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Blog Roll
Blog
Roll disclaimer*
Links
to recommended blogs:
OCD
Wiping The Crazy Off My Face
Incertus - The Weblog of Doubt
and Other Disorders
There is a diary included as
part of the following website:
My Obsessively Clean
Den
Where Justin can be Justin
Agoraphobia:
Agoraphobic
English Guy
Downunder
Bipolar and OCD:
Gail's journal
New!
Disjointed Thoughts
Autism:
Donna Williams’ Blog
Ballastexistenz
A Blog from Another World
Attention Deficit disorder ADD:
Living with ADD
A personal selection of Interesting Blogs not
related to mental health or conditions of any kind:
The Action Blog:
Save an endangered species, protect human rights,
save a forest.
Gristmill: The environmental
news blog |
This blog is
part of
Grist Magazine's
website, a magazine dedicated to environmental
issues.
Positive Attitude Quotes, Free
Happy Positive Loving Messages, Popular
Motivativational sayings.
A good selection of
interesting quotations
|
February 1st
When we let
go of yearning for the future, preoccupation with the past, and
strategies to protect the present, there is nowhere left to go but where
we are. To connect with the present moment is to begin to appreciate the
beauty of true simplicity.
Jack
Kornfield
Interestingly this week the idea of compartmentalization mentioned in an
earlier entry came to my attention during a recent biographical
documentary on TV about the life of Tchaikovsky whom it is believed
suffered with bipolar disorder or at the least significant depression.
It is my opinion that he may also have had Asperger's syndrome as
sometimes these two conditions present together. During a
dramatised sequence, in which the mother was saying farewell to her son
as he prepared to enter boarding school, she advised him to overcome his
insomnia due to too many and troublesome thoughts by thinking of a
filing cabinet into which he would file away those worrisome anxious
thoughts and separate them from the files which contained only thoughts
about his music. This rather reminded me of the compartmentalization
idea of coping with unwanted thoughts or worries that intrude not only
of course prior to sleep but, particularly for the
obsessive-compulsive and GAD sufferer, at any time during the day. Such
an idea of course sounds great in theory and I wonder if Tchaikovsky was
able to do as his mother advised.
I find
personally there is little I can do to stop these intrusive thoughts,
which at times grow in their persistence the more I try to prevent their
intrusion or attempt to separate them from other more positive aspects
of my life. The only action that is possible is to mitigate such
thoughts and to try and not carry out any compulsive behaviours which
follow on from them. Again not always easy. In my own experience to date
right now the most action I can take to combat such thoughts is to try
and distract from them even if only for a short time. However if the
thoughts involve a compulsion that needs to be carried out right away
than that is more difficult. For instance OCD thoughts and behaviours
intruded this morning while working on a banner for my website which is
an
excellent distraction as such
involves the need to centre my focus, except of course for the torment
of OCD which here raises its ugly head as it does in every facet of my life. This
problem presents as an OCD superstitious obsession involving a certain
number which at this time I cannot cope with writing down even though
this number appears in my memoir. I had reached a multiple of this
number concerning the amount of scanned items I have scanned since I
acquired the scanner. I am trying to scan a canvas for a background and
as a banner for possible inclusion as a web page design in the art
section of my website. However after scanning several canvases I now
have a multiple of this number. So I had to complete several more scans
for the sole purpose of getting past this number in much the same way as
I cannot leave a number book marked on a chapter of this unlucky number,
and also have to read both the previous and following chapters. So as
you can see OCD will interfere in almost any action I attempt.
Nonetheless my activities on the computer still provide a distraction
from some of the more ruminative processes, those gnawing worries and
intrusive thoughts that go round and round in your mind eating away at
you, worries which do not involve a compulsion and which nothing other
than intensive mind absorbing occupation will mitigate.
If it is possible to find a space in the turmoil of an OCD beleaguered
life, a segment of time during which you can be occupied and determined
to remain occupied, you will at least find some relief and the feeling
that you have done something more that day other than carry out the
dictates of OCD. One of the greatest sorrows that the sufferer of this
disorder has to bear is the regret for a wasted life, for time spent in
what the sufferer knows only too well are pointless time wasting
rituals.
I
know that this is not easy and in some ways it may be impossible as
thoughts intrude and morph to effect whatever it is you are doing as a
distraction. For instance whilst writing thoughts intrude that I have
written something harmful for instance. When painting, thoughts may
intrude, for example, that the paint is toxic and the urge to wash ones
hands becomes increasingly persistent or the thoughts may centre on
indecision and imperfection and so on and on... well you know the
scenario I have written about it often.
Distraction works best if the thoughts do not involve carrying out a
compulsion, for instance existential thoughts or GAD type thoughts. If
your thoughts are more of a general anxiety nature intensive distraction
is helpful and eases the powerful nature of such thoughts as your focus
upon them becomes less intense. Compartmentalisation of your thoughts
and activities seems impossible but it is worth a try to at least find
some time to yourself to do something creative or something that you
enjoy for this period of time and try to separate this from your OCD if
only for an hour or even for five minutes. Commit yourself to do
something that interests you, which absorbs your mind and distracts from
the turmoil within. If you can do this, it is well worth the effort, it
will make you feel that you do have some portion of your life to
yourself wherein you have achieved something satisfying.
February 2nd.
The following is a link to
a new OCD website by Kirk Stacey and Susan Goater, The School of OCD, it
features the graphics drawn by Kirk which you may have seen in the
Gallery. This site is an excellent educational tool to help parents,
teachers, guardians and anyone involved in education to teach children
about OCD.
This website is well worth
a visit even if you are not involved with children or education. The
website is a fine example of what can be achieved by someone with OCD.
The School of OCD
THE SCHOOL OF OCD
February 3rd
It is once again the time
of year when the slaughter of hundreds of thousands of baby seals will
once again take place in Canada. Please read the segments below from the
International Fund for Animal Welfare IFAW
newsletter. To take action click the link below.
Please Note: Similar
actions can be taken by residents of a number of other countries. Links
to similar campaigns in other countries can also be accessed by clicking
the link below. Icons of other countries will appear at the top of the
IFAWs' webpage
"Another cruel seal hunt is quickly
approaching in Canada and hundreds of thousands of young seals will be
slaughtered this spring. Is it really possible to stop this annual
tragedy which continues year after year despite being economically and
environmentally unjustified?"
"IFAW continues to push for a national
ban on all harp and hooded seal products in the UK. It is crucial that
the Minister for Trade, Ian McCartney, takes decisive and strong action
on this matter before the next seal hunt this March.
The Department of Trade and Industry is currently discussing the best
way to extend the current EU import ban, but such a ban could take up to
five years to implement at the EU level.
Please tell the UK government that we must follow Belgium and pass a
national UK ban on seal products now! This
will help to strengthen the case for an EU-wide ban and will also send a
clear message to Canada that the British people want nothing to do with
this hunt or its products."
Please consider writing to your MP there is a template form you can fill
in by clicking the link above. However many MPs will may not respond to
a form and in which case a letter is better but if you cannot cope with
this please send the
e-mail form. In either case it is also better to edit the form letter to
make it your own by adding some of your own personal comments however again if this
is not possible please just fill in the form and send either the
template e-mail or letter.
February 5th
When I first stared this website someone with OCD whom I knew
personally suggested in a round about way that it was probably not a
good idea to give out help and advice, which is incidentally not the
purpose of my website, or to write about OCD in the way that I do beyond
my own personal experiences. However I have always stated quite clearly
that I am only a sufferer of OCD not a mental health professional. I may
not have the official expertise in the form of a degree or indeed any
expertise in mental health issues other than from the perspective of a
sufferer however this does not mean I cannot have an opinion or write
about any mental health issue any less so than any other writer does on
any subject. Such as a journalist doing an article about any heath problem
for instance. And look how any articles are written about health matters
by journalists who have no real qualification to do so other than by the
some total of their research on these conditions, which for the most
part cannot even include knowledge from a personal perspective.
Furthermore we are all fumbling in the dark concerning mental health and
indeed many other health issues even if some professionals in the field
of medicine think that they have all the answers and decry the ideas of
others and esteem themselves to be virtually infallible in their
opinions.
Consider that perhaps medieval doctors most likely thought the same way
when they used leaches to heal, even to heal blood loss! I image that
these doctors defended this cure-all just as vigorously as many doctors
do today the medication they hand out or the procedures that they
administer. Such modern treatments are of course revolutionary and have
saved many lives and improved the quality of life for many, myself
included; without Diclofenac for instance for my migraine my life would
not be worth living. Since this sudden escalation in migraine in recent
weeks from two each week to four or five I would be in a state of
agonising hell without this medication. As those of you know who have
read my blog I live in fear of being without this medication if for some
reason or another it was not available. Moreover neither I nor my son
would be alive today if it where not for modern medical science, my son
had appendicitis when he was younger, and because of birth problems I would
have likely died having my son and if I had survived I would most
assuredly have died during the tragic circumstances of my daughter's
birth, she was sadly still born but all was done to save her. So
modern medicine has been a life saver and enhancer but there is always
room for new ideas particularly when it comes to mental health. And it
is time other ideas where put to the test and we should not always
accept the current ideas as infallible or the only method of treatment
as such can become so outdated, as for instance Freudian psychology. At
the present time CBT in combination with medication is the accepted
treatment for OCD and this is very effective indeed for most people but
one should keep an open mind. Not everyone can tolerate medication but
should not be daunted as CBT alone is still very effective. Keep in mind
that twenty or more years ago when I was in hospital with my OCD I was
not allowed any medication at all, I was told I needed to face the
obsessions and compulsions with desensitisation therapy alone without
the aid of medication. So opinions and practices change and this is
progress of course but it is rather dogmatic to insist that the latest
cure all is infallible.
We are all stumbling in the dark irrespective as to whether or not
we have a degree in the lasted theory concerning mental health. Bear in
mind that we
know more about the universe that we do about the brain. It
is my opinion and has been for longer than I care to recall that mental
health is a neurological problem rather than purely psychological, which
in the case of OCD arises from a genetic predisposition, only its degree
and outcome are determined by circumstances: its course and nature
are determined to some extent by up bring and social and cultural
influences. Personally I believe that all mental health issues arise
from a neurological predisposition and are biological due to chemical
imbalances or irregularities in brain structure, as is the case for more
accepted neurological condtions such as for instance epilepsy, rather
than psychological. For example anorexia nervosa, which I believe is
related to OCD and is a genetic condition and which results from a
different mix of the genes which bring about OCD. The occurrence of this
disorder may appear more prevalent to day as a result of the fashion to
be thin but perhaps it is only our awareness of this condition that has
increased rather than the prevalence of the condition itself. It may
appear that fashion is the cause of this disorder but if that was the
case than all young people particularly fashion models would develop
anorexia nervosa. This is clearly not the case, fashion is merely a
catalyst for those with a predisposition to develop anorexia nervosa and
other eating disorders and many with this predisposition go on to be
fashion models. My sister was a middle aged women when she was admitted
to a day hospital to treat her anorexia nervosa, fashion was not the
motivation behind her disorder which began in her mid thirties after
putting on weight resulting from medication and comfort eating as a
result of the depression of being confined to the house with
agoraphobia. These where most likely the catalysts rather than the cause
of my sister’s full blown anorexia as there were indications in early
life that my sister had problems with her relationship with food, the
predisposition to have an eating disorder was mostly likely obvious had
the attention to such been as prevalent as it is today. The obsession
for thinness in the modern era is merely a catalyst not the course.
A genetic link to anorexia
An external link to an interesting article by Toni DeAngelis:
"Researchers have discovered biological evidence of a genetic
underpinning to anorexia nervosa: genetic linkage on chromosome 1 for
the complex psychiatric disorder".
In medieval times religion was the catalyst for such disorders for example St Catherine of
sienna
Anorexia and the Holiness of St Catherine of Siena by Reda & Sacco
An external link to an
interesting
article
There follows two external links to
articles concerning the mounting evidence that OCD is a genetic condtion
"Now, new research is
shedding new light on one of the genetic factors that may contribute to
that pattern. And while no one gene "causes" OCD, the research is
helping scientists confirm the importance of a particular gene that has
been suspected to play a major role in OCD's development. "
read the complete
article:
New Genetic Findings Add To Understanding Of OCD
See also the following
research article
A genetic contribution to obsessive compulsive disorder
Often I feel somewhat
uncomfortable writing about mental health issues such as the comments
above or for example the article about hypochondria and the one I am in
the throes of writing concerning agoraphobia. But this is the great
thing about the internet everyone can have his or her say. After all
said and done it is we who suffer from these disorders and no matter how
many BAs' PhDs or doctorates, professorships or whatever it is only
those of us who suffer that really know what it is like to experience
the grinding misery of any disease of the mind. From my perspective as a
tormented sufferer, I know that such a pervasive and powerful condition
such as OCD cannot arise solely as a
result of ones upbringing or tragic circumstances. Such an idea is in my
opinion idiotic to the extreme.
February 7th
The way
to deal with superstition is not to be polite to it, but to tackle
it with all arms, and so rout it, cripple it, and make it forever
infamous and ridiculous. Is it, perchance, cherished by persons who
should know better?
H.L.
Mencken,
There is really no two ways about it OCD is a miserable, debilitating,
pervasive overwhelmingly bloody awful condition from which to suffer. No
matter how often I tell myself that this week somehow it will be
different and that somehow I will find some relief and live a normal life
some how it just does not work out. I do not wish to be pessimistic and
this entry is a vent. I am angry and depressed at the continual
onslaught of OCD. This morning I woke after another night of headaches
and fear, fear that for the sixth time in eight days I have another
migraine. At the least I have a bad headache. I ache all over
particularly in my shoulders and neck, my legs feel weak and I have an
ache in the legion of my bladder and last but not least my OCD is
driving me crazy.
I woke at 2.30 I had to return to sleep resting my head on a hot
water bottle to alleviate the pain if not the fear of yet another
headache. It is at this time too early to rise but knowing that if I
fall asleep I will wake feeling even worse than I do now. Finally
falling asleep I did not get any peace from OCD, it even came in my
dreams presenting as an over responsibility anxiety about someone who
had had her refrigerator break down and all the frozen food had gone
soft. It was like waking reality, my anxiety that I needed to tell this
person that she must not refreeze her melted frozen food was so real,
the thought pattern exactly the same. The attempts to ignore such a
compulsion where as futile as waking reality along with the anxiety of
reminding this person of this fact knowing that the person knew
perfectly well that she should not do this. When I awoke I was confused
for an instant so real was the dream. There were other similar dreams of
which I am too anxious to explain and which have long term effects and
will cause worrying ruminations. Consequently today I feel as though for
me there is never any peace of mind from OCD the obsessions and
compulsions are continually morphing from one thing to another but never
entirely relinquishing the previous obsession but rather expanding the
periphery of its influence completely enmeshing my entire life with such
incapacitating complexity that I feel that there are few aspects of my
life that OCD does not
effect.
Sometimes I do not question the situation and follow where OCD leads
even when the thinking process behind it become complex and intricate.
So much energy is expended trying to live round OCD that it is now
habitual to handle this problem by avoidance or skirting round the issue
or entirely giving in to the obsessions and compulsions. Even my
attempts at trying to rationalise my thoughts and the compulsions which
follow them have become in themselves compulsive. As a consequence no
amount of self talk makes the least difference, no logic brings reason
to the situation. Fear is the motivator, it overrides reason and logic:
here is an example of a complex OCD issue and my attempts to extricate
myself from it; my failed endeavour at logic and rationalisation.
Before Christmas I borrowed a book from the library. Before doing so I
had checked that it did not have the number of chapters of my feared
superstitious unlucky number which as I have previously stated I cannot
at this time write here, but it is a very familiar unlucky number - at
least here in the west. The book did not have this number of chapters at
least that was my impression: I am okay if this chapter is included but
worry if this number is the some total of chapters. It however was
divided in sections with individual chapters in each section. Now this
was very complicated OCD wise. The first section finished at chapter
number eight. So that was okay but than I had to count all the chapters
from the beginning to make sure I did not leave the book book-marked on
the chapter of this unlucky number even though in the new section the
numbers continued from one. This got more complex as the next section
contained more than the number of this unlucky number so I had to be
mindful of this as well so there were two chapters in this section which
I needed to make sure I did not leave the book book-marked in this one
section. Moreover I was anxious to leave the book marked on the previous
or following chapter. So it was a mind boggling misery except my mind
instead of trying to ignore these compulsions instead tried habitually
with no insight into what I was doing, not questioning it's absurdity, to
find ways of working round it to avoid the anxiety that would other wise
be caused. I had to work out a time when I could read all
three chapters
in one go in both these instances where this unlucky number was
involved. Complicated. I bet I have lost you now and you are wondering
what the hell all this rambling is about. It is not easy to explain but
I am sure you get the idea at the very least that some really complex
neurotic thinking is taking place here. To add to the problem pages of
course could not be left book-marked on this unlucky number either. Whilst
reading I had to be aware of these obsessions and careful not to
accidentally get on to any of these chapters or pages before I had time
to read through them all uninterrupted for one sitting. Not any easy
task and I wondered if it was worth bothering. However I do not like to
give in to OCD all the time and if I cannot challenge and ignore the
obsessions I try to work round them rather than abandoning the task, at
least when it comes to reading, my art and may activities on the
computer. Beside if I left this book unfinished with this unlucky number
association this in itself might be unlucky. A rather complex OCD issue
the kind that adds real misery, the extent of which is not easy to
relate to others.
The book was divided into three sections and when I finally arrived at
the last section I hoped that I would now be able to read the rest of
this book unencumbered by OCD superstitious obsessions. But to my
profound disappointment this was not the case. With shocked disbelief I
realised that the some total of the chapters for this final section was
the unlucky number. Now there presents a dilemma an increasing common
problem for sufferer's of OCD when obsessions and compulsions collide and
are at variance or at the least convoluting complex. I had never before
been presented with this dilemma as I am mostly careful to check for
such occurrences, but somehow I overlooked this, had I not I would not have borrowed
the book from the library. Reading this section would be like reading a
book with this number of chapters, something I would not attempt because
of the superstitious fear associated with this number greatly
exaggerated by OCD. However to leave this book without completing it
would be like leaving a book with this number of chapters again unlucky
- at least according to the dictates of my OCD. So here I am dammed if I
do dammed if I do not. It would take some considerable time and much
anxiety to read all these chapters in one go and finding sufficient time
is difficult. However if I returned the book I would also feel anxious
that I had somehow precipitated the likelihood of problems arising, the
precise nature of which is unclear but some disastrous occurrence, with
this unlucky number. So there is a dilemma, much mental anguish is
expended. By now I have lost interest in the book, forgotten the
characters and lost the plot... in more ways than one. Sorry about the
pun
I try to handle this problem by rationalisation. I reminded myself of
advice from a psychologist years ago when I told him about this OCD
problem with this number particularly as it relates to reading. (However
keep in mind this problem with this unlucky number presents in all
aspects of my life when this number is involved as for instance in the
example with my scanner described in an earlier entry). He bought my
attention to the fact that an author must have spent some time on this
chapter and of course the two proceeding in the course of writing a
book. He or she probably spent a number of days on this chapter. Also
many books consist only of this number of chapters. The authors most
likely gave this little consideration. There is even an OCD book with
this number of chapters which I admit did surprise me rather as of
course superstitious anxiety over this number is common. I have never
read this book. I have also considered that many TV series have this
number of episodes, in fact a recent series which I followed had this
number and I did not realise this until half way through but continued
watching. But somehow this was easier albeit not easy, perhaps it is
knowing that other family members are doing likewise. There was some
uneasiness and if the series is on DVD I would hesitate to buy it but
there
is no logic to OCD. This superstitious obsession presents in all
aspects of life, oftentimes when I am not even aware of the occurrence
of this number, however reading and writing and certain activities on the
computer are more problematic, mainly because for the most part the
association is obvious, so there is no consistence concerning this
number generally speaking. I do try to tell self that I watched many
series with this number of episodes moreover like the books the writers
and producers and indeed everyone involved right down to the destructors had had contact with this unlucky number. But sadly even
with this self talk none of this logic makes the slightest difference
and the dilemma continues. I have renewed the book twice and some how
something has to give, I either ignore this anxiety concerning this
number, an anxiety that is of long duration and is entrenched and would
consequently be difficult or I read the dam book out of the way.
OCD is a complex misery of interwoven compulsions motivated by
powerful obsessions that defy logic or reason and after a while
such attempts at rationalisation become ruminative as over and over they
are considered, rehashed, readdressed, looked at from all angles and
perspectives but still the obsessions retain power despite such
reasoning. In the end you either face the fear and ignore the obsession
and compulsion despite the intrusive chattering in you mind or you
concede defeat and give in to the dictates of OCD. All this effects my
enjoyment of reading, it is major problem it needs addressing. Reading
is a distraction, a respite, an escape as is my work on the computer but
it is a distraction that still is riddled with OCD problems which present a
continual battle for my mind.
O
superstition! Your inflexible rigours deprive humanity of the most
sensitive hearts.
Voltaire
February 8th
Now for something more
positive. Some weeks ago I recommended this great website for a positive
perspective:
CharityFocus: Helping Others Help Others
a voluntary organisation which provides volunteer opportunities for
anyone who wants them. When you are depressed it is all too easy to
think that the world is an hostile place and that everyone in it is no
good, that everyone is selfish, greedy and uncaring. Here are two
segments of Charity Focus's quote-a-day service that prove the contrary;
Charity Focus sends to subscribers one good news story each day. Click the two links below which will take you to two recent articles
about two extraordinarily selfless people. There is an opportunity for
you to subscribe.
DailyGood: A 17-year-old's Life-saving Breakthrough
DailyGood: Mother To 40 Special Children
February
9th
I am having a dreadful time right now with a dramatic and very scary
increase in my migraine. This last week I had four migraine headaches
and suffered with significant tension headaches. I am at my wits end to
know what to do. I have to see a doctor in a few days time. I may not be
able to update this blog on quite such a regular basis as I once did as
I am...well so anxious about this latest decline in my health that I am
more wary of over doing it. I have problems with my neck and shoulders
which might exacerbate the problem with headaches and migraine. Moreover
writing is very stressful for reasons I have explained here before in
some detail which not only stresses me in a psychological way but also
in a physical way as I tense up my muscles because of anxiety, partially
my shoulder and neck muscles, and this of course is not helpful and even
may be the course of this sudden and dramatic increase. The occurrence
of two to six migraines each month is considered debilitating and I am
getting so far for the last four weeks about 16, so you can understand my
concern. Some of these attacks are on consecutive days. This is in
addition to OCD and the fibromyalgia like symptoms which have
incidentally also increased. I am at my wits end and see the need for a
more sensible approach to my use of the computer and to curb my
hyper-graphical renditions which have become compulsive in themselves but
not in an OCD way, more of an addictive way. I will endeavour to include
one or two entries a week but must desist from doing much else at least
until I can get this problem under control.
Please if anyone has any suggestions or is in a similar position
please contact me.
February 10th
I can't stop thinking
about the plight of the poor dog mentioned in a previous entry. Today
again we were in the area and drove by. It was a bitterly cold day the
poor thing was crouched right at the end of the barrel whimpering it
broke my heart. We tried to find a local number to ring and get
something done about this problem as we have not heard from the RSPCA.
The local tourist information, the only place we could think of going for
local information gave us a telephone number which we did not notice was
the same national number we had telephoned previously rather than a
local number. So there was confusion there. I could not explain the
location on the phone I was asked for an exact address, the street
number even the name of the owner of the dog. I could give none of these
except the name of the house, the nearest tiny village and the nearest
main road, it is a farm situated down a one track road right in the
middle of nowhere. I got rather irate with the person on the phone,
after a lot or wrangling, I even offered to send photos and a map,
he did not accept this offer but he finally said he would look into it
and all this not realising I was reporting this to the same place I had
previously made the report. I had a violent headace, a migraine and was
not thinking at all properly. I sent a letter complete with photos to
the local RSPCA office rather than to
the people I had spoken with on the phone so I really messed up. I have
to hope that the RSPCA will do something but it is three days and I have
heard nothing, I would have thought that the office I had sent the
information too would have telephoned me to find out about what the
letter was all about as of course I had not spoken to them and as a
consequence they would have no reference. I made the original
report before Christmas.
Now I am concerned about
phoning to explain as of course this may make matters even more
complicated as I am not very adept at social interaction and get in a
hopeless muddle. I am anxious that they may think it is a crank call.
I am worried about this
dog if anyone knows of anything else I can do to get this animal some
help I would appreciate your suggestions please.
February 11th
Over the weekend I received an e-mail from a publisher in response to
my submitting my memoir.
Demons of the
Mind: A memoir of an Obsessive-Compulsive.
I had read a similar
memoir published by this publisher but not concerning OCD and despite
the fact that I had been turned down by every possible publisher in the UK who would
consider this type of autobiography, I gave some consideration that they
may be interested in my memoir. However, despite such hope borne no
doubt of wishful thinking as is the case with most instances of
unrealistic expectation, I was certain that they would not be interested
for a number of reasons. Firstly because my autobiography has been
available on the internet now for two and half years. Secondly because
it is very long, very rambling and most likely not grammatically
correct and I am not in a position, mostly due to lack of ability but
also due to health issues, to edit it or improve on it. Mind you I
would imagine that few who write such memoirs, and that of course
includes other types of autobiography such as celebrity memoirs, have
writing abilities comparable with a professional writer. Thirdly it
simply is not the type of memoir that gets into print i.e wrote in a more modern style,
much shorter in length and
with a successful conclusion as the sufferer recovers from his or her
condition, which of course is not the case for me. Not that there is
anything wrong with such a book as both sides of this disorder need to
be understood. OCD is a very very painful illness, a pervasive life
destroying illnesses, a devastating condition listed as number eight in
the world Health Organisation's list of most debilitating illnesses. So
there needs to be presented a more detailed account and the other reality, namely: not everyone improves or learns to
cope or goes on to have a full life.
I was frank in, my letter to the publisher explaining the matters
above, I included a link to my website and explained that I had long
since given up submitting my book proposal and had published it as a
free e-book on the Internet. I explained my health problems which would
prevent me from editing the book or re-writing it.
I had submitted it only because I had a read number of books
published by this publisher by people with no more to offer in the way
or writing skills than I and only because I had recently read an
autobiography of a similar type, although not about OCD. Despite all the
possibilities that it was not suitable I expected a more personal
response from a publisher which published books related to medical
conditions mostly mental health and neurological. Instead I received the
most basic of form letters, a standard response not really relevant to
my submission. Is it that much to ask for a personal response even if it
is a rejection. I have had some very nice personal and sympathetic
letters from larger publishers than this, from publishers who most
likely had less knowledge concerning this type of disorder.
Yes I am disappointed. Life seems rather like a lottery and one’s
successes in such endeavours as writing or art is simply by luck.
Without appearing to boast I consider my memoir, despite all its
rambling, its rather staid old fashioned style and grammatical errors as
far more informative, more detailed than some of the books published by
this publisher. However informing the public, helping people who suffer
with these conditions is of course not the main priority of anyone in
the field of publishing, rather it is profit and obviously my memoir is not considered profitable
despite the fact that 1 percent of the population suffer with OCD. However it could
simply be that it was not suitable for publication because it has been
published here on the internet for so long and I was not able to edit it
to a more acceptable length but if that was the case
could they not have written and told me. Not much to ask is it.
Sounds like sour grapes I know but it is disappointing and I needed
to vent. I am grateful though for the internet, at least I get to have
my say and tell the story of my difficult life unimpeded by any other
motivations other than to inform in the hope that others my benefit by
my doing so.
February 12th
It is said that animals have no emotions. Anyone who has close
contact with animals knows this is simply not true. Look at this sheep
doesn't she look depressed.
Yes misery and suffering are a part of life for every creature, man
is not alone in suffering. The suffering of farm animals haunts me on
days such as today. The sight of such a dejected creature brings a
pang of sadness and I wonder if she is ill. I make a mental note to
check to see if she is still there when we pass this way again when we
return home. She lifts her head to watch as we stop to take the
photograph but soon returns to the position you see above with
disinterest.
Read the shocking facts about how farm animals are treated
in the UK click this link
Viva! - Vegetarians International Voice for Animals. For this
reason I am a lactose free vegetarian.
Today is one of the wettest and most miserable of days and
here we are once again in the Yorkshire Dales trying to make the most
out of a thoroughly depressing dreary day. My husband, trying to jolly me
along says he likes it wild and woolly, yes so do I, but today is simply
damp wet and soggy. Besides the awareness of the misery of sheep
and other creatures always overshadows our trips here. Such awareness
accentuates my depression, such thoughts concerning suffering are never
far away and even if I did not have OCD such awareness of suffering will
always make me feel depressed to some degree.
We stop for coffee and a plate of chips a habit now which is not
ideal but like all habits once began is difficult to break, as indeed is
the adherence to habitual routines. Our lack of flexibility to break our
practice of going out on certain days as a matter of routine even when
such days are not really suitable is a problem of which I have mentioned
before and today is most certainly one of those days that would have
been better spent elsewhere, coming here when the weather was more
favourable. I am always anxious about entering public places such as
this tea room even though we have been before. I am stressed out wanting
to get it over with but resisting this we walk round the village for a
while in the drizzling rain.
Just before we decide to go in three cars pull up and six people,
three couples of retirement age, get out and go in the cafe . My heart
sinks I don't like it when such places are overcrowded. Social
interaction is becoming a huge problem. I hesitate but we decide to go
in as I simply have nothing to eat and fear another migraine if I go
hungry. However apart from this group the tea room is empty. They order only drinks so there is no anxiety about a long wait for the only
waitress to take and fill orders. But I am anxious always now, it is a
natural state of being. I look at this group they are all so similar,
middle class early retirees, all in good health or at least it appears
that way but of course you can never be sure. They are an easily
recognised group rather like a subculture, like for instance, Goths with
their own style of dress, similar interests, it is a natural
segregation. I remark to my husband how people naturally associate
themselves with like people. In this group there would be no place for a
disabled person, there is no one overweight or a
person such as myself who would be unable to join in the conversation.
There is no one struggling on a basic pension, I might be wrong but with
remarks like "everyone is now buying 4x4s" remaining unchallenged
as though such is usual, is a good indicator because for
people in their circle, people who have had a similar lifestyle, such a
remark would not be challenged. I watch them observing how they
interact. Yes most definitely there would be no place for anyone with a
social interaction problem. I imagined myself sitting there as part of
this group quietly not taking part in the conversation that passed
between these people with such ease, natural ease. None appeared to be
sitting there habitually swaying from side to side slightly as is my
habit often when I am tense trying to feign normality, trying to work out
when to smile, when to speak and most importantly what to speak about.
Social anxiety would be an alien concept to this group. As they left in separate cars having decided the route for a walk in
a nearby village I could not for an instance imagine myself as part of
such a group as I have too many anxieties and needs that would not be
filled, such as the constant need to find a toilet or to avoid dogs or
anxieties about contamination, hand washing episodes and all the other anxieties that set
people like me apart from others.
My sister once remarked that people do not socialise with others who
cannot do what they wish to do, for instance on one wants to go out for
meal with someone who is too afraid to eat anything other than salad or
who might have a panic attack in a crowded store and wish to return
home, which was the case with my sister who was anorexic and suffered
with agoraphobia and panic disorder. It
is bad enough having one's life torn part by disability without finding
oneself naturally deselected from normal society; often the disabled of
all types find themselves on the periphery of society, a ghetto of similar people.
Often however this is natural with no
premeditated intention, it just happens. Throughout my life in the few
times I have had friends or acquaintances if there is no neurosis or
other kind of similar disability the friendship naturally dies and I
tend with few exception to gravitate to similar types of people often
not realising it, at least initially.
My husband would not fit in either we are all three of us including
my son just unable to participate in groups of people, one to one is
difficult enough but interaction with groups is something I have never
been capable of even without the addition of OCD and all the other
problems that make going out at times rather a trail of endurance.
On the way back I checked to see if the sheep was still there, she and
the rest of the flock had presumably moved on over the hills. I hope she
is okay
February 18th
An opportunity for those of you living in the UK to
vote to ban the trade in seal products. If there is no market for seal
products the slaughter will stop. The following is a section from the
IFAW's (International Fund for Animal Welfare) campaign newsletter
concerning the campaign to get the government to ban the import of seal
products.
Please Click on any of the links below to vote in favour of the ban.
Please vote it will only take a few minutes and may make all the
difference.
You can help put the seal hunt on the political agenda.
"Canada’s commercial seal hunt is the largest slaughter of marine
mammals in the world. Over one million baby seals as young as three
weeks old have been killed in the last three years.
Seal pups suffer agonising deaths in this senseless slaughter just to
supply non-essential luxury fur items for markets across the world,
including in the UK. All veterinary reports on the hunt have documented
the unacceptable levels of cruelty.
UK politicians must take strong action. At present only the import of
skins and furs from newborn seals is banned in Britain. Harp seals can
be killed and their fur imported to the UK when they start to shed their
distinctive white coats - usually at just 12 days of age. By stopping
the trade in seal products, UK politicians can help end this cruel hunt.
Tell politicians to end this cruel trade
In order to help decide which issues go into the Labour Party
manifesto at the next general election, the Labour Party is inviting
members of the public to vote for the campaigns they believe in the
most.
The campaigns with the most votes will be presented to the leadership
of the Labour party. To voice your support for a total ban on seal
derived products in the UK,
click here to cast your vote on IFAW's campaign page on the Labour site.
With the Labour Party currently in power your comments will also help
influence the Government’s policy on this issue,
so
please vote for IFAW’s campaign now.
Thank you for your support. Only with the help of people like you can we
maintain the political pressure to end the trade in seal products."
February 20th
The root of all superstition is that men observe when a thing
hits, but not when it misses.
Francis Bacon
Whist we were walking past the pub in the village my husband remarks
that the pub has xx number of guest rooms, xx representing my unlucky
number, the one that is involved in my OCD, which I at this time cannot
write down and have anxiety confronting, particularly when it comes to
reading,
see February 7th. entry above.
Now this pub has probably had this number of guest rooms for a long time
at least I would imagine a decade or so, it is most likely the optimum
number of rooms for maximum profit that will fit into the space
available. It is an old pub so it has been altered and expanded into
small hotel. Now the idea that this number was considered unlucky may
have monetarily entered the mind of the owner as this number is a well
known unlucky number with which most are familiar, but he or she of
course did not give any serious consideration to reduce the room numbers
to exclude this number which of course would not make good business
sense. I doubt now that the owner gives it a thought.
You would think wouldn't you that logic, my common sense would
prevail here for me in the same way because my problems with this number
have quite an impact on my life. Particularly, as I have already mentioned,
my reading, a pastime which I once enjoyed but which now can be
difficult and at certain times impossible with books I have bought have
never being read or abandoned because of my anxiety with any association with
this number. I try to reason this out by noting such occurrences of this
number as the one here today which I have never noticed before and other
incidences as they crop up. Such as someone who won a huge amount of
money betting on horses in an accumulative bet involving this number of
horses all of which obviously won their respective races. Someone
mentioned the Apollo space mission and the disastrous circumstances of Appollo xx
and yes I have often considered this memorable event when I have been
trying to rationalise my behaviours concerning this number. Such attemps
at rationalisation as I have said before eventually become in themselves
more of an OCD ruminative process rather than a therapeutic attempt to
get past this obsession by the consideration of a more reasonable
rationale. At first it appears that the Apollo event
substantiates the
validity concerning my fear of this number and its detrimental effect,
but as my son once pointed out the crew of this space craft arrived home
safely in the end. Furthermore if you where to select any number and see
how it occurs in lucky and unlucky events you will probably just as
easily be able to site instances of each occurrence both positive and
negative. To the logical
rational mind there is no such thing as lucky or unlucky, it is
superstition and as the above quotation states we are only aware of such
when we have hits and misses as the case my be. Basically common sense
tells us this but superstition is a powerful fear inducing concept, even
from time to time the most logical of people pay heed to it albeit
subconsciously, because such fears seem so ingrained, embedded in our
thinking. Superstitious fears appear as though they are innate, they
have been with man right from the beginning whenever that was or however we
came into being, another ramble for another rumination another time
perhaps I will not digress here. Concerning this number whenever I try
to rationalise this the thought comes concerning an old saying that xx
is lucky for some but unlucky for others, such a thought borne of a
stupid ignorant saying, goodness knows how many centuries old, mitigates
with in moments any comfort derived from thinking about positive
connections with this number. Yes I really get angst about such
stupidity on the part of people who should know better than to give
credence to such nonsense as I consider that for them, without the
addtion of OCD, to have no excuse other than unintelligence to give real
consideration to such beliefs. And believe me people do and without any
insight, rationale or analysis whatsoever
Here we are in the twenty first century with amazing technology which
would look like magic to those who lived in times past yet despite all
our progress and our knowledge we are still fearful, filled with
superstitious dread or at the very least tinged with such inherent
dread. However for many with OCD it is an even greater dread as OCD
exaggerates this as it does with other compulsions such as contamination
concerns. After all everyone washes his or her hands and is
concerned and more aware of the importance of hygiene but again the OCD
sufferer takes this to exaggerated lengths. Likewise most people have
superstitious quirks, touching wood for instance but it is the degree
that is the important. All OCD behaviours are exaggerated fears and
behaviours that others have. The problem arises from the degree and the
amount of time OCD consumes and this includes the time that your
thoughts are involved in your fears, obsessions and compulsions, it is
the impact that such has upon your life that determines a diagnosis of
this disorder, which as I have said before is member eight on the WHO's
most incapacitating illnesses list
I notice my husband just reads through a book not even noticing this
number even though his attention is often drown to it through my
complaining about this obsession, which has been throughout my OCD
afflicted life a real bane, an obsession and compulsion that despite
several attempts to eradicate remains steadfast. My son likewise gives
this number no second thought and he too has obsessive-compulsive
behaviours as a part of his Aspergers syndrome. Indeed most people do
not give it a second thought and neither did I before the event of full
blown OCD. So why why why cannot I get past this. The obsession and
compulsions, the compulsions are of course the avoidance of this number,
is not so far, touch wood ( yes I did that just now whilst I was writing
this I did this, touching the wood of my chair), widespread; it does not
present in every facet of my life. I do have some association with this
number in some instances but always here is the anxiety. However the
main problems are reading and to some extent my activities on the
computer. Maybe this is because these activities are important to me.
Anyone noticed how OCD seems to know, almost as
though it has a life of
it’s own, which are the most important areas of your life to intrude
upon with its obsessive thoughts and compulsive behaviours.
February 25th
I am on new prophylactic medication for my migraine, so far this
medication seems to be doing nothing, and my doctor is to look at all
the symptoms from which I suffer and which I think at this juncture may
be either fibromyalgia or somatization disorder; if they really want to
consider that such is psychological rather than physical I would at
least like the diagnosis of the latter disorder taken into
consideration. Naturally though as a sufferer of hypochondria the
possibility of a more serious condition in terms of life threatening
illnesses worries me, such as the possibility of MS. My son seems
incredulous:" You haven't got MS " he says with genuine disbelief. "Well
some one has to have it", I say . "Hypochondriacs get real illnesses
don't they?" Perhaps I have ME. You haven't got that either he
remarks somewhat surprised even though I have talked about the
possibilty of fibromyalgia more times that I care to mention, which of
course is similar to ME (also called chronic fatigue syndrome) but with
pain. I of course hope I am wrong I have worried about all sorts of
illnesses throughout my entire life, the most common of course being
cancer, which is a typical hypochondriac's most ruminated upon illness
I would imagine. I have tried to ignore my hypochondriacal fears, this
is not the reason I now consult my doctor. I am not looking for
reassurance. I have genuine symptoms and they are getting worse and
increasingly more incapacitating and I need to know why, if of course
that is possible. Doctors are not infallible though and I don't expect
miracles but I would really feel so much better with some kind of label
even somatization disorder which is as good as saying it is all in the
mind as this condtion is of course a psychosomatic disorder.
My migraine continues to get worse and I am now getting one every
other day and sometimes more often with one turning up at about thirty
six hours after the previous attack despite my new medication and I am
really scared and worried to death as I need to be able to cut this down
before I am getting them everyday. My life at this juncture can only be
described as a nightmare from hell.
Isn’t it enough my life has been taken away from me by my OCD, an
incapacitating disorder in its own right without chronic daily headache
and migraine not to mention the fibromyalgia like symptoms: until a
formal diagnosis I will refer to this undiagnosed cluster of symptoms as
fibromyalgia. I really need a diagnosis for this otherwise people
continue to think if it is all in your mind that it is not a real
illness. It is rather like when you are pregnant and you are being as
sick as a dog every day and people keep telling you that pregnancy is
not an illness, as if to imply that despite the fact that you feel sick
twenty four/seven and you are throwing up several times each day, that
because it is not an illness that it really is not that big a deal, and
you are therefore making a fuss over nothing, and consequently you
receive little compassion, sympathy or help. It is rather like that
isn’t it when you have a number of illnesses with no diagnosis ,you
really cannot get the help and support you need because no one
recognises that despite not having a formal diagnosis you are in fact
really ill. Most support groups require you to have a formal
diagnosis, so do research programmes and most certainly to get help from
the NHS specially for Fibromyalgia you need a diagnosis. Without a
diagnosis I may be left barking up the wrong tree trying to find a
solution for a condition I may not have while one that I do have is
getting progressively worse despite all my best efforts. It is the same
situation with Aspergers syndrome; I think I may have Aspergers syndrome
or at least ADD as there are some similarities between the two. I have
not yet approached my doctor concerning this possibility although now I
regret this but consultations are difficult. I had to write it all down
for my last visit otherwise I would never have been able to have
explained my situation. The length of this account was considerable and
I felt that a request for an assessment would be overwhelming for my
doctor, and at that time as I needed to have my migraine treated as
first priority.
So I have not set out so far to get a diagnosis except for that
rather irate conversation with a psychiatrist who was dismissive telling
me the NHS in any case only treat the primary condition, which of course
is utter nonsense. Again without a diagnosis I cannot get support for my
condition which, if I have either of these naturally impacts upon my OCD
as they accentuate one another. This I have noticed now that I am aware
of the existence and nature of AS, a genetic condition that my son has
been diagnosed with. I have to use the word condition here when
referring to AS because many people with AS do not see it as a disorder,
more a different way of being. However there are many negative aspects
of AS that can make your life difficult, social isolation and hyper
sensory sensitivity to name two which present the most problems for me.
It is more complicated of course and I am in the throes of preparing one
of my long convoluted rambling articles concerning the subject of
co-morbid conditions and how they impact on the primary condition and
also my in-depth reasons why I think I may have AS and my theory that AS
and other autism spectrum disorders are related to OCD.
Again without a diagnosis, which is difficult for a child to get many
having to wait as long as two years for doctors to arrive at this
conclusion let alone a mature, very mature fast getting old adult, I
cannot get support. To imply that at my age it does not matter amounts
to saying my life is over and is now of no worth. Not that anyone has
said this, but sometimes I consider that this will be the reaction, and
as I say my psychiatrist would not discuss it and I as usual was tongue
tired which of course highlights my whole point does it not concerning
the need for a diagnosis and understanding concerning the complex
interplay of my conditions.
Not only is this frustrating and depressing but again I cannot get
support without a formal diagnosis or feel secure in my mind one way or
the other. I believe that each persons problems need to be address
holistically and this cannot happen without a diagnosis. And beside
quite simply I just want a label for the many issues that have effected
me that remain unexplained. For instance OCD does not address my social
interaction problems, as social interaction difficulties and the
consequent social anxiety is not a symptom of OCD. Neither does social
phobia fit the problem I have with socialising, no it more closely fits
a diagnosis of AS but not entirely which is why I need to know one way
or another.
*
I will endeavour to reply to all e-mail, however please bear in mind
that I have a number of quite debilitating illnesses and there may be
times when there will be considerable delay. Also I will not
publish anyone's comments, as appears to be the procedure
with blogs, without permission of the author : If you would like me to
publish your comments please indicate clearly at the end of your e-mail.
All comments are welcome
including polite constructive criticism and difference of opinion.
However I reserve the right not to publish anything that I consider
would be offensive or in any way of detriment to anyone particularly
those who sufferer with the illnesses included on this web site.

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