaminated with legionaries disease, just one of many time consuming compulsions which I  have written about on many occasions. Piles of cloths to launder, showering, cleaning or rather decontaminating,  avoiding. Yes avoiding becoming contaminated can also be time consuming, exhausting ones mind, crowding ones thoughts, ever mindful mindful to avoid contact with for example the bin or the dirty laundry basket. it  demands your attention, requires care, manipulating, careful placement of contaminated items to avoid accidental contact which will result in changing my cloths even showering or washing my hair.  The routine or in OCD terms ritual of varnishing my paintings is a recent case in point which involves planning which adds mental exhaustion to the mix. It also involves washing of my cloths and showering. It was not easy the first time I tried to do this early in the morning before showering as I had planned and in the end due to complications to exhausting to try and recount here I finished up doing this complex procedure in the afternoon. Opening the window for the flumes to dispute albeit with some anxiety about poisoning the environment. Placing the painting near the window taking a deep breath, spraying the varnish, dashing out of the room.. well its all described in a previous entry . And please! don't say these are normal precautions, yes indeed some aspect maybe as it is not good to breath in the fumes as is warned on the instructions but most certainly the performance of cloths washing, showering and the anxiety of anticipating the task and the fear of the fumes is certainly rather exaggerated. Also a most important consideration here is that after so many years one does not know what is normal. Sometimes a normal behaviour might seem like an OCD exaggeration when perhaps it is not. Yes you should not breathe in the vapour but does this mean you have to hold your breath, spray the paint  as quickly as possible, leave the room still holding your breath and slam the door tight shut? I rather think most people would not do this but really I don't know what is normal.  After only doing a couple of paintings I am anxious and have to abandon the task for another day and than of course I have  to shower  and change my cloths and this includes washing my hair should a small particle of this substance remain.  That is I imagine most certainly not normal.

Indeed OCD is enormously time consuming, washing your hands over and over throughout the preparation food  each time I touch something other than the food, even the packet, rewashing  cooking implements, using fresh towels each time, anxious about the towel where it has been, is it clean, anxious about food has it been tampered with, checking for interference with packaging all eats away at your time.  Checking my writing over and over again always questioning if it is correct or will it have the potential to cause  harm but never in an obvious way that others would understand as having such a potential, the OCD mind sees harm in so many things and it can leave you exhausted  as you have to  think through everything you think, every move you make and every decision with which you contend. Reading is also a long and  protracted due to a superstitious fear concerning a certain number  which I have mentioned on so many occasions it would be superfluous to reiterate again today, yet even this is a compulsion for me to go over and over this problem again just in case someone doesn't  stand.  Many books are never competed becasue of my fear of any association with this number, particularly when it comes to reading, it is as if OCD homes in on what means the most to you, rather like an entity which knows your thoughts and knows what aspects of your life in which to intrude in order to bring about the greatest detriment. Well there are so many facets of my OCD which are all mentioned in my memoir and here on my blog and there are many others which are daily increasing the impact of this condtion upon my life. Also recently the tendency toward GAD type thinking has added an extra dimension of misery; ruminating on small concerns catastrophizing, exaggerating the potential day to day worries into major problems so much so that my life is filled with continual anxiety.

 

 Ban Terminator - Join the Global Campaign

 


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I will endeavour to reply to all e-mail, however please bear in mind that I have a number of quite debilitating illnesses and there may be times when there will be considerable delay. Also I will not publish anyone's comments, as appears to be the procedure with blogs, without permission of the author : If you would like me to publish your comments please indicate clearly at the end of your e-mail.

All comments are welcome including polite constructive criticism and difference of opinion. However I reserve the right not to publish anything that I consider would be offensive or in any way of detriment to anyone particularly those who sufferer with the illnesses included on this web site.

 

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