February 3rd
There have not
been many entries recently and this is due mostly to a sense
of urgency to complete a section of my other website,
www.think-differently-about-sheep.com
Well not a section
only a part of it. I am experiencing a huge amount of
difficulty writing these days due to my OCD, a problem about
which I have mentioned many times but which is getting so
much worse that every endeavour that involves writing is
becoming increasing more difficult, taking much longer and
is riddled with doubt, stress, despair and at times
incapacity. It is only with some determination that I press
on knowing that the alternative of giving into my mind will
mean only an increase in depression. So continue or conceded
defeat I cannot win whatever I do. I had worked on this
section, which is only partly complete, intermittently since
August of last year. Obsessing about facts checking and
checking over and over, its has been a misery. The more I
check facts the more new information I acquire and the
longer whatever I write seems to get, the consequence of
which is still more checking.
The addition of
perfectionism adds to the mix, a futile quest for anyone but
for someone with an attention deficit who makes mistakes and
may not see them despite endless checking, the goal of
perfection is impossible. The fear of causing harm by what I
write and the fearful imaginings make the endeavour a
further misery. At one point I was ready to add to the
recycle bin! But I am a person with a mission, a head
filled with thoughts and ideas too numerous to bring
to fruition if indeed I had the ability to do so. I
feel with my sheep website that it perhaps has to be more
close to perfect, or at least more accurate concerning writing and
the accuracy of what I write more than this one, as of
course some inaccuracy due to my medical conditions I imagine will be
accepted if not entirely understood, as I know too well that
sadly we at times fail to understand one another's variations
of OCD or other anxiety conditions.
Also after a long break
it is difficult to get back into the flow and I admit I lack
the motivation. Also my OCD often puts a limit upon what I
feel able to write, superstitious dread and strange
imaginings about which I feel too anxious to discuss tend to
limit what I can include here. I say imaginings but of course the
delusion of OCD thinking makes them real, even though at the
core of our being that rational aspect of our persona knows
that our thinking is irrational, or at the least exaggerated. Yet we cannot resist, ignore it or actively go against it.
Yesterday I was haunted by thoughts that would not be
dispelled, not even by keeping my mind occupied, which
sometimes does help to mitigate my thoughts to some degree.
In many ways my OCD has taken a turn for the worse as indeed
it does if you are exposed to additional difficulties in
your life, which has been the case recently, and if you do not get any support.
Yes in recent
years I have been offered CBT but only a very limited number
of sessions, the last time only seven were on offer,
which would do little if anything to tackle the huge and
pervasive problem with my OCD. Moreover depression and
inability to concisely express the nature of my OCD, which
is so interwoven and complex, made CBT inappropriate for me.
The psychologist was willing to try and at least remove some
of the burden and incapacitating aspect of my OCD but I
simply just couldn't cope with the process of CBT, writing
it all down was one of the biggest hurdles, writing down
thoughts as they came and their consequent obsession, the problem
being that I can not do so concisely and the thoughts and the
compulsions and obsessions are just too continuous and
numerous that this would be impossible. Yes I could
sort out a selection of the simplest thoughts to work on, at
least I could have done so in the past but these days may
ability to sort through the maelstrom of confused thinking
would be exhausting if indeed it was possible at all. Years
ago when I was younger and not so bogged down, entrenched in
years of habitual thinking I probably could have done so but
not now. The addition of those blasted headaches and other
problems did not help, the anxiety about attending sessions
and intensive conversation for an hour is difficult if you
have the type and frequency of headaches that I have. Also
sensory issues, sitting talking to the psychologist with
the window as a backdrop was a sensory issue and one which I
found difficult to cope as the light seemed bright and I was
sensitive. Yes I could have said something but having had an
experience with a psychologist in the past who really was
not at all understanding about my need to have him switch
off the florescent lighting I simply felt I could not face
another confrontation with people's lack of understanding
about such matters, even though in this case I may have got
a more favourable response.
Now don't let my
experiences with CBT put you off, this is one of the reasons
I feel so incapacitated in my ability to write, the fear of
saying something that may be of detriment and make some take
an action they would otherwise not have taken or an inaction
they should have taken. So I emphasise these are my
experiences due to having quite severe and entrenched OCD,
quite severe, along with other medical conditions and a
simple inability to write down anything concisely. Years ago
I was able to write down thoughts as they come but right now
I simply am not able to do so. Furthermore there are other
issues with CBT that I cannot write about here. I regret not
being able to have CBT as it is a useful treatment for OCD,
and helped a former friend of mine to live an almost normal
life as it helped her to cope more effectively when OCD
reared its ugly head.
Furthermore
concerning my entries here, too much
intensive writing of this nature makes my neck, back and
whole body ache due to what I believe is Fibromyalgia. And
this is now the reason I am about to finish this entry due to this
problem which adds to all the other frustrations of not only
writing but also other activities . Last week cleaning the
sitting room made my neck and entire body ache so bad I
could barely cope. The pain began within only an half hour
of commencing my cleaning, but I pushed through knowing that
this was not a good idea, but I simply wanted it done. We
have a lot of clutter, it has to be cleaned. Two obsessive-compulsive
behaviours together like this brings real misery
at times although there are mixed feelings about our clutter;
there would be great sadness and anxiety if we got rid of it
and on some level I like our clutter but there are times
when it is oppressive and adds a dimension of suffering to
my difficult existence . Indeed OCD is complex and mine
right now is so pervasive, so many obsessions and compulsions
coalesce to make life increasing more difficult.
I had wanted to
make this blog into more of a dairy but this seems
impossible as daily inclusions would simply be too difficult
for all the above reasons, and than some. So perhaps the
next best thing is simply to write what I can, when I can,
and if I can and perhaps write my experiences rather like
letter to a friend were you catch up on events that have
occurred since writing last. Not ideal I know and I was
hoping to sign up for Word Press or other blog but would
find it a pressure to have to make daily inclusions as of
course I could not post back dated batches as I do now.
February 5th
Returning from a
trip to the shops I see just peeping out through the soil
the beginnings if life, the tips of snow drops in the border
beside our house. A welcome sign of spring, greatly
appreciated during the worse winter we have had since our
arrival in the Northeast seven years ago. The
proprietortress of the local shop, a really pleasant person
that even I feel at ease with, complained about the dreadful
weather and said that she really felt as though she
could stand no more.
The snow has gone
though and despite my anxieties I miss it and regret allowing
myself to be disturbed by the exaggerated doom mongering
scenarios spread about by the media, such scenarios as the
possibility of our whole infrastructure collapsing. I am
determined I am not going to allow this tendency in our
society supported by the media to make my life more
unbearable than it is right now. Look at what we had to
contend with last year, reports concerning the financial
crisis had you thinking we were about to plunge into a 1930s
type depression, than there was the swine flu beginning in
the spring last year with emphasis on the possibility of an
epidemic of plague proportions similar to that which
occurred just after world war Two. I have hardly been to the
cinema for months after someone coughing in the back row for
fear of contracting swine flu. We nearly cancelled our
holiday last year for similar fears. I hope I am not
tempting fate here, after all swine flu is a reality, it
could still snow with severe temperatures and resulting
chaos and finances well... yes life has been more difficult
of course with prices escalating , and yes talking about it is making me quite anxious.
With our usual
damp problems which are worse downstairs but less so here in
the spare room it is not easy getting through the winter and
it adds to the day to day misery of life. We have had other
personal problems and issues too numerous to describe in
detail, all of which seem more difficult during the cold and
dark winter months. We have hardly been out and about other
than routine business. In past years we have gone into
dales despite the winter weather even if only for a short
walk, a drink and a plate of chips in the pub and to sit
ands read in the car watching the sheep graze and admiring
the scenery, but since the snow we have not been to the
Yorkshire dales and with that thick fog we seem to getting
right now its really not worth
going as you will see nothing and the bitter cold this year
seems more penetrating more persistent. Although it could
simply be may ability to cope has diminished and my capacity
to make the best of it or appreciate even the winter in
beautiful surroundings has gone. I most certainly hate to
see sheep and other animals such as horses and cows out
in the bitter cold weather with no shelter, not even a tree,
in the exposed hills of the dales or trapped in fields with
not even a wall to shelter behind and I cannot help but
think about the thousands of sheep who die of pneumonia or
exposure, including tiny lambs born by mans manipulations,
far too early.
Yes the snow drops
are a most welcome sign yet still I hanker for snow. The
strange incongruity of mixed feelings is something I hoped
to write about in depth at some point. My son always uses
that irritating phrase, 'some Point' a procrastinators way of deferring
something for an indefinite time .
February 6th
This morning the
weather is yet again foggy, I feel as though I like the lady
in the shop have had more than I can stand. The forecast for
next week is more of the same. We have hardly seen the sun
for weeks ! In fact during the snow and severe artic like
condtions when the sun came out it was beautiful and outside
our window the woods in the distance look like a picture on
a Christmas card, but since than the days have been dull
dank and foggy. More like November than January and
February.
To day I am so
depressed and fiddle about with my websites, incapacitated
by indecision, my thinking confused. What I once found
satisfaction in and a sense of purpose OCD has turned into a
misery and I continue to contend with it but it is so
difficult and no one really understands. I feel like crying,
like screaming and never stopping. I really wish I was
normal, I hate OCD it takes your life, your soul, the every
essence of your beings, whatever it touches it turns to
misery and suffering. wherever you turn your attention
there is OCD waiting to distort, destroy and pollute with its
insidious manipulations. Many say I write well about OCD but
there are many things that I can never write about
because of fears that by doing so I will make the thoughts
real, bring about the fruition of my fears and this kind of
OCD is right now taking the upper hand . Sitting here, I am
wondering if I will ever publish the above, it I do it will
be way after they have been written and after much obsessing
and ruminating.
February 7th
Its the early
hours of the morning again. my waking time is now 3.50. Yes
as incredible as that sounds most days I wake at that
time or close to it. This morning I have an awful headache,
my thoughts are crowding my mind and have haunted my sleep
and I feel so much despair. There is no one to share my
thoughts with, to get a rational perspective simply because
this time I feel I just cannot talk to anyone as my thinking
seems so bizarre and I know no one will understand and as I
have said before I fear that verbalising them or writing
them down will lead to disastrous consequences. So here I am
tramped in some dreadful imagings which I obviously feel are
much more than imagination with no way of getting help or
getting someone else's perspective, which can sometimes
help in some circumstances.
To wake with such
a headache on so many mornings is... well... just too awful to describe
how miserable it feels. Also after rising one of those
attacks of tingling hands and numbness which spreads down
one side of my body, which always frightens the hell out of
me even though I have been told that it either has
something to do with my migraine or is caused by anxiety.
This has been an
awful week headache wise. I have had at least three
migraines since Monday and a severe tension headache just
when I had to go out for an appointment. Anxious it could be
migraine, although there were doubts, I took my medication,
but it was not migraine and somehow I had to cope, but it
was virtually as bad, but the meds work only for migraine.
This is another fear of mine that my medication will stop
working if I take too many and when a severe tension
headaches feels so much like migraine and I take my pills
and nothing happens... well you can imagine the panic, at
least I hope you can, but quite honesty I really consider
that few people really know what it is like for another
person, to really understand how another persons sufferers,
to experience real empathy.
Previous to this
week I had had nearly four weeks migraine free. This has
happened before but not for such a long intermission, so
I was really hoping that perhaps at the very least my
migraine might settle down to the more normal frequency with
which it occurs in most people, about once a month to six
weeks. But no, on Monday last week back it came with a
vengeance, three in as many days. I have previously had
short respites of nearly two weeks but after this time I get
as many as four or five a week for a week or two as though
it has to make up for lost time. But this time after nearly
four weeks I was so hopeful. I am only in the first week of
their return so expect more frequent migraines for a while
until it settles down to one every five or seven days . On
average I guess I get between two and three a week! To be
without these headaches would be a great enhancement to my
life. It would be such a boon to get rid of at least
one of them, either the tension headache or the migraine. I
can just about cope with a tension headache if not too
severe and if I had just migraine well at least I would not
have the dilemma of knowing which is which and having to
wait for many hours in dreadful pain before taking my
medication until I am sure it is migraine . The fear being
as I have explained many times is that if I take my migraine
meds for the wrong headache and the real thing turns up a
few hours later I will have to wait for many hours before I
can take more medication.
Well its now 6.28
am and I have to turn my attention elsewhere and respond to
some e-mail, more obsessing. Well obsessing of course
accompanies every endeavour in my life and that is the
truth, no exaggeration.
I don't mind the
early hours in the spring and summer but in the winter it
feels as though it will never get light. But it is best I
come here and work on my computer rather than lying in bed
thinking, working either on this or my other website,
or other activities which help to distract but sadly bring
their own measure of anxiety. But I call this a positive
anxiety meaning that at least something useful arises from
my torment. A least after checking and obsessing over
written work there is a positive outcome even though the
torture by which it was obtained is considerable, it is
better than that for example checking doors and light switches.
Yes I do do that sort of checking to some degree and the
other night I was driven crazy with the notion I have left
the kettle switched on. At least something gets written which
I hope will help others to at least make them feel less alone in their
sufferings. Concerning my animal rights website I hoped that
something I say will make people stop eating meat and think differently about animals.
Even though these activities are torturous endeavours due to OCD they do give me a sense
of purpose and without them I feel I would slip into
an even deeper depression than I have already.
It breaks my heart
to live in a society that is blind to the suffering of other
sentient beings, and yes it does make me more depressed, but
once one is aware of the plight of others whether they be
human or non human you can't set it aside, there is no
turning back, you cannot make yourself unaware, at least I
can't. I do not expect to be happy any more but I hope to
find some satisfaction in my endeavours, but right now this seems
unlikely for no matter how much I do it is never right and
the time wasted checking and obsessing is just so dam
depressing and frustrating and a real time waster, but for
now there appears to be little I can do about it.
It would help if I
had someone to edit my work but my son feels he cannot cope
with the amount of writing that I do and besides he
has his own problems to contend with, likewise my husband
who also has an attention deficit far worse than mine and
would not even notice my mistakes. We all somehow have
to cope alone in our own little self contained worlds of
unhappiness which it appears that not one else can enter,
nor understand or indeed wishes to as just so many people
are preoccupied with their own lives. Must stop now so much to obsess about
and correct, the more I write of course the more I have to check.
February 8th
Well I must load
up my entries today. Yes indeed it all sounds so repetitive
and that is because it is. Nothing seems to improve. People
with OCD need a lot of support and encouragement, which I
really do not have as all three of us struggle with our own
respective problems and other than CBT and medication, both
of which are not available for me for reasons discussed
before, there is no support at all from outside. I have
little contact with anyone other than my husband and son and
an acquaintance we see about twice each year who does not
know about my mental health issues. I consider that once
someone has made progress he or she should not be left to
their own devices and periodic checks should be made. But
this does not happen as there are not the resources
available on the NHS. I made good progress in the past but
It is just so easy to slip back into OCD behaviours. People
think you are weak minded but they do not understand the
power of OCD, its persistence to get its own way. It is a
huge battle with a formidable foe and sadly few battles are
ever fought alone with any success. Many years ago when we
lived in the south east a doctor once said that you have to
fight these issues alone, that everyone has to learn to cope
alone and you should not look to the support of others. In
my opinion there are few if any endeavours in life that one
can do alone in isolation. Human beings despite the everyone
man for himself mentality we have these days have to work in
co-operation, think about it, there is no aspect of your
life can be achieved alone from the simplest to the most
complex. From the doctor getting his doctorate to practice
medicine to my having do the laundry we all need the
cooperation of others. He needed the expertise of others in
order to learn, books and tuition, I need clean water,
washing powder all of which cannot happen independently of
other people. The process of bringing your water from the
reservoir to your home is complex and requires the
assistance of many people. All of this is so obvious of
course but few stop to think how dependent we all are upon
one another. And none more so than people with mental health
conditions, or any medical conditition, we all need the
support of other people. No man is an island, entire of
itself...John Donne
Yet so many of us
struggle in isolation